Re: Our daughter's period started!

[Guest guest]

That's wonderful, ! We're still waiting here :-)

Thanks for the encouraging report!

> Well, the day I'd been dreading for years has come and gone - - UNEVENTFULLY!

> Had to share with all you parents of young girls with autism that my 11 year

old

> daughter has handled her first period with grace and aplomb! This group

helped

> prepare me AND my daughter for the big day. Your sage advise and wisdom was

put

> into practice. My daughter has limited verbal ability but was able to tell

me

> " it hurts " when she began bleeding, and she has asked for a new " bandaids " as

> needed. She really doesn't hurt (as far as I can tell) but I guess she

> associates blood with hurting. We're working on changing the word " bandaid "

to

> " pad. " Anyway, the pads don't bother my daughter, and she's very nonchalant

> about wearing them. What a relief! Last week my daughter was extremely

> talkative in a nonsensical way, with lots of echolalia and constant moving

> around. She wore me out and I wondered what was up with her. I guess it was

> PMS. Since her period started she's been rather serene! So unexpected. I am

> so grateful and had to share this happy news. So, HAVE HOPE! The dreaded day

> may not be so bad afterall!

>

> , daughter to Madeleine (age 11 years, 2 months and 23 days when the

BIG

> DAY arrived!)

>

>

> ------------------------------------

>

> The Power Pumper makes physical therapy fun! Plus, funding sources are

available to provide a free Power Pumper to anyone who needs it.

> ------------------------

> http://www.powerpumper.com/friends/jrox.php?uid=bridalsh

> ------------------------

> Autism_in_Girls_and_Women-subscribe

> ------------------------

> Autism_in_Girls_and_Women-unsubscribe@...! Groups Links

>

>

>

[Guest guest]

That's wonderful! way to go and Madeleine! :-)

(And we can report the same. We prepared and practiced and had an

uneventful start last year.

No drama! Thanks once again from Sandi and Allie for all the help and

suggestions!)

In a message dated 5/21/2011 8:17:09 A.M. Central Daylight Time,

msdickson2309@... writes:

Well, the day I'd been dreading for years has come and gone - -

UNEVENTFULLY!

Had to share with all you parents of young girls with autism that my 11

year old

daughter has handled her first period with grace and aplomb! This group

helped

prepare me AND my daughter for the big day. Your sage advise and wisdom

was put

into practice. My daughter has limited verbal ability but was able to

tell me

" it hurts " when she began bleeding, and she has asked for a new " bandaids "

as

needed. She really doesn't hurt (as far as I can tell) but I guess she

associates blood with hurting. We're working on changing the word

" bandaid " to

" pad. " Anyway, the pads don't bother my daughter, and she's very

nonchalant

about wearing them. What a relief! Last week my daughter was extremely

talkative in a nonsensical way, with lots of echolalia and constant moving

around. She wore me out and I wondered what was up with her. I guess it

was

PMS. Since her period started she's been rather serene! So unexpected.

I am

so grateful and had to share this happy news. So, HAVE HOPE! The dreaded

day

may not be so bad afterall!

, daughter to Madeleine (age 11 years, 2 months and 23 days when

the BIG

DAY arrived!)

[Guest guest]

That is such a relief, isn't it! I still remember the dread & ours was

uneventful too. PMS is harder to explain b/c moods are too abstract for her

to understand, but all in all, things are still fine at 19.

Marie

On Sat, May 21, 2011 at 6:17 AM, Dickson

wrote:

> Well, the day I'd been dreading for years has come and gone -

> - UNEVENTFULLY!

> Had to share with all you parents of young girls with autism that my 11

> year old

> daughter has handled her first period with grace and aplomb! This group

> helped

> prepare me AND my daughter for the big day. Your sage advise and wisdom

> was put

> into practice. My daughter has limited verbal ability but was able to

> tell me

> " it hurts " when she began bleeding, and she has asked for a new " bandaids "

> as

> needed. She really doesn't hurt (as far as I can tell) but I guess she

> associates blood with hurting. We're working on changing the

> word " bandaid " to

> " pad. " Anyway, the pads don't bother my daughter, and she's very

> nonchalant

> about wearing them. What a relief! Last week my daughter was extremely

> talkative in a nonsensical way, with lots of echolalia and constant moving

> around. She wore me out and I wondered what was up with her. I guess it

> was

> PMS. Since her period started she's been rather serene! So unexpected. I

> am

> so grateful and had to share this happy news. So, HAVE HOPE! The dreaded

> day

> may not be so bad afterall!

>

> , daughter to Madeleine (age 11 years, 2 months and 23 days when

> the BIG

> DAY arrived!)

