Re: Re: Answer from Kathie

[Guest guest]

Hi Terry,

Yes, my husband is on LDN for his Parkinson's. We had a phone consultation with Dr. Bihari in March and Rick started on LDN on 3/28. He has been diagnosed with Parkinson's for about a year and a half and started generic Sinemet at Thanksgiving time as the slowness of movement, fatigue, and weakness were getting to the point of needing help. We moved the dose around a bit to see what would be the best level, always wanting to keep it as low as possible, as Sinemet can cause dyskensia's (uncontrolled movements) after being on it for several years--not so much a concern for an older patient but Rick is only 51 now. Anyway, 3 Sinemet gave him quite good symptomatic relief but we have been able to drop that down now to only one a day after having added 5mg of selegeline once a day (as it may have some neuroprotective as well as symptomatic effect) and then added the LDN a little over 2 months ago. It's difficult to say that the LDN is the reason why he has been able to drop down one less Sinemet and still function very well but it may very well be why he has. It has also seemed to me that he has much more energy of late which may be an effect of the LDN. He also is and has been taking a boat load of supplements from numerous antioxidants, fish oil, vitamins, neurological supports, to digestive probiotics and glutathione IV occasionally.

I would say yes, absolutely, find a doctor who will prescribe LDN for your mother. When Rick was first diagnosed with PD, we were not content to just let the PD progress and use the conventional meds to cover the symptoms. We wanted to know why he has it, what is going on in his body that may be promoting it, and what we can do to stop it and then try to heal the damage. We started working with a naturopathic doctor (ND) who had no experience with PD but who's creed is to figure out what is happening and why. She has directed us on much of the supplements but we also do our own research and then talk it over with her. We also have found an MD who is alternative minded who will write the prescriptions that we need (since ND's are not licensed in NY so cannot write scripts). Thanks to on a PD group who posted about this LDN group and the website, we learned about LDN. We got an appointment with Dr. Bihari right away and onto LDN as soon as possible.

Rick noticed no side effects as all from the LDN--4.5 mg right from the start. However, our 17 year old son with Type 1 diabetes who started on 4.5 LDN at the same time, did have vivid dreams for about the 1st 10 days. He also had some headaches but we weren't sure if they were related to the LDN or not and has also had some quickly passing feelings of nausea after eating at times. It was mentioned at the conference that nausea can be a possible side-effect--not by the LDN itself but by the increased endorphins. We need to schedule our followup visits with Dr. Bihari so will ask him about our son's possible side effects at that time.

Kathie

On Mon, 13 Jun 2005 00:30:41 EDT Tora48@... writes:

Dear Kathie,I keep searching the mail for any info related to LDN and Parkinson. You mentioned your husband and I was not able to determine whether you ascribe to him taking LDN for his Parkinsons. If so, could you expand on your experience, dosage, doctor, length of time, and whatever. My mom was diagnosed with Parkinson's last summer. She is 76 and I am looking everywhere for any possible treatments. Thanks for your time and info.Sincerely,Terry A.

[Guest guest]

Did anyone realize that vivid dreams are a sign the immune system is functioning properly? I learned that through a Chinese practitioner and found it fascinating.

Re: [low dose naltrexone] Re: Answer from Kathie

Hi Terry,

Yes, my husband is on LDN for his Parkinson's. We had a phone consultation with Dr. Bihari in March and Rick started on LDN on 3/28. He has been diagnosed with Parkinson's for about a year and a half and started generic Sinemet at Thanksgiving time as the slowness of movement, fatigue, and weakness were getting to the point of needing help. We moved the dose around a bit to see what would be the best level, always wanting to keep it as low as possible, as Sinemet can cause dyskensia's (uncontrolled movements) after being on it for several years--not so much a concern for an older patient but Rick is only 51 now. Anyway, 3 Sinemet gave him quite good symptomatic relief but we have been able to drop that down now to only one a day after having added 5mg of selegeline once a day (as it may have some neuroprotective as well as symptomatic effect) and then added the LDN a little over 2 months ago. It's difficult to say that the LDN is the reason why he has been able to drop down one less Sinemet and still function very well but it may very well be why he has. It has also seemed to me that he has much more energy of late which may be an effect of the LDN. He also is and has been taking a boat load of supplements from numerous antioxidants, fish oil, vitamins, neurological supports, to digestive probiotics and glutathione IV occasionally.

I would say yes, absolutely, find a doctor who will prescribe LDN for your mother. When Rick was first diagnosed with PD, we were not content to just let the PD progress and use the conventional meds to cover the symptoms. We wanted to know why he has it, what is going on in his body that may be promoting it, and what we can do to stop it and then try to heal the damage. We started working with a naturopathic doctor (ND) who had no experience with PD but who's creed is to figure out what is happening and why. She has directed us on much of the supplements but we also do our own research and then talk it over with her. We also have found an MD who is alternative minded who will write the prescriptions that we need (since ND's are not licensed in NY so cannot write scripts). Thanks to on a PD group who posted about this LDN group and the website, we learned about LDN. We got an appointment with Dr. Bihari right away and onto LDN as soon as possible.

Rick noticed no side effects as all from the LDN--4.5 mg right from the start. However, our 17 year old son with Type 1 diabetes who started on 4.5 LDN at the same time, did have vivid dreams for about the 1st 10 days. He also had some headaches but we weren't sure if they were related to the LDN or not and has also had some quickly passing feelings of nausea after eating at times. It was mentioned at the conference that nausea can be a possible side-effect--not by the LDN itself but by the increased endorphins. We need to schedule our followup visits with Dr. Bihari so will ask him about our son's possible side effects at that time.

Kathie

On Mon, 13 Jun 2005 00:30:41 EDT Tora48@... writes:

Dear Kathie,I keep searching the mail for any info related to LDN and Parkinson. You mentioned your husband and I was not able to determine whether you ascribe to him taking LDN for his Parkinsons. If so, could you expand on your experience, dosage, doctor, length of time, and whatever. My mom was diagnosed with Parkinson's last summer. She is 76 and I am looking everywhere for any possible treatments. Thanks for your time and info.Sincerely,Terry A.