Re: Wanting Meyer Center experiences!! What do they do??

December 14, 2007

I can put money on the Meyer center not offering any bio-medical

intervention, not even dietary intervention such as the GFCF diet. I think

they are in the same boat as the blue bird clinic which is testing (MRI,

EEG, fragile x, genetic testing,..etc), SSRI drugs, and maybe referral to

speech, OT, and behavioral therapy. That is the extent offered by

mainstream medicine when it comes to Autism.

We have not been there since my son was first diagnosed so I don't know if

things changed or not.

You have a better chance working with your pediatrician. Maybe, you can get

him Jepson's book

http://www.thoughtfulhouse.org/pr/jepson_book.htm

Wanting Meyer Center experiences!! What do

they do??

>I am curious as to what do they do at the Meyer center? See I

> currently can't afford a DAN doctor so I have been trying to get as

> many biomedical type testings done through insurance with regular a

> pediatrition. My next step is a IGG food panel through Great Plains --

> -I am paying out of pocket for that. I am probably going to start

> seeing Dr. Jepson because of the good reviews. When I asked the

> regular pediatrition for diflucan and why I wanted to try, he gave us

> some. It was at low strength but at least he was trying to help me.

> But when I asked about a referral to an infectious disease doctor, he

> said he doesn't know any and sent a referral to the Meyer Center. I

> want to get a virus panel done on my son. On a another board, I keep

> getting told my son sounds like a viral kid. I would love to try

> Valtex and see it is helps like it does many other children. Will the

> Meyer center do that kind of testing?? What kind of testing do they

> do?? I am not sure how long the waiting list is yet. I am waiting to

> receive a packet in the mail the I have to send it back to get an

> appointment. My son is four and goes half school day in Spring I.S.D.

> He seen a neurologist at Texas Children's Blue Bird clinic in June

> and they did a MRI and genetic testing and he tested back as fine on

> MRI and no match to genetic autism. Then they said " unless you want a

> prescribtion drug for his behavior there is nothing else we can do

> for you. " I am suppose to go back in January to see if I change my

> mind about the drug issue. I still don't think my son needs to be

> medicated! Sorry for the post being long. I am curious what the

> Meyer clinic has to offer and what kind of testing do they do???

>

> Any experiences I would love to read about!!

>

> Thank you, Janice

>

> Texas Autism Advocacy

> www.TexasAutismAdvocacy.org

>

> Texas Disability Network

> Calendar of Events

> www.TexasAutismAdvocacy.org

>

December 14, 2007

I just want to let you know that appointments are a ways out for the Meyer

Center. I mailed the packet to them in Sept. 2007 and have yet to receive a

call for an appt. I was told that someone should be contacting me by month end

(Dec. 07) to set up appt.

Janice wrote: I am curious as to what do they do

at the Meyer center? See I

currently can't afford a DAN doctor so I have been trying to get as

many biomedical type testings done through insurance with regular a

pediatrition. My next step is a IGG food panel through Great Plains --

-I am paying out of pocket for that. I am probably going to start

seeing Dr. Jepson because of the good reviews. When I asked the

regular pediatrition for diflucan and why I wanted to try, he gave us

some. It was at low strength but at least he was trying to help me.

But when I asked about a referral to an infectious disease doctor, he

said he doesn't know any and sent a referral to the Meyer Center. I

want to get a virus panel done on my son. On a another board, I keep

getting told my son sounds like a viral kid. I would love to try

Valtex and see it is helps like it does many other children. Will the

Meyer center do that kind of testing?? What kind of testing do they

do?? I am not sure how long the waiting list is yet. I am waiting to

receive a packet in the mail the I have to send it back to get an

appointment. My son is four and goes half school day in Spring I.S.D.

He seen a neurologist at Texas Children's Blue Bird clinic in June

and they did a MRI and genetic testing and he tested back as fine on

MRI and no match to genetic autism. Then they said " unless you want a

prescribtion drug for his behavior there is nothing else we can do

for you. " I am suppose to go back in January to see if I change my

mind about the drug issue. I still don't think my son needs to be

medicated! Sorry for the post being long. I am curious what the

Meyer clinic has to offer and what kind of testing do they do???

Any experiences I would love to read about!!

