Re: Has LDN halted your MS?

[Guest guest]

In a message dated 7/12/2005 1:49:06 PM Central Daylight Time, julespalaia@... writes:

HI all,

I'm just looking for a little unofficial info. I was recently diagnosed with RRMS my first symptoms about 10years ago. The anecdotal evidence seems overwhelming that LDN improves MS symptoms, but how sure are we that it halts progression of MS lesions. If you have MRIs that show halting, please let me know. Also if you have MRIs showing otherwise.I'm just trying to make a decision about where to go from here. Thanks so much for your time

Jules

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Jules,

MS lesions can come and go with or without LDN, but it does seem that with LDN it is more likely to see no new lesions or disappearing of lesions. Myself, I had a MRI in Jan '05. The last one to compare to was taken in '99. My neuro did say that he would have expected the new one to be much worse than it was. I'll know more when I have my next one. That will be two years on LDN.

My advice: go for it!!

Marcie

[Guest guest]

Jules, I also just completed 2yrs on LDN. Was progressing rapidly on Rebif and decided to take matters in my own hands. Only regret is that I did not start LDN sooner. Quit Rebif July1,2003, started LDN July 4th 2003 and have remained exactly the same. No MRI's because I stopped going to neuros. Most only allow you to have MRI's if your condition has changed ,and mine hasn't.

I did not get much symptom relief, most came from the Rebif termination. I do know that the progression stopped. Kiki

[Guest guest]

Yes, I have just One brain lesion and took LDN for 5 months and got an

MRI just recently and my lesion is Inactive. It was active last summer

when I got the MRI. I have had symptoms for 10 years with the last two

progressing rapidly. I had all the classic lesion symptoms. Bad Pain

all over, numbness from head to toe, cognitive dysfunction, memory

problems, unbalance, heat sensitivities, pins sticking in me all over

sensation when hot, Extreme Fatigue, shocking all over head and neck,

bugs crawling in hair sensation, no motivation. I didn'[t feel like

myself at all and now I feel Normal again. I like being able to think

again too.

I find that taking LDN in liquid method works best for me and I take

4.5mgs. The liquid way is where I got energy from and it was

immediately after I change in June this year. Been on LDN since Dec.

17, 2004 and I took the crushed Revia way at first and got pain relief

and unbalance went away. I started in winter so I wasn't having the

heat problems but it's hot here now and I have no heat problems.

I got my Revia from Mexico and told my neuro about it and it prescribed

with no problem. I will be trying the generic soon and will post if it

works like the liquid Revia. Ingredients seem the same so should.

I wouldn't hesitate starting LDN and would start ASAP!! Goodluck!!

Rhonda

> HI all,

> I'm just looking for a little unofficial info. I was recently

diagnosed with RRMS my first symptoms about 10years ago. The anecdotal

evidence seems overwhelming that LDN improves MS symptoms, but how sure

are we that it halts progression of MS lesions. If you have MRIs that

show halting, please let me know. Also if you have MRIs showing

otherwise.I'm just trying to make a decision about where to go from

here. Thanks so much for your time

> Jules

>

>

> ---------------------------------

> Sell on Auctions - No fees. Bid on great items.

[Guest guest]

> HI all,

> I'm just looking for a little unofficial info. I was recently diagnosed with

RRMS my first symptoms about 10years ago. The anecdotal evidence seems

overwhelming that LDN improves MS symptoms, but how sure are we that it halts

progression of MS lesions. If you have MRIs that show halting, please let me

know. Also if you have MRIs showing otherwise.I'm just trying to make a decision

about where to go from here. Thanks so much for your time

> Jules

>============

The only time my neuro does MRI's on me is if I'm progressing and I'm no longer

progressing on LDN, so no MRI's in 2 years. My type of MS was not a candidate

for the FDA approved MS meds anyway and I think that may have played in my favor

my not ever taking them and when I started LDN my immune system was not so

severely suppressed by the FDA approved MS drugs and LDN could work better in my

system. Here's what I posted on this forum yesterday.

