Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 Hi Pete .. I just read your email from a few days ago. Glad you enjoyed the book. First, this is the right place to talk to people with MS on LDN. Endorphin testing is difficult because they fluctuate daily and fluctuate differently for each person. More research is needed in that whole area. I hope your insurance covers the $500. To persuade your Neuro .. I think the best way is to bring all of the information but he won't believe it, so ask him if he thinks it would do you any harm. Most agree it won't so ask him to humor you for a couple of months. He will think you are crazy but remember you are ahead of the game until he sits you down and recommends intensive psychiatric help. If that happens, agree to counseling after a couple of months on LDN .. To be serious what I would do now without question and hindsight and all that .. I would import from medsmex.com and home brew. It is very simple and will always be right. gave great instructions a day or so ago .. very, very, easy with no aggravation. Tell your Neuro that is what you are going to do if he won't help. Noel just had a full physical after 3 years on LDN .. everything is fine .. liver included. He is very healthy apart from his MS he was told. I never realized male physicals were so intrusive but confess after 3 children my sympathy was lacking. Noel has no side efects. The people I know with RRMS on LDN are all doing great with no side effects bar the first week or so when they had vivid dreams and difficulty sleeping. There are links to the LDN conference .. you can back track this board or maybe Larry will point you in an easier direction because I know he has kept them all somewhere. Larry is very organized. Thanks Larry. All the Best > I was diagnosed with MS in March of 2001. Thankfully symptoms have > been mild and stable and limited to varying degrees of numbness in my > hands. I had no new symptoms until January 2005. > > Since January, the numbness in my hands has increased and I've > experienced slight numbness in my feet. About five weeks ago I had > an episode of optic neuritis in my right eye. I had a steroid > treatment > and the vision is better, but not 100%. I started Copaxone a few > weeks ago. > > I read Bradley's book about LDN book and am amazed and hopeful > as well as a bit skeptical. I would like to present information on > LDN > to my neurologist and suggest this as a treatment option, but I need > to be > prepared with lots of solid information. My neurologist is very > traditional > and without clinical trial evidence, he might be hard to convince. > > I have all the info from low dose naltrexone.org. > > I am interested in e-mailing or speaking directly to people with MS > who are currently taking LDN to find out their experience. > > Is anyone with mild RRMS symptoms currently taking LDN? What is your > experience? > > I would like to know how people have gotten scripts for LDN. From > Dr. Bihari? From your neurologist? > > Has anyone had endorphin level tests before or during their time on > LDN? > > Has anyone on LDN been tested to monitor their liver function? > > Is anyone experiencing side effects major or minor? > > Unfortunately I found out about the LDN conference last week, so I > missed it. I was wondering if there is documentation available from > any of the > speakers. > > If you couid contact me directly, that would be great. > > -Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 --- In low dose naltrexone , " mboylebradley " <mboylebradley@v...> wrote: > > Hi Pete .. I just read your email from a few days ago. Glad you > enjoyed the book. > First, this is the right place to talk to people with MS on LDN. > Endorphin testing is difficult because they fluctuate daily and > fluctuate differently for each person. More research is needed in > that whole area. > I hope your insurance covers the $500. > To persuade your Neuro .. I think the best way is to bring all of the > information but he won't believe it, so ask him if he thinks it would > do you any harm. Most agree it won't so ask him to humor you for a > couple of months. He will think you are crazy but remember you are > ahead of the game until he sits you down and recommends intensive > psychiatric help. If that happens, agree to counseling after a couple > of months on LDN .. > To be serious what I would do now without question and hindsight and > all that .. I would import from medsmex.com and home brew. It is very > simple and will always be right. gave great instructions a day > or so ago .. very, very, easy with no aggravation. Tell your Neuro > that is what you are going to do if he won't help. > Noel just had a full physical after 3 years on LDN .. everything is > fine .. liver included. He is very healthy apart from his MS he was > told. I never realized male physicals were so intrusive but confess > after 3 children my sympathy was lacking. > Noel has no side efects. The people I know with RRMS on LDN are all > doing great with no side effects bar the first week or so when they > had vivid dreams and difficulty sleeping. > There are links to the LDN conference .. you can back track this > board or maybe Larry will point you in an easier direction because I > know he has kept them all somewhere. Larry is very organized. Thanks > Larry. > All the Best > > ============= Pete, If you want to go the Mexico ordering route then go to this link for the MedsMex.com link that takes you directly to ReVia ordering form at MedsMex.com, the brand name of Naltrexone in Mexico is ReVia...ReVia is Naltrexone in 50mg tablets. I also include mixing instructions for the 50mg tablets that come from Mexico. I don't get my Naltrexone from Mexico but many people have. Go to this link at my LDN forum... Low Dose Naltrexone Forum - Medsmex in Mexico is a good source for naltrexone http://ldn.proboards3.com/index.cgi?board=links & action=display & thread=1105152047 Quote Link to comment Share on other sites More sharing options...
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