Avonex

[Guest guest]

Hi All;

This is my first time here. I'm a 63 year old male diagnosed with MS Nov 2002 when I was started on avonex, had some side effects flu like but, started to have noticeably bad side effects with my last three shots which I stopped Dec 2004, first of my last three I noticed more weakness, numbness and slight depression, second each symptom got worse where I had a hard time getting out of bed, third shot much worse where I couldn't get out of bed by myself for three day's. I stopped my shots and saw my doctor, she thought I just couldn't tolerate the shot's so put me on 80 mg zocor, took me a while to recover from the avonex but feeling some what better.

What I don't understand is the MRI'S I've had show very few lesions, my last appointment my Dr said, it appears I have one old lesion or scare tissue from a accident in my neck spinal cord which could be causing all my problems, I'm in a wheelchair but work out at a gym five days a week so I can transfer from scooter to chair easier.

Like I said, I'm a 63 year old male, 6' 2', 212 lbs and my muscles haven't atrophied, have much strength but can't control it, WHY? I just don't seem to be getting satisfactory answers to my questions. As for my general health, the doctors tell me if it weren't for my MS I would be in excellent health. If anyone can make since out of what I'm trying to say, please respond with any suggestions.

Thank you, Jim

[Guest guest]

hHI! YOU CAN HAVE MANY SYMPTOMS WITH NO LESIONS OR MANY LESIONS WITH NO SYMPTOMS. A SPINAL TAP ISN'T EVEN A CONCLUSIVE DIAGNOSIS. HAVE YOU BEEN TESTED FOR LYME OR ANYTHING ELSE THAT MIMICS MS? DID YOU READ TODAY ABOUT THE EXTENSIVE ANTIOXIDANT PROGRAM THAT TURNED THE COURSE OF A MANS MS AROUND? IT IS A TOTAL LIFESTYLE CHANGE. LDN, EXERCISE, SUPPLEMENTS GALORE AND ANYTHING ELSE YOU CAN AFFORD LIKE MASSAGE. EAT WELL AND BE POSITIVE AS HARD AS IT SEEMS. I REMEMBER SAYING ONE TIME BEFORE MY MS HAD MANIFESTED ITSELF " DEAR GOD, WHY DO I HAVE ALL THESE INTENSE FEELINGS? WHY CAN'T YOU JUST MAKE ME NUMB?" NOW HOW IS THAT FOR GETTING WHAT YOU ASK FOR? POINT BEING, I USE TO LOVE SO DEEPLY, I FELT IT WAS DETRIMENTAL TO MY WELL BEING. JUST FOOD FOR THOUGHT. TAKE MEGA AMOUNTS OF FISH OIL . IT IS SO GOOD FOR DEPRESSION AND SOMETIMES WE DON'T EVEN KNOW WE ARE DEPRESSED. KATHY

[low dose naltrexone] Avonex

Hi All;

This is my first time here. I'm a 63 year old male diagnosed with MS Nov 2002 when I was started on avonex, had some side effects flu like but, started to have noticeably bad side effects with my last three shots which I stopped Dec 2004, first of my last three I noticed more weakness, numbness and slight depression, second each symptom got worse where I had a hard time getting out of bed, third shot much worse where I couldn't get out of bed by myself for three day's. I stopped my shots and saw my doctor, she thought I just couldn't tolerate the shot's so put me on 80 mg zocor, took me a while to recover from the avonex but feeling some what better.

What I don't understand is the MRI'S I've had show very few lesions, my last appointment my Dr said, it appears I have one old lesion or scare tissue from a accident in my neck spinal cord which could be causing all my problems, I'm in a wheelchair but work out at a gym five days a week so I can transfer from scooter to chair easier.

Like I said, I'm a 63 year old male, 6' 2', 212 lbs and my muscles haven't atrophied, have much strength but can't control it, WHY? I just don't seem to be getting satisfactory answers to my questions. As for my general health, the doctors tell me if it weren't for my MS I would be in excellent health. If anyone can make since out of what I'm trying to say, please respond with any suggestions.

Thank you, Jim