Re: Stan rarely posts and many other parents have moved on too...

[Guest guest]

wouldn't it be great if there was a 'database' so to speak, of recovered

kids...

any takers?

natasa x

>

> i know that when you get your child to a certain point you shout it

from the roof tops but then you want to enjoy the fruits of your labor

as well and move into the world you worked so hard to get to, doing more

normal things, more social events, wtih people WITHOUT special needs

children, so YOUR newly recovered child can have that interaction and

continual challenge to grow with peers.

>

> I have felt that pull at times, but I have an NT daughter with ASD

health issues but has never been on spectrum, (sure she would have been

if we had vaccinated) and my son still has mito issues that we deal with

and PANDAS. I also made a promise way back in the darkest days that if

God brought us on this trip from vermont to california as I put it, that

when we got to California we would help others find there way to. so I

remain to do so. I have an aspie adult friend as well that I am trying

to continueally learn for what things help her and unwravel her issues.

she has made great gains this last year as well. just because they

aren't here anymore doesn't mean they aren't around, there are 1000's of

recovered kids now, from DAN protical so to put it, they just may not

linger now as they aren't in need of the support that is here. they

have recieved there schooling in what to do, and now have graduated so

to speak and are now using those skills in the real world, just like we

go on to do jobs after college.

>

>

>

>

> Recovering from Autism is a marathon

> NOT a sprint, but FULLY possible!

> Read more about it on my BLOGs at

> http://www.myspace.com/christelking

> http://foggyrock.com/MyPage/recoveringwishes

>

>

> Stan rarely posts and many other parents have

moved on too...

>

>

> ...I am hoping this is bc their kids are recovered and their lives

are

> busy with so much NORMAL now...for those who have followed this list

> for a long time are there many out there who have or know recovered

> kids...I am having a hard time finding any so I am wondering if

anyone

> else has been able to duplicate Stan's success wtih antivirals...my

son

> is on Famvir and researching WAY back in the archives it seems Stan

is

> very pro valtrex over Famvir...my osn like his showed no viral

titers,

> just very low NKcells...Mtt was a responder to Valtrex, but we wre

> doing the PTC supplements too...gut issues took us off all of it,

but

> the gut issues were not bc of the supps or the valtrex as it turns

> out...I wonder if we have erred by the switch to Famvir as well as

> dropping PTC - anyone out there know recovered kids from PTC

> protocol...or, gosh, fully recovered kids period? As I said there

are

> not many with recovered kids who post...Christel is one of the

> exceptions and I know there are a few others who are almost there

> too...I just have never MET a recovered kid...has anyone?

>

> Thanks. Di

>

>

>

>

> Internal Virus Database is out of date.

> Checked by AVG - http://www.avg.com

> Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:

7/16/2008 4:56 PM

>

[Guest guest]

there is, it's called generation rescue- you can sign up for a generation rescue angel who will walk you through things as your mentor

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Stan rarely posts and many other parents havemoved on too...>>> ...I am hoping this is bc their kids are recovered and their livesare> busy with so much NORMAL now...for those who have followed this list> for a long time are there many out there who have or know recovered> kids...I am having a hard time finding any so I am wondering ifanyone> else has been able to duplicate Stan's success wtih antivirals...myson> is on Famvir and researching WAY back in the archives it seems Stanis> very pro valtrex over Famvir...my osn like his showed no viraltiters,> just very low NKcells...Mtt was a responder to Valtrex, but we wre> doing the PTC supplements too...gut issues took us off all of it,but> the gut issues were not bc of the supps or the valtrex as it turns> out...I wonder if we have erred by the switch to Famvir as well as> dropping PTC - anyone out there know recovered kids from PTC> protocol...or, gosh, fully recovered kids period? As I said thereare> not many with recovered kids who post...Christel is one of the> exceptions and I know there are a few others who are almost there> too...I just have never MET a recovered kid...has anyone?>> Thanks. Di>>>>> Internal Virus Database is out of date.> Checked by AVG - http://www.avg.com> Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:7/16/2008 4:56 PM>Internal Virus Database is out of date.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date: 7/16/2008 4:56 PM

[Guest guest]

well said

Subject: Re: Re: Stan rarely posts and many other parents have moved on too...To: mb12 valtrex Date: Thursday, July 24, 2008, 1:19 PM

heck we all stim in ways, play with our hair, bite our nails when board, stair out the window and day dream, rock in our chairs, play with our cell phones ect, there are NT people who could care less to be social, doesn't make them autistic, just not social or board ect.....

