Taking Falls

[Guest guest]

Marie & Arlene,

Balance problems are very common for us ms'er's. Use a walker or a cane, be extra careful, don't take chances, get proper nutrition, try yoga or Tai'Chai to retrain muscles for coordination.

Hi Marie, I doing OK, miss Cape Cod.

Regards,

Tom

Re: [low dose naltrexone] TAKING FALLS

In a message dated 4/29/2005 9:37:53 AM Eastern Daylight Time, Mardea@... writes:

I THINK SOME OF MY FALLS ARE FROM BALANCE PROBLEMS.

SOME ARE FROM MY LEGS NOT BEING ABLE TO MOVE FAST ENOUGH TO CATCH MYSELF.

AN SOMETIMES MY LEGS ARE DRAGING AT THE END OF THE DAY FROM FATIGUE.

DOES ANYONE KNOW OF ANYTHING TO HELP BALANCE PROBLEMS. MAYBE A SUPPLEMENT.

DOES ANYONE ELSE HAVE THIS PROBLEM?

THANKS

MARIE

Marie

I fall a lot too. I know it's balance or dragging foot. I try to always have my walker, but it doesn't fit everywhere in the house. I don't know what to do either. I have ceramic tile floors and have hit my head quite hard since I don't have the upper strength to stop myself.

I don't know what to do, just wanted to let you know that it happens to me also.

Arlene

[Guest guest]

I would get a walker (if you dont have one) and really take your time

going anywhere. Balance problems are extremely common with MS and hard

to treat. A friend of mine fell (with her walker), broke her arm and

has been in a rehab hospital the past few months. Usually our bones

dont heal very well either, due to bone loss. I can only use mine on

one level of my house and 2 canes in the rest. Please be careful as we

dont want you to hurt yourself anymore .

Have almost fallen myself a few time even with a walker!

Kathy H.

On 29-Apr-05, at 8:15 AM, Marie Deady wrote:

> Hi Arlene,

> I know we can't help the legs and how fast or slow that they move but

> there has got to be somthing that can help our balance. i am hoping

> that someone has an idea for us.

> Wishing you luck too.  Stay safe

> Marie

>> Re: [low dose naltrexone] TAKING FALLS

>>

>>

>> In a message dated 4/29/2005 9:37:53 AM Eastern Daylight Time,

>> Mardea@... writes:

>>>

>>> I THINK SOME OF MY FALLS ARE FROM BALANCE PROBLEMS.

>>> SOME ARE FROM MY LEGS NOT BEING ABLE TO MOVE FAST ENOUGH TO CATCH

>>> MYSELF.

>>> AN SOMETIMES MY LEGS ARE DRAGING AT THE END OF THE DAY FROM FATIGUE.

>>>  

>>> DOES ANYONE KNOW OF ANYTHING TO HELP BALANCE PROBLEMS. MAYBE A

>>> SUPPLEMENT.

>>> DOES ANYONE ELSE HAVE THIS PROBLEM?

>>> THANKS

>>> MARIEMarie

>> I fall a lot too.  I know it's balance or dragging foot.  I try to

>> always have my walker, but it doesn't fit everywhere in the house.  I

>> don't know what to do either.  I have ceramic tile floors and have

>> hit my head quite hard since I don't have the upper strength to stop

>> myself. 

>> I don't know what to do, just wanted to let you know that it happens

>> to me also.

>> Arlene

>>

>>

[Guest guest]

Hi everyone,

Have you heard of Benfotiamine? Seems to do wonders for legs, a.o things.

Check out www.benfotiamine.org

Best wishes,

Lane

[Guest guest]

In a message dated 5/1/2005 2:55:14 PM Central Daylight Time, scrappygal@... writes:

I have fallen twice since I stopped Avonex two years ago this fall, which resulted in two broken bones, one in the wrist, one in the hand (navicular bone). I started with 3.5 mg. of LDN and slowly increased it to 4.5. I do not know if it has stopped the progression, but I suspect it hasn't, as my legs are getting slowly weaker, and now the muscles in my back are really weak. At night I wake up in the middle of the night with tremendous backache, and then I move to the Lazyboy in the livingroom which helps, for the rest of the night.

I have started doing exercises which were prescribed by a PT for strengthening my core muscles. Is backache a common side effect of MS? - and if so, how do the rest of you cope with it?

I am wondering if I should decrease the mg. of LDN and start over in building it up. This is so frustrating, as I am hearing all these wonderful stories of how LDN is helping most of you.

My eyes have stayed really good,but my bladder is worse, as well as my balance. I am using a quad now, and a walker on longer jaunts, but fatigue sets in rather quickly. Any suggestions on this matter?

Joan, PA

Col. Potter's Cairn Rescue

May you have a song in your heart, a smile on your lips and nothing but joy in your fingers.

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Hi Joan,

I fell twice while on Avonex. It was when the foot drag was setting in. I've fallen several times in the past 5 years, luckily not breaking any bones. I've bounced my head off of the floor a couple of times and cut myself once on the way down. Never figured out what I cut myself on! Left quite a trail of blood as I dragged myself to try and figure out a way to get myself back in my wheelchair. After I exhausted myself completely, I finnally called for help. I'm very stubborn! The walker is used to lift myself up, drag my concrete body a couple of feet, turn around and try to get situated on the bed. It's very dangerous, but what choice do I have? A nursing home? Don't think so! I did make out a living will during the Terri Shiavo episode.

