Re: I LOVE MY NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[Guest guest]

THATS GREAT RHONDA!!!!!!

congrats!!!!!

Lynn

[low dose naltrexone] I LOVE MY

NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> Got my script and had no problem. Got the 3mgs and 1.5mgs and they

> faxed to Skip's for me. It'll be on its way Tues.

>

> I asked if he read the info I gave on LDN and he said he talked to

> another doc that goes to MS conferences and then said there's really

> no proof this works. I said here's your proof and 20years of Dr.

> Bihari using LDN and also tons of other people. I Said I'd be his

> proof and he could give LDN to other patients and help them. I

> didn't have to beg just told him what I wanted and the fax number

> for Skips. Told him if the avicel doesn't agree with me then he

> could prescribe the 50mgs and I could make my own without ordering

> from Mexico. He says with avicel it's more like a reflux thing and

> full feeling which doesn't sound so fun. He did noticed I had lost

> weight and I didn't think it was that noticealbe and I didn't

> mention it to him either so I've got to EAT more and may cut out the

> exercising until I can keep weight on. He said eat more protein and

> in my 20's I drank protein shakes to help keep weight on b/c of high

> metabolism and guess the LDN makes my metabolism high now. I told

> him before I felt like I could drop dead and now I feel like running

> in marathons. Told him extra benefits of libido in high gear. Got

> smiles from that one.

> He said come back in 4 months, and I said WHY, nothing is wrong

> anymore and I have it under control. He says then 6 months and then

> after that we will do a year. Geez, how they make their fast

> money. He said we will see if you lose more weight so I will work

> on gaining a couple pounds but don't really want to be 110, maybe

> 105 but some clothes are baggy on me and they are new clothes too. I

> hope the avicel agrees with me but if not, I have the Revia and if

> he prescribes that to me then all I have to pay is $25 or $40 co-pay

> instead of $110 from Mexico.

>

> I GOT MY LDN

> COMPOUNDED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

>

>

>

>

>

[Guest guest]

Thanks Lynn and I feel like I have closed a chapter in my life and

finished a mission! I think Raleigh Neurology will learn a lot from

me an I hope they will help other patients. I could have kissed my

neuro all over but I was a good girl!! Dr. Ferrell is at Raleigh

Neurology for anyone that is in the area. I remember there was

someone in Charlotte looking for a neuro to prescribe LDN, well Dr.

F will so go for it! and you can say Rhonda Rhonda Rhonda

Rhonda......

Rhonda

> THATS GREAT RHONDA!!!!!!

> congrats!!!!!

> Lynn

> [low dose naltrexone] I LOVE MY

>

NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

!

>

>

> > Got my script and had no problem. Got the 3mgs and 1.5mgs and

they

> > faxed to Skip's for me. It'll be on its way Tues.

> >

> > I asked if he read the info I gave on LDN and he said he talked

to

> > another doc that goes to MS conferences and then said there's

really

> > no proof this works. I said here's your proof and 20years of Dr.

> > Bihari using LDN and also tons of other people. I Said I'd be

his

> > proof and he could give LDN to other patients and help them. I

> > didn't have to beg just told him what I wanted and the fax number

> > for Skips. Told him if the avicel doesn't agree with me then he

> > could prescribe the 50mgs and I could make my own without

ordering

> > from Mexico. He says with avicel it's more like a reflux thing

and

> > full feeling which doesn't sound so fun. He did noticed I had

lost

> > weight and I didn't think it was that noticealbe and I didn't

> > mention it to him either so I've got to EAT more and may cut out

the

> > exercising until I can keep weight on. He said eat more protein

and

> > in my 20's I drank protein shakes to help keep weight on b/c of

high

> > metabolism and guess the LDN makes my metabolism high now. I

told

> > him before I felt like I could drop dead and now I feel like

running

> > in marathons. Told him extra benefits of libido in high gear.

Got

> > smiles from that one.