Posted: July 11, 2005

Today's my 2 year anniversary on LDN.

4.5mg LDN with lactose filler from Cantrell Drug Co. in Little Rock, Arkansas,

Wagner Pharmacist.

I " WAS " a Chronic Progressive MS'er for 14 straight years before LDN. Since LDN

I have had absolutely NO disease worsening/progression, that was 2 years ago

today.

I also tested borderline Positive for Lupus once and Positive or Lupus twice so

if I have Lupus also the LDN has halted that too.

[Guest guest]

Hi Jules,

My husband has had very good luck with symptom relief. Fatigue, coordination and balance (fine and large motor skills) and bladder frequency are gone. He still has on and off tingling and numbness in some areas.

He had a follow up MRI after 4 months on LDN. He just had a tiny additional spot on his brain. The spot may have been there before. He is wanting to wait another 6 months before his next MRI.

Thanks

Aletha

Re: [low dose naltrexone] Has LDN halted your MS?

In a message dated 7/12/2005 1:49:06 PM Central Daylight Time, julespalaia@... writes:

HI all, I'm just looking for a little unofficial info. I was recently diagnosed with RRMS my first symptoms about 10years ago. The anecdotal evidence seems overwhelming that LDN improves MS symptoms, but how sure are we that it halts progression of MS lesions. If you have MRIs that show halting, please let me know. Also if you have MRIs showing otherwise.I'm just trying to make a decision about where to go from here. Thanks so much for your time Jules +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Jules, MS lesions can come and go with or without LDN, but it does seem that with LDN it is more likely to see no new lesions or disappearing of lesions. Myself, I had a MRI in Jan '05. The last one to compare to was taken in '99. My neuro did say that he would have expected the new one to be much worse than it was. I'll know more when I have my next one. That will be two years on LDN. My advice: go for it!! Marcie

[Guest guest]

i have had two lesions from my right frontal parietal lobe completely disappear. i feel it is a combination of LDN and other things i'm doing. kathy

[low dose naltrexone] Has LDN halted your MS?

HI all,

I'm just looking for a little unofficial info. I was recently diagnosed with RRMS my first symptoms about 10years ago. The anecdotal evidence seems overwhelming that LDN improves MS symptoms, but how sure are we that it halts progression of MS lesions. If you have MRIs that show halting, please let me know. Also if you have MRIs showing otherwise.I'm just trying to make a decision about where to go from here. Thanks so much for your time

Jules

Sell on Auctions - No fees. Bid on great items.

[Guest guest]

Hi Jules,

My husband is also RRMS and when we first heard about LDN we started researching but we didn't know about this site at first. In the meantime he suffered a large exacerbation from which he has still not fully recovered. We wish he had started LDN immediately! He started taking LDN last June and has not had another flare of any kind and his balance is better and he doesn't have to run all night to the bathroom. Whether MRIs show lesions halting or not, the exacerbations have stopped, and nothing else can claim to do that!

Terria

Oregon, USA

On Tue, 12 Jul 2005 11:47:55 -0700 (PDT) Palaia <julespalaia@...> writes:

HI all,

I'm just looking for a little unofficial info. I was recently diagnosed with RRMS my first symptoms about 10years ago. The anecdotal evidence seems overwhelming that LDN improves MS symptoms, but how sure are we that it halts progression of MS lesions. If you have MRIs that show halting, please let me know. Also if you have MRIs showing otherwise.I'm just trying to make a decision about where to go from here. Thanks so much for your time

Jules

[Guest guest]

, I see Dr. Bihari. He renews it for me. I am sorry that I was not clear on that point. I assumed most on this site knew this. Sorry. Kiki

[Guest guest]

Jules,

2 years on LDN this month. No other drugs...ever.

Thankfully, no progression.

Regards,

Tom

Re: [low dose naltrexone] Has LDN halted your MS?

