stiff legs & spasms

[Guest guest]

Just a thought, I noticed a little more stiffness

and spasms in the legs since starting LDN also.

About 2 weeks ago I tried taking my LDN every other

night, This seems to have cut down on the stiffness

& spasms. Stll do leg exercise with a Ex N' Flex

EF-250 leg exerciser. Something to try. Noy saying

it will work for everyone,

but it's something to consider.

ADJ

[Guest guest]

WHAT MG ARE YOU TAKING? YOU COULD ALWAYS DO 3.O EVERY NIGHT IF YOU ARE TAKING A HIGHER DOSE.

[low dose naltrexone] stiff legs & spasms

Just a thought, I noticed a little more stiffness and spasms in the legs since starting LDN also. About 2 weeks ago I tried taking my LDN every other night, This seems to have cut down on the stiffness & spasms. Stll do leg exercise with a Ex N' Flex EF-250 leg exerciser. Something to try. Noy saying it will work for everyone, but it's something to consider.ADJ

[Guest guest]

I'm new to LDN. I've been taking 3mg for about 3 weeks. The first week I noticed the numbness in my fingers and feet decreasing, but since then I notice the spasticity in my legs is getting worse and they feel generally weaker. I feel like they're going to give out under me. I'm SPMS for about 5 yrs. and have never been on any of the ABC drugs, have been going it alone. I read about LDN and it sounded promising. My GP signed on and said we could give it a try. The way I'm feeling I feel like quitting, but I don't want to be premature. Is it going to get better?

thy lintzenich <mykittypaws@...> wrote:

WHAT MG ARE YOU TAKING? YOU COULD ALWAYS DO 3.O EVERY NIGHT IF YOU ARE TAKING A HIGHER DOSE.

[low dose naltrexone] stiff legs & spasms

Just a thought, I noticed a little more stiffness and spasms in the legs since starting LDN also. About 2 weeks ago I tried taking my LDN every other night, This seems to have cut down on the stiffness & spasms. Stll do leg exercise with a Ex N' Flex EF-250 leg exerciser. Something to try. Noy saying it will work for everyone, but it's something to consider.ADJ__________________________________________________

[Guest guest]

how much weaker? sometimes there will be a return of transient symptoms and it is not unusual to feel worse before you feel better. the nervous system is like an onion and this could be a good sign. are you doing anything else differently? perhaps you are stressed from trying LDN AND YOU ARE PRODUCING TOO MUCH CORTISol and it is making you feel worse. try to relax and know that an increase of endorphins which help the T-cells will strengthen your immune system . that is one thing we all have in common on this board. we may have differents kinds of conditions, different types of ms, but our basic physiology is the same. read more about the LDN and perhaps this will lessen your apprehension. it is important to be positive about any new therapy because mind, body and spirit all all one. take time out for yourself today and do whatever brings you peace and joy.

[low dose naltrexone] stiff legs & spasms

Just a thought, I noticed a little more stiffness and spasms in the legs since starting LDN also. About 2 weeks ago I tried taking my LDN every other night, This seems to have cut down on the stiffness & spasms. Stll do leg exercise with a Ex N' Flex EF-250 leg exerciser. Something to try. Noy saying it will work for everyone, but it's something to consider.ADJ

__________________________________________________

[Guest guest]

My legs feel like cement bricks. I don't think I'm stressed out about taking LDN, I actually was quite excited. It's just a little discouraging now since it started out so great and now I'm walking worse than before I started, which isn't great. I'll just keep on trying and see if things improve. Maybe I'll take a few days off and start back. I've heard that some people do 10 days on and 2 off. Thanks for your reply.

kathy lintzenich <mykittypaws@...> wrote:

how much weaker? sometimes there will be a return of transient symptoms and it is not unusual to feel worse before you feel better. the nervous system is like an onion and this could be a good sign. are you doing anything else differently? perhaps you are stressed from trying LDN AND YOU ARE PRODUCING TOO MUCH CORTISol and it is making you feel worse. try to relax and know that an increase of endorphins which help the T-cells will strengthen your immune system . that is one thing we all have in common on this board. we may have differents kinds of conditions, different types of ms, but our basic physiology is the same. read more about the LDN and perhaps this will lessen your apprehension. it is important to be positive about any new therapy because mind, body and spirit all all one. take time out for yourself today and do whatever brings you peace and joy.