> > He said come back in 4 months, and I said WHY, nothing is wrong

> > anymore and I have it under control. He says then 6 months and

then

> > after that we will do a year. Geez, how they make their fast

> > money. He said we will see if you lose more weight so I will

work

> > on gaining a couple pounds but don't really want to be 110, maybe

> > 105 but some clothes are baggy on me and they are new clothes

too. I

> > hope the avicel agrees with me but if not, I have the Revia and

if

> > he prescribes that to me then all I have to pay is $25 or $40 co-

pay

> > instead of $110 from Mexico.

> >

> > I GOT MY LDN

> > COMPOUNDED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> >

> >

> >

> >

> >

> >

[Guest guest]

Go to www.ldninfo.org if you haven't already, and it will list near the bottom

the compounding pharmacies.. Skip is Dr. Skip and does compounding of

the ldn for a lot of us. Welcome aboard. I have two friends here (California)

who are investigating ldn for their fibro.

Jim (RRMS)

Re: [low dose naltrexone] I LOVE MY NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Hello........my wife and I are new to the list. My wife suffers from severe fibromyalgia. I am a physician. We've tried multiple products for the fibro to no avail. She is much worse now that Vioxx is off the market worldwide.

I've just come across this concept of low dose naltrexone. My question is this.......I'm seeing the word "Skip" on the posts frequently. To what does this refer??

Thanks........

[Guest guest]

Hmmm....per my last...I'm making a leap of faith that Skip IS referring to

Dr. Skip Lentz who is located in Boca Raton, Florida. That is where

I order from.

Jim

Re: [low dose naltrexone] I LOVE MY NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[Guest guest]

--- In low dose naltrexone , " " <Knittingdoc@a...>

wrote:

> Hello........my wife and I are new to the list. My wife suffers from severe

fibromyalgia. I am a physician. We've tried multiple products for the fibro to

no avail. She is much worse now that Vioxx is off the market worldwide.

>

> I've just come across this concept of low dose naltrexone. My question is

this.......I'm seeing the word " Skip " on the posts frequently. To what does this

refer??

>

> Thanks........

=========

,

Go to the LDN website and under the list of reliable compounding pharmacies you

will see Skip's pharmacy in Boca Raton, FL.

For Fibromyalgia your wife will need the full 4.5mg of LDN with either Lactose,

Acidophilus or Avicel as a filler. Stay away from cornstarch and Calcium

Carbonate as they've caused trouble many times in the past.

Also, type in your search engine " Brownwood Acres Red Tart Cherry Juice

Concentrate " . Get your wife either the juice or capsules. Follow the directions

on bottle.

[Guest guest]

Hi ,

Skip is a compounding pharmacist in Florida. He has been a strong advocate

of LDN since he noticed it was working so well for MS and other nero

disorders.

I have heard of others with fibromyalgia being interested in LDN, but have

not heard the stories through.

My husband has MS. LDN has been incredible for him. The day after he

started he lost his fatigue and worked full days since. His bladder

frequency went away soon after. His fine motor skills (holding a screw in

place and screwing it in) and his balance (playing basket ball) improved

dramatically. He still had depression, which finally went away a few months

later with another product. He also still has some numbness and tingling.

Best of luck to your wife

Aletha

[low dose naltrexone] Re: I LOVE MY

NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>

>> Hello........my wife and I are new to the list. My wife suffers from

>> severe fibromyalgia. I am a physician. We've tried multiple products for

>> the fibro to no avail. She is much worse now that Vioxx is off the market

>> worldwide.

>>

>> I've just come across this concept of low dose naltrexone. My question is

>> this.......I'm seeing the word " Skip " on the posts frequently. To what

>> does this refer??

>>

>> Thanks........

> =========

>

> ,

>

> Go to the LDN website and under the list of reliable compounding

> pharmacies you will see Skip's pharmacy in Boca Raton, FL.

>

> For Fibromyalgia your wife will need the full 4.5mg of LDN with either

> Lactose, Acidophilus or Avicel as a filler. Stay away from cornstarch and

> Calcium Carbonate as they've caused trouble many times in the past.

