Re: Fw: [MS_Community] Tovaxin -- an MS vaccine in FDA trials that appears to halt the disease

[Guest guest]

WOW DOES THAT LOOK GREAT. WOULD DEFINATLY REMOVE THE NEED FOR LDN> LETS HOPE IT IS NOT TO GOOD TO BE TRUE!!!!

tom bayuk <tbayuk@...> wrote:

Re: xin -- an MS vaccine in FDA trials that appears to halt the disease

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Tim,

This sounds like it may be a much cheaper form of therapy than ones some of us are currently using. From what I have been reading, some trial results should be out within a year or two.

Reply __________________________________________________

[Guest guest]

This looks to be some really really good good news!! My question is this...how long does phase III trials last? what is the actual timeframe we are looking at before we can end this craps progression and start to figure out how to fix the damage caused that cant be stopped. I will admit I would be happy living life just as I am now as long as I never got worse:) Please email asap with any info you might have!!tom bayuk <tbayuk@...> wrote:

Re: xin -- an MS vaccine in FDA trials that appears to halt the disease

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Tim,

This sounds like it may be a much cheaper form of therapy than ones some of us are currently using. From what I have been reading, some trial results should be out within a year or two.

Reply __________________________________________________

[Guest guest]

Hey

I am sorry you feel that LDN has not stopped your progression. It is

too early to tell for sure with me, but I BELIEVE it has stopped with

LDN. I am now using the book, " The Gold Coast Cure " as a starting point

to rebuild what I have lost. I am wondering about who and where and how

the Phase III trial will be conducted? I wonder if there is a spot for

myself, since I do not live in Texas and it is a vaccine made from the

patients own body.

If I had had " The Gold Coast Cure " 5 years ago to use as a guide; I

would probably be walking without a walking stick today. Use it or lose

it! Now I am stretching, supplimenting, & exercising late but I am

doing it.

-

Re: [low dose naltrexone] Fw: [MS_Community] xin -- an MS

vaccine in FDA trials that appears to halt the disease

This looks to be some really really good good news!!  My question

is this...how long does phase III trials last?  what is the actual

timeframe we are looking at before we can end this craps progression

and start to figure out how to fix the damage caused that cant be

stopped.  I will admit I would be happy living life just as I am now as

long as I never got worse:)  Please email asap with any info you might

have!!

tom bayuk <tbayuk@...> wrote:  

Re: xin -- an MS vaccine in FDA trials that appears to

halt the disease

Reply | Reply to Author | Forward | Print | Individual Message | Show

original | Report Abuse

Tim,

This sounds like it may be a much cheaper form of therapy than ones

some of us are currently using.  From what I have been reading, some

trial results should be out within a year or two.

Jean

[image removed] Reply

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[Guest guest]

Sorry you missed understood. I havnt tried it yet. I

KNOW AVONEX IS NOT STOPPING IT!!

I am waiting for the RX as we speak. I'll keep you

all informed!!

--- Saberkat7@... wrote:

> Hey

>

> I am sorry you feel that LDN has not stopped your

> progression. It is

> too early to tell for sure with me, but I BELIEVE it

> has stopped with

> LDN. I am now using the book, " The Gold Coast Cure "

> as a starting point

> to rebuild what I have lost. I am wondering about

> who and where and how

> the Phase III trial will be conducted? I wonder if

> there is a spot for

> myself, since I do not live in Texas and it is a

> vaccine made from the

> patients own body.

>

> If I had had " The Gold Coast Cure " 5 years ago to

> use as a guide; I

> would probably be walking without a walking stick

> today. Use it or lose

> it! Now I am stretching, supplimenting, & exercising

> late but I am

> doing it.