Thank you, Janice

December 14, 2007

I had no idea the waiting list was that long!! You have waited three

months just to get an appointment then the actual date could be

months after that. So far as I understand they don't do medical

testing. That is so discouraging. Honestly if I wait that long to do

anything I fear he could get worst. He is on the GFCF diet with

supplements. That has helped alot but I need to test for viruses! I

am nervous to mention Valtrex to my son's pediatrition because I

don't want him to think I am using my son as a guinea pig. And if he

does do a viral panel I don't think he would give Valtrex because I

don't believe he has prescribed it before. Like when I asked about

B12 shots he said " they don't do that there. " Not sure what I am to

do. Not sure where to do the IGG blood draw either because Quest

Diagnostics told me today that they don't draw blood for other labs.

I feel stuck!! I know Dr. Jepson is the answer but even that would be

months away!

Janice

>

> I just want to let you know that appointments are a ways out for

the Meyer Center. I mailed the packet to them in Sept. 2007 and have

yet to receive a call for an appt. I was told that someone should be

contacting me by month end (Dec. 07) to set up appt.

>

> Janice wrote: I am curious as to what

do they do at the Meyer center? See I

> currently can't afford a DAN doctor so I have been trying to get as

> many biomedical type testings done through insurance with regular a

> pediatrition. My next step is a IGG food panel through Great

Plains --

> -I am paying out of pocket for that. I am probably going to start

> seeing Dr. Jepson because of the good reviews. When I asked the

> regular pediatrition for diflucan and why I wanted to try, he gave

us

> some. It was at low strength but at least he was trying to help me.

> But when I asked about a referral to an infectious disease doctor,

he

> said he doesn't know any and sent a referral to the Meyer Center. I

> want to get a virus panel done on my son. On a another board, I

keep

> getting told my son sounds like a viral kid. I would love to try

> Valtex and see it is helps like it does many other children. Will

the

> Meyer center do that kind of testing?? What kind of testing do they

> do?? I am not sure how long the waiting list is yet. I am waiting

to

> receive a packet in the mail the I have to send it back to get an

> appointment. My son is four and goes half school day in Spring

I.S.D.

> He seen a neurologist at Texas Children's Blue Bird clinic in June

> and they did a MRI and genetic testing and he tested back as fine

on

> MRI and no match to genetic autism. Then they said " unless you want

a

> prescribtion drug for his behavior there is nothing else we can do

> for you. " I am suppose to go back in January to see if I change my

> mind about the drug issue. I still don't think my son needs to be

> medicated! Sorry for the post being long. I am curious what the

> Meyer clinic has to offer and what kind of testing do they do???

>

> Any experiences I would love to read about!!

>

> Thank you, Janice

>

December 14, 2007

>

> I can put money on the Meyer center not offering any bio-medical

> intervention, not even dietary intervention such as the GFCF diet.

I think

> they are in the same boat as the blue bird clinic which is testing

(MRI,

> EEG, fragile x, genetic testing,..etc), SSRI drugs, and maybe

referral to

> speech, OT, and behavioral therapy. That is the extent offered by

> mainstream medicine when it comes to Autism.

>

> We have not been there since my son was first diagnosed so I don't

know if

> things changed or not.

>

> You have a better chance working with your pediatrician. Maybe,

you can get Meyer center does do a metal screening test inc. test for

mercury

> him Jepson's book

> http://www.thoughtfulhouse.org/pr/jepson_book.htm

>

> Wanting Meyer Center experiences!!

What do

> they do??

>

> >I am curious as to what do they do at the Meyer center? See I

> > currently can't afford a DAN doctor so I have been trying to get

as

> > many biomedical type testings done through insurance with regular

a

> > pediatrition. My next step is a IGG food panel through Great

Plains --

> > -I am paying out of pocket for that. I am probably going to start

> > seeing Dr. Jepson because of the good reviews. When I asked the

> > regular pediatrition for diflucan and why I wanted to try, he

gave us

> > some. It was at low strength but at least he was trying to help

me.

> > But when I asked about a referral to an infectious disease

doctor, he

> > said he doesn't know any and sent a referral to the Meyer Center.

I

> > want to get a virus panel done on my son. On a another board, I

keep

> > getting told my son sounds like a viral kid. I would love to try

> > Valtex and see it is helps like it does many other children. Will

the

> > Meyer center do that kind of testing?? What kind of testing do

they

> > do?? I am not sure how long the waiting list is yet. I am waiting

to

> > receive a packet in the mail the I have to send it back to get an

> > appointment. My son is four and goes half school day in Spring

I.S.D.

