Guest guest Posted April 5, 1999 Report Share Posted April 5, 1999 For those of you asking how you find the " database " list... I update it once every blue moon (no set time frame...) and I send it out to rheumaticonelist so that you all have a copy of it. I guess it could be put on our site once it's done...? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 Did you see the one that is currently in our DATABASE? " Share your story " We don't all get measurements from the ortho but some of us do. Sue Colin F. > Dear everybody, > > I would like to create a database with the following information > (This is an example and I am open to suggestions) > > Name of child > Condition (plagio, brachy,...) > Measurement of assymetry, > Age helmet/band fitted > Type of helmet fitted > Length of time helmet worn > Measurement of correction achieved > > (We should ask a few specialits / doctors what they think of the > criteria chosen) > > It could be interesting to see if we could find a way to disclose the > database only to parents who have contributed to it, create a charity > for plagio kids, sell the database to doctors, orthotists, Helmet > producers,.. and give the profits to parents who need funding to > treat their children. What do you think? Does something like this > exist already? > > Anybody interested to join me in this action? > > > (, 14 months, plagio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 I'm so glad that you brought this up! I looked it over and there are so many people that started their info. but then forgot to come back and complete it. Moderators: is there any easy way to e-mail everyone to ask if they can come back and complete their " story " . That would be great...otherwise, I would be willing to help contact people if you think that is approriate... Sue > Dear everybody, > > I would like to create a database with the following information > (This is an example and I am open to suggestions) > > Name of child > Condition (plagio, brachy,...) > Measurement of assymetry, > Age helmet/band fitted > Type of helmet fitted > Length of time helmet worn > Measurement of correction achieved > > (We should ask a few specialits / doctors what they think of the > criteria chosen) > > It could be interesting to see if we could find a way to disclose the > database only to parents who have contributed to it, create a charity > for plagio kids, sell the database to doctors, orthotists, Helmet > producers,.. and give the profits to parents who need funding to > treat their children. What do you think? Does something like this > exist already? > > Anybody interested to join me in this action? > > > (, 14 months, plagio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2004 Report Share Posted October 10, 2004 Angie, visit our group Web site: / At the top of the page near the center, click on the " My Account " link. There you should be able to make any changes you wish to. If you are still having problems, please let me or a know. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] database > > > I was wondering how to change information on the database I need to > add some stuff Thanks for all informations > Thanks > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2004 Report Share Posted October 10, 2004 Angie, visit our group Web site: / At the top of the page near the center, click on the " My Account " link. There you should be able to make any changes you wish to. If you are still having problems, please let me or a know. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] database > > > I was wondering how to change information on the database I need to > add some stuff Thanks for all informations > Thanks > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 I went to the data base and was advised that there were no tables in the data base....and was unable to provide the info that you requested. here it is; Tom Bayuk 19868 Cypress Woods Ct. N, Fort Myers, Florida 239 543-4105 tbayuk@... Regards, Tom So Quote Link to comment Share on other sites More sharing options...
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