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace. com/christelkinghttp://foggyrock. com/MyPage/ recoveringwishes

Stan rarely posts and many other parents havemoved on too...>>> ...I am hoping this is bc their kids are recovered and their livesare> busy with so much NORMAL now...for those who have followed this list> for a long time are there many out there who have or know recovered> kids...I am having a hard time finding any so I am wondering ifanyone> else has been able to duplicate Stan's success wtih antivirals.. .myson> is on Famvir and researching WAY back in the archives it seems Stanis> very pro valtrex over Famvir...my osn like his showed no viraltiters,> just very low NKcells...Mtt was a responder to Valtrex, but we wre> doing the PTC supplements

too...gut issues took us off all of it,but> the gut issues were not bc of the supps or the valtrex as it turns> out...I wonder if we have erred by the switch to Famvir as well as> dropping PTC - anyone out there know recovered kids from PTC> protocol...or, gosh, fully recovered kids period? As I said thereare> not many with recovered kids who post...Christel is one of the> exceptions and I know there are a few others who are almost there> too...I just have never MET a recovered kid...has anyone?>> Thanks. Di>Internal Virus Database is out of date.

Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date: 7/16/2008 4:56 PM

[Guest guest]

when I was in touch with them (about 2 years ago), the Rescue Angels

were not parents of recovered kids, more like people who have done

chelation and other treatments and can offer guidance... Have things

changed since then?

What I meant was more like a 'register' of recovered kids - documented

recoveries, preferably kids who had been diagnosed and then un-diagnosed

later, with names etc (considering data protection, of course),

shortlist of interventions (or lack of) etc, that would include kids

from all over the world...

So if any idiot comes with 'autism is genetic and incurable' this could

be pulled out as 'at least this many children have fully lost their

diagnosis' ... and the sheer numbers would give great encouragement to

other parents

natasa x

> >

> > i know that when you get your child to a certain point you shout

it

> from the roof tops but then you want to enjoy the fruits of your

labor

> as well and move into the world you worked so hard to get to, doing

more

> normal things, more social events, wtih people WITHOUT special needs

> children, so YOUR newly recovered child can have that interaction

and

> continual challenge to grow with peers.

> >

> > I have felt that pull at times, but I have an NT daughter with ASD

> health issues but has never been on spectrum, (sure she would have

been

> if we had vaccinated) and my son still has mito issues that we deal

with

> and PANDAS. I also made a promise way back in the darkest days that

if

> God brought us on this trip from vermont to california as I put it,

that

> when we got to California we would help others find there way to. so

I

> remain to do so. I have an aspie adult friend as well that I am

trying

> to continueally learn for what things help her and unwravel her

issues.

> she has made great gains this last year as well. just because they

> aren't here anymore doesn't mean they aren't around, there are

1000's of

> recovered kids now, from DAN protical so to put it, they just may

not

> linger now as they aren't in need of the support that is here. they

> have recieved there schooling in what to do, and now have graduated

so

> to speak and are now using those skills in the real world, just like

we

> go on to do jobs after college.

> >

> >

> >

> >

> > Recovering from Autism is a marathon

> > NOT a sprint, but FULLY possible!

> > Read more about it on my BLOGs at

> > http://www.myspace.com/christelking

> > http://foggyrock.com/MyPage/recoveringwishes

> >

> >

> > Stan rarely posts and many other parents

have

> moved on too...

> >

> >

> > ...I am hoping this is bc their kids are recovered and their lives

> are

> > busy with so much NORMAL now...for those who have followed this

list

> > for a long time are there many out there who have or know

recovered

> > kids...I am having a hard time finding any so I am wondering if

> anyone

> > else has been able to duplicate Stan's success wtih

antivirals...my

> son

> > is on Famvir and researching WAY back in the archives it seems

Stan

> is

> > very pro valtrex over Famvir...my osn like his showed no viral

> titers,

> > just very low NKcells...Mtt was a responder to Valtrex, but we wre

> > doing the PTC supplements too...gut issues took us off all of it,

> but

> > the gut issues were not bc of the supps or the valtrex as it turns

> > out...I wonder if we have erred by the switch to Famvir as well as

> > dropping PTC - anyone out there know recovered kids from PTC

> > protocol...or, gosh, fully recovered kids period? As I said there

> are

> > not many with recovered kids who post...Christel is one of the

> > exceptions and I know there are a few others who are almost there

> > too...I just have never MET a recovered kid...has anyone?

