Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 I know a lot of you have made mention that LDN has caused old symptoms to resurface. I am wondering because recently I have noticed the burning/tingling/numb sensation in my arms, and I really haven't felt this for many years! (LDN user since Feb 05) Does it go away? What do any of you guys know as to why the LDN does this to our bodies? I certainly don't want to tell my neuro this because he will probably tell me how bad the LDN is, you know, snake oil! Also, someone was mentioning a while back things they took to keep bladder infections away, could you please repeat what they are since I can't archive emails. Thanks, KarinKarin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 *disclaimer... JMHO JMHO JMHO Did you do something to trigger it? Like leaning on it making it 'fall asleep' and then got the pins and needles feelings? That started happening to me, but it was from leaning on it while watching tv, or keeping my legs crossed too long, etc, etc. Apparently your body can only 'work' on a few things at a time, I learned that when I had constant pain from my C5 lesions, and then got a pinched nerve... the pinched nerve was the only thing hurting.. the body 'forgot' or ignored the other chronic issues, and came back when the pinched nerve was resolved. With your immune system starting to work properly, the body seems to pull out of its memory all old injury sites and apparently tries to fix them. It seems like parts/sections are waking up and saying Hello. Don't worry, nothing seems to last too long as the body seems to not spend too much time on one old injury if it's not responding, and moves on to another. As for bladder infections, UTI's... that seems to be a woman thing... I don't recall seeing males getting UTIs after starting LDN but a whole lotta women do. I'm wondering if they're really UTIs, or if they're just healing going on that scares us and we run off to the doc to get something to kill it. *disclaimer JMHO JMHO JMHO [low dose naltrexone] LDN question I know a lot of you have made mention that LDN has caused old symptoms to resurface. I am wondering because recently I have noticed the burning/tingling/numb sensation in my arms, and I really haven't felt this for many years! (LDN user since Feb 05) Does it go away? What do any of you guys know as to why the LDN does this to our bodies? I certainly don't want to tell my neuro this because he will probably tell me how bad the LDN is, you know, snake oil! Also, someone was mentioning a while back things they took to keep bladder infections away, could you please repeat what they are since I can't archive emails. Thanks, Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 Thanks for the great advice! I didn't do anything to trigger this symptom, I only hope that it passes soon. Anyway, thanks again, and I'm hoping that some more women will respond to my bladder questions. LarryGC <larrygc@...> wrote: *disclaimer... JMHO JMHO JMHO Did you do something to trigger it? Like leaning on it making it 'fall asleep' and then got the pins and needles feelings? That started happening to me, but it was from leaning on it while watching tv, or keeping my legs crossed too long, etc, etc. Apparently your body can only 'work' on a few things at a time, I learned that when I had constant pain from my C5 lesions, and then got a pinched nerve... the pinched nerve was the only thing hurting.. the body 'forgot' or ignored the other chronic issues, and came back when the pinched nerve was resolved. With your immune system starting to work properly, the body seems to pull out of its memory all old injury sites and apparently tries to fix them. It seems like parts/sections are waking up and saying Hello. Don't worry, nothing seems to last too long as the body seems to not spend too much time on one old injury if it's not responding, and moves on to another. As for bladder infections, UTI's... that seems to be a woman thing... I don't recall seeing males getting UTIs after starting LDN but a whole lotta women do. I'm wondering if they're really UTIs, or if they're just healing going on that scares us and we run off to the doc to get something to kill it. *disclaimer JMHO JMHO JMHO [low dose naltrexone] LDN question I know a lot of you have made mention that LDN has caused old symptoms to resurface. I am wondering because recently I have noticed the burning/tingling/numb sensation in my arms, and I really haven't felt this for many years! (LDN user since Feb 05) Does it go away? What do any of you guys know as to why the LDN does this to our bodies? I certainly don't want to tell my neuro this because he will probably tell me how bad the LDN is, you know, snake oil! Also, someone was mentioning a while back things they took to keep bladder infections away, could you please repeat what they are since I can't archive emails. Thanks, KarinKarin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 Another undescribable thingy comes to mind. I heard others mention it, but either it's not that common, or people just don't know what to call it or think it's something else, I don't know.. but in my early days I would get these strange feelings like something was inside my body and Punching Out. On my arms, legs, back, all over.. never more than one spot at one time, and then usually a few times in the same spot, and then never again in that spot, but somewhere else. The only thing I ever came up with was maybe specific muscles were waking up and saying Hello. The body was checking out different things and that was a result. Once in a while I'll get a punch out, here or there... but rarely.. not like it was in the first few months. Just thought I'd mention it while I tought of it Re: [low dose naltrexone] LDN question Thanks for the great advice! I didn't do anything to trigger this symptom, I only hope that it passes soon. Anyway, thanks again, and I'm hoping that some more women will respond to my bladder questions. LarryGC <larrygc@...