I need all of your support for Baby Kiara and my family

[Guest guest]

Hello my friends, I just joined this site today. I am in need of some

advice and encouragement that everything will be OK. I feel very

overwhelmed at this moment. Let me tell you a little bit about

myself. I live in Berks County, PA. I am a wife of a great husband

that is permanently disabled due to a traumatic brain injury from an

auto accident, person had no insurance. I have 4 lovely children ages

6, 4, 2, and 4 months. I have a 2 yr old that stopped breathing at

age 1 month old and currently recieves therapies 3 times a week. Now,

the reason that I am at this group is for my little baby, Kiara that

smiles at everyone. She is the most joyous child. She was born on May

7, 2008. After a very rough pregnancy,she was finally in my arms. I

suffered at the end of labor with low blood pressure, had a vaginal

delivery. The day after birth, I noticed that her chin was slanted.

At that time, I told our doctor and she stated that it is probably

from the way of positioning during pregnancy. We also noticed that

one eye was smaller then the other. She had a clogged tear duct so we

did not think anything of it. At the 2 month check up, we made the

doctor aware that Kiara seems to turn to one side and her back looked

crooked. She was diagnosed with Torticolis and referred to early

intervention to recieve physical therapy. Kiara was not evaluated

until August 27 by a PT. During the evaluation that she was showing

the signs of scoliosis. I called the doctor immediately and was seen

the following day. The primary care physician referred her to see the

orthopedic, Dr. Berger at the VSAS Orthopedic in town. On Sept.

4, she was seen by him and was told to make an appointment to

reevaluate her in 6 months. He stated to me that she seems to have

one side of her face smaller than the other. He did not order xrays.

On September 24, I was scheduled to get a second oppinion from Easter

Seals Dr. Pizzitillo but he had to reschedule due to conflict in his

schedule. My daughter was on the prayer chain and I was told by a

fellow church member that I should contact Shriners Hospital to try

to get some advice and care. I contacted them and have an appt. next

Tuesday Sept. 30 to see Dr. Betz. I am eager to meet him and see what

he has to say. I strongly feel that we should have an xray to

determine the degree of scoliosis. The primary care physician feels

that the curve in her back could be from the torticolis and will

resolve on its own. As a mother, I do not want to sit and wait 6

months. I feel that this is the time that she needs care. Early

detection is best. She was seen by her primary care physician today

for a 4 month check up. The doctor told me that they want to refer

Kiara to a neurologist due to the facial issues and the lack of

moving one arm. The doctor felt that Kiara could have possibly had a

stroke during the pregnancy. Again, I have an appt. on Sept. 30 at

Shriners Hospital for an evaluation. Many of you have been through

this before, I will take any advice, comments, concerns. I want all

of you to be open with me and tell me how it is. Is there anything

special I should ask or say at this evaluation? I need all of you

right now as I want to do what is best for Kiara. I forgot to mention

that she is recieving PT 2x a week from early intervention for the

past 2 weeks now. I strongly feel that she should have a cast to

prevent further curvature. Do they cast at this young of age? God

bless each and every one of you that has taken the time to read this.

I hope to hear from you soon. With sincere love, Brigitte