Anyone talk on LDN for Cancer at LDN conference?

June 16, 2005

If not, next year's conference needs to gear itself toward adding that to its

agenda.

June 16, 2005

Two of my friends were at the conference with breast cancer. One left early because she said it was mainly for MS. I agree, next year their should be some docs speaking about cancer also. Her oncologist does give her the script, maybe he would be interested in speaking? Kiki

June 16, 2005

this cancer: Multiple Myeloma

?

Then it was talked about.

[low dose naltrexone] Anyone talk on LDN for Cancer at LDN conference?

If not, next year's conference needs to gear itself toward adding that to its agenda.

June 17, 2005

> Two of my friends were at the conference with breast cancer. One left early

> because she said it was mainly for MS. I agree, next year their should be

> some docs speaking about cancer also. Her oncologist does give her the

script,

> maybe he would be interested in speaking? Kiki

========

Breast cancer and other cancers really need to be heavily addressed at the LDN

conference next year. Susie Sedlock & Gluck, you out there reading?

Cancer LDN prescribing docs needed for next year's conference.

June 17, 2005

The speaker was Sedlock. If you were at the conference yellow manuals were given out by . The last 3 pages of the book tells her story about her dad 's Multiple Myeloma at 87 yrs old and he just celebrated his 90th!!

June 17, 2005

I was at the conference and recall a speaker describing how her

father, I think it was, in his 80's recovering from multiple myeloma,

apparently due to taking LDN. Any other attendees out there who

remember that better than I?

I agree (as a PD patient wondering if LDN is working for me after 2-

1/2 months)... let's have more people speaking about LDN and cancer,

Parkinsons, psoriasis, and other diseases, in addition to MS... both

at the next conference and in this discussion group.

Ken

> > Two of my friends were at the conference with breast cancer. One

left early

> > because she said it was mainly for MS. I agree, next year their

should be

> > some docs speaking about cancer also. Her oncologist does give

her the script,

> > maybe he would be interested in speaking? Kiki

> ========

>

> Breast cancer and other cancers really need to be heavily addressed

at the LDN conference next year. Susie Sedlock & Gluck, you

out there reading? Cancer LDN prescribing docs needed for next

year's conference.

>

June 17, 2005

I agree Ken, I'm hopeing to start LDN next week or at the very least get the script in to Skip by then. I also have PD, MSA actually, and am wondering just about the same as you do, Is this stuff reallly going to help me retain a more normal style of life or am I just going down another long endless road, like most of the brain doctors that I gone to over the past 7 / 8 years. But again it just "MIGHT WORK" and if it does and I passed up the chance to live some sort of a normal syle of life, I'd kick myself in the ass until the end of time. I would rather be dead then just sit by and let life go on with out trying something, hell anything.

So I think what we are asking is "IS THERE ANY PD VICTIMNS OUT THRE ON LDN" Please reply (:>)

RK

[Norton AntiSpam] [low dose naltrexone] Re: Anyone talk on LDN for Cancer at LDN conference?

I was at the conference and recall a speaker describing how her father, I think it was, in his 80's recovering from multiple myeloma, apparently due to taking LDN. Any other attendees out there who remember that better than I?I agree (as a PD patient wondering if LDN is working for me after 2-1/2 months)... let's have more people speaking about LDN and cancer, Parkinsons, psoriasis, and other diseases, in addition to MS... both at the next conference and in this discussion group.Ken> > Two of my friends were at the conference with breast cancer. One left early > > because she said it was mainly for MS. I agree, next year their should be > > some docs speaking about cancer also. Her oncologist does give her the script, > > maybe he would be interested in speaking? Kiki> ========> > Breast cancer and other cancers really need to be heavily addressed at the LDN conference next year. Susie Sedlock & Gluck, you out there reading? Cancer LDN prescribing docs needed for next year's conference.> >

June 18, 2005

How could LDN cause that? The causes are unknown.

Multiple myeloma http://www.mayoclinic.com/invoke.cfm?id=DS00415By Mayo Clinic staff Overview

Article sections:

Overview

Signs and symptoms

Causes

Risk factors

When to seek medical advice

Screening and diagnosis

Complications

Treatment

Self-care

Coping skills

Multiple myeloma is a cancer of your plasma cells, a type of white blood cell present in your bone marrow â€” the soft, blood-producing tissue that fills in the center of most of your bones. The cause of this disease isn't known.