> wrote: *disclaimer... JMHO JMHO JMHO Did you do something to trigger it? Like leaning on it making it 'fall asleep' and then got the pins and needles feelings? That started happening to me, but it was from leaning on it while watching tv, or keeping my legs crossed too long, etc, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 > I know a lot of you have made mention that LDN has caused old symptoms to resurface. I am wondering because recently I have noticed the burning/tingling/numb sensation in my arms, and I really haven't felt this for many years! (LDN user since Feb 05) Does it go away? What do any of you guys know as to why the LDN does this to our bodies? I certainly don't want to tell my neuro this because he will probably tell me how bad the LDN is, you know, snake oil! > Also, someone was mentioning a while back things they took to keep bladder infections away, could you please repeat what they are since I can't archive emails. > > Thanks, > Karin > >======== For those of you in the first 3 months of LDN therapy Dr. Bob Lawrence from the UK who has MS & uses LDN himself explains why the temporary increase in MS symptoms. ========= When starting this LDN(Low Dose Naltrexone) therapy in the treatment of MS, there may also be some initial transient, though temporary, increase in MS symptoms. Experience in using this method has demonstrated most commonly, such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain. These increased symptoms would not normally be expected to last more than seven to ten days. Rarely, other transient symptoms have included more severe pain and spasm, headache, diarrhea or vomiting. These additional symptoms would appear to be associated with the previous frequent use of strong analgesics, which effectively create an addiction and dependency, thus increasing the body's sensitivity to pain. This temporary increase in symptoms may also perhaps be explained when we consider the manner in which this drug is expected to work. Initially, MS occurs due to a reduction in the activity of the controlling influence of the suppressor T-cells within the immune system. During an acute relapse, the overall number of T-cells is reduced, the normal balance of helper T-cells and suppressor T-cells is disrupted and the damaging helper (CD-4) T-cells tend to predominate. This is the situation most pronounced during an acute relapse but occurs similarly, but to a lesser extent, in chronic progressive MS. Under the influence of LDN there will be an expected increase in the overall numbers of T-cells but, because the CD-4, helper T-cells tend to predominate at this time, an increase in their numbers will expectedly tend to increase MS symptoms. It is only when the numbers of suppressor T-cells effectively " catch up " that the normal balance is restored and symptoms once again diminish and improve. In addition, because LDN stimulates the immune system and many of the drugs routinely used by the NHS in the treatment of MS further suppress the immune system, LDN cannot be used in company with steroids, beta interferon, methotrexate, azathioprine or mitozantrone or any other immune suppressant drug. If there is any doubt, please submit a full list of the drugs you are presently taking so that their compatibility may be assessed. In addition, because LDN will also block the analgesic effects of any opiate drugs (includes codeine, dihydrocodeine, morphine, pethidine or diamorphine) presently being taken, the use of LDN will initially greatly increase the level of pain experienced. It is therefore advisable that any opiate-like drugs be discontinued at least two weeks before this treatment is initiated. When starting the treatment it is essential that any untoward or adverse side-effects are reported immediately so that the treatment process can be further assessed and, if necessary, modified. Dr. M R Lawrence Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 I may be different but my old symptoms never returned at all I just lost some of the bad old symptoms I had been saddled with for so long,and some of the new ones I had recently aquired ie nueopathic pain and lack of bowel bladder control. The main difference here is that I am now SPMS and never get better just constantly go down hill. So any improvement is good. I have heard many times now that cranberry juice is great for reducing infections but actually it is the vit."C" that does it so by taking a gram or two of powdered vit"C" in a glass of juice and drinking this daily will do the same if not better! Using