Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 In a message dated 6/30/2005 1:25:18 PM Eastern Daylight Time, leathaj@... writes: However, he rejected the idea, saying that all the evidence was anecdotal, and that he could not give me a prescription because it is not FDA approved for ms. Also, none of the compounding Leatha It is NOT true that he can't give you a prescription. MS is an off-label use of naltrexone and doctors give scripts all the time for meds for uses other than those they are approved for. My neuro gave me a script because he said after reading the material, it was all anecdotal, but it couldn't hurt me. That was just a cop out. Good luck with with the gp. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 Learha, Yes, there is a doctot at the U. of Iowa that has written several papers on LDN. His name is Yash Agrawel (Spelling). You will find more info at the " Boston Cure Project " website. Regards, Tom [low dose naltrexone] Another doc rejection >I presented my neuro with all the info (thanks to all who made > suggestions). However, he rejected the idea, saying that all the > evidence was anecdotal, and that he could not give me a prescription > because it is not FDA approved for ms. Also, none of the compounding > pharmacies in Lincoln, Nebraska, have ever filled a prescription for > LDN, so they can't help me. I have an appointment with my gp, and will > see what he says. I'm also putting out feelers among other mser's in the > area to see if I can find a more open-minded doc. > > One interesting thing that my neuro did mention - there is an LDN study > going on at the University of Iowa in Iowa City. I haven't researched it > yet - has anyone else heard of this study? > > Thanks, > Leatha > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.323 / Virus Database: 267.8.1/28 - Release Date: 6/24/05 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2005 Report Share Posted June 30, 2005 hang in there Leatha....don't give up! [low dose naltrexone] Another doc rejection > I presented my neuro with all the info (thanks to all who made > suggestions). However, he rejected the idea, saying that all the > evidence was anecdotal, and that he could not give me a prescription > because it is not FDA approved for ms. Also, none of the compounding > pharmacies in Lincoln, Nebraska, have ever filled a prescription for > LDN, so they can't help me. I have an appointment with my gp, and will > see what he says. I'm also putting out feelers among other mser's in the > area to see if I can find a more open-minded doc. > > One interesting thing that my neuro did mention - there is an LDN study > going on at the University of Iowa in Iowa City. I haven't researched it > yet - has anyone else heard of this study? > > Thanks, > Leatha > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.323 / Virus Database: 267.8.1/28 - Release Date: 6/24/05 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 Hi Leatha, If money is not a great issue, I would do a phone consult with either Dr. Bihari or Dr. Weeks. Then I would have the prescription filled with Skip in Florida or with Irmat in New York. I am so glad that we did not fold when my husbands Nero rejected LDN and wanted him start the Crab meds. Even if he had not been so successful with the LDN, I would have been happier just trying it for the first 6-9 months and then conceding to the other direction. And boy am I happy he did try it and it worked so well. Hopefully you can go back into your Nero in about a year and tell him that LDN was successful. Don't forget to keep a journal. My best Aletha [low dose naltrexone] Another doc rejection > > >> I presented my neuro with all the info (thanks to all who made >> suggestions). However, he rejected the idea, saying that all the >> evidence was anecdotal, and that he could not give me a prescription >> because it is not FDA approved for ms. Also, none of the compounding >> pharmacies in Lincoln, Nebraska, have ever filled a prescription for >> LDN, so they can't help me. I have an appointment with my gp, and will >> see what he says. I'm also putting out feelers among other mser's in the >> area to see if I can find a more open-minded doc. >> >> One interesting thing that my neuro did mention - there is an LDN study >> going on at the University of Iowa in Iowa City. I haven't researched it >> yet - has anyone else heard of this study? >> >> Thanks, >> Leatha >> >> >> -- >> No virus found in this outgoing message. >> Checked by AVG Anti-Virus. >> Version: 7.0.323 / Virus Database: 267.8.1/28 - Release Date: 6/24/05 >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2005 Report Share Posted July 1, 2005 MAYBE YOU COULD PRINT DR. AGRAWEL'S PAPERS AND SHOW THEM TO YOUR DOCTOR. SAYING PLEASE - THIS CAN'T HURT ME. I'M RUNNING OUT OF OPTIONS DOESN'T HURT EITHER. TRY TO APPEAL TO HIS SYMPATHY. YOU COULD ALSO LET HIM TALK TO SKIP. MY DOCTOR IS VERY NICE AND SHE IS WILLING TO DO THIS KIND OF THING. MAYBE YOU CAN BE PERSISTENT AND HE WILL RESPECT YOU FOR IT AND GIVE IN. GOOD LUCK. [low dose naltrexone] Another doc rejection>I presented my neuro with all the info (thanks to all who made> suggestions). However, he rejected the idea, saying that all the> evidence was anecdotal, and that he could not give me a prescription> because it is not FDA approved for ms. Also, none of the compounding> pharmacies in Lincoln, Nebraska, have ever filled a prescription for> LDN, so they can't help me. I have an appointment with my gp, and will> see what he says. I'm also putting out feelers among other mser's in the> area to see if I can find a more open-minded doc.>> One interesting thing that my neuro did mention - there is an LDN study> going on at the University of Iowa in Iowa City. I haven't researched it> yet - has anyone else heard of this study?>> Thanks,> Leatha>>> -- > No virus found in this outgoing message.> Checked by AVG Anti-Virus.> Version: 7.0.323 / Virus Database: 267.8.1/28 - Release Date: 6/24/05>>>>> Quote Link to comment Share on other sites More sharing options...
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