>

>

> ------------------------------------

>

> The Power Pumper makes physical therapy fun! Plus, funding sources are

> available to provide a free Power Pumper to anyone who needs it.

> ------------------------

> http://www.powerpumper.com/friends/jrox.php?uid=bridalsh

> ------------------------

> Autism_in_Girls_and_Women-subscribe

> ------------------------

> Autism_in_Girls_and_Women-unsubscribe@...! Groups Links

>

>

>

>

--

Marie " I don't think the worst thing that could happen to me is having a

child with special needs. I think the worst thing would be to raise a child

who is cruel to people with special needs. " ~ Mickelson Butman

[Guest guest]

So glad to hear, ! My daughter's start was pretty smooth too, six

years ago. She does fairly well, just doesn't tend to notice leaks. And

cleanliness is an issue. But she doesn't seem fazed, which is all in all a very

good thing.

Here's to our wonderful girls!

Melinda

[Guest guest]

Hi I my name is kristi and I have a 6 yr old that started her cycle in dec of

last yr any advice? She has lots of issues CP autism mito-chondrial sanfilippo

epilepsy the list goes on. She is partially potty trained and in panties for the

most part but if I would try to use a pad she would scream but she will wear the

good nights .When she wears the goodnights she will not go to the bath room she

pees in them.Any help would be greatly appreicated.thanks   Kristi

 

To: Autism_in_Girls_and_Women

Sent: Saturday, May 21, 2011 7:13 PM

Subject: Re: Our daughter's period started!

 

So glad to hear, ! My daughter's start was pretty smooth too, six

years ago. She does fairly well, just doesn't tend to notice leaks. And

cleanliness is an issue. But she doesn't seem fazed, which is all in all a very

good thing.

Here's to our wonderful girls!

Melinda

[Guest guest]

Did you say she's 6 yrs old & already having her period?! Wow, precocious

puberty?

We started practicing with pantiliners, just putting it on & immediately

taking if off & gradually increased the time. When she was OK with

pantiliners, we advanced to thicker pads in increments & again increasing

the time, til she could handle wearing regular pads.

Marie

On Sat, May 21, 2011 at 5:11 PM, Ms kris pritchard <

pritchard2000_1997@...> wrote:

> Hi I my name is kristi and I have a 6 yr old that started her cycle in dec

> of last yr any advice? She has lots of issues CP autism mito-chondrial

> sanfilippo epilepsy the list goes on. She is partially potty trained and in

> panties for the most part but if I would try to use a pad she would scream

> but she will wear the good nights .When she wears the goodnights she will

> not go to the bath room she pees in them.Any help would be greatly

> appreicated.thanks Kristi

>

>

>

> To: Autism_in_Girls_and_Women

> Sent: Saturday, May 21, 2011 7:13 PM

> Subject: Re: Our daughter's period started!

>

>

>

>

> So glad to hear, ! My daughter's start was pretty smooth too, six

> years ago. She does fairly well, just doesn't tend to notice leaks. And

> cleanliness is an issue. But she doesn't seem fazed, which is all in all a

> very

> good thing.

>

> Here's to our wonderful girls!

>

> Melinda

>

>

[Guest guest]

Hi Kristi. Your daughter is going through precocious puberty. I'd strongly

recommend that you take her to a pediatric endocrinologist for evaluation and

treatment. The problem with precocious puberty is that once a girl starts her

menses, she's on a rather limited " time clock " if you will for linear growth.

The typical treatment for this (although I'm not a doctor) is Lupron, a

synthetic hormone that will delay puberty and consequently, her periods, until

she reaches an appropriate age. Also, it will give her more time to grow. Good

luck.

Sue Kabala

>

> Hi I my name is kristi and I have a 6 yr old that started her cycle in dec of

last yr any advice? She has lots of issues CP autism mito-chondrial sanfilippo

epilepsy the list goes on. She is partially potty trained and in panties for the

most part but if I would try to use a pad she would scream but she will wear the

good nights .When she wears the goodnights she will not go to the bath room she

pees in them.Any help would be greatly appreicated.thanks   Kristi

>  

>

>

> To: Autism_in_Girls_and_Women

> Sent: Saturday, May 21, 2011 7:13 PM

> Subject: Re: Our daughter's period started!

>

>

>  

>

> So glad to hear, ! My daughter's start was pretty smooth too, six

> years ago. She does fairly well, just doesn't tend to notice leaks. And

> cleanliness is an issue. But she doesn't seem fazed, which is all in all a

very

> good thing.

>

> Here's to our wonderful girls!

>

> Melinda

>

>

[Guest guest]

If your daughter started her period and she is only 6 years old, then you

need to take her to a pediatric endocrinologist. She probably has

precocious puberty. Starting her period at such a young age can affect her

growth. (She may be a lot taller than her peers and may stop growing a lot

earlier, but not obtain a good adult height due to her bones fusing earlier

than they should.)

