Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Hi all ! yes - I realise now that you can take these 2 in conjunction with each other. I am about to start with Copaxone (and been on LDN for about 5-6 months). Is anyone else doing this and if so - are the side effects any different/worse than usual. A little concerned about the hot flushes/racing heart rate etc!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Hi , I was diagnosed with RRMS in Dec. 03 and have been on Copaxone since Jan. 04. I began taking LDN in March 04 and to date haven't had any of the " bad " side effects you mentioned. I've only had good things...NO more urinary urgency, less numbness and tingling in my right side,which was effected. Just remember we are all very different and what effect one my not effect the other at all. Copaxone shots are very small, just go under the skin and I, so far have not had any bad side effects from it. I notice a whelp at the injection point but that is generally gone by the next day. Occasionally, but only very occassionally I get a bruise, usually if I hit a small vein by accident. These to go away after just a few days. You might feel a lump at the injection point for a couple of days but too will go away. I chose Copaxone because it is subcutaneous rather than the deep muscle shot along with the fact that it doesn't make one feel like they have the flu the next day and one doesn't not have to worry about blood testing to check for liver damage and with some of the other drugs. Be sure to get the AUTOJECT 2 from Shared Solutions, it make injections so much easier. Also check with them about their other FREE Copaxone products such as a small ice pack, travel medicine case and refrigerator lock box. I ice the area I plan to inject for 3 minutes prior to injecting and for around 5-10 mins. afterwards, it helps cut down on the slight sting I fell. Shared Solutions will send you all these things free, they can be ordered online or by phone. Also they have a free Cool Wrap, a long gel bead filled cloth that can be cooled in cold water and tied around the neck to help one feel cooler. These things come in handy on truly hot days. In case you don't have a number for Shared Solutions here it is: 1-800-887-8100 Good luck to you, I wish you only the best in you battle against this " nasty " little disease. Just for future information, I have read where there is a vaccine in the works for those of us with MS. It is not for the general public only for those with MS. Testing on the vaccine seems to be going well and hopefully, it will be on the market in the next couple of years. I know htat sounds like a long time for something that could truly help but it's shorter that 5-10 years. There is hope out there, so keep a positive attitude and keep your chin up. I have a cousin who is a doctor and he says that a positive attitude is 1/2 or better of the treatment. Good luck again!! Joni Berry Southeast Missouri USA --- <mnieuwendyk@...> wrote: > Hi all ! yes - I realise now that you can take > these 2 in conjunction > with each other. I am about to start with Copaxone > (and been on LDN > for about 5-6 months). > Is anyone else doing this and if so - are the side > effects any > different/worse than usual. A little concerned > about the hot > flushes/racing heart rate etc!! > > > > ____________________________________________________ Sell on Auctions – no fees. Bid on great items. http://auctions./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 there are only a few people who have experienced those side effects so i wish you much success and don't think you need to worry about feeling anything unusual. except for the initial insomnia and maybe vivid dreams. best wishes, kathy [low dose naltrexone] LDN AND COPAXONE ) Hi all ! yes - I realise now that you can take these 2 in conjunction with each other. I am about to start with Copaxone (and been on LDN for about 5-6 months).Is anyone else doing this and if so - are the side effects any different/worse than usual. A little concerned about the hot flushes/racing heart rate etc!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 oops! i just realized you are talking about about copaone- not ldn. time to get my starbucks so i can pay attention. [low dose naltrexone] LDN AND COPAXONE ) Hi all ! yes - I realise now that you can take these 2 in conjunction with each other. I am about to start with Copaxone (and been on LDN for about 5-6 months).Is anyone else doing this and if so - are the side effects any different/worse than usual. A little concerned about the hot flushes/racing heart rate etc!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Hi Kathy..I have been on copaxone since Dec of last year..never had any bad reactions (heart fluttering, out of breath) besides the odd site reaction that is itchy red and swollen, but now it doesnt affect me as bad. I started taking LDN 10 days ago because it was like the copaxone wasnt doing anything for me..I was deterating worse everyday. But the good news is since Ive been on the LDN I have seen some of my symptoms from MS disappear. I can now walk around my house without any aid and can now walk short distances with my cane not my walker or wheelchair.My disability score went from 2.5 to 6.5 in a matter of months on copaxone alone. Why are you deciding on taking copaxone since you have been on LDN? Is the LDN not working on you ? I was actually thinking as time goes on to actually drop the copaxone. Because i know for me it wasnt working as good as I wanted and hoped it would. But this LDN I know its working for me..I feel and see the results. Corinnekathy lintzenich <mykittypaws@...> wrote: there are only a few people who have experienced those side effects so i wish you much success and don't think you need to worry about feeling anything unusual. except for the initial insomnia and maybe vivid dreams. best wishes, kathy [low dose naltrexone] LDN AND COPAXONE ) Hi all ! yes - I realise now that you can take these 2 in conjunction with each other. I am about to start with Copaxone (and been on LDN for about 5-6 months).Is anyone else doing this and if so - are the side effects any different/worse than usual. A little concerned about the hot flushes/racing heart rate etc!!__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 " A little concerned about the hot flushes/racing heart rate etc!!" I have taken copaxone for 1 year now and LDN since March. I experienced the copaxone flush etc 2wice only. and it was about 6 months after I started Copaxone. I curled up on the couch for 10 to 15 minutes and it was over in about 20-30 minutes. the second time was not as bad or as long as the first and I have had no other side effects since. Asside from the fact that I am not as mobile a man as I was a year ago. Since starting LDN. I feel I have been about the same. - Quote Link to comment Share on other sites More sharing options...
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