Re: Spastic legs and arms like many of you are experiencing

[Guest guest]

In a message dated 6/5/2005 11:32:00 AM Eastern Daylight Time, nascush@... writes:

time it takes to work but…… how long I have to wait. Isee that many recommend 6 months or so.

Steve

Dr. Bihari (the pioneer of LDN) is the one who recommends at least 6-9 months. I had just gotten off copaxone around the same time I started ldn about 14 months ago. I didn't get any symptom relief until about 8 months later, (some bladder control), and even now it isn't always the same day to day.

I do believe though it has stopped progression, and that is it's main purpose. It's not meant to be a quick fix, some people just get relief sooner than others.

It also seems a lot of men do better on 3 mg and women do better with 4.5. It also does 'wake up' some old symptoms until your body is regulated.

My advice is to stick with it. I thought about stopping it many times, but the fact that it was supposed to stop progression kept me going.

Good luck

Arlene

[Guest guest]

IMO any break in a routine dose plan is very bad.

Anytime I accidentally -or not- miss a pill I have at least a week to make up.

Also yesterday I ate some very good yet greasy turkey gravey on a bread slice

and boy am I paying for it today, I am having what a R.R. mser would call an exaserbation

I guess.

Reg.

-- [low dose naltrexone] Spastic legs and arms like many of you are experiencing

I have been LDN for 5 weeks now. My legs have gottenworse (numb, weak, stiff, hard to walk at times). Myhands are very stiff also. Some of it seems like ithas woken up my old lesions. I started at 4.5mg andwent down to 3mg for a week to no avail. I alsostopped Avonex and 2 weeks later started Copaxone. Iam very willing and open minded to give LDN all thetime it takes to work but…… how long I have to wait. Isee that many recommend 6 months or so. Would it make sense to “not” take LDN once or twice aweek?No, I am not stressed out about LDN and do have a verypositive attitude. I was diagnosed with MS over 4 years ago (on Avonexand quarterly IV steroids for 4 years – no moresteroids for me). I have had MS for “at least” 15years. Thanks for listening/reading,Steve __________________________________ Discover Use to plan a weekend, have fun online and more. Check it out! http://discover./