> > He seen a neurologist at Texas Children's Blue Bird clinic in June

> > and they did a MRI and genetic testing and he tested back as fine

on

> > MRI and no match to genetic autism. Then they said " unless you

want a

> > prescribtion drug for his behavior there is nothing else we can do

> > for you. " I am suppose to go back in January to see if I change my

> > mind about the drug issue. I still don't think my son needs to be

> > medicated! Sorry for the post being long. I am curious what the

> > Meyer clinic has to offer and what kind of testing do they do???

> >

> > Any experiences I would love to read about!!

> >

> > Thank you, Janice

> >

> > Texas Autism Advocacy

> > www.TexasAutismAdvocacy.org

> >

> > Texas Disability Network

> > Calendar of Events

> > www.TexasAutismAdvocacy.org

> >

December 14, 2007

I filled out all my paperwork for the Meyer Center in September

2006. I didn't get in until May 2007, and that was only because I

went up there while I was in the hospital for another appointment.

My evaluation was not very thorough, the evaluation my daughter had

by Dr. Danny on was much more in depth. I find that it is

hard to get her doctor on the phone, and she even neglected to tell

me that the genetic screening revealed that my daughter is missing

part of her third chromosome. I found out by accident from her

neurologist. Obviously, I'm less than impressed.

I am going to see Dr. Caldwell in Conroe in a couple of weeks. She

is not a DAN!, but she follows the Yasko protocol and takes

insurance. I know a couple of moms who are satisfied with her.

in Houston

December 15, 2007

With regard to labs, call TH and ask who they use in Austin. I can't

remember the name, but the lab in Austin has branches in Houston that

will draw labs for us.

I am curious as to what

> do they do at the Meyer center? See I

> > currently can't afford a DAN doctor so I have been trying to get

as

> > many biomedical type testings done through insurance with regular

a

> > pediatrition. My next step is a IGG food panel through Great

> Plains --

> > -I am paying out of pocket for that. I am probably going to start

> > seeing Dr. Jepson because of the good reviews. When I asked the

> > regular pediatrition for diflucan and why I wanted to try, he

gave

> us

> > some. It was at low strength but at least he was trying to help

me.

> > But when I asked about a referral to an infectious disease

doctor,

> he

> > said he doesn't know any and sent a referral to the Meyer Center.

I

> > want to get a virus panel done on my son. On a another board, I

> keep

> > getting told my son sounds like a viral kid. I would love to try

> > Valtex and see it is helps like it does many other children. Will

> the

> > Meyer center do that kind of testing?? What kind of testing do

they

> > do?? I am not sure how long the waiting list is yet. I am waiting

> to

> > receive a packet in the mail the I have to send it back to get an

> > appointment. My son is four and goes half school day in Spring

> I.S.D.

> > He seen a neurologist at Texas Children's Blue Bird clinic in

June

> > and they did a MRI and genetic testing and he tested back as fine

> on

> > MRI and no match to genetic autism. Then they said " unless you

want

> a

> > prescribtion drug for his behavior there is nothing else we can

do

> > for you. " I am suppose to go back in January to see if I change

my

> > mind about the drug issue. I still don't think my son needs to be

> > medicated! Sorry for the post being long. I am curious what the

> > Meyer clinic has to offer and what kind of testing do they do???

> >

> > Any experiences I would love to read about!!

> >

> > Thank you, Janice

> >

December 15, 2007

Try:

Texas Corporate Health Services

(Verbest Brown)

832 222-2176

actually, they come to the house and they will take the blood to either

LabCorp or Quest Diag depending on your insurance plus they will send away

blood any other lab you want them to. The charge is $30 the last time I

checked.

The issue is though finding the doctor that will order and interpret the lab

and a regular doctor will not be able to.

Re: Wanting Meyer Center experiences!! What

do they do??

>I had no idea the waiting list was that long!! You have waited three

> months just to get an appointment then the actual date could be

> months after that. So far as I understand they don't do medical

> testing. That is so discouraging. Honestly if I wait that long to do

> anything I fear he could get worst. He is on the GFCF diet with

> supplements. That has helped alot but I need to test for viruses! I

> am nervous to mention Valtrex to my son's pediatrition because I

> don't want him to think I am using my son as a guinea pig. And if he

> does do a viral panel I don't think he would give Valtrex because I

> don't believe he has prescribed it before. Like when I asked about

> B12 shots he said " they don't do that there. " Not sure what I am to

> do. Not sure where to do the IGG blood draw either because Quest

> Diagnostics told me today that they don't draw blood for other labs.