Jules, I also just completed 2yrs on LDN. Was progressing rapidly on Rebif and decided to take matters in my own hands. Only regret is that I did not start LDN sooner. Quit Rebif July1,2003, started LDN July 4th 2003 and have remained exactly the same. No MRI's because I stopped going to neuros. Most only allow you to have MRI's if your condition has changed ,and mine hasn't.

I did not get much symptom relief, most came from the Rebif termination. I do know that the progression stopped. Kiki

[Guest guest]

I'm not trying to be rude here but, there is just as

much proof of how LDN works, as there is of all the

other CRAB drugs doing the work that they are supposed

to do........Also just for info reasons Avonex,

beta-seron, and rebif all require blood tests to check

your liver enzymes (amongst other tests) If you have

any kind of liver disease it is not reccommended that

you take those drugs.....in which case, the copaxone

is the choice. Then there is Neurontin....BVT (bee

venom therapy) and chemo, and a slew of other

drugs/medications that are used. I hope the info is

usefull for you.

--- Palaia <julespalaia@...> wrote:

> HI all,

> I'm just looking for a little unofficial info. I

> was recently diagnosed with RRMS my first symptoms

> about 10years ago. The anecdotal evidence seems

> overwhelming that LDN improves MS symptoms, but how

> sure are we that it halts progression of MS lesions.

> If you have MRIs that show halting, please let me

> know. Also if you have MRIs showing otherwise.I'm

> just trying to make a decision about where to go

> from here. Thanks so much for your time

> Jules

>

>

> ---------------------------------

> Sell on Auctions - No fees. Bid on great

items.

__________________________________________________

[Guest guest]

In a message dated 7/16/2005 12:01:40 PM Central Daylight Time, inspiredfe@... writes:

Btw, I'm not posting for my wife because she's incapable. I "discovered" LDN for us and wore down her and her neurologist over the course of 3 years until finally one visit the doc said he had already started 4 other patients on it and all were improving. Technical research and sharing findings with others is something I enjoy and that I enjoy doing for her. It isn't her cup of tea.

Wesley

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Wesley,

Thanks for a great post. I'll be anxious to see my next MRI in Jan '06! Very encouraging!

Marcie

[Guest guest]

I just joined the group yesterday and don't have the original post of

this thread by Palaia. In response to her, this is fwiw, strictly

unofficial, anecdotal info. My wife is RRMS also for almost 8 years,

symptoms possibly preceding diagnosis by 5 years. She started LDN

almost 13 months ago after unhappy bouts with beta-seron and copaxone

over the years. A very scary lesion high on her spinal cord developed

during the 3 years she was on copaxone. She stopped copaxone at the

same time as starting LDN. There have been 2 MRIs since. Each has

shown significant DECREASE in size in said lesion in her neck and all

lesions in her brain of significant size compared to the MRI just

previous, as in 2 consecutive decreases in lesion size, not just one.

Hope this helps. It has changed our lives beyond any scope words can

describe and continues to do so.

Btw, I'm not posting for my wife because she's incapable. I

" discovered " LDN for us and wore down her and her neurologist over the

course of 3 years until finally one visit the doc said he had already

started 4 other patients on it and all were improving. Technical

research and sharing findings with others is something I enjoy and that

I enjoy doing for her. It isn't her cup of tea.

Wesley

Not clear why apparently isn't showing my name on this group.

wensu baki wrote:

> I'm not trying to be rude here but, there is just as

> much proof of how LDN works, as there is of all the

> other CRAB drugs doing the work that they are supposed

> to do........Also just for info reasons Avonex,

> beta-seron, and rebif all require blood tests to check

> your liver enzymes (amongst other tests) If you have

> any kind of liver disease it is not reccommended that

> you take those drugs.....in which case, the copaxone

> is the choice. Then there is Neurontin....BVT (bee

> venom therapy) and chemo, and a slew of other

> drugs/medications that are used. I hope the info is

> usefull for you.

>

>

>

> --- Palaia <julespalaia@...> wrote:

>

> > HI all,

> > I'm just looking for a little unofficial info. I

> > was recently diagnosed with RRMS my first symptoms

> > about 10years ago. The anecdotal evidence seems

> > overwhelming that LDN improves MS symptoms, but how

> > sure are we that it halts progression of MS lesions.

