Re: Reply to aamenten - reply to Maureen

[Guest guest]

June 4, 2004

Dear Maureen,

Thanks for replying to my email about low dose naltrexone. I am

grateful to you for sharing your experience and saying it was a huge

help.

I am trying to figure out which symptoms of MS LDN seems to help.

Then if those symptoms matched mine, I would think that it was worth

it to try it.

What are my symptoms? I will give you a list of the major ones.

Fatigue in all parts of my body, but it feels more like weakness.

My eyes get so tired that I can't read for very long. My legs get

so weak that I can't walk far. My hands tire if I do repetitive

tasks; for example I can't brush the dog because it fatigues my arm

too much.

Depression. Both the sad and desperate kind, and the I-can't-think-

straight-kind. I take Manerix for this.

Vision: I have had a lot of optic neuritis and lost some vision,

though it has come back mostly thanks to IVIG.

Speech: in 1988 I lost the ability to speak because my jaw muscles

became too weak to make the motions of speech. Thanks to IVIG, the

talking is better but I still can't talk on demand, or as much as I

want to in order to express myself.

Dry eyes and thirst: the doctors do not know what causes this, and

it may not be MS.

Did you have any of these symptoms? If you did, what was the effect

of LDN on them?

If I took LDN I would have to give up Betaseron, which I also take.

Betaseron does not make anything better, but when I stsop it, the

disease gets worse. So I am reluctant to stop it unless I believe

that LDN might really be a good alternative.

Thank you for reading this long list of symptoms. I look forward to

your reply.

Best,

gmckimsm

> In a message dated 6/2/2005 7:45:49 PM Central Daylight Time,

> aamenten@y... writes:

>

> I wish I knew whether LDN has helped

> anyone who has had MS as long as I have. Has there been any

reversal

> of symptoms--meaning recovery of loss of function? Any information

> from users who are at a similar stage of the disease will be very

> helpful. Thank you.

>

> I have had MS for about 30 years. From your post, I don't think

mine

> has progressed as much as yours, but for me, LDN has been a huge

> help.

>

> If you're taking Betaseron, however, it is likely that LDN will

> conflict.

>

> Maureen