Re: LDN - For those MS people it hasn't helped much. Can we find a common thread ?

[Guest guest]

cindy, this is what i think will help you. i know you're probably thinking who is this lady but i put people on wholistic protocols every week. it's part of my business. that isn't to say i'm always right on but what i tell you can't hurt you and that is better than paying for a doctor than can make you worse. with that being said, go get a 7 panel hormone test-saliva-have it sent to smoky mountain laboratories and have email me personally so I can tell you the compounder to speak with . THIS IS IMPORTANT!! from what you said i believe your cortisol levels spike during the day so they should be tested throughout the day at intervals. you test them morning, noon, afternoon and evening to get an accurate assessment. you are probably estrogen dominant and would benefit from progesterone or 7-keto DHEA. YOU MOST LIKELY HAVE NO FREE TESTOSTERONE IN YOUR BODY AS MOST WOMAN WITH AUTO-IMMUNE CONDITIONS DON'T SO YOU COULD HAVE TRANS-DERMAL Natural testosterone.as far as what I said about dr. neiper, it was almost the opposite. as far i can can remember his exact words, it went something like this " my therapy is particularly good for symptoms that occur from the medulla oblongata- such as breathing and swallowing. my therapy will usually restore functioning of the hands and arms. the upper legs are quite resistent to this therapy but this can be avoided if treatment is started early on in the course ofthe disease." from what i have heard a few have gotten out of wheelchairs and what he means by the upper leg muscles is if the quadriceps wobble back and forth it is harder to reverse that particular symptom but there have also been successes with that. i know christina wants you to try the hormone thing first and that is important but if you decide to do calcium you could get a huge jumpstart so all the other therapies work even better. your body will be in a position to heal itself. kathy

[low dose naltrexone] LDN - For those MS people it hasn't helped much. Can we find a common thread ?

Hi All, For the sake of possibly discovering a common thread, I offer my story: After meeting a person from a local MS support group, who talked about how much LDN was helping her, it didn't take me long to start taking LDN (in February 2004). At the time, I was still driving, walking unaided (short distances), and taking care of everyday business. Today I no longer drive, live within two rooms of our house, and require the assistance of my husband with the simplest of tasks (I'm right-handed and my right hand is seriously affected). I still take LDN (it's my anti-depressant). To go back, my history of MS is: after having my first child (at age 32) , when she was about a year old, I had my four impacted wisdom teeth removed . About a week later, I had a mucocele (plugged salivary gland, probably an injury caused by the wisdom tooth surgery) also surgically taken care of and had a routine biopsy ! (You'll soon see why I mention this). Biopsy showed no problem, but the idea of this scared me beyond belief , and I knew that the Dr was going to call a few days later to tell me the results. The doctor did call, while I was taking a bath, and instead of telling my husband that all was fine, he asked my husband to have me call him back. In the time between flying out of the bathtub and reaching the doctor on the phone (not long) my imagination took hold and my blood pressure checked my system for any weaknesses. The next day, I suddenly felt a tingling sensation in a line up the left side of my face, and something was not right with the sight in my left eye (same side as the mucocele). Off to an opthalmologist. Diagnosis:optic neuritis. (MS mentioned as a possible cause along with many other things) This cleared over a period of several weeks(without the use of any drugs) A few months after this, I experienced a few days of weird sensory symptoms (I would go to put a glass down on a table and I would be off in my sense of how far the table was). Other than these instances, over the next few years I had a period of room spinning dizziness (a month after having my second daughter) which sent me to bed for a few days. Then---I lived pretty much a normal life for the next almost 20 years.(If I had been taking any of the CRABs, I'm sure it would have been easy to assume that they were doing something)Enter menopause... after a year of this, I started bleeding again , so I went to the doctor , who proceeded to again do a routine biopsy. On the day the results of this biopsy were to be in, I stopped by the doctor's office (interestingly, to save myself another bathtub incident). He wasn't there, but the nurse called him and even though again there was no problem, she relayed to me that the doctor wanted to talk with me personally. I waited (not long) and while I did , once again my imagination took hold (and my blood pressure checked my system for any weaknesses) I'm amazed that I didn't drop dead in that office (I'm obviously destined for the slow and painful type demise)! The nurse soon came over to me and said " I don't know what the doctor was thinking, but I got the ok to read the biopsy results, and everything is fine." The next morning I awoke with tingling in my left hand which only increased by the day, until a few days later I went to the emergency room thinking I was having a stroke. The Dr who saw me, assured me I was not having a stroke, but also said that she had observed me walking in and that she suspected MS...that was in 2000. The tingling never left me. It intensified, turned to numbness, is in both hands, and I now have difficulty using either hand (but particularly my right). My point in telling this tale is that in my case , hormones and stress seem to be big factors. I did just call the person who told me about LDN (she's still doing well) and she reminded me that she had "restless legs syndrome" and that her observation has been that LDN seems to work well with people who have had that symptom (I never did). Interestingly, within the last few weeks, Kathy(of this group) mentioned that Dr Nieper had observed that Ca AEP worked particularly well for people who had more of their upper leg muscles involved, as opposed to their lower leg muscles (sorry if I'm describing this incorrectly) ........ Also, I've never taken any of the CRABS drugs, I eat healthy,avoid dairy, wheat, and trans fats , and take Cod Liver oil capsules, and a few other supplements. I've never been a smoker or drinker, I did not have a dog (until I was 12) but I was not breastfed (I don't think many people were during the forties, it was discouraged) That's my story, and I'm sticking to it ! Look forward to the daily digests, and appreciate how helpful people are in this group.If any of you have any thoughts after reading this, I'd love to hear from you. Thanks for listening,