Slippery Elm capsules from the same health food stores will greatly help too. Reg. SPMS & 3.0mgs LDN for nineteen months now -- [low dose naltrexone] LDN question I know a lot of you have made mention that LDN has caused old symptoms to resurface. I am wondering because recently I have noticed the burning/tingling/numb sensation in my arms, and I really haven't felt this for many years! (LDN user since Feb 05) Does it go away? What do any of you guys know as to why the LDN does this to our bodies? I certainly don't want to tell my neuro this because he will probably tell me how bad the LDN is, you know, snake oil! Also, someone was mentioning a while back things they took to keep bladder infections away, could you please repeat what they are since I can't archive emails. Thanks, Karin Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Actually, that is an incorrect assumption about vitamin C as the sole valued agent in cranberry juice. Cranberry juice also has quercetin which is an antioxidant as well as long as you are consuming less than 500 mg per day of the substance. Important to note is that quercetin also has a net positive effect on estrogen receptors and in fact reduce inflammation brought on by infection. Bruce Guilmette, Ph.D. Survive Cancer Foundation, Inc. http://www.survivecancer.net From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Reg Kreil Sent: Friday, June 17, 2005 12:59 PM To: low dose naltrexone Subject: Re: [low dose naltrexone] LDN question I may be different but my old symptoms never returned at all I just lost some of the bad old symptoms I had been saddled with for so long,and some of the new ones I had recently aquired ie nueopathic pain and lack of bowel bladder control. The main difference here is that I am now SPMS and never get better just constantly go down hill. So any improvement is good. I have heard many times now that cranberry juice is great for reducing infections but actually it is the vit. " C " that does it so by taking a gram or two of powdered vit " C " in a glass of juice and drinking this daily will do the same if not better! Using Slippery Elm capsules from the same health food stores will greatly help too. Reg. SPMS & 3.0mgs LDN for nineteen months now -- [low dose naltrexone] LDN question I know a lot of you have made mention that LDN has caused old symptoms to resurface. I am wondering because recently I have noticed the burning/tingling/numb sensation in my arms, and I really haven't felt this for many years! (LDN user since Feb 05) Does it go away? What do any of you guys know as to why the LDN does this to our bodies? I certainly don't want to tell my neuro this because he will probably tell me how bad the LDN is, you know, snake oil! Also, someone was mentioning a while back things they took to keep bladder infections away, could you please repeat what they are since I can't archive emails. Thanks, Karin Karin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 > > hi all,would anibody know if ldn is ok also for scleroderm.? > a friend that has this problem asked me information about this,but > frankling speaking i do no know what to say. > any information is wellcome > my best > emiliano > ========== Have them go to the LDN website www.ldninfo.org and they will see Scleroderma listed in the list of diseases. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2010 Report Share Posted October 18, 2010 About three weeks ago my pcp was kind enough to allow me to try LDN. I'd asked my rheumy before, and he did not find it necessary. Anyway, I have been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone tell me how long I should stay on the 2.5, and how much to increase and when? My doctor gave me the script for 50 mg. tablets, and I broke them down myself to what I believe to be close to 2.5, though I'm certain not exact. My pharmacist wasn't real thrilled about giving me instructions, or the eyedropper and bottle to dilute and take that way - he thinks in his opinion that it affects the effectiveness done this way, and a compounding pharmacy would be expensive for me. My doctor is doing this as a " favor " so to speak for me, to see if I benefit in any way, so I'm sure she has not idea how much to increase or when, for those in my shoes. Any thoughts or suggestions based on your experiences? Thanks, Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 low dose naltrexone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 Dear Gail, I have been on LDN for about three months now. Prior I was just on AP which helped, but not like the LDN. The LDN has made a major difference in my life. In fact, most of the time I am in little to no pain at all. (I am still pretty careful about what I eat, which includes mostly vegetarian, very limited dairy and meat. I do cheat and I find I can cheat a lot more while on the LDN. Although I certainly encourage as healthy and unprocessed a diet as possible.) I felt the change in my body with the LDN almost immediately. I started LDN at 3.0 and I am now up to 3.5. I have a great Dr. in MD and a good Dr. in VA. The Dr. in VA would not do the LDN which is a shame as that set my recovery back about a year. When I finally got to the Dr. in MD he prescribed the LDN and God Bless him I have been so much better ever