[low dose naltrexone] stiff legs & spasms

Just a thought, I noticed a little more stiffness and spasms in the legs since starting LDN also. About 2 weeks ago I tried taking my LDN every other night, This seems to have cut down on the stiffness & spasms. Stll do leg exercise with a Ex N' Flex EF-250 leg exerciser. Something to try. Noy saying it will work for everyone, but it's something to consider.ADJ

__________________________________________________

[Guest guest]

In a message dated 6/4/2005 8:23:34 PM Eastern Daylight Time, kiaraellisonabby@... writes:

going it alone. I read about LDN and it sounded promising. My GP signed on and said we could give it a try. The way I'm feeling I feel like quitting, but I don't want to be premature. Is it going to get better?

I'm sure glad I didn't give up. I didn't really see anything until about 8 months. Dr. Bihari suggests giving it 6-9 months at least. I've been taking it for 14 months now. There were plenty of days I felt it wasn't doing anything. Stick with it.

Arlene

[Guest guest]

I live in Milwaukee for the summer the humidly drains me, I think it is the weather, ask your Doc about this, I do not do well in a humid climate.

Good luck

[Guest guest]

HELP!! I have been on LDN for approximately coming up

on 1 year....At first I was like a totally different

person.......then my neuro and I upped my LDN to

3.5mgs this is where I have been for about 6 mos. I

live in Texas so it is very hot and humid.....the last

couple weeks I can hardly get out of bed.....Am I

doing something wrong..........I take my LDN after

9:00pm my thigh muscles at times when I stand up, feel

like they're rippping.......I stay cool in my house,

but I am also getting hot flashes...no spring chicken

here. My dr's answer to any of my questions is lets

just kick it up another 50mgs. I started out on 2.5

and gradually worked up to 3.5. I know LDN is NO

CURE; but I feel like ALL forward progress has

regressed in the last month. Could you give me some

info to pass on to my doc.....I see him this

wednesday......Thankx

--- arlizotte@... wrote:

>

> In a message dated 6/4/2005 8:23:34 PM Eastern

> Daylight Time,

> kiaraellisonabby@... writes:

>

> going it alone. I read about LDN and it sounded

> promising. My GP signed on

> and said we could give it a try. The way I'm

> feeling I feel like quitting,

> but I don't want to be premature. Is it going to

> get better?

>

>

>

>

>

> I'm sure glad I didn't give up. I didn't really see

> anything until about 8

> months. Dr. Bihari suggests giving it 6-9 months at

> least. I've been taking

> it for 14 months now. There were plenty of days I

> felt it wasn't doing

> anything. Stick with it.

> Arlene

>

__________________________________

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[Guest guest]

Thankx for the info...my doc after months of begging

FINALLY wrote a script for the LDN, but that is all.

He thinks its doing wonders for me, but HAS NO IDEA of

what he is doing, and I don't think he wants to

either! Thank you for your support....you've given me

something to talk to him about.....or get a new doc!

--- lkilcollin@... wrote:

> I live in Milwaukee for the summer the humidly

> drains me, I think it is the

> weather, ask your Doc about this, I do not do well

> in a humid climate.

> Good luck

>

>

__________________________________

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[Guest guest]

In a message dated 6/5/2005 12:02:55 PM Central Daylight Time, osbornepat@... writes:

HELP!! I have been on LDN for approximately coming up

on 1 year....At first I was like a totally different

person.......then my neuro and I upped my LDN to

3.5mgs this is where I have been for about 6 mos. I

live in Texas so it is very hot and humid.....the last

couple weeks I can hardly get out of bed.....Am I

doing something wrong..........I take my LDN after

9:00pm my thigh muscles at times when I stand up, feel

like they're rippping.......I stay cool in my house,

but I am also getting hot flashes...no spring chicken

here. My dr's answer to any of my questions is lets

just kick it up another 50mgs. I started out on 2.5

and gradually worked up to 3.5. I know LDN is NO

CURE; but I feel like ALL forward progress has

regressed in the last month. Could you give me some

info to pass on to my doc.....I see him this

wednesday......Thankx

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

Do some hormone research. I take Pregnenolone 30mg per day & DHEA 25mg per day. It helps me. You will find research to show that most MSers are low in hormones. With age, we all have decreased levels. Stick with LDN if possiblke!

