LDN - For those MS people it hasn't helped much. Can we find a common thread ?

[Guest guest]

Hi All, For the sake of possibly discovering a common thread, I offer my story: After meeting a person from a local MS support group, who talked about how much LDN was helping her, it didn't take me long to start taking LDN (in February 2004). At the time, I was still driving, walking unaided (short distances), and taking care of everyday business. Today I no longer drive, live within two rooms of our house, and require the assistance of my husband with the simplest of tasks (I'm right-handed and my right hand is seriously affected). I still take LDN (it's my anti-depressant). To go back, my history of MS is: after having my first child (at age 32) , when she was about a year old, I had my four impacted wisdom teeth removed . About a week later, I had a mucocele (plugged salivary gland, probably an injury caused by the wisdom tooth surgery) also surgically taken care of and had a routine biopsy ! (You'll soon see why I mention this). Biopsy showed no problem, but the idea of this scared me beyond belief , and I knew that the Dr was going to call a few days later to tell me the results. The doctor did call, while I was taking a bath, and instead of telling my husband that all was fine, he asked my husband to have me call him back. In the time between flying out of the bathtub and reaching the doctor on the phone (not long) my imagination took hold and my blood pressure checked my system for any weaknesses. The next day, I suddenly felt a tingling sensation in a line up the left side of my face, and something was not right with the sight in my left eye (same side as the mucocele). Off to an opthalmologist. Diagnosis:optic neuritis. (MS mentioned as a possible cause along with many other things) This cleared over a period of several weeks(without the use of any drugs) A few months after this, I experienced a few days of weird sensory symptoms (I would go to put a glass down on a table and I would be off in my sense of how far the table was). Other than these instances, over the next few years I had a period of room spinning dizziness (a month after having my second daughter) which sent me to bed for a few days. Then---I lived pretty much a normal life for the next almost 20 years.(If I had been taking any of the CRABs, I'm sure it would have been easy to assume that they were doing something)Enter menopause... after a year of this, I started bleeding again , so I went to the doctor , who proceeded to again do a routine biopsy. On the day the results of this biopsy were to be in, I stopped by the doctor's office (interestingly, to save myself another bathtub incident). He wasn't there, but the nurse called him and even though again there was no problem, she relayed to me that the doctor wanted to talk with me personally. I waited (not long) and while I did , once again my imagination took hold (and my blood pressure checked my system for any weaknesses) I'm amazed that I didn't drop dead in that office (I'm obviously destined for the slow and painful type demise)! The nurse soon came over to me and said " I don't know what the doctor was thinking, but I got the ok to read the biopsy results, and everything is fine." The next morning I awoke with tingling in my left hand which only increased by the day, until a few days later I went to the emergency room thinking I was having a stroke. The Dr who saw me, assured me I was not having a stroke, but also said that she had observed me walking in and that she suspected MS...that was in 2000. The tingling never left me. It intensified, turned to numbness, is in both hands, and I now have difficulty using either hand (but particularly my right). My point in telling this tale is that in my case , hormones and stress seem to be big factors. I did just call the person who told me about LDN (she's still doing well) and she reminded me that she had "restless legs syndrome" and that her observation has been that LDN seems to work well with people who have had that symptom (I never did). Interestingly, within the last few weeks, Kathy(of this group) mentioned that Dr Nieper had observed that Ca AEP worked particularly well for people who had more of their upper leg muscles involved, as opposed to their lower leg muscles (sorry if I'm describing this incorrectly) ........ Also, I've never taken any of the CRABS drugs, I eat healthy,avoid dairy, wheat, and trans fats , and take Cod Liver oil capsules, and a few other supplements. I've never been a smoker or drinker, I did not have a dog (until I was 12) but I was not breastfed (I don't think many people were during the forties, it was discouraged) That's my story, and I'm sticking to it ! Look forward to the daily digests, and appreciate how helpful people are in this group.If any of you have any thoughts after reading this, I'd love to hear from you. Thanks for listening,