since. Note also that it is not clear what kind of auto immune problem I have as with most I have been diagnosed with many including RA, reactive arthritis and fibro. I know the latter to be for sure but my RA tests comes up negative as does my inflammation. I have been tested for everything including MS, which was negative. If you google LDN you should come up with the LDN website which has some info on auto immune but mostly MS. I don't know where you live but I wish you could get to a Dr who knows about LDN and I hope that there is some way you can get your medicine compounded by a pharmacist. Did you check into medicaid or are you eligible for medicare? Let me know how things go. Kathy > rheumatic > From: ONYX8257@... > Date: Mon, 18 Oct 2010 23:34:36 -0400 > Subject: Re: rheumatic LDN Question > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > asked my rheumy before, and he did not find it necessary. Anyway, I have > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > tell me how long I should stay on the 2.5, and how much to increase and > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > myself to what I believe to be close to 2.5, though I'm certain not exact. My > pharmacist wasn't real thrilled about giving me instructions, or the > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > it affects the effectiveness done this way, and a compounding pharmacy would > be expensive for me. > > My doctor is doing this as a " favor " so to speak for me, to see if I > benefit in any way, so I'm sure she has not idea how much to increase or when, for > those in my shoes. > > Any thoughts or suggestions based on your experiences? > > Thanks, Gail > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 what is LDN? From: ONYX8257@... <ONYX8257@...> Subject: Re: rheumatic LDN Question rheumatic Received: Monday, October 18, 2010, 11:34 PM  About three weeks ago my pcp was kind enough to allow me to try LDN. I'd asked my rheumy before, and he did not find it necessary. Anyway, I have been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone tell me how long I should stay on the 2.5, and how much to increase and when? My doctor gave me the script for 50 mg. tablets, and I broke them down myself to what I believe to be close to 2.5, though I'm certain not exact. My pharmacist wasn't real thrilled about giving me instructions, or the eyedropper and bottle to dilute and take that way - he thinks in his opinion that it affects the effectiveness done this way, and a compounding pharmacy would be expensive for me. My doctor is doing this as a " favor " so to speak for me, to see if I benefit in any way, so I'm sure she has not idea how much to increase or when, for those in my shoes. Any thoughts or suggestions based on your experiences? Thanks, Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 Gail, after a month go ahead and go up to the next level. I am at 4.5 mg and also do it myself. I didn't even ask the pharmacist since a friend told me how to do it myself. I think it actually works faster getting the liquid down into your system because the pill has to disolve first and yes compounding costs a lot. If you have a small 50 ml bottle from the pharmacy messure 50 ml of distilled water into the bottle then take one pill 50 mg and add to the liquid, let dissolve, shake and use the liquid amount you need every evening. I used a syrenge? for a baby liquid measurement and it works fine it actually goes into the bottle and I can take out what I need. One pill will last about 11 or 12 or even more days according how much you use. Don't use the bottom stuff it has junck in it. Since I take 4.5 ml it lasts about 11 days. I get 5 pills a month. Make sure you refrigerate the liquid every day. Eva From: ONYX8257@... <ONYX8257@...> Subject: Re: rheumatic LDN Question rheumatic Date: Monday, October 18, 2010, 10:34 PM  About three weeks ago my pcp was kind enough to allow me to try LDN. I'd asked my rheumy before, and he did not find it necessary. Anyway, I have been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone tell me how long I should stay on the 2.5, and how much to increase and when? My doctor gave me the script for 50 mg. tablets, and I broke them down myself to what I believe to be close to 2.5, though I'm certain not exact. My pharmacist wasn't real thrilled about giving me instructions, or the eyedropper and bottle to dilute and take that way - he thinks in his opinion that it affects the effectiveness done this way, and a compounding pharmacy would be expensive for me. My doctor is doing this as a " favor " so to speak for me, to see if I benefit in any way, so I'm sure she has not idea how much to increase or when, for those in my shoes. Any thoughts or suggestions based on your experiences? Thanks, Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2010 Report Share Posted October 20, 2010 You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > asked my rheumy before, and he did not find it necessary. Anyway, I have > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > tell me how long I should stay on the 2.5, and how much to increase and > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > myself to what I believe to be close to 2.5, though I'm certain not exact. My > pharmacist