> >

> > Thanks. Di

> >

> >

> >

> >

> > Internal Virus Database is out of date.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:

> 7/16/2008 4:56 PM

> >

>

>

>

>

> Internal Virus Database is out of date.

> Checked by AVG - http://www.avg.com

> Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:

7/16/2008 4:56 PM

>

[Guest guest]

I know two kids that I would consider " recovering " and " recovered. "

One child's mom had him on gfcf & did lots of ABA by 18 mos old. He is

what I would call " recovering " because he still has a diagnosis,

though you would likely not know he has autism unless you spent a lot

of time with him. I know a teenager who I would call " recovered "

because she no longer has an autism/asperger/PDD/ADHD/ETC diagnosis. I

do not believe her mother ever did any biomed, but her daughter was

very mild from day one, originally had an Asperger dx.

I think the issue here isn't if recovered kids exist, it's what

recovered means, something our community has yet to clarify. I know

some people call their kids recovered when they have gone from autism

to PDD labels; if they are happy with that, great. I personally would

not consider that recovered, my daughter has gone from autism to PDD

according to some doctors, I don't consider her to not have autism, to

me it's just a label saying the same thing is there, just less of it.

I personally may consider my daughter " recovered " if she makes it to a

clear Asperger level of functioning. I guess my goal is for her to be

functional. Of course, that's still not what I consider recovered, but

it's what I consider " goal met " for my hope for her future, so even

with myself I teeter on the term recovery. Obviously I would like for

her to have no signs of autism what so ever, but functional &

independent with autism ain't so bad, either.

Debi

[Guest guest]

christel,

definitely yeast...that test is done. and I'm going to have to inquire

about getting the IGG done. Dr. Mumper never brought it up, but

wanted me to watch for patterns with the bloating. uh...no

pattern...just always bloated so maybe now she'll take it a step

further and do that. would ryan's regular pediatrician order that for

us?

Kari

> >

> > ...I am hoping this is bc their kids are recovered and their

lives are

> > busy with so much NORMAL now...for those who have followed this

list

> > for a long time are there many out there who have or know recovered

> > kids...I am having a hard time finding any so I am wondering if

anyone

> > else has been able to duplicate Stan's success wtih

antivirals...my son

> > is on Famvir and researching WAY back in the archives it seems

Stan is

> > very pro valtrex over Famvir...my osn like his showed no viral

titers,

> > just very low NKcells...Mtt was a responder to Valtrex, but we wre

> > doing the PTC supplements too...gut issues took us off all of

it, but

> > the gut issues were not bc of the supps or the valtrex as it turns

> > out...I wonder if we have erred by the switch to Famvir as well as

> > dropping PTC - anyone out there know recovered kids from PTC

> > protocol...or, gosh, fully recovered kids period? As I said

there are

> > not many with recovered kids who post...Christel is one of the

> > exceptions and I know there are a few others who are almost there

> > too...I just have never MET a recovered kid...has anyone?

> >

> > Thanks. Di

> >

>

>

>

>

> Internal Virus Database is out of date.

> Checked by AVG - http://www.avg.com

> Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:

7/16/2008 4:56 PM

>

[Guest guest]

I know/have met quite a few on the spectrum. The two who have done biomed very intensively have also done ABA, two who did "some" biomed and LOTS of ABA, one who did very very very little of either. All of them are high functioning.

Stan rarely posts and many other parentshave> moved on too...> >> >> > ...I am hoping this is bc their kids are recovered and their lives> are> > busy with so much NORMAL now...for those who have followed thislist> > for a long time are there many out there who have or knowrecovered> > kids...I am having a hard time finding any so I am wondering if> anyone> > else has been able to duplicate Stan's success wtihantivirals...my> son> > is on Famvir and researching WAY back in the archives it seemsStan> is> > very pro valtrex over Famvir...my osn like his showed no viral> titers,> > just very low NKcells...Mtt was a responder to Valtrex, but we wre> > doing the PTC supplements too...gut issues took us off all of it,> but> > the gut issues were not bc of the supps or the valtrex as it turns> > out...I wonder if we have erred by the switch to Famvir as well as> > dropping PTC - anyone out there know recovered kids from PTC> > protocol...or, gosh, fully recovered kids period? As I said there> are> > not many with recovered kids who post...Christel is one of the> > exceptions and I know there are a few others who are almost there> > too...I just have never MET a recovered kid...has anyone?> >> > Thanks. Di> >>

[Guest guest]