> > If you have MRIs that show halting, please let me

> > know. Also if you have MRIs showing otherwise.I'm

> > just trying to make a decision about where to go

> > from here. Thanks so much for your time

> > Jules

> >

> >

> > ---------------------------------

> > Sell on Auctions - No fees. Bid on great

> items.

>

>

> __________________________________________________

>

[Guest guest]

Forgot to mention, takes 4.5 mg every night, no skipping of

nights. We're very careful to time her dose 2 hours before sleeping.

Also, narcotics negate the effects. She has a script for oxycontin

which she uses on rare occasion. She was prone to intense migraine

and/or stress headaches before MS and still gets those infrequently. If

she wants to take oxycontin (slow release) she takes it 12 hours before

the usual LDN time. For, oxycodone (instant release), at least 6 hours

before. If this isn't desirable, she skips the dose of LDN. LDN is an

opiate inhibitor and combining it with opiates negates the effects of

both. The narcotic interaction isn't mentioned on all LDN related web

sites.

wensu baki wrote:

> I'm not trying to be rude here but, there is just as

> much proof of how LDN works, as there is of all the

> other CRAB drugs doing the work that they are supposed

> to do........Also just for info reasons Avonex,

> beta-seron, and rebif all require blood tests to check

> your liver enzymes (amongst other tests) If you have

> any kind of liver disease it is not reccommended that

> you take those drugs.....in which case, the copaxone

> is the choice. Then there is Neurontin....BVT (bee

> venom therapy) and chemo, and a slew of other

> drugs/medications that are used. I hope the info is

> usefull for you.

>

>

>

> --- Palaia <julespalaia@...> wrote:

>

> > HI all,

> > I'm just looking for a little unofficial info. I

> > was recently diagnosed with RRMS my first symptoms

> > about 10years ago. The anecdotal evidence seems

> > overwhelming that LDN improves MS symptoms, but how

> > sure are we that it halts progression of MS lesions.

> > If you have MRIs that show halting, please let me

> > know. Also if you have MRIs showing otherwise.I'm

> > just trying to make a decision about where to go

> > from here. Thanks so much for your time

> > Jules

> >

> >

> > ---------------------------------

> > Sell on Auctions - No fees. Bid on great

> items.

>

>

> __________________________________________________

>

[Guest guest]

that may be true but LDN IS FAR LESS TOXIC to your body and we all want to be as healthy as possible. I don't like taking unnecessary risks although I have compassion for people who chose the CRABS because their exacerbations were so extreme they were afraid. I am against them but my ms came in a much milder form so I had the advantage of not operating from fear. Best Wishes, Kathy

Re: [low dose naltrexone] Has LDN halted your MS?

I'm not trying to be rude here but, there is just asmuch proof of how LDN works, as there is of all theother CRAB drugs doing the work that they are supposedto do........Also just for info reasons Avonex,beta-seron, and rebif all require blood tests to checkyour liver enzymes (amongst other tests) If you haveany kind of liver disease it is not reccommended thatyou take those drugs.....in which case, the copaxoneis the choice. Then there is Neurontin....BVT (beevenom therapy) and chemo, and a slew of otherdrugs/medications that are used. I hope the info isusefull for you.--- Palaia <julespalaia@...> wrote:> HI all,> I'm just looking for a little unofficial info. I> was recently diagnosed with RRMS my first symptoms> about 10years ago. The anecdotal evidence seems> overwhelming that LDN improves MS symptoms, but how> sure are we that it halts progression of MS lesions.> If you have MRIs that show halting, please let me> know. Also if you have MRIs showing otherwise.I'm> just trying to make a decision about where to go> from here. Thanks so much for your time> Jules> > > ---------------------------------> Sell on Auctions - No fees. Bid on greatitems.__________________________________________________

[Guest guest]