> I feel stuck!! I know Dr. Jepson is the answer but even that would be

> months away!

>

> Janice

>

>>

>> I just want to let you know that appointments are a ways out for

> the Meyer Center. I mailed the packet to them in Sept. 2007 and have

> yet to receive a call for an appt. I was told that someone should be

> contacting me by month end (Dec. 07) to set up appt.

>>

>> Janice wrote: I am curious as to what

> do they do at the Meyer center? See I

>> currently can't afford a DAN doctor so I have been trying to get as

>> many biomedical type testings done through insurance with regular a

>> pediatrition. My next step is a IGG food panel through Great

> Plains --

>> -I am paying out of pocket for that. I am probably going to start

>> seeing Dr. Jepson because of the good reviews. When I asked the

>> regular pediatrition for diflucan and why I wanted to try, he gave

> us

>> some. It was at low strength but at least he was trying to help me.

>> But when I asked about a referral to an infectious disease doctor,

> he

>> said he doesn't know any and sent a referral to the Meyer Center. I

>> want to get a virus panel done on my son. On a another board, I

> keep

>> getting told my son sounds like a viral kid. I would love to try

>> Valtex and see it is helps like it does many other children. Will

> the

>> Meyer center do that kind of testing?? What kind of testing do they

>> do?? I am not sure how long the waiting list is yet. I am waiting

> to

>> receive a packet in the mail the I have to send it back to get an

>> appointment. My son is four and goes half school day in Spring

> I.S.D.

>> He seen a neurologist at Texas Children's Blue Bird clinic in June

>> and they did a MRI and genetic testing and he tested back as fine

> on

>> MRI and no match to genetic autism. Then they said " unless you want

> a

>> prescribtion drug for his behavior there is nothing else we can do

>> for you. " I am suppose to go back in January to see if I change my

>> mind about the drug issue. I still don't think my son needs to be

>> medicated! Sorry for the post being long. I am curious what the

>> Meyer clinic has to offer and what kind of testing do they do???

>>

>> Any experiences I would love to read about!!

>>

>> Thank you, Janice

>>

December 15, 2007

Thank you so much!! I will be giving them a call. I was clueless as

where to go because every blood draw ever has been from Quest. That

would be great if they could come to our house because then I don't

have to deal with the odd looks and stares in waiting rooms because

of my son's behaviors and lack of language. I would gladly pay the

$30. I have heard they Great Plains will completely interpret any

test, so that will help.

Janice

> Try:

>

> Texas Corporate Health Services

> (Verbest Brown)

> 832 222-2176

>

> actually, they come to the house and they will take the blood to

either

> LabCorp or Quest Diag depending on your insurance plus they will

send away

> blood any other lab you want them to. The charge is $30 the last

time I

> checked.

>

> The issue is though finding the doctor that will order and

interpret the lab

> and a regular doctor will not be able to.

>

> Re: Wanting Meyer Center

experiences!! What

> do they do??

>

> >I had no idea the waiting list was that long!! You have waited

three

> > months just to get an appointment then the actual date could be

> > months after that. So far as I understand they don't do medical

> > testing. That is so discouraging. Honestly if I wait that long to

do

> > anything I fear he could get worst. He is on the GFCF diet with

> > supplements. That has helped alot but I need to test for viruses!

I

> > am nervous to mention Valtrex to my son's pediatrition because I

> > don't want him to think I am using my son as a guinea pig. And if

he

> > does do a viral panel I don't think he would give Valtrex because

I

> > don't believe he has prescribed it before. Like when I asked about

> > B12 shots he said " they don't do that there. " Not sure what I am

to

> > do. Not sure where to do the IGG blood draw either because Quest

> > Diagnostics told me today that they don't draw blood for other

labs.

> > I feel stuck!! I know Dr. Jepson is the answer but even that

would be

> > months away!

> >

> > Janice

> >

> >>

> >> I just want to let you know that appointments are a ways out for

> > the Meyer Center. I mailed the packet to them in Sept. 2007 and

have

> > yet to receive a call for an appt. I was told that someone

should be

> > contacting me by month end (Dec. 07) to set up appt.