Di,

thanks! I've been trying to follow your posts about PEU (or PEM as I

learned it back in my college days). i've been in and out of town so

much, i end up just deleting a bunch of posts just to get reorganized.

before beginning scd, ryan was thick all over. the belly kind of

blended in. now, he's lost weight. his arms and legs are downright

skinny and that belly is so obvious now I had actually thought

that he looked like the pictures of starving children, so I didn't

think this was all that far-fetched of an idea. especially when, upon

further examination, there is a SECONDARY protein energy

undernourishment. caused by poor absorption of the proteins, not

underfeeding which we're DEFINITELY not doing. so we're feeding him

so much protein on scd and maybe it's just not being absorbed. losing

calories compared to before when his diet included more carbs. i'm so

worried about it.

SCD has done good things for us i think. It's so hard to know for

sure what has brought about the good. maybe it was the antibiotics,

maybe the b12, maybe the yogurt...ugh...so many things and even though

we've gone slow...it still doesn't help with so many variables.

anyway, i'm really tempted to start weaning him off scd. even though

i think the clostridia might be creeping back in. or maybe we're

experiencing fungal die off. or...like I said...there are just too

many variables. it's enough to drive anyone crazy!

Kari

> > >

> > > ...I am hoping this is bc their kids are recovered and their

> lives are

> > > busy with so much NORMAL now...for those who have followed this

> list

> > > for a long time are there many out there who have or know

> recovered

> > > kids...I am having a hard time finding any so I am wondering if

> anyone

> > > else has been able to duplicate Stan's success wtih

> antivirals...my son

> > > is on Famvir and researching WAY back in the archives it seems

> Stan is

> > > very pro valtrex over Famvir...my osn like his showed no viral

> titers,

> > > just very low NKcells...Mtt was a responder to Valtrex, but we

> wre

> > > doing the PTC supplements too...gut issues took us off all of it,

> but

> > > the gut issues were not bc of the supps or the valtrex as it

> turns

> > > out...I wonder if we have erred by the switch to Famvir as well

> as

> > > dropping PTC - anyone out there know recovered kids from PTC

> > > protocol...or, gosh, fully recovered kids period? As I said

> there are

> > > not many with recovered kids who post...Christel is one of the

> > > exceptions and I know there are a few others who are almost there

> > > too...I just have never MET a recovered kid...has anyone?

> > >

> > > Thanks. Di

> > >

> >

>

[Guest guest]

ahh yes that would be great, and I had brought that up once to ARI, as I thought it would lend them more redability, BUT generation rescue angels ARE suppose to be parents of kids who have recovered or are close to it, they have vidoes of before and after on their sites with testimonial from those parents and there kids stories and what got them there, so it's about 3/4 of what you are looking for. that is HOW you became a rescue angel when you are interested (I am one for maine) and that was the process I went through, submitted our sons stories and what ever.

we had the cool thing of the woman who GAVE our son his DX in maine (we had a previous one BEFORE moving here as well from a nuro and team of evaluators from missioui as well) when we came to the state of maine.....(if you come in from OUT of state they re-eval you so THEY say you are or aren't autistic after hours of evaluations from a team) also REMOVE the dx 3 years later at his re-eval (they redo this eval every 3 years) so no one can ever say well it was someone elses opinion or difference of opinion, she remembered him from before even and how impaired he was, and actually sat at the table crying as she REMOVED his label.....and then of course asked WHAT we did to beable to do so....so we have some really cool documentation, issue is that we are also in a class action lawsuit over vaccinations triggering things that we may have to wait for all that to be public as well

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Stan rarely posts and many other parentshave> moved on too...> >> >> > ...I am hoping this is bc their kids are recovered and their lives> are> > busy with so much NORMAL now...for those who have followed thislist> > for a long time are there many out there who have or knowrecovered> > kids...I am having a hard time finding any so I am wondering if> anyone> > else has been able to duplicate Stan's success wtihantivirals...my> son> > is on Famvir and researching WAY back in the archives it seemsStan> is> > very pro valtrex over Famvir...my osn like his showed no viral> titers,> > just very low NKcells...Mtt was a responder to Valtrex, but we wre> > doing the PTC supplements too...gut issues took us off all of it,> but> > the gut issues were not bc of the supps or the valtrex as it turns> > out...I wonder if we have erred by the switch to Famvir as well as> > dropping PTC - anyone out there know recovered kids from PTC> > protocol...or, gosh, fully recovered kids period? As I said there> are> > not many with recovered kids who post...Christel is one of the> > exceptions and I know there are a few others who are almost there> > too...I just have never MET a recovered kid...has anyone?> >> > Thanks. Di> >> >> >> >> > Internal Virus Database is out of date.> > Checked by AVG - http://www.avg.com> > Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:> 7/16/2008 4:56 PM> >>>>>> Internal Virus Database is out of date.> Checked by AVG - http://www.avg.com> Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:7/16/2008 4:56 PM>Internal Virus Database is out of date.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date: 7/16/2008 4:56 PM