Maybe you can help me. I have found out I have herniations probably due to my lifting, etc. It got so bad after 2 months, I reluctantly started Darvocett until I could get physical therapy approved by my insurance. I had to go through the gamut of tests, etc. It took time. Bottom line- I stopped LDN two weeks ago because I was afraid to take them together. Last night after stopping the darvocett for 24 hours, I resumed LDN. I felt flushes and got numbness for a few seconds several times. Today it is hard for me to type as I have a tremor which I haven't had in 3 years. Does anyone think this is just my bodiesway of repairing itself in a reverse manner? you know the transient old symptoms returning thing ? I'm not real concerned but I was afraid to take both meds in the same day. I really want to try and stay as natural as possible. Thanks in advance for anyone's thoughts on this matter. , if you are around, I would really appreciate your opinion as well. God Bless, Kathy

Re: [low dose naltrexone] Has LDN halted your MS?

Forgot to mention, takes 4.5 mg every night, no skipping of nights. We're very careful to time her dose 2 hours before sleeping. Also, narcotics negate the effects. She has a script for oxycontin which she uses on rare occasion. She was prone to intense migraine and/or stress headaches before MS and still gets those infrequently. If she wants to take oxycontin (slow release) she takes it 12 hours before the usual LDN time. For, oxycodone (instant release), at least 6 hours before. If this isn't desirable, she skips the dose of LDN. LDN is an opiate inhibitor and combining it with opiates negates the effects of both. The narcotic interaction isn't mentioned on all LDN related web sites.wensu baki wrote:> I'm not trying to be rude here but, there is just as> much proof of how LDN works, as there is of all the> other CRAB drugs doing the work that they are supposed> to do........Also just for info reasons Avonex,> beta-seron, and rebif all require blood tests to check> your liver enzymes (amongst other tests) If you have> any kind of liver disease it is not reccommended that> you take those drugs.....in which case, the copaxone> is the choice. Then there is Neurontin....BVT (bee> venom therapy) and chemo, and a slew of other> drugs/medications that are used. I hope the info is> usefull for you.>> >> --- Palaia <julespalaia@...> wrote:>> > HI all,> > I'm just looking for a little unofficial info. I> > was recently diagnosed with RRMS my first symptoms> > about 10years ago. The anecdotal evidence seems> > overwhelming that LDN improves MS symptoms, but how> > sure are we that it halts progression of MS lesions.> > If you have MRIs that show halting, please let me> > know. Also if you have MRIs showing otherwise.I'm> > just trying to make a decision about where to go> > from here. Thanks so much for your time> > Jules> >> > > > ---------------------------------> > Sell on Auctions - No fees. Bid on great> items.>>> __________________________________________________>

[Guest guest]

I'm not a doctor. We have no experience with darvon, but the Merck

index does call it a narcotic. doesn't take narcotics after 4:00,

planning to take naltrexone at 10:00, sleep at 12:00. The two drugs

blocking each other is the only interaction of which I'm aware.

has taken oxycodone and naltrexone on the same day 20+ times with no ill

effects. We have also seen what seemed to be " healing " in the form of

symptoms. Sorry I can't be of more help.

kathy lintzenich wrote:

> Maybe you can help me. I have found out I have herniations probably

> due to my lifting, etc. It got so bad after 2 months, I reluctantly

> started Darvocett until I could get physical therapy approved by my

> insurance. I had to go through the gamut of tests, etc. It took time.

> Bottom line- I stopped LDN two weeks ago because I was afraid to take

> them together. Last night after stopping the darvocett for 24 hours, I

> resumed LDN. I felt flushes and got numbness for a few seconds several

> times. Today it is hard for me to type as I have a tremor which I

> haven't had in 3 years. Does anyone think this is just my bodiesway of

> repairing itself in a reverse manner? you know the transient old

> symptoms returning thing ? I'm not real concerned but I was afraid to

> take both meds in the same day. I really want to try and stay as

> natural as possible. Thanks in advance for anyone's thoughts on this

> matter. , if you are around, I would really appreciate your

> opinion as well. God Bless, Kathy

>

> Re: [low dose naltrexone] Has LDN halted your MS?