My back hurts alot of the time, but I just figured it was from sitting so much. I do try to change positions, like you do. I don't know if it's an MS thing or not.

I started LDN on 3mg. After one month, I went to 4.5mg. I tried 6mg, but honestly, I couldn't tell much difference. I do have better bladder control. Any problems that I've got now were starting way before LDN. Such as, my writing was getting bad 3 years ago (I started LDN Nov '03), and now it's real bad. My stiffness was terrible 5 years ago, and now it is concrete-like. Have I progressed on LDN??? I really can't say. I think I would be much worse if I had never started LDN.

Hang in there!!!

Marcie

[Guest guest]

I have fallen twice since I stopped Avonex two years ago this fall, which resulted in two broken bones, one in the wrist, one in the hand (navicular bone). I started with 3.5 mg. of LDN and slowly increased it to 4.5. I do not know if it has stopped the progression, but I suspect it hasn't, as my legs are getting slowly weaker, and now the muscles in my back are really weak. At night I wake up in the middle of the night with tremendous backache, and then I move to the Lazyboy in the livingroom which helps, for the rest of the night.

I have started doing exercises which were prescribed by a PT for strengthening my core muscles. Is backache a common side effect of MS? - and if so, how do the rest of you cope with it?

I am wondering if I should decrease the mg. of LDN and start over in building it up. This is so frustrating, as I am hearing all these wonderful stories of how LDN is helping most of you.

My eyes have stayed really good,but my bladder is worse, as well as my balance. I am using a quad now, and a walker on longer jaunts, but fatigue sets in rather quickly. Any suggestions on this matter?

Joan, PACol. Potter's Cairn Rescue May you have a song in your heart, a smile on your lips and nothing but joy in your fingers.

[Guest guest]

Unfortunately backaches are extremely common. Thats partly why my MS

went undiagnosed for so long cause I assumed it was just " out " all the

time and only went to the chiropractor and never discussed my back

problems with my general practitioner. The chiropractor should have

suggested MS to me years ago because even their adjustments didn't

always help, therefore, kept switching chiros so no one could really

connect the dots. If your gait is off then your back will go out more

often. Regular chiro appts do help me now but cant always afford the

cost or have someone around to take me. If you could get a hand held

electric massager, that would bring lots of relief. Diet and stretches

help lots too.

Kathy H.

On 1-May-05, at 1:53 PM, Joan Cowdrick wrote:

> I have fallen twice since I stopped Avonex two years ago this fall,

> which resulted in two broken bones, one in the wrist, one in the hand

> (navicular bone).    I started with 3.5 mg. of LDN and slowly

> increased it to 4.5.  I do not know if it has stopped the progression,

> but I suspect it hasn't, as my legs are getting slowly weaker, and now

> the muscles in my back are really weak.  At night I wake up in the

> middle of the night with tremendous backache, and then I move to the

> Lazyboy in the livingroom which helps, for the rest of the night.   

>      I have started doing exercises which were prescribed by a PT for

> strengthening my core muscles.  Is backache a common side effect of

> MS?  - and if so, how do the rest of you cope with it? 

>      I am wondering if I should decrease the mg. of LDN and start over

> in building it up.  This is so frustrating, as I am hearing all these

> wonderful stories of how LDN is helping most of you. 

>      My eyes have stayed really good,but my bladder is worse, as well

> as my balance.  I  am using a quad now, and a walker on longer jaunts,

> but fatigue sets in rather quickly.  Any suggestions on this matter? 

>  

> Joan, PA

> Col. Potter's Cairn Rescue

>  May you have a song in your heart, a smile on your lips and nothing

> but joy in your fingers.

>

>  

>

>

[Guest guest]

During my wife's pregnancy her doctor or PT suggested a TENS device for the back ache.

It worked for her and the UK link to the electic legs website also offers the TENS devices.

I also found US type of Electric Muscle Stimulators (EMS) at some US sites.

Here are some liks for these devices.

-

Muscle Stimulators - Buy direct and save on Electric Muscle Stimulators www.promedproducts.com Russian Muscle Stimulator - Full range of Russian, Tens and EMS electronic muscle stimulation units www.vitalityweb.com Tens/Ems - Immediate Delivery Excellent prices and service www.paincontrolproducts.com EMS - Muscle Stimulators - Top Quality Muscle Stimulators Ships Same Business Day - UPS Blue www.superfoots.com

More web offers for Electric Muscle Stimulators >>

In a message dated 5/1/05 1:39:45 PM Pacific Daylight Time, etna@... writes:

Unfortunately backaches are extremely common. Thats partly why my MS went undiagnosed for so long cause I assumed it was just "out" all the time and only went to the chiropractor and never discussed my back problems with my general practitioner. The chiropractor should have suggested MS to me years ago because even their adjustments didn't always help, therefore, kept switching chiros so no one could really connect the dots. If your gait is off then your back will go out more often. Regular chiro appts do help me now but cant always afford the cost or have someone around to take me. If you could get a hand held electric massager, that would bring lots of relief. Diet and stretches help lots too.Kathy H.