Marcie

[Guest guest]

why don't you do hormone testing? if you get on bio-identical hormones (read Suzanne Somers book ) it can help with ms. progesterone helps make myelin and 7-keto dhea fights depression and raises testosterone levels that help ms. usually women with ms have no free testosterone in their bodies. you need it to fight osteoporosis, heart disease and for a good sex life. good luck, I have no idea if this applies to you because you could be 20 years old but if you are past 35, it could be something looking into. Kathy

Re: [low dose naltrexone] stiff legs & spasms

HELP!! I have been on LDN for approximately coming upon 1 year....At first I was like a totally differentperson.......then my neuro and I upped my LDN to3.5mgs this is where I have been for about 6 mos. Ilive in Texas so it is very hot and humid.....the lastcouple weeks I can hardly get out of bed.....Am Idoing something wrong..........I take my LDN after9:00pm my thigh muscles at times when I stand up, feellike they're rippping.......I stay cool in my house,but I am also getting hot flashes...no spring chickenhere. My dr's answer to any of my questions is letsjust kick it up another 50mgs. I started out on 2.5and gradually worked up to 3.5. I know LDN is NOCURE; but I feel like ALL forward progress hasregressed in the last month. Could you give me someinfo to pass on to my doc.....I see him thiswednesday......Thankx--- arlizotte@... wrote:> > In a message dated 6/4/2005 8:23:34 PM Eastern> Daylight Time, > kiaraellisonabby@... writes:> > going it alone. I read about LDN and it sounded> promising. My GP signed on > and said we could give it a try. The way I'm> feeling I feel like quitting, > but I don't want to be premature. Is it going to> get better?> > > > > > I'm sure glad I didn't give up. I didn't really see> anything until about 8 > months. Dr. Bihari suggests giving it 6-9 months at> least. I've been taking > it for 14 months now. There were plenty of days I> felt it wasn't doing > anything. Stick with it.> Arlene> __________________________________ Discover Find restaurants, movies, travel and more fun for the weekend. Check it out! http://discover./weekend.html

[Guest guest]

HI Folks, My name is . I ahve not as yet tried LDN But am

going to my Family Dr. to try and get myself onto it. But what I am

wondering is this just how much do you people think I should ask him

to statrt me out on???? 2mg / 2.5g / 3.5mg / 4.5mg's or what????? I

have PD / MSA, I am 67years old retired for almost 12 years now and

was DX'ed with PD around 7 years ago, MSA around this time last year.

Their, the Brain Doc's, main reasoning for the change, from PD to

MSA, was the fact that I can not take any of the normal PD Med's.

The only PD Med that I can stand is Amantadine, and I am taking it is

for my drooling not to help out with my PD/MSA, it doesn't really

stop my drooling it just slows it down to more of a drip now. I am

hoping to be able to get on the LDN in around 3 weeks, notice I

said " HOPING "

RK

>

> >

> > In a message dated 6/4/2005 8:23:34 PM Eastern

> > Daylight Time,

> > kiaraellisonabby@y... writes:

> >

> > going it alone. I read about LDN and it sounded

> > promising. My GP signed on

> > and said we could give it a try. The way I'm

> > feeling I feel like quitting,

> > but I don't want to be premature. Is it going to

> > get better?

> >

> >

> >

> >

> >

> > I'm sure glad I didn't give up. I didn't really see

> > anything until about 8

> > months. Dr. Bihari suggests giving it 6-9 months at

> > least. I've been taking

> > it for 14 months now. There were plenty of days I

> > felt it wasn't doing

> > anything. Stick with it.

> > Arlene

> >

>

>

>

>

> __________________________________

> Discover

> Find restaurants, movies, travel and more fun for the weekend.

Check it out!

> http://discover./weekend.html

[Guest guest]

Hi RK.

I just recently obtained a prescription for LDN for my multiple sclerosis.

It was from my family doctor...not from my neuro.

I actually copied some information from the internet and carried it to my

family doc one week prior to my appt. By the time I arrived for my appt he

had read it thoroughly.

I actually spoke personally with Skip at Skip's Pharmacy in Boca Raton,

Florida who is the expert at compounding LDN and has a great deal of

information on LDN and can certainly speak directly with your physician. He

did speak with mine.

