Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Sally, The docs are not clear what my health challenge is. Currently, there are two opinions: reactive arthritis - probably due to infected tooth and chronic sinus infections, and possibly lyme disease. However, I do not test positive for lyme and I don't think there is a test for reactive arthritis. I do not test positive for rheumatoid arthritis. My IGGs/IGMs and IGAs are kind of off though. So, in short I have symptoms but no clear diagnosis. I am close to remission and praying for total healing and I would love to hear from anyone who is on just LDN and in remission. The side effects of LDN are so minimal and I have improved far greater on it than the antibiotics. Thanks for asking and I hope the best for you and your health challenges. I read more than I write and have so much respect for those of you who are fighting so hard to get and help others get healthy and stay encouraged. Kathy > rheumatic > From: mannasal@... > Date: Tue, 26 Oct 2010 15:57:53 -0400 > Subject: Re: rheumatic Re: LDN Question > > > Hi Kathy, > what is your health challenge and are you in remission? I'm fairly new with AP, but reading the posts, some have gone off and then symtoms come back to they start back on AP. Dolores, who is in remission, stays on small amount for prevention. sally > > > > > > > Re: rheumatic Re: LDN Question > > > > Sue, > > are you trying to get of the Enbrel? I am on the antibiotic protocol and LDN and it works well. I used it for 10 months and then had to get off because I broke my hip and the pain medication and LDN don't mix well. Went back on it for two months and had to get off it last Friday because of dental work and naturally pain medication again. Have to stay off it for a week and since I have to get some more dental surgery done in two weeks I stay off until it is all done and then go back on it again. It helps with the pain and I have lots more energy. > > Eva > > > > > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > > > > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > > > > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > > > tell me how long I should stay on the 2.5, and how much to increase and > > > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > > > pharmacist wasn't real thrilled about giving me instructions, or the > > > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > > > it affects the effectiveness done this way, and a compounding pharmacy would > > > > be expensive for me. > > > > > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > > > those in my shoes. > > > > > > > > Any thoughts or suggestions based on your experiences? > > > > > > > > Thanks, Gail > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Hi Kathy, thank you for you're wishes for those of us still struggling. The word REMISSION is becoming the best word I could ever hear. From my heart, may it happen to us all.....and remain! Reply when you can, it certainly helps me and I'd say all of us here! Sally Re: rheumatic Re: LDN Question > > > > Sue, > > are you trying to get of the Enbrel? I am on the antibiotic protocol and LDN and it works well. I used it for 10 months and then had to get off because I broke my hip and the pain medication and LDN don't mix well. Went back on it for two months and had to get off it last Friday because of dental work and naturally pain medication again. Have to stay off it for a week and since I have to get some more dental surgery done in two weeks I stay off until it is all done and then go back on it again. It helps with the pain and I have lots more energy. > > Eva > > > > > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > > > > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > > > > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > > > tell me how long I should stay on the 2.5, and how much to increase and > > > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > > > pharmacist wasn't real thrilled about giving me instructions, or the > > > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > > > it affects the effectiveness done this way, and a compounding pharmacy would > > > > be expensive for me. > > > > > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > > > those in my shoes. > > > > > > > > Any thoughts or suggestions based on your experiences? > > > > > > > > Thanks, Gail > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2010 Report Share Posted October 29, 2010 Thank you. Sue ---- Sauve <moniquesauve@...> wrote: > sue i know someone who is weaning off enbrel using ldn and diet. she is > following the GAPS diet: > http://www.gaps.me/preview/?page_id=28 and using ldn and is slowly > weaning off enbrel. she's now on a shot every 2nd week and is feeling great. > the ldn list says you can take up to 5 mg pred concurrently with ldn > without problems. > > hth > monique > > Quote Link to comment Share on other sites More sharing options...
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