Fw: Notification of MS Societies about LDN

[Guest guest]

I have been having trouble with my email. I don't know if this ever got posted or not. So sorry if this is a duplicate.

Tom from Edmonton

-- Notification of MS Societies about LDN

To the group from Tom in Edmonton:

What do you think about forwarding opinions, news, etc. about LDN to your applicable MS Societies? From what I have been able to gather, most societies do not seem to even acknowledge its existence, but they publish everything the big drug companies want them to.

Maybe a flood of news about LDN, and feedback from actual patients on the crap drugs the societies seem to be pushing might help raise their level of consciousness.

In Canada, our society won't even let me publish a letter saying that LDN helped me. How about that for censorship!

Also, what do you think about letters to the editor of your local newspapers regarding how some information is being stifled by groups that are supposed to be helping? And maybe the URL of remedyfind.com where of course they will notice that LDN is the No.1 rated treatment for MS sufferers?

We might even be able to coordinate our efforts to get better coverage.

If these suggestions have already been made by others, I apologize, but I have not had access to a computer for some time now and therefore am a little bit out of touch.

Whatever, I would appreciate your comments.

Tom in Edmonton

[Guest guest]

Hi all.

I take LDN 3mg and I am doing well for about 2 months now. I haven't

felt that good for years.

> What do you think about forwarding opinions, news, etc. about LDN to

your

> applicable MS Societies? From what I have been able to gather, most

> societies do not seem to even acknowledge its existence, but they

publish

> everything the big drug companies want them to.

I live in a major city of Greece. I have passed all the info I could

find about LDN to the local office of the society. Many people were

interested in this. There is one man that has just started LDN. But

we have not spread it all over the country. We are afraid.

The latest issue of the greek ms society had a logo and a " special

thanks " notice to Schering (Betaseron). And an article about

alternative treatments, stating that they are dangerous! They didn't

mean LDN, I am sure. But I don't like this biased, close minded

approach to the matter.

" Ok, wise men of the society. You, that tell people to follow ONLY

your own approved treatments, tell me: What is the cause of MS? What!

You don't know? Then, how the hell you have the right to force me take

the treatment that you suggest? " . This question remains unanswered to me.

It is not exactly understood how LDN works in MS. But, it is not

understood how interferons work in MS, either! It is also not

understood how MS works, in general!

LDN is not toxic. Chemo is extremely toxic.

LDN has (almost) no side effects. CRABs have more side effects than

effects.

I wrote about all of them without taking a reply, so far.

> Maybe a flood of news about LDN, and feedback from actual patients

on the

> crap drugs the societies seem to be pushing might help raise their

level of

> consciousness.

>

> In Canada, our society won't even let me publish a letter saying

that LDN

> helped me. How about that for censorship!

I am really afraid of spreading the word about LDN. I could end up in

jail!

> Also, what do you think about letters to the editor of your local

newspapers

> regarding how some information is being stifled by groups that are

supposed

> to be helping? And maybe the URL of remedyfind.com where of course they

> will notice that LDN is the No.1 rated treatment for MS sufferers?

I think that whoever uses not approved treatments is considered

something between a criminal and a terrorist. There is too much

censorship. I agree that LDN must be promoted. It can save millions of

lives. But I think that scientific evidence is needed first. Perhaps,

in addition to spreading the word about it, we should lobby the

governments to fund some clinical trials.

Just my two cents.

Stavros