>

> Also, type in your search engine " Brownwood Acres Red Tart Cherry Juice

> Concentrate " . Get your wife either the juice or capsules. Follow the

> directions on bottle.

>

>

>

>

>

>

>

>

[Guest guest]

Hello to all. I am sorry for your wife.

I have MS and fibromyalgia, Looking to try the LDN when I go to my neuro on

Thurs.

I was devastated when I was diagnosed with fibromyalgia in '96, more pain on

rop of pain.

I was prescribed Ultram and Anaprox back then for the fibromyalgia. On my

own I tried Pro Energy

from Immune Support, $18.99 for one (180) $13.99 for two or more. Pro

Energy is Malic Acid and

Magnesium Glycinate, and it really works for me. I was amazed and tell

everyone who tells me they have fibromyalgia.

All my best, Margie

>From: " " <Knittingdoc@...>

>Reply-low dose naltrexone

><low dose naltrexone >

>Subject: Re: [low dose naltrexone] I LOVE MY

>NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>Date: Mon, 27 Jun 2005 19:30:12 -0700

>

>Hello........my wife and I are new to the list. My wife suffers from severe

>fibromyalgia. I am a physician. We've tried multiple products for the fibro

>to no avail. She is much worse now that Vioxx is off the market worldwide.

>

>I've just come across this concept of low dose naltrexone. My question is

>this.......I'm seeing the word " Skip " on the posts frequently. To what does

>this refer??

>

>Thanks........

[Guest guest]

> Hello........my wife and I are new to the list. My wife suffers from

severe fibromyalgia. I am a physician. We've tried multiple products

for the fibro to no avail. She is much worse now that Vioxx is off the

market worldwide.

>

> I've just come across this concept of low dose naltrexone. My

question is this.......I'm seeing the word " Skip " on the posts

frequently. To what does this refer??

>

> Thanks........

- a good friend of mine and my stepsister have recently started

using a juice called Xango (they both have FM) and are very happy with

the symptom relief (i.e. pain). Since I have MS, I can't speak from

experience but thought I'd pass this on. This juice is made from

mangosteen fruit and is a multi-level marketing item BUT I also found

it on ebay.

[Guest guest]

I take their multi vitamin for CFS and Fibro and has malic acid as

well as other things in it. I wondered about the Pro Energy but seem

to have gotten my energy back from the liquid LDN.

Rhonda

> Hello to all. I am sorry for your wife.

> I have MS and fibromyalgia, Looking to try the LDN when I go to my

neuro on

> Thurs.

> I was devastated when I was diagnosed with fibromyalgia in '96,

more pain on

> rop of pain.

> I was prescribed Ultram and Anaprox back then for the

fibromyalgia. On my

> own I tried Pro Energy

> from Immune Support, $18.99 for one (180) $13.99 for two or more.

Pro

> Energy is Malic Acid and

> Magnesium Glycinate, and it really works for me. I was amazed and

tell

> everyone who tells me they have fibromyalgia.

> All my best, Margie

>

> >From: " " <Knittingdoc@a...>

> >Reply-low dose naltrexone

> ><low dose naltrexone >

> >Subject: Re: [low dose naltrexone] I LOVE MY

>

>NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

!

> >Date: Mon, 27 Jun 2005 19:30:12 -0700

> >

> >Hello........my wife and I are new to the list. My wife suffers

from severe

> >fibromyalgia. I am a physician. We've tried multiple products for

the fibro

> >to no avail. She is much worse now that Vioxx is off the market

worldwide.

> >

> >I've just come across this concept of low dose naltrexone. My

question is

> >this.......I'm seeing the word " Skip " on the posts frequently. To

what does

> >this refer??

> >

> >Thanks........

[Guest guest]

Hi Rhonda and everyone. Let me clarify a little, the name of the product is

Pro Energy, but I imagine it is just the name for I never did get any energy

from the product. However, it did alleviate the fibro pain and allowed me

to sleep better. When I orignally researched fibro back then, I discovered

that insomnia might be a catalyst for the fibro pain. I guess that the

neurological pain did not allow me to sleep, and then the lack of sleep

pushed me into the fibromyalgia.

