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I wanted to add that in my situation, my brother didn't help except

when I really needed him. During the NH admissions, most hospital

admissions, (but not all) he went with me when we set up the funeral

pre-plan and I was able to make most of the decisions...I was POA

even though my brother is older. In many situations decisions needed

to be made and my brother would sit silently until I decided as I knew

what was best for dad, then he would back me 100%. I picked out

all of the songs for the funeral as well. My brother would often tell

me that this wasn't easy for him, that he didn't go to bed and sleep well

at night, that he knew I was doing right and he wasn't, he just couldn't

help. Then, after the funeral was over with, and I was not hurried out

at all, my brother handed me the most beautiful Thank You and told

me to read it some other time. In it I was thanked for all that I did

for dad and I was told that dad was better off for what I did for him.

It said that if dad could thank me he would.

So, as you see, even though my brother wasn't there physically daily

to help out, I had his support and appreciation.

Another side to the sibling stories here-

Sandie

-- Re: Re:Dargie: My long horrible day.../ KD OT

At 12:39 AM 9/27/2004, you wrote:

>I knew it would take a real eye-popping crisis to wake up my sisters, so I

>just stopped working and started staying with my mom full time. I actually

>do not regret this but like Dargie, I really have no outside life to speak

>of. Moreover, I am already worried about dealing with my condo closing on

>Thursday. I already mentioned this to my sister who lives here (the one

who

>is totally in denial lives in Indianapolis - three hours away) but she did

>not commit one way or the other and I would not be surprised if she told me

>my mom could be alone for the few hours of the closing!

There's denial and then there's selfishness. More and more I'm

glad I'm an only child in spite of how hard this really is. I read things

like your problems with your sisters (and IMO, there is no earthly reason

why one of them can't take over for you at least once a week so you can

have a whole day off.) And I read another friend's account of how, now

that their mother is gone, her ne'er-do-well brother is suddenly asking to

see the will and wanting to know why it was arranged the way it was.

I joke with my folks; I say " You should've had twins. " But in

reality, I am grateful because in spite of the lack of help, I think it's

easier just to cope than to have to fight your sibs for every thing they

deign to do for your parents, or afterward, for every penny that might be

left.

It's funny, isn't it? That we not only have to fight this damn

disease, and our own emotions, but other people as well?

dargie

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At 07:27 AM 9/27/2004, you wrote:

>So, as you see, even though my brother wasn't there physically daily

>to help out, I had his support and appreciation.

>

>Another side to the sibling stories here-

Boy when you get a moment of appreciation, it makes a huge

difference, doesn't it? Glad to know it worked out for you. Possibly it

would have for me, too, but I'm just as happy not to have to find out. *g*

dargie

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Thank you is one of the finest things you can say and it cost nothing to

say.

M

>

>Reply-To: LBDcaregivers

>To: <LBDcaregivers >

>Subject: Re: siblings OT

>Date: Mon, 27 Sep 2004 07:27:07 -0500 (Central Daylight Time)

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>

> I wanted to add that in my situation, my brother didn't help except

>when I really needed him. During the NH admissions, most hospital

>admissions, (but not all) he went with me when we set up the funeral

>pre-plan and I was able to make most of the decisions...I was POA

>even though my brother is older. In many situations decisions needed

>to be made and my brother would sit silently until I decided as I knew

>what was best for dad, then he would back me 100%. I picked out

>all of the songs for the funeral as well. My brother would often tell

>me that this wasn't easy for him, that he didn't go to bed and sleep well

>at night, that he knew I was doing right and he wasn't, he just couldn't

>help. Then, after the funeral was over with, and I was not hurried out

>at all, my brother handed me the most beautiful Thank You and told

>me to read it some other time. In it I was thanked for all that I did

>for dad and I was told that dad was better off for what I did for him.

>It said that if dad could thank me he would.

>

>So, as you see, even though my brother wasn't there physically daily

>to help out, I had his support and appreciation.

>

>Another side to the sibling stories here-

>Sandie

>

>-- Re: Re:Dargie: My long horrible day.../ KD OT

>

>At 12:39 AM 9/27/2004, you wrote:

> >I knew it would take a real eye-popping crisis to wake up my sisters, so

>I

> >just stopped working and started staying with my mom full time. I

>actually

> >do not regret this but like Dargie, I really have no outside life to

>speak

> >of. Moreover, I am already worried about dealing with my condo closing

>on

> >Thursday. I already mentioned this to my sister who lives here (the one

>who

> >is totally in denial lives in Indianapolis - three hours away) but she

>did

> >not commit one way or the other and I would not be surprised if she told

>me

> >my mom could be alone for the few hours of the closing!

>

> There's denial and then there's selfishness. More and more I'm

>glad I'm an only child in spite of how hard this really is. I read things

>like your problems with your sisters (and IMO, there is no earthly reason

>why one of them can't take over for you at least once a week so you can

>have a whole day off.) And I read another friend's account of how, now

>that their mother is gone, her ne'er-do-well brother is suddenly asking to

>see the will and wanting to know why it was arranged the way it was.

> I joke with my folks; I say " You should've had twins. " But in

>reality, I am grateful because in spite of the lack of help, I think it's

>easier just to cope than to have to fight your sibs for every thing they

>deign to do for your parents, or afterward, for every penny that might be

>left.

> It's funny, isn't it? That we not only have to fight this damn

>disease, and our own emotions, but other people as well?

> dargie

>

>

>

>

>Welcome to LBDcaregivers.

>

>

>

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noted:

Thank you is one of the finest things you can say and it cost nothing to

say.

*************************

So - THANK YOU to all of you for being here and providing information about

LBD and more importantly, providing support as we travel down the dementia

road!

carol

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