[Guest guest]

Kathy,

I'm going to respond to your post directly to your email, if that's ok with you.

-- Re: [low dose naltrexone] LDN - For those MS people it hasn't helped much. Can we find a common thread ?

cindy, this is what i think will help you. i know you're probably thinking who is this lady but i put people on wholistic protocols every week. it's part of my business. that isn't to say i'm always right on but what i tell you can't hurt you and that is better than paying for a doctor than can make you worse. with that being said, go get a 7 panel hormone test-saliva-have it sent to smoky mountain laboratories and have email me personally so I can tell you the compounder to speak with . THIS IS IMPORTANT!! from what you said i believe your cortisol levels spike during the day so they should be tested throughout the day at intervals. you test them morning, noon, afternoon and evening to get an accurate assessment. you are probably estrogen dominant and would benefit from progesterone or 7-keto DHEA. YOU MOST LIKELY HAVE NO FREE TESTOSTERONE IN YOUR BODY AS MOST WOMAN WITH AUTO-IMMUNE CONDITIONS DON'T SO YOU COULD HAVE TRANS-DERMAL Natural testosterone.as far as what I said about dr. neiper, it was almost the opposite. as far i can can remember his exact words, it went something like this " my therapy is particularly good for symptoms that occur from the medulla oblongata- such as breathing and swallowing. my therapy will usually restore functioning of the hands and arms. the upper legs are quite resistent to this therapy but this can be avoided if treatment is started early on in the course ofthe disease." from what i have heard a few have gotten out of wheelchairs and what he means by the upper leg muscles is if the quadriceps wobble back and forth it is harder to reverse that particular symptom but there have also been successes with that. i know christina wants you to try the hormone thing first and that is important but if you decide to do calcium you could get a huge jumpstart so all the other therapies work even better. your body will be in a position to heal itself. kathy

[low dose naltrexone] LDN - For those MS people it hasn't helped much. Can we find a common thread ?

Hi All, For the sake of possibly discovering a common thread, I offer my story: After meeting a person from a local MS support group, who talked about how much LDN was helping her, it didn't take me long to start taking LDN (in February 2004). At the time, I was still driving, walking unaided (short distances), and taking care of everyday business. Today I no longer drive, live within two rooms of our house, and require the assistance of my husband with the simplest of tasks (I'm right-handed and my right hand is seriously affected). I still take LDN (it's my anti-depressant). To go back, my history of MS is: after having my first child (at age 32) , when she was about a year old, I had my four impacted wisdom teeth removed . About a week later, I had a mucocele (plugged salivary gland, probably an injury caused by the wisdom tooth surgery) also surgically taken care of and had a routine biopsy ! (You'll soon see why I mention this). Biopsy showed no problem, but the idea of this scared me beyond belief , and I knew that the Dr was going to call a few days later to tell me the results. The doctor did call, while I was taking a bath, and instead of telling my husband that all was fine, he asked my husband to have me call him back. In the time between flying out of the bathtub and reaching the doctor on the phone (not long) my imagination took hold and my blood pressure checked my system for any weaknesses. The next day, I suddenly felt a tingling sensation in a line up the left side of my face, and something was not right with the sight in my left eye (same side as the mucocele). Off to an opthalmologist. Diagnosis:optic neuritis. (MS mentioned as a possible cause along with many other things) This cleared over a period of several weeks(without the use of any drugs) A few months after this, I experienced a few days of weird sensory symptoms (I would go to put a glass down on a table and I would be off in my sense of how far the table was). Other than these instances, over the next few years I had a period of room spinning dizziness (a month after having my second daughter) which sent me to bed for a few days. Then---I lived pretty much a normal life for the next almost 20 years.(If I had been taking any of the CRABs, I'm sure it would have been easy to assume that they were doing something)Enter menopause... after a year of this, I started bleeding again , so I went to the doctor , who proceeded to again do a routine biopsy. On the day the results of this biopsy were to be in, I stopped by the doctor's office (interestingly, to save myself another bathtub incident). He wasn't there, but the nurse called him and even though again there was no problem, she relayed to me that the doctor wanted to talk with me personally. I waited (not long) and while I did , once again my imagination took hold (and my blood pressure checked my system for any weaknesses) I'm amazed that I didn't drop dead in that office (I'm obviously destined for the slow and painful type demise)! The nurse soon came over to me and said " I don't know what the doctor was thinking, but I got the ok to read the biopsy results, and everything is fine." The next morning I awoke with tingling in my left hand which only increased by the day, until a few days later I went to the emergency room thinking I was having a stroke. The Dr who saw me, assured me I was not having a stroke, but also said that she had observed me walking in and that she suspected MS...that was in 2000. The tingling never left me. It intensified, turned to numbness, is in both hands, and I now have difficulty using either hand (but particularly my right). My point in telling this tale is that in my case , hormones and stress seem to be big factors. I did just call the person who told me about LDN (she's still doing well) and she reminded me that she had "restless legs syndrome" and that her observation has been that LDN seems to work well with people who have had that symptom (I never did). Interestingly, within the last few weeks, Kathy(of this group) mentioned that Dr Nieper had observed that Ca AEP worked particularly well for people who had more of their upper leg muscles involved, as opposed to their lower leg muscles (sorry if I'm describing this incorrectly) ........ Also, I've never taken any of the CRABS drugs, I eat healthy,avoid dairy, wheat, and trans fats , and take Cod Liver oil capsules, and a few other supplements. I've never been a smoker or drinker, I did not have a dog (until I was 12) but I was not breastfed (I don't think many people were during the forties, it was discouraged) That's my story, and I'm sticking to it ! Look forward to the daily digests, and appreciate how helpful people are in this group.If any of you have any thoughts after reading this, I'd love to hear from you. Thanks for listening,

