Spastic legs and arms followup (getting worse)

[Guest guest]

I emailed in a few weeks ago stating that I feel that

the LDN is re-activating my old lesions (symptoms). A

few emailed me; stating that I should stay on LDN 6 –

9 months and evaluate the results then. I appreciated

the replies and felt that was a legitimate plan.

But…. Now most of my body has become numb. My left

hand does not work well (especially when typing –

which I need to do often). My legs do not work well

and seem to get a little bit worse every day. This can

not continue!

I started DL-PHENYLALANINE last week with no results

yet. I stopped Avonex before starting LDN and have

since started Copaxone also. If things do not improve

quickly; I will have to stop LDN and go back on Avonex

again. I do not want to go back on IV Steroids again

either.

I am open to suggestions and appreciate your advice,

Steve

(here is my original email)

> I have been LDN for 5 weeks now. My legs have gotten

> worse (numb, weak, stiff, hard to walk at times). My

> hands are very stiff also. Some of it seems like it

> has woken up my old lesions. I started at 4.5mg and

> went down to 3mg for a week to no avail. I also

> stopped Avonex and 2 weeks later started Copaxone. I

> am very willing and open minded to give LDN all the

> time it takes to work but…… how long I have to wait.

> I

> see that many recommend 6 months or so.

> Would it make sense to “not” take LDN once or twice

> a

> week?

> No, I am not stressed out about LDN and do have a

> very

> positive attitude.

> I was diagnosed with MS over 4 years ago (on Avonex

> and quarterly IV steroids for 4 years – no more

> steroids for me). I have had MS for “at least” 15

> years.

> Thanks for listening/reading,

> Steve

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