> >>

> >> Janice <leadfoot3600@> wrote: I am curious as to what

> > do they do at the Meyer center? See I

> >> currently can't afford a DAN doctor so I have been trying to get

as

> >> many biomedical type testings done through insurance with

regular a

> >> pediatrition. My next step is a IGG food panel through Great

> > Plains --

> >> -I am paying out of pocket for that. I am probably going to start

> >> seeing Dr. Jepson because of the good reviews. When I asked the

> >> regular pediatrition for diflucan and why I wanted to try, he

gave

> > us

> >> some. It was at low strength but at least he was trying to help

me.

> >> But when I asked about a referral to an infectious disease

doctor,

> > he

> >> said he doesn't know any and sent a referral to the Meyer

Center. I

> >> want to get a virus panel done on my son. On a another board, I

> > keep

> >> getting told my son sounds like a viral kid. I would love to try

> >> Valtex and see it is helps like it does many other children. Will

> > the

> >> Meyer center do that kind of testing?? What kind of testing do

they

> >> do?? I am not sure how long the waiting list is yet. I am waiting

> > to

> >> receive a packet in the mail the I have to send it back to get an

> >> appointment. My son is four and goes half school day in Spring

> > I.S.D.

> >> He seen a neurologist at Texas Children's Blue Bird clinic in

June

> >> and they did a MRI and genetic testing and he tested back as fine

> > on

> >> MRI and no match to genetic autism. Then they said " unless you

want

> > a

> >> prescribtion drug for his behavior there is nothing else we can

do

> >> for you. " I am suppose to go back in January to see if I change

my

> >> mind about the drug issue. I still don't think my son needs to be

> >> medicated! Sorry for the post being long. I am curious what the

> >> Meyer clinic has to offer and what kind of testing do they do???

> >>

> >> Any experiences I would love to read about!!

> >>

> >> Thank you, Janice

> >>

December 15, 2007

>

> I am curious as to what do they do at the Meyer center?

Hi Janice,

We have used the Meyer Center in Houston. We live in East Texas. We

completed my daughter's paperwork (age 2 y.o.) and after that it took

9 months (3 y.o.) to get an appointment. One positive thing I can say

is that after Dr. after Dr. and test after test we were finally able

to get a diagnosis to begin working with. They did do extensive

testing, genetic testing, and their assessments of the MRI's were

much more helpful than the ped. Nuero we were using. They did all the

genetic testing while we were there. We have Dr. Nirupana Maddurri.

She has always spent plenty of time with us in person and on the

phone explaining test results, interventions and therapies. She also

wrote a report for our ISD explaining the need for the quantity of

therapies they should deliver to assist Abby in her education because

our ARD team kept trying to say interventions we were requesting

were " medical " . She used IDEA 2004 in the report to challenge them

and it worked.

However, I agree with an earlier post - they only seem to support

traditional therapies - OT, PT, Speech, VI, & OM. Also in our last

appointment they basically disregarded the effects of her diagnosis

of cortical visual impairment (CVI) and how to incorporate that into

the big picture of Abby's overall treatment. They were the one's that

confirmed the diagnosis with her latest MRI. The answer given by

Meyer's was just keep the same therapies. Yes this is true but they

had little knowledge of how CVI mimics autism, can appear as MR and

the affects on the global development delay's that accompany CVI. I

was very unimpressed with that lack of knowledge.

My experience in short is - if your child only has autism and you

agree with only traditional therapy they are good. Dr. Maddurri was a

great asset with the school and very patient in making sure we

understood. As Abby has grown and other diagnoses have proved true I

have been disappointed in their knowledge or willingness to move past

their initial impression and incorporate the big picture. They gave

us a good starting place but have not been able (in my opinion) to

provide a holistic approach. One example is they gave Abby a Mental

retardation dx with IQ of 52. I absolutely disagree, and work in

mental health and know IQ rating scores and what they mean. Abby is

no where near that IQ and functions WAY above it. Now that we know

she has CVI I especially disagree. She refuses to budge on that

initial score in follow-up appointments that last 15-30 minutes. I

asked her if her IQ assessment was accurate once she took into

consideration that the way she was testing Abby was equivalent to

putting a paper bag over someone's head and asking them to take a

written test in a language they did not know. She, in a very nice

way, told me to address my denial. When I asked her about CVI she

moved on and couldn't answer my questions.

They were a good starting place but not the place for us to continue

with.

Good Luck.

Beth & Abby (4 1/2 - Autism,MR,CVI) & twin bro (different set of

issues - gifted)

December 15, 2007