Plasma cells usually make up less than 5 percent of the cells in your bone marrow. But if you have multiple myeloma, a group of abnormal plasma cells (myeloma cells) multiplies to make up more than 10 percent of the cells in your bone marrow. The result can be erosion of your bones. The disease also interferes with the function of your bone marrow and immune system, which can lead to anemia and infection. More infections tend to occur later in the disease. Multiple myeloma may also cause problems with your kidneys.

The disease is called multiple myeloma because abnormal myeloma cells can occur in multiple bone marrow sites in your body.

About 47,000 Americans have been diagnosed with multiple myeloma, and nearly 15,000 people are diagnosed with the disease each year. Multiple myeloma is responsible for more than 10,000 deaths in the United States annually.

If you have the disease but you're not experiencing symptoms, you may just need your doctor to monitor your condition. A variety of treatments are available if you're experiencing symptoms.

June 18, 2005

> The speaker was Sedlock. If you were at the conference yellow manuals

> were given out by . The last 3 pages of the book tells her story about

> her dad 's Multiple Myeloma at 87 yrs old and he just celebrated his 90th!!

=======

I speak to Susie Sedlock about herself and her dad. It was Susie's dad's story

that make me want my mom on LDN for her breast cancer. I was just hoping that

cancer and LDN would have been a top topic at the conference. hopefully it can

be next year.

June 18, 2005

Hi All

It is important to me that I step in here. In my mind there is great

reason why cancer and LDN took the back seat at the 1st LDN

Conference .. you see no matter how much we want to believe it .. the

stats are not there .. they are not as good as the stats with MS and

LDN .. MS must be the starting point in the developed world .. but

AIDS/HIV must take priority over that ... MS was a starting point ..

but I want to affirm that Dr Gluck and and their family did it

exactly right .. Here is a quote from the LDN website ..

" Although prospective, controlled clinical trials on LDN in the

treatment of cancer are yet to be accomplished, as of March 2004

clinical " off-label " use of this medication by Dr. Bihari in some 450

patients with cancer — almost all of whom had failed to respond to

standard treatments — suggests that more than 60% of patients with

cancer may significantly benefit from LDN. "

Now look at this .. My Mom with breast cancer tried LDN .. 4.5 mg

LDN .. the exact same script that worked for my uncle with Parkinsons

and my husband with PPMS .. for nearly three years .. BUT IT DID NOT

WORK FOR HER!! .. I love my Mom .. so lets take this a step

further ..

Mom started 4.5mg LDN after a single mastectomy, chemo and radiation

and .. the cancer had hit the lymph nodes pre LDN .. .. so started

LDN .. and she falls in the 40% that would not respond ..

Now .. My Mom has bone cancer .. her cancer spread despite LDN .. but

yet there are Lazarus Stories that may tempt people (and rightly

so .. play the odds wisely) ... All I am saying is read the website

very carefully .. they are honest in their testimonies and for now

that is all we have ... BUT .. We are missing something so blatant ..

it is killing me .. it is right in front of us and we cannot see

it .. My husband with PPMS and my uncle with Parkinsons are still

thriving .. and I will be eternally grateful for that .. and I will

always seek the truth .. no matter how painful ..

All the Best

... First they ignore you, then they laugh at you, then they fight you

and then you win.

> > The speaker was Sedlock. If you were at the conference

yellow manuals

> > were given out by . The last 3 pages of the book tells her

story about

> > her dad 's Multiple Myeloma at 87 yrs old and he just celebrated

his 90th!!

> =======

>

> I speak to Susie Sedlock about herself and her dad. It was Susie's

dad's story that make me want my mom on LDN for her breast cancer. I

was just hoping that cancer and LDN would have been a top topic at

the conference. hopefully it can be next year.

>

June 18, 2005

For those who care to listen to me..it is irresponsible to push LDN

for cancer..when there is ZERO data to back it up. The possibility of

harm is so great..yet some prey on the fears of the cancer

patient...while the sheep go over the cliff.

If you need to know about fillers.. this board has the best advice

north of the border..but otherwise all I hear is the blah..blah ..

A

June 18, 2005

That is an incorrect statement. I have

personally communicated with Dr Zagon who has a large number of cancer victims

documented that he has personally worked with. I have also discussed this fully

with Dr Bahari’s office who also have properly documented cases that are

not antidotal stories.

I personally believe it can be a valuable PART of a cancer

regimen and would not hesitate to recommend anyone adding it to their program

as long as they do not use opiate based drugs for pain control.

Bruce Guilmette, Ph.D.

Survive Cancer Foundation, Inc.

http://www.survivecancer.net

From:

low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of aegis_on_ms