The MS neurological pain is totally different, and no pescription drug takes

that away.

I am looking forward to trying LDN as it just might help me and I am willing

to try.

I am going to tell my neuro to try it on me, then maybe his other patients

as well as others here on the island. Right now I am really homebound

because I used to feel motion sickness in a car, but now I feel like dizzy

and off balance all of the time. Together with the myriad of other symptoms

that worsen when I go to the outside world it is not good. I do consider

myself fortunate and blessed though, because I have been worse and there are

many others who suffer much more than I do. I pray for all sick and

suffering people and animals.

All my best, Margie

>From: " Rhonda " <rhondaleokitty@...>

>Reply-low dose naltrexone

>low dose naltrexone

>Subject: [low dose naltrexone] Re: I LOVE MY

>NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>Date: Wed, 29 Jun 2005 17:42:42 -0000

>

>I take their multi vitamin for CFS and Fibro and has malic acid as

>well as other things in it. I wondered about the Pro Energy but seem

>to have gotten my energy back from the liquid LDN.

>

>Rhonda

>

>

> > Hello to all. I am sorry for your wife.

> > I have MS and fibromyalgia, Looking to try the LDN when I go to my

>neuro on

> > Thurs.

> > I was devastated when I was diagnosed with fibromyalgia in '96,

>more pain on

> > rop of pain.

> > I was prescribed Ultram and Anaprox back then for the

>fibromyalgia. On my

> > own I tried Pro Energy

> > from Immune Support, $18.99 for one (180) $13.99 for two or more.

>Pro

> > Energy is Malic Acid and

> > Magnesium Glycinate, and it really works for me. I was amazed and

>tell

> > everyone who tells me they have fibromyalgia.

> > All my best, Margie

> >

> > >From: " " <Knittingdoc@a...>

> > >Reply-low dose naltrexone

> > ><low dose naltrexone >

> > >Subject: Re: [low dose naltrexone] I LOVE MY

> >

> >NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>!

> > >Date: Mon, 27 Jun 2005 19:30:12 -0700

> > >

> > >Hello........my wife and I are new to the list. My wife suffers

>from severe

> > >fibromyalgia. I am a physician. We've tried multiple products for

>the fibro

> > >to no avail. She is much worse now that Vioxx is off the market

>worldwide.

> > >

> > >I've just come across this concept of low dose naltrexone. My

>question is

> > >this.......I'm seeing the word " Skip " on the posts frequently. To

>what does

> > >this refer??

> > >

> > >Thanks........

>

>

[Guest guest]

I don't think the vitamin I take gives energy either but the liquid

LDN sure did! I got pain relief that was horrible all over within

the first couple weeks of taking LDN. Hope your pain goes away

quick. Goodluck!!

Rhonda

> > > Hello to all. I am sorry for your wife.

> > > I have MS and fibromyalgia, Looking to try the LDN when I go to

my

> >neuro on

> > > Thurs.

> > > I was devastated when I was diagnosed with fibromyalgia in '96,

> >more pain on

> > > rop of pain.

> > > I was prescribed Ultram and Anaprox back then for the

> >fibromyalgia. On my

> > > own I tried Pro Energy

> > > from Immune Support, $18.99 for one (180) $13.99 for two or

more.

> >Pro

> > > Energy is Malic Acid and

> > > Magnesium Glycinate, and it really works for me. I was amazed

and

> >tell

> > > everyone who tells me they have fibromyalgia.

> > > All my best, Margie

> > >

> > > >From: " " <Knittingdoc@a...>

> > > >Reply-low dose naltrexone

> > > ><low dose naltrexone >

> > > >Subject: Re: [low dose naltrexone] I LOVE MY

> > >

> >

>NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> >!

> > > >Date: Mon, 27 Jun 2005 19:30:12 -0700

> > > >

> > > >Hello........my wife and I are new to the list. My wife suffers

> >from severe

> > > >fibromyalgia. I am a physician. We've tried multiple products

for

> >the fibro

> > > >to no avail. She is much worse now that Vioxx is off the market

> >worldwide.