>

> Forgot to mention, takes 4.5 mg every night, no skipping of

> nights. We're very careful to time her dose 2 hours before

> sleeping.

> Also, narcotics negate the effects. She has a script for oxycontin

> which she uses on rare occasion. She was prone to intense migraine

> and/or stress headaches before MS and still gets those

> infrequently. If

> she wants to take oxycontin (slow release) she takes it 12 hours

> before

> the usual LDN time. For, oxycodone (instant release), at least 6

> hours

> before. If this isn't desirable, she skips the dose of LDN. LDN

> is an

> opiate inhibitor and combining it with opiates negates the effects of

> both. The narcotic interaction isn't mentioned on all LDN related

> web

> sites.

>

> wensu baki wrote:

>

> > I'm not trying to be rude here but, there is just as

> > much proof of how LDN works, as there is of all the

> > other CRAB drugs doing the work that they are supposed

> > to do........Also just for info reasons Avonex,

> > beta-seron, and rebif all require blood tests to check

> > your liver enzymes (amongst other tests) If you have

> > any kind of liver disease it is not reccommended that

> > you take those drugs.....in which case, the copaxone

> > is the choice. Then there is Neurontin....BVT (bee

> > venom therapy) and chemo, and a slew of other

> > drugs/medications that are used. I hope the info is

> > usefull for you.

> >

> >

> >

> > --- Palaia <julespalaia@...> wrote:

> >

> > > HI all,

> > > I'm just looking for a little unofficial info. I

> > > was recently diagnosed with RRMS my first symptoms

> > > about 10years ago. The anecdotal evidence seems

> > > overwhelming that LDN improves MS symptoms, but how

> > > sure are we that it halts progression of MS lesions.

> > > If you have MRIs that show halting, please let me

> > > know. Also if you have MRIs showing otherwise.I'm

> > > just trying to make a decision about where to go

> > > from here. Thanks so much for your time

> > > Jules

> > >

> > >

> > > ---------------------------------

> > > Sell on Auctions - No fees. Bid on great

> > items.

> >

> >

> > __________________________________________________

> >

[Guest guest]

I think it is totally wonderful you do this for your wife. Emotional support is very important in the management of any dis-ease and you are also showing her and the world just how much you love her. Kathy

Re: [low dose naltrexone] Has LDN halted your MS?

In a message dated 7/16/2005 12:01:40 PM Central Daylight Time, inspiredfe@... writes:

Btw, I'm not posting for my wife because she's incapable. I "discovered" LDN for us and wore down her and her neurologist over the course of 3 years until finally one visit the doc said he had already started 4 other patients on it and all were improving. Technical research and sharing findings with others is something I enjoy and that I enjoy doing for her. It isn't her cup of tea. Wesley +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Wesley, Thanks for a great post. I'll be anxious to see my next MRI in Jan '06! Very encouraging! Marcie

[Guest guest]

Re-read this and the first sentence doesn't come across right. It's

just a disclaimer to let all know I have no official medical

qualifications -- these are just opinions based on experience.

Wesley wrote:

> I'm not a doctor. We have no experience with darvon, but the Merck

> index does call it a narcotic. doesn't take narcotics after 4:00,

> planning to take naltrexone at 10:00, sleep at 12:00. The two drugs

> blocking each other is the only interaction of which I'm aware.

> has taken oxycodone and naltrexone on the same day 20+ times with no ill

> effects. We have also seen what seemed to be " healing " in the form of

> symptoms. Sorry I can't be of more help.

>

> kathy lintzenich wrote:

>

> > Maybe you can help me. I have found out I have herniations probably

> > due to my lifting, etc. It got so bad after 2 months, I reluctantly

> > started Darvocett until I could get physical therapy approved by my

> > insurance. I had to go through the gamut of tests, etc. It took time.

