- re: LO not knowing you

[Guest guest]

Hi --

At Alzheimer's meeting where I learned about LBD, the presenter told

us that even when our LOs don't remember exactly who we are, they

recognize the love. I envision that as their souls still knowing

our souls.

I can't imagine how it will be if Dad gets to point of not knowing

me, but think this concept will help me deal w/ it.

Lori

Detroit

> Hi Deidre

> I am new too. For two and a half years my MIL has had various

> problems, but we all assumed she had alzheimer's. My sister in

law

> lived in same city (45 minutes away, she did not have kids we have

> an 11 and 9 yr old)and was asked many times to get the ball

rolling

> for diagnosis, but never did and died Dec 10 at 46. She wanted to

> do it all even though my husband and I offered to help her. MIL

> broke hip Dec 9 and could not be alone anymore because of physical

> and " dementia " that was rolling downhill like a locomotive. She

> discharged from the hospital Feb 19 to come to us, only family

> left. My husband and I actively sought answers intuitively now

> thinking it was not AL. Second week of March while

> googling " dementia " I read a vast list, many unheard of to me.

> Kept going back to LBD, became convinced within days, husband

> agreed. Family doctor not concerned so kept upping risperdal to

> control hallucinations, she was becoming a living corpse. Given

> lorazepam in hospital, taking this at same time, bad on top of

bad!

> On my own discontinued risperdal and asked family doctor to give

> seroquel. The geriatric doctor I asked for a refferal to wants

her

> off seroquel and discontinue oxazepam, I already did 2 weeks

prior

> to that appointment of May 17. Long and short - MIL is doing

> amazing. Incontinence almost under control now, mobility vastly

> improved, cheerful, less hiding in bedroom. She now knows that

Mark

> is her son, however not always sure who I am past the one that is

> always here looking after her, at least she likes me!! She knows

> the boys name but not that they are her grandchildren, just my

> kids. We live and learn continuously with this disease, I find

> there is a rapid curve of learning and understanding for myself.

> Now that I have watched the rollercoaster I get less driven by it

> and ride it out better, what for tomorrow, because it might be

> better. I also like Dan's term of " showtime " as I have personally

> seen this and felt nuts myself, thought people would not believe

> me. Thanks for Dan because I realized others did this too. I

find

> that we are all new to this disease as it is not as commonly

> diagnosed even though it is there and we are all becoming wise

> medically on what works for each individual LO. I found this

group

> in early April, and the people here have gotten me through some

> dark times, encouraged and advised wisely. I am considering going

> for an antidepressant myself. I have struggled to remain positive

> for over a month now, easily get down and watch myself fall apart,

> husband and I constantly fight as I cannot take any stress

anymore.

> I did not expect to feel like I do. I worrying about my husband

and

> children. Husband's 2 (only) aunts are going the same way,

> grandmother did too. Living with this day to day brings the

reality

> home. Ah well enough, thanks for listening and hope I did not

> sound too bleak. in borough, ON

>

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