[Guest guest]

Hi from Sue,

I'm lingering here, too, --- similar to Christel..even though my family is "recovered "...

because I switched from my church's "Health ministry" which was allopathic

and NOT suited to my passion... to this group instead...

I simply love sharing with people who are like minded..and open to healing with nutrition..etc.

( since I taught nutrition in secondary ed. before retiring) .

And in turn, God blessed ME with MUCH NEW knowledge from all of YOU.

We never stop learning... and what a great place to share and compare MB12 success journeys.)

--as we have benefited from ourselves.

There are so many ways to achieve wellness.. as this group has offered.

Here is a timeline of another recovered child having ASD below as well as the other one I posted.yesterday.

I actually know of two more but only have one in writing...

"Story about My Son from Ken De Lashmutt

Born October 9, 2001 was progressing as a normal baby until his first vaccinations.After his first vaccination he screamed for 12 hours and had a 104 degree fever nearly the entire time. Then he started regressing with developmental delays such as absence of attachment behaviors, speech delay and hyperactivity. As he grew older (2 years old) he started head-banging, hand flapping, unresponsiveness to calling his name, impulsivity, and self biting, and became almost silent and frustrated because he could not communicate. We started searching for answers and after reading about the symptoms and decided that he had some aspects of autism spectrum disorder.

October 27, 2004We had a psychological, educational, social assessment, speech and language assessment evaluation done by the public school system and we started him in special education pre-school program, where speech therapy and occupational therapy services were provided for him.

December 2004 (entered special education program)The special-education teachers complained about the head banging and absence of attachment behaviors and were afraid he would hurt himself and said if these conditions do not improve he will have to be removed from the program.

May 11, 2005IEP; Delays in auditory comprehension and use of language. Needs to improve his skills for approaching learning tasks/activities. Needs to improve his early-literacy skills in areas of fine motor-manipulation and writing.

November 2006 (started LiveWave patches)I started using the glutathione booster patches in November of 2006 and I applied them once or twice a week. I started seeing results immediately. He became more responsive, reduced head banging and self biting, started expressing his needs, began repetition of words or phrases just spoken by others.

May 2, 2007Pre-school teacher stated "I believe that part of 's regression and subsequent autism was the result of receiving vaccines.”

June 2007IEP; He has improved so much over the last school year that at the last IEP meeting all IEP members recommended that he attend mixed kindergarten class where normal children and mixed with special needs children. He can carry on intelligent conversations no head banging or self biting.

Over the summer I increased the usage of the patches to three or four times a week. And the results are very clear. The new kindergarten teacher said that three other adults in the school have commented that they can’t believe that is the same boy that they knew last spring. He is much calmer, stands in line orderly and quietly, enters the classroom and socializes with other students, begins writing tasks as required.’s Dad M. DeLashmutt"

3.1.

Re: Stan rarely posts and many other parents have moved on too...

Posted by: "Christel King" christel76@... missvermont94

Thu Jul 24, 2008 12:01 pm (PDT)

i know that when you get your child to a certain point you shout it from the roof tops but then you want to enjoy the fruits of your labor as well and move into the world you worked so hard to get to, doing more normal things, more social events, wtih people WITHOUT special needs children, so YOUR newly recovered child can have that interaction and continual challenge to grow with peers.I have felt that pull at times, but I have an NT daughter with ASD health issues but has never been on spectrum, (sure she would have been if we had vaccinated) and my son still has mito issues that we deal with and PANDAS. I also made a promise way back in the darkest days that if God brought us on this trip from vermont to california as I put it, that when we got to California we would help others find there way to. so I remain to do so. I have an aspie adult friend as well that I am trying to continueally learn for what things help her and unwravel her issues. she has made great gains this last year as well. just because they aren't here anymore doesn't mean they aren't around, there are 1000's of recovered kids now, from DAN protical so to put it, they just may not linger now as they aren't in need of the support that is here. they have recieved there schooling in what to do, and now have graduated so to speak and are now using those skills in the real world, just like we go on to do jobs after college. Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes Stan rarely posts and many other parents have moved on too......I am hoping this is bc their kids are recovered and their lives are busy with so much NORMAL now...for those who have followed this list for a long time are there many out there who have or know recovered kids...I am having a hard time finding any so I am wondering if anyone else has been able to duplicate Stan's success

3.1.