wasn't real thrilled about giving me instructions, or the > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > it affects the effectiveness done this way, and a compounding pharmacy would > be expensive for me. > > My doctor is doing this as a " favor " so to speak for me, to see if I > benefit in any way, so I'm sure she has not idea how much to increase or when, for > those in my shoes. > > Any thoughts or suggestions based on your experiences? > > Thanks, Gail > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 I found a doctor who wants to try LDN for my rheumatoid arthritis. I went off MTX 2 weeks ago but still take Enbrel and 2.5mg of prednisone. Does anybody know if I can continue to take these two drugs when they suppress the immune system and from what I have read the LDN boosts the immune system? Thanks, Sue ---- marlaprendergast <kws11@...> wrote: > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > tell me how long I should stay on the 2.5, and how much to increase and > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > pharmacist wasn't real thrilled about giving me instructions, or the > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > it affects the effectiveness done this way, and a compounding pharmacy would > > be expensive for me. > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > those in my shoes. > > > > Any thoughts or suggestions based on your experiences? > > > > Thanks, Gail > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Sue, are you trying to get of the Enbrel? I am on the antibiotic protocol and LDN and it works well. I used it for 10 months and then had to get off because I broke my hip and the pain medication and LDN don't mix well. Went back on it for two months and had to get off it last Friday because of dental work and naturally pain medication again. Have to stay off it for a week and since I have to get some more dental surgery done in two weeks I stay off until it is all done and then go back on it again. It helps with the pain and I have lots more energy. Eva > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > tell me how long I should stay on the 2.5, and how much to increase and > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > pharmacist wasn't real thrilled about giving me instructions, or the > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > it affects the effectiveness done this way, and a compounding pharmacy would > > be expensive for me. > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > those in my shoes. > > > > Any thoughts or suggestions based on your experiences? > > > > Thanks, Gail > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Eva, I am on both the AP and the LDN. I have been on the LDN for 2 1/2 months and it has really made a significant change in my pain level, energy and movement. (A strict diet helps also for me) I went off the LDN for only one night for a minor surgical procedure. I would like to go off of the antibiotics. Do you, or anyone else online, know of anyone who just uses the LDN successfully ? I would love to be encouraged by those success stories. Kathy > rheumatic > From: holloway-eva@... > Date: Mon, 25 Oct 2010 17:36:07 -0700 > Subject: Re: rheumatic Re: LDN Question > > Sue, > are you trying to get of the Enbrel? I am on the antibiotic protocol and LDN and it works well. I used it for 10 months and then had to get off because I broke my hip and the pain medication and LDN don't mix well. Went back on it for two months and had to get off it last Friday because of dental work and naturally pain medication again. Have to stay off it for a week and since I have to get some more dental surgery done in two weeks I stay off until it is all done and then go back on it again. It helps with the pain and I have lots more energy. > Eva > > > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > > tell me how long I should stay on the 2.5, and how much to increase and > > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > > pharmacist wasn't real thrilled about giving me instructions, or the > > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > > it affects the effectiveness done this way, and a compounding pharmacy would > > > be expensive for me. > > > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > > those in my shoes. > > > > > > Any thoughts or suggestions based on your experiences? > > > > > > Thanks, Gail > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 In due time I'd like to get off Enbrel. Good luck with all your dental work. Sue ---- Eva Holloway <holloway-eva@...