Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Not that much direct evidence, unfortunately. You can start by going to http://www.low dose naltrexone.org, and copying out some information from the website. You can also look here: http://www.ldners.org and go to the Research section; you may find some papers which your doc will find interesting. When you discuss it with your doctor, make sure they don't think you are asking about Novantrone; Novantrone is a chemo drug used for progressive MS, and is really pretty toxic. But the names are similar, so most MS docs think you are asking about that. Good luck! > I'm 58 years old, was diagnosed with ms in 2003, but have had it for > many years. Am now in SP, taking Avonex. Lately having new symptoms > (numbness in hands) and worsening ones (numbness and tingling in feet > and legs). I walk with a cane, have the mental fuzzies, problems with > bladder and bowel control, and, of course, the fatigue. I'm " retired " , > so can nap when I need, but it's irritating to say the least. I just > had an MRI, don't have the results yet. Found LDN quite by accident on > the remedyfind web site. What written info exists that I can show my > neuro/gp? The results sound promising. > > Leatha > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.323 / Virus Database: 267.6.2 - Release Date: 6/4/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Aletha, Thanks for the information. I live in Nebraska, and any names I can get will be great. Do you have phone numbers for the pharmacies you mentioned? Of course, I have to get a prescriptions first, so I should probably not put the cart before the horse! I saw something in the correspondence about magnesium - I do have problems with bright light - especially sunlight. What is the recommended dosage? And what other supplements are recommended? And what, if any, should be avoided? Thanks again for your help. Leatha in Nebraska -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.323 / Virus Database: 267.6.2 - Release Date: 6/4/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Hi Leatha, My name is Aletha which is so much like your name. My husband was diagnosed last September. He started LDN in late October. Right away the fatigue went away for him. Also bladder frequency got much better. He also had much better fine motor skills. It is difficult to find a doctor that will prescribe LDN, but many of us can get you lists of doctors and hopefully one will be in your area. If not, you might consider a phone consult with one of the doctors that might consider that. The main things about LDN that are helpful to know at the beginning, is that the dosage usually ranges between 3 to 4.5mg. Men seem to do best on 3mg, while women seem to do best on 4.5mg. However everyone's body is a bit different. The filler can also be a bit tricky. There are several types of filler that can be utilized in the bill with LDN and if things don't feel right many people try a different type of filler. I highly recommend sending your prescription to one of the very experienced pharmacies like Irmat in New York or Skips in Florida. Another thing that is great and very helpful about this chat group is that we all care for one another and you will find a wealth of information from those that have tried different things. Also, there are many supplements that are helpful to take. If you would like a list of supplements or doctors that prescribe LDN let me know. Best of luck Aletha in California [low dose naltrexone] Just heard of LDN > I'm 58 years old, was diagnosed with ms in 2003, but have had it for > many years. Am now in SP, taking Avonex. Lately having new symptoms > (numbness in hands) and worsening ones (numbness and tingling in feet > and legs). I walk with a cane, have the mental fuzzies, problems with > bladder and bowel control, and, of course, the fatigue. I'm " retired " , > so can nap when I need, but it's irritating to say the least. I just > had an MRI, don't have the results yet. Found LDN quite by accident on > the remedyfind web site. What written info exists that I can show my > neuro/gp? The results sound promising. > > Leatha > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.323 / Virus Database: 267.6.2 - Release Date: 6/4/05 > > > > > > Quote Link to comment Share on other sites More sharing options...
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