[Guest guest]

wow, that could be a really good story one day. I am glad to hear she

asked, usually 'they' don't want to know...

nx

> > >

> > > i know that when you get your child to a certain point you shout

> it

> > from the roof tops but then you want to enjoy the fruits of your

> labor

> > as well and move into the world you worked so hard to get to,

doing

> more

> > normal things, more social events, wtih people WITHOUT special

needs

> > children, so YOUR newly recovered child can have that interaction

> and

> > continual challenge to grow with peers.

> > >

> > > I have felt that pull at times, but I have an NT daughter with

ASD

> > health issues but has never been on spectrum, (sure she would have

> been

> > if we had vaccinated) and my son still has mito issues that we

deal

> with

> > and PANDAS. I also made a promise way back in the darkest days

that

> if

> > God brought us on this trip from vermont to california as I put

it,

> that

> > when we got to California we would help others find there way to.

so

> I

> > remain to do so. I have an aspie adult friend as well that I am

> trying

> > to continueally learn for what things help her and unwravel her

> issues.

> > she has made great gains this last year as well. just because they

> > aren't here anymore doesn't mean they aren't around, there are

> 1000's of

> > recovered kids now, from DAN protical so to put it, they just may

> not

> > linger now as they aren't in need of the support that is here.

they

> > have recieved there schooling in what to do, and now have

graduated

> so

> > to speak and are now using those skills in the real world, just

like

> we

> > go on to do jobs after college.

> > >

> > >

> > >

> > >

> > > Recovering from Autism is a marathon

> > > NOT a sprint, but FULLY possible!

> > > Read more about it on my BLOGs at

> > > http://www.myspace.com/christelking

> > > http://foggyrock.com/MyPage/recoveringwishes

> > >

> > >

> > > Stan rarely posts and many other parents

> have

> > moved on too...

> > >

> > >

> > > ...I am hoping this is bc their kids are recovered and their

lives

> > are

> > > busy with so much NORMAL now...for those who have followed this

> list

> > > for a long time are there many out there who have or know

> recovered

> > > kids...I am having a hard time finding any so I am wondering if

> > anyone

> > > else has been able to duplicate Stan's success wtih

> antivirals...my

> > son

> > > is on Famvir and researching WAY back in the archives it seems

> Stan

> > is

> > > very pro valtrex over Famvir...my osn like his showed no viral

> > titers,

> > > just very low NKcells...Mtt was a responder to Valtrex, but we

wre

> > > doing the PTC supplements too...gut issues took us off all of

it,

> > but

> > > the gut issues were not bc of the supps or the valtrex as it

turns

> > > out...I wonder if we have erred by the switch to Famvir as well

as

> > > dropping PTC - anyone out there know recovered kids from PTC

> > > protocol...or, gosh, fully recovered kids period? As I said

there

> > are

> > > not many with recovered kids who post...Christel is one of the

> > > exceptions and I know there are a few others who are almost

there

> > > too...I just have never MET a recovered kid...has anyone?

> > >

> > > Thanks. Di

> > >

> > >

> > >

> > >

> > > Internal Virus Database is out of date.

> > > Checked by AVG - http://www.avg.com

> > > Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:

> > 7/16/2008 4:56 PM

> > >

> >

> >

> >

> >

> > Internal Virus Database is out of date.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:

> 7/16/2008 4:56 PM

> >

>

>

>

>

> Internal Virus Database is out of date.

> Checked by AVG - http://www.avg.com

> Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date:

7/16/2008 4:56 PM

>

[Guest guest]

The day my son was diagnosed I called (by luck) Cale and she got a mom of a recovered kid to call me that night. My son was 12 months old when we got started and I spoke to a mom who recovered her son through GFCF and supplements. She started when her son was 17 months old and he was declassified from his diagnosis at 3.

I know 2 other families with recovered kids. Both are now classified as speech and language delayed. One mom lived near me when we were starting and she came over (she was a hairdresser) and gave my son his first haircut and talked to me on the phone about diet a couple of times a month for the first few months. The other mom was the daughter of some of my parents friends. She has really moved on from autism and no longer does diet or anything but some speech therapy in school with her 6 year old.

Caryn Reid