Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Thank you No Clue! You take wonderful notes. Sedlock is coming out with her new book soon? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 I just got home.. took me 1 hour and 3 minutes to get home. Took me 3 hours to get there yesterday afternoon. My head is spinning too! Great job of summarizing. It was really great meeting everyone. I think this was The most expensive 48 hours in my life. I haven't added it all up, but before I spent any preplanned cash, it was $695.. with the meals and cabs, I'm sure it's over $800! Should I do a MasterCard commercial? $280.00 on MasterCard (actually, I used Visa for hotel room $240.00 for car rental $50.00 for the conference The last 48 hours: PRICELESS!!!! I guess I could have just summed up meeting everyone, the job & AND FAMILY did to make this happen, and everything else, in just one word. Ok, make it two. TOTALLY AWESOME. Now... where do we go from here? Is today Day 1 of Tomorrow? [low dose naltrexone] conference snippets Just got back from LDN conference and my head is spinning. PS Larry , was there too, maybe he'll fill in. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 A great post Kiki, thanks very much! -Thanks to the other atendees also, (esp. B. & Larry GC.) -After reading these messages, I quickly felt that I had a real sense of the experience of the conference: -It felt GREAT! -Seems like it was a big success! Thanks again for the prompt reporting! Gerald [low dose naltrexone] conference snippets Just got back from LDN conference and my head is spinning. I will try to point out what I can remember off the top of my head for now. I am sure more will be written by our 4 wonderful members who also were on the Agenda and spoke from there heart and contributed their info to all there. You all know them from posts Joyce F, Sedlock, Sammy Jo(ldners.org) and Boyle Bradley(Up the Creek with a Paddle & Nobel.com) We should all be grateful for the work they have done to help promote LDN..........Thank you ladies !! Now...... Dr. B was not able to attend but a recording was presented from him about how this all came about. Dr. Gluck spoke of how he grew up with Dr. B and while most boys were playing ball, Bernie was talking about atoms and science and how they could oneday make adifference in the world (while he was in the 5th grade) Even then Dr. B was ahead of his time. 1.Key points for now....Crohns trial results from Penn State cannot be revealed until they are released for publication but...Dr.Jill conducter of trial was called about results and she was very excited about results(hinted they are great). 2.Dr. Mir from Germany from the Evers Klinik reported that the 3mgsLDN was given at 9AM to Secondary Progressive and Primary Progressive with 5on EDss scale. The trial was to prove SYMPTOM RELIEF ONLY. The results were that 30% benefited from symptom relief within 10 days. 60 patients were involved. 3. Dr. Bob Lawrence said that he will update his site because he now believes that a break from LDN is NOT necessary andLDN holidays should not be takenbut if you accidentally miss a day it is OK. 4. Our wonderful pharmacist spoke, Larry Frieders, Dr. Skip, and Victor and Terry from Irmats. All agreed that they do not recommend one filler over the other. It is individual choice. Dr. B requests lactose because this is what he started with and to keep consistency in records and results prefers to continue with same substance. Larry was very knowledgable in all kinds of LDN usage and mixtures and forms. (liquid, transdermal, capsules) Even mentioned transdermal does not usually work well but found an instance where it worked for autism...interesting? Dr. Skip will post his survey results tomorrow on his site. He entertained us and informed us about his results and beliefs. Terry from Irmat spoke of the chemical lingo of ldn and told us that someone is taking for Alopecia. Irmats is also donating all ldn and placebo for a trial in Mali, Africa for HIV that should get underway in the near future. 5. Sedlock wrote and had bound 100 copies of The Low Dose Naltrexone Manual. It is quite official looking and is a brilliant idea. All who attended received one as a gift from . , your dad must be so proud! Joyce, you made all of us tear and spoke from the heart about your experience. , your truly are an Irish story teller....everyone should order Upthe Creek with a paddle!! If Oprah calls anyone...it will be the thorn in her side .... And Sammyjo, you are a pro..you wowed the audience with your stats and charts.......Great job gals...thanks again Dr. Myra Gironi from Italy spoke about the finding of low endorphins in people with MS and how PP and SP have even lower than RR. Willing to work with Dr. Mir from Germany on LDN trial. There's more ...just can't think of it and must review my notes. Thought this may hold you over for awhile till someone else jumps in...........Got to meet cyberspace friends and I am honored and grateful.......thats all for now Kiki PS Larry , was there too, maybe he'll fill in. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 In a message dated 6/12/2005 1:21:18 PM Central Daylight Time, japiotrowski@... writes: I did not realize that LDN could be taken also in the morning?! Where can I find any more information on these findings? All the best JurekP ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ I knew this was going to throw everyone for a loop! If you read someone's comment, the 9:00 AM time was used in a trial, I believe in Germany, because the doctors doing the study preferred this time rather than observing the patients at night. They did show that it seemed to work OK for 30% of the people using it at that time. It's not carved in stone that this is the best time to use it! Personally, I'm sticking with Dr Bihari's protocol where LDN is concerned until this can be proven further! I have appreciated the comments on the seminar, as I was unable to attend. It sounds very encouraging and uplifting!! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 I did not realize that LDN could be taken also in the morning?! Where can I find any more information on these findings? All the best JurekP > 2.Dr. Mir from Germany from the Evers Klinik reported that the 3mgsLDN was > given at 9AM to Secondary Progressive and Primary Progressive with 5on EDss > scale. The trial was to prove SYMPTOM RELIEF ONLY. The results were that 30% > benefited from symptom relief within 10 days. 60 patients were involved. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 NO LDN CAN NOT BE TAKEN AT 9AM, IT WAS ONLY DONE FOR A 10 DAY TRIAL to find out 1 specific Question they had. If NOTHING else, the 9AM trial PROVED (well, to me) that you will not get THE benefits from LDN at 9AM. I would like to see Dr. Mir re-run the EXACT same test, but using 10PM as the time taken, and then report whatever results come about from that. [low dose naltrexone] Re: conference snippets I did not realize that LDN could be taken also in the morning?! Wherecan I find any more information on these findings? All the best JurekP> 2.Dr. Mir from Germany from the Evers Klinik reported that the 3mgsLDN was > given at 9AM to Secondary Progressive and Primary Progressive with 5on EDss > scale. The trial was to prove SYMPTOM RELIEF ONLY. The results werethat 30% > benefited from symptom relief within 10 days. 60 patients wereinvolved. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 ====== > NO LDN CAN NOT BE TAKEN AT 9AM, IT WAS ONLY DONE FOR A 10 DAY TRIAL to find out 1 specific Question they had. If NOTHING else, the 9AM trial PROVED (well, to me) that you will not get THE benefits from LDN at 9AM. ======== If NOTHING else, the 9AM trial PROVED (well, to me) that you will not get THE benefits from LDN at 9AM. I agree Larry. Quote Link to comment Share on other sites More sharing options...
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