> > > >

> > > >I've just come across this concept of low dose naltrexone. My

> >question is

> > > >this.......I'm seeing the word " Skip " on the posts frequently.

To

> >what does

> > > >this refer??

> > > >

> > > >Thanks........

> >

> >

[Guest guest]

Hi everyone. I got my prescription for naltrexone from my neuro yesterday.

He is great. This was what I told him. I told him that I had a proposal

for him for his consideration. I told him about this neurologist in NY who

studied at Cornell and and Harvard medical school, who is also a

psychiatrist, Dr. Bihari. I am originally from NYC and I mentioned that I

had worked one summer at the New York State Psychatric Institute associated

with Columbia Univ. where he got Dr. Bihari got his residency in Psychiatry,

and how well respected it is. I explained that while treating drug addicts

with naltrexone that he noticed that about half of them also had AIDS, and

started treating them with low doses as they also were low in beta

endorphins. I told him about a friend's daughter that had MS and how he

tried the treatment with good results. I then told him, I am willing to be

your guinea pig for this treatment and if I get good results, you can use it

with other patients. I reminded him that he had once told me years ago that

he wished there would be something like Lorenzo's oil for MS, and that maybe

this was it. So, he did not hesitate in giving me the prescription.

It helps that he is very open minded and that we have had a long term doctor

patient relationship.

As for side effects I told him none, except for trouble sleeping at first,

so he gave me another prescription for Seroquil 25 mg. He told me it is for

schizophrenia but is used in low dosages for insomnia.

I will be obtaining these prescriptions filled soon and start with the

liquid LDN that was so kind to post, thank you and thank you

all with your experiences and for the info, I am very grateful. I am

looking forward to feeling better with this treatment. All my best, Margie

>From: " Rhonda " <rhondaleokitty@...>

>Reply-low dose naltrexone

>low dose naltrexone

>Subject: [low dose naltrexone] Re: I LOVE MY

>NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

>Date: Wed, 29 Jun 2005 20:57:07 -0000

>

>I don't think the vitamin I take gives energy either but the liquid

>LDN sure did! I got pain relief that was horrible all over within

>the first couple weeks of taking LDN. Hope your pain goes away

>quick. Goodluck!!

>Rhonda

>

>

> > > > Hello to all. I am sorry for your wife.

> > > > I have MS and fibromyalgia, Looking to try the LDN when I go to

>my

> > >neuro on

> > > > Thurs.

> > > > I was devastated when I was diagnosed with fibromyalgia in '96,

> > >more pain on

> > > > rop of pain.

> > > > I was prescribed Ultram and Anaprox back then for the

> > >fibromyalgia. On my

> > > > own I tried Pro Energy

> > > > from Immune Support, $18.99 for one (180) $13.99 for two or

>more.

> > >Pro

> > > > Energy is Malic Acid and

> > > > Magnesium Glycinate, and it really works for me. I was amazed

>and

> > >tell

> > > > everyone who tells me they have fibromyalgia.

> > > > All my best, Margie

> > > >

> > > > >From: " " <Knittingdoc@a...>

> > > > >Reply-low dose naltrexone

> > > > ><low dose naltrexone >

> > > > >Subject: Re: [low dose naltrexone] I LOVE MY

> > > >

> > >

> >NEURO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> > >!

> > > > >Date: Mon, 27 Jun 2005 19:30:12 -0700

> > > > >

> > > > >Hello........my wife and I are new to the list. My wife suffers

> > >from severe

> > > > >fibromyalgia. I am a physician. We've tried multiple products

>for

> > >the fibro

> > > > >to no avail. She is much worse now that Vioxx is off the market

> > >worldwide.

> > > > >

> > > > >I've just come across this concept of low dose naltrexone. My

> > >question is

> > > > >this.......I'm seeing the word " Skip " on the posts frequently.

>To

> > >what does

> > > > >this refer??

> > > > >

> > > > >Thanks........

> > >

> > >

>

>