> wrote: > Sue, > are you trying to get of the Enbrel? I am on the antibiotic protocol and LDN and it works well. I used it for 10 months and then had to get off because I broke my hip and the pain medication and LDN don't mix well. Went back on it for two months and had to get off it last Friday because of dental work and naturally pain medication again. Have to stay off it for a week and since I have to get some more dental surgery done in two weeks I stay off until it is all done and then go back on it again. It helps with the pain and I have lots more energy. > Eva > > > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > > tell me how long I should stay on the 2.5, and how much to increase and > > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > > pharmacist wasn't real thrilled about giving me instructions, or the > > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > > it affects the effectiveness done this way, and a compounding pharmacy would > > > be expensive for me. > > > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > > those in my shoes. > > > > > > Any thoughts or suggestions based on your experiences? > > > > > > Thanks, Gail > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Hi Sue, I am taking Enbrel. A month or so ago I started 4.5mg LDN and Minocin 100mg 1x daily in addition to supplements, other meds for other issues. I have a very good naturopath doctor that has been involved with the Antibiotic Protocol and LDN and other natural treatments for 20+ years. His father before him. I have RA and other associated auto immune diseases. I am following his direction. My Rhumy will have nothing to do with any of this. You and I have to watch for infections as you know the Enbrel suppresses our immune systems. I used to take placquenil along with the Enbrel and stopped due to neuropathy issues. The goal is to ween off Enbrel when I have been on the others at a therapeutic dosage for more time. I wish you all the best on your journey! Lindsey On Mon, Oct 25, 2010 at 9:53 PM, <semrick@...> wrote: > > > > In due time I'd like to get off Enbrel. Good luck with all your dental > work. > > Sue > ---- Eva Holloway <holloway-eva@...<holloway-eva%40sbcglobal.net>> > wrote: > > Sue, > > are you trying to get of the Enbrel? I am on the antibiotic protocol and > LDN and it works well. I used it for 10 months and then had to get off > because I broke my hip and the pain medication and LDN don't mix well. Went > back on it for two months and had to get off it last Friday because of > dental work and naturally pain medication again. Have to stay off it for a > week and since I have to get some more dental surgery done in two weeks I > stay off until it is all done and then go back on it again. It helps with > the pain and I have lots more energy. > > Eva > > > > > You don't break down the 50 mg tablet into 2.5 mg doses. It will never > be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon > the dose out with a liquid syringe. The bottle and syringe will be given to > you free from the pharmacy. Go to a different pharmacy if you need to. > > > > > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 > mg every three days. > > > > > > > > > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. > I'd > > > > asked my rheumy before, and he did not find it necessary. Anyway, I > have > > > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. > Can anyone > > > > tell me how long I should stay on the 2.5, and how much to increase > and > > > > when? My doctor gave me the script for 50 mg. tablets, and I broke > them down > > > > myself to what I believe to be close to 2.5, though I'm certain not > exact. My > > > > pharmacist wasn't real thrilled about giving me instructions, or the > > > > eyedropper and bottle to dilute and take that way - he thinks in his > opinion that > > > > it affects the effectiveness done this way, and a compounding > pharmacy would > > > > be expensive for me. > > > > > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > > > benefit in any way, so I'm sure she has not idea how much to increase > or when, for > > > > those in my shoes. > > > > > > > > Any thoughts or suggestions based on your experiences? > > > > > > > > Thanks, Gail > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Hi Kathy, These antibiotics are not a quick fix. They are low dose therapy  taken over a long period of time. it could be many years.  Cutting them out too soon could give you the worst flare you ever had.  The next time around the antibiotics will take longer to take effect. because the microbes have become more resistant.  If you are enjoying a reprieve of pain with LDN & Antibiotics together, be happy and don't stop the antibiotics. You may cut back to half dose and pulse it by taking it on Mondays, Wednesday & Fridays. Those bacteria are not all dead and will come back at you with a vengeance. Don't take that chance. Get off the Enbrel and other toxic immune suppressants, but never give up the antibiotic. I plan on taking it for the rest of my life even though I am in remission at present. Don't ever want to take the chance of getting that sick ever again.  For those of you who don't understand how the antibiotic therapy works, please get a copy of, " The New Arthritis Breakthrough " , by Henry Scammell. Midway through the book, you will find the second book, written by McPherson Brown, M.D. the discoverer of the cause of these arthritic diseases and how he successfully treated most of his arthritic patients successfully for over 40 yrs. A second article to print up and read periodiacally would be, The FAQ (Frequently Asked Questions) re: antibiotic protocol.....These will give you a clearer pictue of the concept of A/P and how to use it properlyso that you can achieve wellness. Best to you, Dolores > > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > > tell me how long I should stay on the 2.5, and how much to increase and > > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > > pharmacist wasn't real thrilled about giving me instructions, or the > > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > > it affects the effectiveness done this way, and a compounding pharmacy would > > > be expensive for me. > > > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > > those in my shoes. > > > > > > Any thoughts or suggestions based on your experiences? > > > > > > Thanks, Gail > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Hi Dolores - Thanks for the good advise. Thank God I have been able to avoid embrel and such. I have read a bit about the AP therapy but can always use more info. Kathy > rheumatic > From: martysfolks2004@... > Date: Mon, 25 Oct 2010 19:35:26 -0700 > Subject: RE: rheumatic Re: LDN Question > > Hi Kathy, These antibiotics are not a quick fix. They are low dose therapy taken over a long period of time. it could be many years. Cutting them out too soon could give you the worst flare you ever had. The next time around the antibiotics will take longer to take effect. because the microbes have become more resistant. If you are enjoying a reprieve of pain with LDN & Antibiotics together, be happy and don't stop the antibiotics. You may cut back to half dose and pulse it by taking it on Mondays, Wednesday & Fridays. Those bacteria are not all dead and will come back at you with a vengeance. Don't take that chance. Get off the Enbrel and other toxic immune suppressants, but never give up the antibiotic. I plan on taking it for the rest of my life even though I am in remission at present. Don't ever want to take the chance of getting that sick ever again. > > For those of you who don't understand how the antibiotic therapy works, please get a copy of, " The New Arthritis Breakthrough " , by Henry Scammell. Midway through the book, you will find the second book, written by McPherson Brown, M.D. the discoverer of the cause of these arthritic diseases and how he successfully treated most of his arthritic patients successfully for over 40 yrs. A second article to print up and read periodiacally would be, The FAQ (Frequently Asked Questions) re: antibiotic protocol.....These will give you a clearer pictue of the concept of A/P and how to use it properlyso that you can achieve wellness. Best to you, Dolores > > > > > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > > > > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > > > > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > > > tell me how long I should stay on the 2.5, and how much to increase and > > > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > > > pharmacist wasn't real thrilled about giving me instructions, or the > > > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > > > it affects the effectiveness done this way, and a compounding pharmacy would > > > > be expensive for me. > > > > > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > > > those in my shoes. > > > > > > > > Any thoughts or suggestions based on your experiences? > > > > > > > > Thanks, Gail > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Thanks Lindsey, I'm so glad you have a good doctor. Sometimes one feels as if they are muddling along on their own. Sue ---- lindsey munroe <lindsey.munroe@...> wrote: > Hi Sue, > I am taking Enbrel. A month or so ago I started 4.5mg LDN and Minocin 100mg > 1x daily in addition to supplements, other meds for other issues. I have a > very good naturopath doctor that has been involved with the Antibiotic > Protocol and LDN and other natural treatments for 20+ years. His father > before him. I have RA and other associated auto immune diseases. I am > following his direction. My Rhumy will have nothing to do with any of > this. You and I have to watch for infections as you know the Enbrel > suppresses our immune systems. I used to take placquenil along with the > Enbrel and stopped due to neuropathy issues. The goal is to ween off Enbrel > when I have been on the others at a therapeutic dosage for more time. > I wish you all the best on your journey! > Lindsey > > > > On Mon, Oct 25, 2010 at 9:53 PM, <semrick@...> wrote: > > > > > > > > > In due time I'd like to get off Enbrel. Good luck with all your dental > > work. > > > > Sue > > ---- Eva Holloway <holloway-eva@...<holloway-eva%40sbcglobal.net>> > > wrote: > > > Sue, > > > are you trying to get of the Enbrel? I am on the antibiotic protocol and > > LDN and it works well. I used it for 10 months and then had to get off > > because I broke my hip and the pain medication and LDN don't mix well. Went > > back on it for two months and had to get off it last Friday because of > > dental work and naturally pain medication again. Have to stay off it for a > > week and since I have to get some more dental surgery done in two weeks I > > stay off until it is all done and then go back on it again. It helps with > > the pain and I have lots more energy. > > > Eva > > > > > > > You don't break down the 50 mg tablet into 2.5 mg doses. It will never > > be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon > > the dose out with a liquid syringe. The bottle and syringe will be given to > > you free from the pharmacy. Go to a different pharmacy if you need to. > > > > > > > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 > > mg every three days. > > > > > > > > > > > > > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. > > I'd > > > > > asked my rheumy before, and he did not find it necessary. Anyway, I > > have > > > > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. > > Can anyone > > > > > tell me how long I should stay on the 2.5, and how much to increase > > and > > > > > when? My doctor gave me the script for 50 mg. tablets, and I broke > > them down > > > > > myself to what I believe to be close to 2.5, though I'm certain not > > exact. My > > > > > pharmacist wasn't real thrilled about giving me instructions, or the > > > > > eyedropper and bottle to dilute and take that way - he thinks in his > > opinion that > > > > > it affects the effectiveness done this way, and a compounding > > pharmacy would > > > > > be expensive for me. > > > > > > > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > > > > benefit in any way, so I'm sure she has not idea how much to increase > > or when, for > > > > > those in my shoes. > > > > > > > > > > Any thoughts or suggestions based on your experiences? > > > > > > > > > > Thanks, Gail > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 sue i know someone who is weaning off enbrel using ldn and diet. she is following the GAPS diet: http://www.gaps.me/preview/?page_id=28 and using ldn and is slowly weaning off enbrel. she's now on a shot every 2nd week and is feeling great. the ldn list says you can take up to 5 mg pred concurrently with ldn without problems. hth monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Eva, how long have you been on AP and how long on LDN? sally Re: rheumatic Re: LDN Question Sue, are you trying to get of the Enbrel? I am on the antibiotic protocol and LDN and it works well. I used it for 10 months and then had to get off because I broke my hip and the pain medication and LDN don't mix well. Went back on it for two months and had to get off it last Friday because of dental work and naturally pain medication again. Have to stay off it for a week and since I have to get some more dental surgery done in two weeks I stay off until it is all done and then go back on it again. It helps with the pain and I have lots more energy. Eva > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > tell me how long I should stay on the 2.5, and how much to increase and > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > pharmacist wasn't real thrilled about giving me instructions, or the > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > it affects the effectiveness done this way, and a compounding pharmacy would > > be expensive for me. > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > those in my shoes. > > > > Any thoughts or suggestions based on your experiences? > > > > Thanks, Gail > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Hi Kathy, what is your health challenge and are you in remission? I'm fairly new with AP, but reading the posts, some have gone off and then symtoms come back to they start back on AP. Dolores, who is in remission, stays on small amount for prevention. sally Re: rheumatic Re: LDN Question > > Sue, > are you trying to get of the Enbrel? I am on the antibiotic protocol and LDN and it works well. I used it for 10 months and then had to get off because I broke my hip and the pain medication and LDN don't mix well. Went back on it for two months and had to get off it last Friday because of dental work and naturally pain medication again. Have to stay off it for a week and since I have to get some more dental surgery done in two weeks I stay off until it is all done and then go back on it again. It helps with the pain and I have lots more energy. > Eva > > > You don't break down the 50 mg tablet into 2.5 mg doses. It will never be exact that way. You dilute the 50 mg tablet in 50 ml of water and siphon the dose out with a liquid syringe. The bottle and syringe will be given to you free from the pharmacy. Go to a different pharmacy if you need to. > > > > When I increased from 3 mg to 4.5 mg, I increased by increments of .2 mg every three days. > > > > > > > > > > About three weeks ago my pcp was kind enough to allow me to try LDN. I'd > > > asked my rheumy before, and he did not find it necessary. Anyway, I have > > > been taking 2.5 mg. and want to work up to 4.5 as I've read about. Can anyone > > > tell me how long I should stay on the 2.5, and how much to increase and > > > when? My doctor gave me the script for 50 mg. tablets, and I broke them down > > > myself to what I believe to be close to 2.5, though I'm certain not exact. My > > > pharmacist wasn't real thrilled about giving me instructions, or the > > > eyedropper and bottle to dilute and take that way - he thinks in his opinion that > > > it affects the effectiveness done this way, and a compounding pharmacy would > > > be expensive for me. > > > > > > My doctor is doing this as a " favor " so to speak for me, to see if I > > > benefit in any way, so I'm sure she has not idea how much to increase or when, for > > > those in my shoes. > > > > > > Any thoughts or suggestions based on your experiences? > > > > > > Thanks, Gail > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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