Re: people who don't want to know

[Guest guest]

Kathy,

your email brought tears to my eyes.....everyone( including doctors) looked at me as if i were crazy too, it was very frustrating , the doctor that read my first MRI missed a bunch of stuff going on, he came out to talk to me and said" i can't find anything wrong with your brain,( i told him my symptoms) well, now that i've talked to you and see that your not just some" crazy "person, i'll take a closer look!"he said that because i;m 33 and was having stroke like symptoms as you described.... well, the "closer" look revealed a couple of spots, which lead me going and having a different MRI with a different radiologist( my choice), which lead to multiply things going on! i couldn't believe that a doctor could get away with this! how incompitant to miss so much going on! i am a registered nurse, i knew what was going on was somoething ,i;m not just crazy but they still gave me that look.........anyway, i really feel for all of you trying to get an LDN script, i was fortunate to have a doctor that has many patients on it( he is in FT lauderdale), when i go to see him i am going to ask him how he feels about giving scripts to people over the phone, he is very opened minded, i talked to Skip and he said" he's the cream of the crop!"....although he is not convinced that it works,he sees no harm in giving it because it is harmless! i wish others could open their minds and realize that.........when i switched to the 3mg dose this past week, i could almost immediately see a difference, i have so much more energy, i'm feeling better each day and i am so thankful , i want everyone to get this chance.....

take care everyone......thank you all for this supportive group

Lynn

[low dose naltrexone] people who don't want to know

They say ignorance is bliss but it has never been for me when it comes to my friends and family or even people in this group whom I don't even know the same applies. It is very disturbing that a doctor will not prescribe something harmless for someone who is on a path of progression to try that could possibly changed the course of their life. We know LEN works on some level because I am sure all these folks who report dramatic changes are not operating on some placebo type of response. On the other hand, I am sure there are docs out there who have families to take care of and many years invested in school. To be fair, I guess they are being cautious but my doctor has always read things and then let me follow my desires as long as she felt it wasn't to my detriment. When I reply on this board, it is not to insult anyone personally but I do have an attitude about the way me and many others were treated when we were searching for a diagnosis. Two months after I got married my libido was gone. Slurred speech, blurred vision, weakness, fatigue, electrical shocks constantly and the list goes on and on. I was told to go see a psychiatrist. Well a person doesn't need a psychiatrist when they can only see the bottom half of a lamp shade, they are not falling apart emotionally, they just want answers and all of the sudden they are thinking about the news when their husband wants to be close. I was a young women at the height of her career and a newlywed. Consequently, when someone posts on this board and expresses concern about LDN, I guess I'm on a mission to try to save that person the years I spent investigating all the things that have gotten me to this point. I can honestly say I wouldn't change a thing. I t has been an incredible learning experience . LDN has been an integral part of that recovery for me. Today I am symptom free and have been for quite a while. Knock on wood!!! I got an MRI yesterday and asked the lady next to me what she was there for. She told me she had ms and I gave her Skip's number and Dr. Bihari's homepage. There are no accidents.

[Guest guest]

i am so glad you are feeling better and thank you for your story and kind words. i think we live close to one another. i'm in palm beach gardens.

[low dose naltrexone] people who don't want to know

They say ignorance is bliss but it has never been for me when it comes to my friends and family or even people in this group whom I don't even know the same applies. It is very disturbing that a doctor will not prescribe something harmless for someone who is on a path of progression to try that could possibly changed the course of their life. We know LEN works on some level because I am sure all these folks who report dramatic changes are not operating on some placebo type of response. On the other hand, I am sure there are docs out there who have families to take care of and many years invested in school. To be fair, I guess they are being cautious but my doctor has always read things and then let me follow my desires as long as she felt it wasn't to my detriment. When I reply on this board, it is not to insult anyone personally but I do have an attitude about the way me and many others were treated when we were searching for a diagnosis. Two months after I got married my libido was gone. Slurred speech, blurred vision, weakness, fatigue, electrical shocks constantly and the list goes on and on. I was told to go see a psychiatrist. Well a person doesn't need a psychiatrist when they can only see the bottom half of a lamp shade, they are not falling apart emotionally, they just want answers and all of the sudden they are thinking about the news when their husband wants to be close. I was a young women at the height of her career and a newlywed. Consequently, when someone posts on this board and expresses concern about LDN, I guess I'm on a mission to try to save that person the years I spent investigating all the things that have gotten me to this point. I can honestly say I wouldn't change a thing. I t has been an incredible learning experience . LDN has been an integral part of that recovery for me. Today I am symptom free and have been for quite a while. Knock on wood!!! I got an MRI yesterday and asked the lady next to me what she was there for. She told me she had ms and I gave her Skip's number and Dr. Bihari's homepage. There are no accidents.