> > Bottom line- I stopped LDN two weeks ago because I was afraid to take

> > them together. Last night after stopping the darvocett for 24 hours, I

> > resumed LDN. I felt flushes and got numbness for a few seconds several

> > times. Today it is hard for me to type as I have a tremor which I

> > haven't had in 3 years. Does anyone think this is just my bodiesway of

> > repairing itself in a reverse manner? you know the transient old

> > symptoms returning thing ? I'm not real concerned but I was afraid to

> > take both meds in the same day. I really want to try and stay as

> > natural as possible. Thanks in advance for anyone's thoughts on this

> > matter. , if you are around, I would really appreciate your

> > opinion as well. God Bless, Kathy

> >

> > Re: [low dose naltrexone] Has LDN halted your MS?

> >

> > Forgot to mention, takes 4.5 mg every night, no skipping of

> > nights. We're very careful to time her dose 2 hours before

> > sleeping.

> > Also, narcotics negate the effects. She has a script for oxycontin

> > which she uses on rare occasion. She was prone to intense migraine

> > and/or stress headaches before MS and still gets those

> > infrequently. If

> > she wants to take oxycontin (slow release) she takes it 12 hours

> > before

> > the usual LDN time. For, oxycodone (instant release), at least 6

> > hours

> > before. If this isn't desirable, she skips the dose of LDN. LDN

> > is an

> > opiate inhibitor and combining it with opiates negates the

> effects of

> > both. The narcotic interaction isn't mentioned on all LDN related

> > web

> > sites.

> >

> > wensu baki wrote:

> >

> > > I'm not trying to be rude here but, there is just as

> > > much proof of how LDN works, as there is of all the

> > > other CRAB drugs doing the work that they are supposed

> > > to do........Also just for info reasons Avonex,

> > > beta-seron, and rebif all require blood tests to check

> > > your liver enzymes (amongst other tests) If you have

> > > any kind of liver disease it is not reccommended that

> > > you take those drugs.....in which case, the copaxone

> > > is the choice. Then there is Neurontin....BVT (bee

> > > venom therapy) and chemo, and a slew of other

> > > drugs/medications that are used. I hope the info is

> > > usefull for you.

> > >

> > >

> > >

> > > --- Palaia <julespalaia@...> wrote:

> > >

> > > > HI all,

> > > > I'm just looking for a little unofficial info. I

> > > > was recently diagnosed with RRMS my first symptoms

> > > > about 10years ago. The anecdotal evidence seems

> > > > overwhelming that LDN improves MS symptoms, but how

> > > > sure are we that it halts progression of MS lesions.

> > > > If you have MRIs that show halting, please let me

> > > > know. Also if you have MRIs showing otherwise.I'm

> > > > just trying to make a decision about where to go

> > > > from here. Thanks so much for your time

> > > > Jules

> > > >

> > > >

> > > > ---------------------------------

> > > > Sell on Auctions - No fees. Bid on great

> > > items.

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

NO THAT DOES HELP. I JUST WANTED TO MAKE SURE I COULDN'T HURT MYSELF AND FROM WHAT YOU AND SKIP TOLD ME IT'S OK. HAS YOUR WIFE HAD GOOD RESULTS WHEN SHE HAS TO TAKE BOTH THE SAME DAY? THANKS SO MUCH, KATHY

