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Avonex & LDN

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In a message dated 7/10/2005 10:06:13 AM Central Daylight Time, nascush@... writes:

Is or has anyone taken LDN while taking Avonex? I know

poeple say that they work against each other but I

also have heard otherwise. I stopped Avonex and

started LDN and Copaxone. I have been going down hill

since and I am worse than ever without improvement. I

don't want to stop LDN (basically because I have only

heard/read positive results from everyone on this

site) but, I can not continue this road for sure.

Thanks for the replies,

Steve

++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Steve,

I know how you must be feeling. Here it is, plain and simple, the CRABS only work for 30% of the RRMS people who use them, or so the fine print says. Those aren't very good odds, in my opinion! How does one know if they truly have RRMS as opposed to SPMS or PPMS? MS is a relative term subject to whatever caused it in a particular person. The Mayo even released a statement in the past year stating that newly diagnosed MS patients should possibly take a 'wait-and-see' approach before trying any of the drugs! What does that tell you!! Tells me that 'they' really don't know if the CRABs do any good!! I did Avonex for two years and ended up in this wheelchair anyway. Didn't slow my progression at all. Wish I had known about LDN at that time!

It's a gamble either way. Just do whatever you are comfortable doing. Miracles happen. It's most likely not going to be a result of a drug. A drug might give some symptomatic relief/improvement, but basically we're all looking for healing!

Marcie

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Is or has anyone taken LDN while taking Avonex? I know

poeple say that they work against each other but I

also have heard otherwise. I stopped Avonex and

started LDN and Copaxone. I have been going down hill

since and I am worse than ever without improvement. I

don't want to stop LDN (basically because I have only

heard/read positive results from everyone on this

site) but, I can not continue this road for sure.

Thanks for the replies,

Steve

____________________________________________________

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