Understanding Jim

[Guest guest]

Jim,

here. I'm a 49 y/o white male experiencing the effects

of secondary progressive MS. I think I can trace some of my first

symptoms back to 1983 but wasn't diagnosed until 1993 with

" benign "

MS. This started relapsing and remitting almost immediately. I seemed

to effortlessly slip into a secondary progressive phase during the

period of 1996-1999. I started Avonex in 1996 and broke my hip

(downhill skiing!) in 1999. The Avonex kept me relapse free for 6

years but the hip break might have served to stir up my system in a

way that left me on a long slow slippery slope sliding down slowly,

or so it seems. I'm grateful for every step I'm still able to

take

and hopeful that the positive effects, initially experienced in

relation to starting a totally wheat-free diet will continue to

create an environment in which my body can heal itself.

So that's what's going on with me. What about you? I'm

wondering if the disparity between your [otherwise] healthy body, the

scant number of lesions and your symptoms along with a lack of

answers has left you puzzled and overwhelmed trying to figure out

what the heck is going on? I imagine you're in need of some

straight

up information that would explain why all this is hap-pening to you

at 63 and are finding satisfying explanations hard to come by.

I'm

guessing too that all this makes not knowing what your future holds

pretty frightening and that you need clar-ity with respect to the

possibilities around your condition.

Before I go on with stuff you don't want to hear, I'd like

to

check out with you what part, if any, of what a said is even close to

what is going on for you right now? If you'd like, you can re-ply

to

me directly.

--

[Guest guest]

;

Thanks for your response. I believe the start of my MS was 1993 even though I wasn't diagnosed until 2002, my primary care doctor at the time saw me go from walking good, to a cane, to a walker & now a wheel chair, during this time I told the doctor to refer me to someone he felt could help me, he did make a referral to a neuro specialist but the hospital's managed care declined the referral, so I would either have to go find another doctor on my own without insurance being the other hospital declined to refer me outside their system. So being a disabled veteran I would try the VA Hospital, to my surprise the VA was the one that diagnosed my MS, the health care had improved from what I remember from the 60's & 70's.

Yes, it's frustrating, I was always a very active person, and my wife and I want to travel and see other parts of the world.

I was at a seminar and fell, I was able to get back up but I was unsteady and had to walk with hand on the wall to balance myself.

I work out at a gym 5 days a week, which seems to keep me stable, this doctor is trying me on zanaflex and with my exercising I seem to be improving rapidly.

What do you think about LDN?

Jim

[low dose naltrexone] Understanding Jim

Jim, here. I'm a 49 y/o white male experiencing the effects of secondary progressive MS. I think I can trace some of my first symptoms back to 1983 but wasn't diagnosed until 1993 with"benign" MS. This started relapsing and remitting almost immediately. I seemed to effortlessly slip into a secondary progressive phase during the period of 1996-1999. I started Avonex in 1996 and broke my hip (downhill skiing!) in 1999. The Avonex kept me relapse free for 6 years but the hip break might have served to stir up my system in a way that left me on a long slow slippery slope sliding down slowly, or so it seems. I'm grateful for every step I'm still able totake and hopeful that the positive effects, initially experienced in relation to starting a totally wheat-free diet will continue to create an environment in which my body can heal itself. So that's what's going on with me. What about you? I'm wondering if the disparity between your [otherwise] healthy body, the scant number of lesions and your symptoms along with a lack of answers has left you puzzled and overwhelmed trying to figure out what the heck is going on? I imagine you're in need of somestraight up information that would explain why all this is hap-pening to you at 63 and are finding satisfying explanations hard to come by.I'm guessing too that all this makes not knowing what your future holds pretty frightening and that you need clar-ity with respect to the possibilities around your condition. Before I go on with stuff you don't want to hear, I'd liketo check out with you what part, if any, of what a said is even close to what is going on for you right now? If you'd like, you can re-plyto me directly.--