Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Three days of Namenda and Mom was a basket case. Hallucinations MUCH worse, aggressive, nasty. That's when she started to slap and kick and bite. It took three weeks before she was back to some semblance of normalcy. dargie At 05:41 PM 10/29/2004, you wrote: >Does anyone is this group have a LO on Namenda? My dad saw the >neurologist yesterday,(he has not had an " official " diagnoses yet) >but the dr. prescribed Namenda. The dr. said we probably wouldn't >see any dramatic results, but it should slow the progression down. >Thank you for all your insightful responses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 Rhonda asked: Does anyone is this group have a LO on Namenda? ******************** Namenda is supposed to work better if taken with one of the other three cholestinerase inhibitors - namely, Aricept, Exelon or Reminyl. My mom takes Namenda and there was not any dramatic improvement but when she started taking it, she did seem a bit more focused and it has not had any adverse effects so we continue it. Now - some people say that their LOs have made a dramatic improvement after starting Namenda - although those LOs all have Alzheimer's Disease. carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 AUTISM TREATMENT: A West Des Moines psychiatrist claims a " miracle drug " will improve the symptoms of autism http://www.whotv.com/news/who-story-namenda-20110203,0,3693920.story I thought some of you might want to see this new clip on Namenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Bev, your daughter started talking at 20! Wow! How much does she talk now? Talking at all is a major improvement from being non verbal; just wondering how much of an improvement there was. I have a 19 yo who can talk but expressive is difficult for her. Marie > There are many types of autism. Namenda is not a drug for everyone who has > autism, we all know that autism is an umbrella of a variety of types of > autism. My daughter started talking and making progress using the drug > Namenda, so that says something too. She started talking at age 20, that was > thought to be impossible. You stated your son has Asperger's, my daughter > does not! That too say something, they are different! My daughter is not > going to Dr. Kavalier, my daughter is going to Dr. Arnold Brenner, but she > is taking Namenda. There are many studies going on with Namenda in the major > hospital and there are other children who are having positive results, my > daughter is one. > Bev > > > > > > > AUTISM TREATMENT: A West Des Moines psychiatrist claims a " miracle > drug " > > > will improve the symptoms of autism > > > > > > http://www.whotv.com/news/who-story-namenda-20110203,0,3693920.story > > > > > > I thought some of you might want to see this new clip on Namenda > > > > > > > > > > > > ------------------------------------ > > > > > > The Power Pumper makes physical therapy fun! Plus, funding sources are > > > available to provide a free Power Pumper to anyone who needs it. > > > ------------------------ > > > http://www.powerpumper.com/friends/jrox.php?uid=bridalsh > > > ------------------------ > > > Autism_in_Girls_and_Women-subscribe > > > ------------------------ > > > Autism_in_Girls_and_Women-unsubscribe@...! Groups Links > > > > > > > > > > > > > > > > > > -- > > Marie ‎ " Children with autism are not learning disabled, they are > teaching > > challenges. The question is not whether they can learn...the question is, > > can YOU teach? " This is a quote from Dr. Carbone. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Hi Bev, Thanks for your reply but you must be thinking of a different Marie?, b/c I have a daughter who is 19 & live in AZ. With all that is going on in your life, the turmoil, I admire you for being such a strong person & getting through it all & to still stay active in the autism world. So glad to hear that your daughter is till making progress. I could never comprehend how parents can abandon their children or not want to spend money to help their children. When I hear of stories of how parents resist even getting a diagnosis or just " accepting " that that's how my child is & do nothing except send them to school, etc is sad & time lost. Marie (AZ) > Marie, > Jen was inward before, non-verbal, did not make eye contact, and barely > interacted with anyone. Now, she answers questions, talks in short phases, > interacts and has been a few times there is a little more, she still has too > manythings she cannot do too! > > I was told I was delusional a few years ago by her speech teacher when she > started Namenda, when I said she can talk, a year later I was told by the > same person that I was far from delusional. He and another teacher started > to teach her to talk with the fronts of words. I really don't know if they > knew how to teach a person to talk that started talking again at age twenty, > does anyone? When she was little, like too many, her language vanished; her > language was limited because when she was little, the longest phase I > remember that she said was " Nanny new shoes. " > > The teachers started with getting her to say the fronts of words, but the > end of the words are starting to fill-in a little more; at least I think > they are, it seems like it. > > It took her twenty year to get this point and now we have to figure out > what do. She