The standard beginning dose is 1.5 mg for 30 days, 3.0 mg for 30 days and

then up to 4.5 mg from that point on. Each person reacts differently and

dosages can be titrated up or down depending on any side effects and your

overall reaction to it.

Good luck.

You or your physician can contact Skip's Pharmacy by checking the website

www.skipspharmacy.com. They also have a toll-free number, which has eluded

me for the moment.

Good luck

[low dose naltrexone] Re: stiff legs & spasms

> HI Folks, My name is . I ahve not as yet tried LDN But am

> going to my Family Dr. to try and get myself onto it. But what I am

> wondering is this just how much do you people think I should ask him

> to statrt me out on???? 2mg / 2.5g / 3.5mg / 4.5mg's or what????? I

> have PD / MSA, I am 67years old retired for almost 12 years now and

> was DX'ed with PD around 7 years ago, MSA around this time last year.

> Their, the Brain Doc's, main reasoning for the change, from PD to

> MSA, was the fact that I can not take any of the normal PD Med's.

> The only PD Med that I can stand is Amantadine, and I am taking it is

> for my drooling not to help out with my PD/MSA, it doesn't really

> stop my drooling it just slows it down to more of a drip now. I am

> hoping to be able to get on the LDN in around 3 weeks, notice I

> said " HOPING "

>

> RK

>

>

>

>

>

> >

> > >

> > > In a message dated 6/4/2005 8:23:34 PM Eastern

> > > Daylight Time,

> > > kiaraellisonabby@y... writes:

> > >

> > > going it alone. I read about LDN and it sounded

> > > promising. My GP signed on

> > > and said we could give it a try. The way I'm

> > > feeling I feel like quitting,

> > > but I don't want to be premature. Is it going to

> > > get better?

> > >

> > >

> > >

> > >

> > >

> > > I'm sure glad I didn't give up. I didn't really see

> > > anything until about 8

> > > months. Dr. Bihari suggests giving it 6-9 months at

> > > least. I've been taking

> > > it for 14 months now. There were plenty of days I

> > > felt it wasn't doing

> > > anything. Stick with it.

> > > Arlene

> > >

> >

> >

> >

> >

> > __________________________________

> > Discover

> > Find restaurants, movies, travel and more fun for the weekend.

> Check it out!

> > http://discover./weekend.html

>

>

>

>

>

>

>

[Guest guest]

hi . the info and manner in which just posted is a great way to start ldn. that is how I did it and maxed out at 3.at but for you it could be 4.5. having skip speak with your doctor makes alot of sense. good luck to you. I hope you try it as it has helped most of us more than we even realize. kathy

[low dose naltrexone] Re: stiff legs & spasms

HI Folks, My name is . I ahve not as yet tried LDN But am going to my Family Dr. to try and get myself onto it. But what I am wondering is this just how much do you people think I should ask him to statrt me out on???? 2mg / 2.5g / 3.5mg / 4.5mg's or what????? I have PD / MSA, I am 67years old retired for almost 12 years now and was DX'ed with PD around 7 years ago, MSA around this time last year. Their, the Brain Doc's, main reasoning for the change, from PD to MSA, was the fact that I can not take any of the normal PD Med's. The only PD Med that I can stand is Amantadine, and I am taking it is for my drooling not to help out with my PD/MSA, it doesn't really stop my drooling it just slows it down to more of a drip now. I am hoping to be able to get on the LDN in around 3 weeks, notice I said "HOPING"RK> > > > > In a message dated 6/4/2005 8:23:34 PM Eastern> > Daylight Time, > > kiaraellisonabby@y... writes:> > > > going it alone. I read about LDN and it sounded> > promising. My GP signed on > > and said we could give it a try. The way I'm> > feeling I feel like quitting, > > but I don't want to be premature. Is it going to> > get better?> > > > > > > > > > > > I'm sure glad I didn't give up. I didn't really see> > anything until about 8 > > months. Dr. Bihari suggests giving it 6-9 months at> > least. I've been taking > > it for 14 months now. There were plenty of days I> > felt it wasn't doing > > anything. Stick with it.> > Arlene> > > > > > > __________________________________ > Discover > Find restaurants, movies, travel and more fun for the weekend. Check it out! > http://discover./weekend.html