Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 Dennis; My doctor told me once that Stills can affect the muscles as well as the joints. Maybe that is why your muscles are hurting. I wonder though if it may be that when a joint is so much flared that our muscles tense to the point of pain afterwards. Try to remember that some people and probably many, would never know your pain and therefore don't be so hard on yourself. I wish there were another way to help and I hope you find someone to talk with. Keep hanging on. Much luv, Melt ----- Original Message ----- Does anyone > have a alot of muscle pain around the joints after a flare or is the > sound like the beginnnings of Fibromalygia. I am really tired and > sick and tired of hurting. I am tired of this crap,. Thanks for the > vent everyone and my love to all of you. Is the anyone around the > Atlanta Georgia Area. I really need someone to chat with. > Dennis in Atlanta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi Dennis, I'm so busy with my granddaughter's First Communion this Sunday and tons of company arriving for it that I've got a zillion e-mails to go through but yours caught my eye regarding muscle pain. I kind of thought I was the only one that had it when I was in a flare as no one seems to mention it here at all. YES, I do get it and it hurts like HE double toothpicks !!!!!! Every muscle hurts not just one. As we all know, everyone has a different ailment with this disease ....... I never get head aches...... Dennis, I have free calling so if you'd like to send me your phone number, I'd be glad to give you a jingle and we can chat for a while. I'm a very quiet person and would rather listen than talk so I'd be a perfect person for you to gripe to without me interrupting you. My e-mail is.......... pscarmen@... Stills sucks ........ That's my story and I'm sticking to it !!! Mi. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 I got muscle pain during all my flares as well as joint pain....yes this dragon is one naaasty beast!! Hugs Love Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Hi Dennis. I have much more muscle pain than I have joint pain most of the time. For the most part, my pain is in my legs and feet, but I have also had some very severe groin pain, similar to a pulled groin "feel". My ankles and sometimes knees are the only joints that have truly hurt, but all are sore. The muscle pain is horrible, varies from day to day, and does not become much more tolerable even with Vicodin. I also keep getting headaches that make me want to drop dead. As far as people questioning your pain, have them read up a bit on this F#$%!^ disease. If they refuse, ignore them. If I have one thing in my favor, everyone around me (work,family & friends) has been very supportive, which is about the only damn thing that has gone my way all year. I am really just beginning with this, and am not having an easy go of it either. I get to see my Rheum. for the first time tomorrow, and hope to high hell that he can get me back on track and maybe give me something for pain that actually works. Have a good one, Kirk. Dennis Hi all I have ben reading not much posting lately. Sorry for everyone having alot of problems as of late. Welcome to all the new comers. I have been up and down lately cant say that I an enjoying this roller coaster ride. My prednisone has been tapered down to 12.5mg a day but I am dearly paying for it. Finally got put on Ambien for sleep and my Rheumy and me are going to discuss Methotraxte in June as the Plaqenuil I feel is doing squat. Vicodin and Darvacet are becoming a real intimate part of my life as of late. Does anyone have a alot of muscle pain around the joints after a flare or is the sound like the beginnnings of Fibromalygia. I am really tired and sick and tired of hurting. It affects me my family my job and everything else. People that know me know what I have and know about it but still dont understand how 1 day I can get around somewhat decent but the next day barely walk. I guess I need a change in employment that is a alot less physically and mentally stressfull. Sometimes I think that they think I am just using the dragon as a Scap Goat. I am tired of this crap,. Thanks for the vent everyone and my love to all of you. Is the anyone around the Atlanta Georgia Area. I really need someone to chat with.Dennis in Atlanta Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
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