I used to be very involved with an organization in Chicago called MAGIC

Foundation that deals with children's growth disorders. One of their

divisions is Precocious Puberty. Here is a link to their website that can

give you some information on it. If you have any questions, you can call

them or send them an email and they will be happy to answer them.

(My daughter was Growth Hormone Deficient and that is how I was involved in

the organization.)

Anita

On Sat, May 21, 2011 at 7:11 PM, Ms kris pritchard <

pritchard2000_1997@...> wrote:

>

>

> Hi I my name is kristi and I have a 6 yr old that started her cycle in dec

> of last yr any advice? She has lots of issues CP autism mito-chondrial

> sanfilippo epilepsy the list goes on. She is partially potty trained and in

> panties for the most part but if I would try to use a pad she would scream

> but she will wear the good nights .When she wears the goodnights she will

> not go to the bath room she pees in them.Any help would be greatly

> appreicated.thanks Kristi

>

>

>

> To: Autism_in_Girls_and_Women

> Sent: Saturday, May 21, 2011 7:13 PM

> Subject: Re: Our daughter's period started!

>

>

>

>

> So glad to hear, ! My daughter's start was pretty smooth too, six

> years ago. She does fairly well, just doesn't tend to notice leaks. And

> cleanliness is an issue. But she doesn't seem fazed, which is all in all a

> very

> good thing.

>

> Here's to our wonderful girls!

>

> Melinda

>

>

[Guest guest]

Wow! I am so happy it went smoothly. My daughter is 9.5 and I have a feeling she

will be around 10 when she starts. What changes did you notice before she

started? My daughter already has breasts and is starting to sprout hair down

there...so I am sure it will be sooner than later. I dont think she will

understand what is happening, but she doesnt mind wearing a pad. I am just so

afraid she will constantly have her hands down there trying to figure out what

is happening. Hopefully it goes the same way as your daughter!

Summer

Re: Our daughter's period started!

So glad to hear, ! My daughter's start was pretty smooth too, six

years ago. She does fairly well, just doesn't tend to notice leaks. And

cleanliness is an issue. But she doesn't seem fazed, which is all in all a very

good thing.

Here's to our wonderful girls!

Melinda

[Guest guest]

Hi Summer. My daughter first showed signs of breast development 2 1/2 years

ago, so her first period was still far off at that point. She developed hair

under her arms within the last 6 months or so - - I guess that was the last

bodily change to occur before her period began. I think the thing that helped

my daughter the most was seeing MY periods! I would make a point if bringing

her in the bathroom with me and showing her my pads l, explaining I was bleeding

but it didn't hurt and I was okay. I guess after seeing this situation enough

she just internalized the bleeding as normal and to be expected. Also, invest

in good quality, absorbant but thinner pads. It isn't necessary to buy the

super thick, bulky pads. Who would want to wear those anyway!

Sent from my iPhone

S. Dickson

Wow! I am so happy it went smoothly. My daughter is 9.5 and I have a feeling she

will be around 10 when she starts. What changes did you notice before she

started? My daughter already has breasts and is starting to sprout hair down

there...so I am sure it will be sooner than later. I dont think she will

understand what is happening, but she doesnt mind wearing a pad. I am just so

afraid she will constantly have her hands down there trying to figure out what

is happening. Hopefully it goes the same way as your daughter!

Summer

Re: Our daughter's period started!

So glad to hear, ! My daughter's start was pretty smooth too, six

years ago. She does fairly well, just doesn't tend to notice leaks. And

cleanliness is an issue. But she doesn't seem fazed, which is all in all a very

good thing.

Here's to our wonderful girls!

Melinda

[Guest guest]

Thank you ! That is a great tip, I will start showing her every month.

Hopefully we have atleast another year to prepare!

Summer

Re: Our daughter's period started!

So glad to hear, ! My daughter's start was pretty smooth too, six

years ago. She does fairly well, just doesn't tend to notice leaks. And

cleanliness is an issue. But she doesn't seem fazed, which is all in all a very

good thing.

Here's to our wonderful girls!

Melinda

[Guest guest]

Hey Kristi,

I agree with everyone that a 6 year old starting her period is a reason to take

her to a doctor.  That is way too early to start even when a daughter has a

disability. 

That said, can you get her to wear one of those thin pads with the pull up? Tell

her the pad is for the blood but not to wet the pull up.  See if she goes for

it.  

I also let both of the girls see me removing and putting on a pad.   It made the

world of difference when they started.

Let us know how your daughter is doing.

 

Mylinda Elliott