Re: [low dose naltrexone] Has LDN halted your MS?>> Forgot to mention, takes 4.5 mg every night, no skipping of> nights. We're very careful to time her dose 2 hours before> sleeping. > Also, narcotics negate the effects. She has a script for oxycontin> which she uses on rare occasion. She was prone to intense migraine> and/or stress headaches before MS and still gets those> infrequently. If> she wants to take oxycontin (slow release) she takes it 12 hours> before> the usual LDN time. For, oxycodone (instant release), at least 6> hours> before. If this isn't desirable, she skips the dose of LDN. LDN> is an> opiate inhibitor and combining it with opiates negates the effects of> both. The narcotic interaction isn't mentioned on all LDN related> web> sites.>> wensu baki wrote:>> > I'm not trying to be rude here but, there is just as> > much proof of how LDN works, as there is of all the> > other CRAB drugs doing the work that they are supposed> > to do........Also just for info reasons Avonex,> > beta-seron, and rebif all require blood tests to check> > your liver enzymes (amongst other tests) If you have> > any kind of liver disease it is not reccommended that> > you take those drugs.....in which case, the copaxone> > is the choice. Then there is Neurontin....BVT (bee> > venom therapy) and chemo, and a slew of other> > drugs/medications that are used. I hope the info is> > usefull for you.> >> > > >> > --- Palaia <julespalaia@...> wrote:> >> > > HI all,> > > I'm just looking for a little unofficial info. I> > > was recently diagnosed with RRMS my first symptoms> > > about 10years ago. The anecdotal evidence seems> > > overwhelming that LDN improves MS symptoms, but how> > > sure are we that it halts progression of MS lesions.> > > If you have MRIs that show halting, please let me> > > know. Also if you have MRIs showing otherwise.I'm> > > just trying to make a decision about where to go> > > from here. Thanks so much for your time> > > Jules> > >> > > > > > ---------------------------------> > > Sell on Auctions - No fees. Bid on great> > items.> >> >> > __________________________________________________> >

[Guest guest]

No noticeable side effects and no apparent reduction in LDN

effectiveness so long as there's at least 6 hours after narcotic before

naltrexone. Very welcome.

kathy lintzenich wrote:

> NO THAT DOES HELP. I JUST WANTED TO MAKE SURE I COULDN'T HURT MYSELF

> AND FROM WHAT YOU AND SKIP TOLD ME IT'S OK. HAS YOUR WIFE HAD GOOD

> RESULTS WHEN SHE HAS TO TAKE BOTH THE SAME DAY? THANKS SO MUCH, KATHY

>

> Re: [low dose naltrexone] Has LDN halted your MS?

> >

> > Forgot to mention, takes 4.5 mg every night, no

> skipping of

> > nights. We're very careful to time her dose 2 hours before

> > sleeping.

> > Also, narcotics negate the effects. She has a script for

> oxycontin

> > which she uses on rare occasion. She was prone to intense

> migraine

> > and/or stress headaches before MS and still gets those

> > infrequently. If

> > she wants to take oxycontin (slow release) she takes it 12 hours

> > before

> > the usual LDN time. For, oxycodone (instant release), at

> least 6

> > hours

> > before. If this isn't desirable, she skips the dose of

> LDN. LDN

> > is an

> > opiate inhibitor and combining it with opiates negates the

> effects of

> > both. The narcotic interaction isn't mentioned on all LDN

> related

> > web

> > sites.

> >

> > wensu baki wrote:

> >

> > > I'm not trying to be rude here but, there is just as

> > > much proof of how LDN works, as there is of all the

> > > other CRAB drugs doing the work that they are supposed

> > > to do........Also just for info reasons Avonex,

> > > beta-seron, and rebif all require blood tests to check

> > > your liver enzymes (amongst other tests) If you have

> > > any kind of liver disease it is not reccommended that

> > > you take those drugs.....in which case, the copaxone

> > > is the choice. Then there is Neurontin....BVT (bee

> > > venom therapy) and chemo, and a slew of other

> > > drugs/medications that are used. I hope the info is

> > > usefull for you.

> > >

> > >

> > >

> > > --- Palaia <julespalaia@...> wrote:

> > >

> > > > HI all,

> > > > I'm just looking for a little unofficial info. I

> > > > was recently diagnosed with RRMS my first symptoms

> > > > about 10years ago. The anecdotal evidence seems

> > > > overwhelming that LDN improves MS symptoms, but how

> > > > sure are we that it halts progression of MS lesions.

> > > > If you have MRIs that show halting, please let me

> > > > know. Also if you have MRIs showing otherwise.I'm

> > > > just trying to make a decision about where to go

> > > > from here. Thanks so much for your time

> > > > Jules

> > > >

> > > >

> > > > ---------------------------------

> > > > Sell on Auctions - No fees. Bid on great

> > > items.

> > >

> > >

> > > __________________________________________________

> > >