>

> -

>

> Re: [low dose naltrexone] Fw: [MS_Community]

> xin -- an MS

> vaccine in FDA trials that appears to halt the

> disease

>

> This looks to be some really really good good

> news!! My question

> is this...how long does phase III trials last? what

> is the actual

> timeframe we are looking at before we can end this

> craps progression

> and start to figure out how to fix the damage caused

> that cant be

> stopped. I will admit I would be happy living life

> just as I am now as

> long as I never got worse:) Please email asap with

> any info you might

> have!!

>

> tom bayuk <tbayuk@...> wrote:

> xin -- an MS vaccine in FDA trials that

> appears to halt

> the disease

> Reply | Reply to Author | Forward | Print |

> Individual Message | Show

> original | Report Abuse

>

> Hi To All,

>

>

> I am in an FDA trial for an MS vaccine. The vaccine

> appears to have

> arrested my disease and has done the same for the

> other people in the

> study. I have two small websites that show a

> timeline of events. The

> first one is www.ihavems.com It starts with the

> first injection and

> goes for 18 months. My websites are little 10-page

> boilerplate sites,

> so my timeline continues on a second website

> www.timswellness.com

> from June 2004 to the present. My Dad and I work on

> the sites together.

>

>

> The study that I am in is small, only 9 to 15

> patients. There is a

> concurrent one that is retreating any of the 114

> patients that were in

> the MS vaccine study done at Baylor in the late

> 1990s. The vaccine is

> called xin and you can see an animation of how

> it works at

> http://www.pharmafrontierscorp.com/toxavin.php

>

>

> All of the patients in my study have responded

> positively. There is

> one

> person in the study who has primary progressive. She

> did not respond at

> first, but they have discover the peptide sequence

> for the CD-8 T-cells

> that cause PP. Since then she has seen her EDSS go

> down by 0.5. My EDSS

> has gone from 5.5 to 3.0.

>

>

> I am actually out doing things again. I just

> returned from a solo trip

> to see some friends in San Francisco. This is

> amazing, since two years

> ago, my parents were taking me from our home in

> Michigan to Houston in

> a wheelchair.

>

>

> xin is an autologous vaccine. That means they

> take some of my

> blood, cull out the T-cells and introduce them to

> human myelin. Those

> that react to the myelin are culled out and

> replicated. Once there are

> enough for the vaccine, about 45 million cells, the

> T-cells are

> irradiated so that they are still alive, but cannot

> reproduce. That is

> the vaccine.

>

>

> The vaccine is injected just under my skin, you can

> see some pictures

> at www.timswellness.com , and the body treats these

> T-cells as a

> foreign invader and makes antibodies to eliminate

> only these specific

> T-cells. These antibodies not only take out the

> T-cells from the

> vaccine, but also eliminate all of that same type of

> T-cell throughout

> my body.

>

>

> The body produces 2 to 3 trillion red blood cells

> per day. I am not

> sure how many T-cells are produced per day, but if 1

> or 2 per million

> are troublemakers, that means there are hundreds of

> millions of myelin

> reactive T-cells floating around in the blood stream

> of someone with

> MS. A flare is when the body produces too many of

> these bad T-cells. No

> one is sure why this happens, but it may be caused

> by an upper

> respiratory infection, or a cold sore, or some other

> immune response

> that triggers the body to produce T-cells that

> mistake myelin as

> something bad.

>

>

> By eliminating these 1 or 2 per 1 million T-cells

> does not compromise

> the immune system, but it does eliminate all of the

> T-cells that

> destroy the myelin. No bad T-cells means no more

> attacks. Anyone on

> xin will need to get a booster twice a year to

> keep the antibodies

> at a level sufficient to continue to eliminate all

> of the myelin

> reactive T-cells as they are produced. This is just

> like a flu shot.

>

>

> I think about 30 to 40% of the damage that was done

> by the attacks has

> been reversed. The body will repair itself, as long

> as the attacks

> stop. I am helping myself by doing a lot of

> exercising and activities

> that improve my small motor skills.

>

>

> I am doing many things that I was no longer able to

> do. When I started

>

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