Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Sherry My Mom was put on Seroquel for hallucinations. For her it was the wrong drug, but I have read that it has helped others. They ended up putting her on Resperdal which is a no no drug but it was needed at the time and it was a small dose. I have weaned her off the Resperdal now. She is having some hallucinations but not like they were before. Now they are small childred and she can take that. Before they were all kinds of people who had plants and weired things coming out of their eyes and noses. At one time she thought they were trying to kill her. Anyway, maybe Seroquel is the right drug for your LO. JUST be careful and watch closely. Hugs Jacqui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Hi Sherry: Your mom sounds like my dad in many ways. There are always extra people around, although at times they vanish and he wonders where the heck they all went. He is on Seroquel, which works fairly well for him, although there are still people that don't belong there. The hallucinations aren't generally disturbing, although sometimes his wife is someone named Dave. I think that when he looks at her when he's like this, he actually sees a man. Then when she 'switches' back, he gets mad at her, thinks it's her fault. His wife also gets the brunt of his meanness when he's having a 'spell.' Among other things, he has said that she's a liar and a thief, that's he's being 'incarcerated' and she's the leader of the jailers. Other times he's just in the wrong time - thinks that my mom (who he has been divorced from for 14 years) is going to catch him with his current wife. A common phrase for him is " I gotta get outta here, " for whatever the reason of the day is, he also wants to escape. He always feels really awful about it when he finds out what he said or did. Fortunately the LBD is his only serious problem - he doesn't have any Parkinson's symptoms, no problems with personal hygiene or anything like that. Hang in there, KD > > Hi > Question?? > Last time I posted I mentioned that Mom's nurologist found out about > LBD from a conference at the Mayo Clinic. So I checked into it and we > finally got an appointment for mom to be seen at the clinic. I > received messages that we were lucky that mom was seeing a > Nurologist.. What type and who are the doctors that your LO are > seeing???? Isn't there a special clinic or study group for this > disease... > > Question?? > I saw a special on Night Terrors with children. When my mom has these > weird spells and gets terrified it is as if she is still asleep but > walking and talking and recounting to me verbatem of what she saw and > what was happening to her but with a blank stare on her face. Then a > while later when she seems coherent she tries to explain what was > happening and it comes out all disjointed it reminded me of how these > kids looked when they were experiencing the Night Terrors?? Anybody > relate?? On the special they said to led the child go to sleep for > about 20 minutes or so and then wake them up fully and then let them > go back to sleep...???? > > Question??? > What is the cause of death with this disease??? > > Now Lifes day to day.... > Tried the Oxybutalan with the Sinemet.. Better bladder control but > more halluciantions of more people all the time now. > > She is now trying to escape..Also accusing Dad of having affairs and > other women in the house. The other day.... > Dad thought she was a sleep in the early morning he then got a call > from the neighbors that she was over at their home in her night > gown. She was trying to escape she said. Told them that Dad and > another man dressed in suits were trying to kill her and was > poisining her.. When Dad got their she would only go back if the > neighbors walked her home. > > Dad is so sad he is trying so hard to take care of her and it is > heartbreaking as you all know when the LO starts accusing you of > these awful things. When she is cognitive she is so sorry...And very > sad herself...She just can't figure out what is happening... > > Stopped the Oxybutalan rather have the incotinence problems than the > extreme behaviour problems.But I have a feeling that from now on > there doesn't seem to be anything out there that really helps with > the hallucinations. Or what is the next drug that we should try? Any > suggestions. > My sympathys to all of you who have been going through this for such > a long period and thanks for all your information. > Thanks for being there > Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 hi sherry this is sharon m i will try to relate my answers to your questions. but you must understand that every lbd patient reacts differently so taht is what makes it so difficult for them adn for us. my dad is seeing a neurologist for the lbd, as this is iun their realm of treatment, he is alos seeing a family md who specializes in geriatrics (elder care) my dad adores him and he is so good to both dad and i. dad also sees a urologist once a year to follow up on some bladder cysts he has but he is just monitoriuig dad. second you asked about medicines. my dad is taking exelon he started at 1.5 mg twice a day, and is now getting ready to go to the max dosage of 6 mg twice a day, it was taken in 4 steps with 6 weeks before increasing the dosages. next we will add namenda accordiung to our neurologist, dad alos takes zoloft for anxiety and this was recently increased to 100mg. he takes a regular aspirin adn a diuertic/bp medicine. my dad is still with us so i cannot comment about cause of death, but from what my neuro tells us, usally complications like pneuomonia or sometype of infection which are difficult to treat beacuse lbd patients have adverse reactioins to so many medications. oh dad sees his md every 3-4 months and his neuro every 6-8 weeks. his neuro speaks with dad and then alos speaks with me because dad answers the questions incorrectly often, i do not correct him i just wait until the dr ackknowledges me adn then tell him my input. i understand how upset your dad is, my dad went thru a stage for about 8 months where is was called hookers, whores, thief, accused of stealing from him, accused of trying to kiill him, etc. the exelon has seemed to help with this part of him, he is still going down hill but at a slower rate, before may dad was able to walk with assistance, in may he was hosp while searching for a diagnosis and came home with a walker and soon he will be in a wheel chair, he is unable to walk without assistance his gait is very unsteady and he cannot walk. talk at same time. dad literrly has a one task mind, whatever task he is doint he cannot be interrupted or he will not be able to complete it, very sad becasue m y dad was a helicopter pilot for the military for 23 or more years and he is very intelligent. he has difficulty getting his pills in his own mouth, he tries but frequently misses. it is sad to see his decline. try to tell your dad to apprecaite the goodtimes they have once in a while and to try to remember that is lbd talking the talk and making her do this unuusual things, someone once said maybe they are trying to run from their confusion that seemed logical to me. take care and hugs to you both, sharon m a smile a day keeps the meanies away!!! laughter is a breath of fresh air! Quote Link to comment Share on other sites More sharing options...
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