graduated from school last year, and she is in adult day care > and services are limited, but I keep working toward a better support system > for her. > > Jen was having aggression problem before the Namenda, it got worst after > the Namenda, I think the aggression would have gotten worst anyway because > my daughter was dealing with her father problems. He has medical problems, > Cancer, REM sleeping behavior disorder, middle life crises and more. He > became none supportive to her, it was the way he treated her, her sister and > me, abusive, stopped supporting us. I filed for divorce and then he took > off, abandoning us. We are better off since he is gone, and she is doing > better too, her doctor prescribed Depakote Sprinkles and Abilify, I don't > like that the doctor is prescribing drugs like these kinds but this > is helping deal with all her changes in her life. Things do seem to > be getting better for Jen, but I think there were just too many changes at > one time for her, plus the family problems of illness and then him taking > off to re-live his wild oats. I pray that she continues to progress because > she will understand more than she will not need to be on the Depakote > Sprinkles and Abilify for now. I think it is support, and my daughter > gaining a sense of having confidence and support that will help her. Our > world fell apart; I'm working toward putting it back together. Adding > supportive people in our world and as our world improves so does my > daughter, she gains confidence and she see herself as being supported, > accepted. I know she regresses again at one point due to the family turmoil, > but I pray that what I seeing is progress again, I hope, it seems like it is > progress. > > When I presented the Namenda to Jen, I approached the Namenda as only being > a medication to help her learn, not change her from being autistic. I want > her to be who she is, my daughter and I love her, and I do not want a > different child that was one of the issue I made very clear to her. > > How is your son doing now? I taught school as an art teach for a while in a > very large high school, I worked with a few boys who had Asperger's. I > believe the most successful of the boys were the boys who had acceptance of > their uniqueness by the other students, friends and their family, support. I > know you are that kind of Mom, maybe what happened to your son had to do > with how the Namenda worked on him as a unique individual; I believe that > Namenda is not the correct drug for every individual with autism. From what > I was told they believe it block glutamate from the brain, I think it is > glutamate??? Maybe your son did not need glutamate blocked from his brain, > or whatever the drug does, he did not need it done, and could explain your > son's behavior, maybe. > > I wish your son and you the very best, > Bev > > > > > > > > > > > > > AUTISM TREATMENT: A West Des Moines psychiatrist claims a " miracle > > > drug " > > > > > will improve the symptoms of autism > > > > > > > > > > > http://www.whotv.com/news/who-story-namenda-20110203,0,3693920.story > > > > > > > > > > I thought some of you might want to see this new clip on Namenda > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > The Power Pumper makes physical therapy fun! Plus, funding sources > are > > > > > available to provide a free Power Pumper to anyone who needs it. > > > > > ------------------------ > > > > > http://www.powerpumper.com/friends/jrox.php?uid=bridalsh > > > > > ------------------------ > > > > > Autism_in_Girls_and_Women-subscribe > > > > > ------------------------ > > > > > Autism_in_Girls_and_Women-unsubscribe@! Groups Links > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > > > > Marie ‎ " Children with autism are not learning disabled, they > are > > > teaching > > > > challenges. The question is not whether they can learn...the question > is, > > > > can YOU teach? " This is a quote from Dr. Carbone. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2011 Report Share Posted April 25, 2011 Marie, Sorry, yep, I got a little on my plate, but we all do, that goes with being alive. Bev > > > > > > > > > > > AUTISM TREATMENT: A West Des Moines psychiatrist claims a " miracle > > > > drug " > > > > > > will improve the symptoms of autism > > > > > > > > > > > > > > http://www.whotv.com/news/who-story-namenda-20110203,0,3693920.story > > > > > > > > > > > > I thought some of you might want to see this new clip on Namenda > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > > > The Power Pumper makes physical therapy fun! Plus, funding sources > > are > > > > > > available to provide a free Power Pumper to anyone who needs it. > > > > > > ------------------------ > > > > > > http://www.powerpumper.com/friends/jrox.php?uid=bridalsh > > > > > > ------------------------ > > > > > > Autism_in_Girls_and_Women-subscribe > > > > > > ------------------------ > > > > > > Autism_in_Girls_and_Women-unsubscribe@! Groups Links > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > > > > > Marie ‎ " Children with autism are not learning disabled, they > > are > > > > teaching > > > > > challenges. The question is not whether they can learn...the question > > is, > > > > > can YOU teach? " This is a quote from Dr. Carbone. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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