[Guest guest]

, that would be fine. Kathy

[low dose naltrexone] LDN - For those MS people it hasn't helped much. Can we find a common thread ?

Hi All, For the sake of possibly discovering a common thread, I offer my story: After meeting a person from a local MS support group, who talked about how much LDN was helping her, it didn't take me long to start taking LDN (in February 2004). At the time, I was still driving, walking unaided (short distances), and taking care of everyday business. Today I no longer drive, live within two rooms of our house, and require the assistance of my husband with the simplest of tasks (I'm right-handed and my right hand is seriously affected). I still take LDN (it's my anti-depressant). To go back, my history of MS is: after having my first child (at age 32) , when she was about a year old, I had my four impacted wisdom teeth removed . About a week later, I had a mucocele (plugged salivary gland, probably an injury caused by the wisdom tooth surgery) also surgically taken care of and had a routine biopsy ! (You'll soon see why I mention this). Biopsy showed no problem, but the idea of this scared me beyond belief , and I knew that the Dr was going to call a few days later to tell me the results. The doctor did call, while I was taking a bath, and instead of telling my husband that all was fine, he asked my husband to have me call him back. In the time between flying out of the bathtub and reaching the doctor on the phone (not long) my imagination took hold and my blood pressure checked my system for any weaknesses. The next day, I suddenly felt a tingling sensation in a line up the left side of my face, and something was not right with the sight in my left eye (same side as the mucocele). Off to an opthalmologist. Diagnosis:optic neuritis. (MS mentioned as a possible cause along with many other things) This cleared over a period of several weeks(without the use of any drugs) A few months after this, I experienced a few days of weird sensory symptoms (I would go to put a glass down on a table and I would be off in my sense of how far the table was). Other than these instances, over the next few years I had a period of room spinning dizziness (a month after having my second daughter) which sent me to bed for a few days. Then---I lived pretty much a normal life for the next almost 20 years.(If I had been taking any of the CRABs, I'm sure it would have been easy to assume that they were doing something)Enter menopause... after a year of this, I started bleeding again , so I went to the doctor , who proceeded to again do a routine biopsy. On the day the results of this biopsy were to be in, I stopped by the doctor's office (interestingly, to save myself another bathtub incident). He wasn't there, but the nurse called him and even though again there was no problem, she relayed to me that the doctor wanted to talk with me personally. I waited (not long) and while I did , once again my imagination took hold (and my blood pressure checked my system for any weaknesses) I'm amazed that I didn't drop dead in that office (I'm obviously destined for the slow and painful type demise)! The nurse soon came over to me and said " I don't know what the doctor was thinking, but I got the ok to read the biopsy results, and everything is fine." The next morning I awoke with tingling in my left hand which only increased by the day, until a few days later I went to the emergency room thinking I was having a stroke. The Dr who saw me, assured me I was not having a stroke, but also said that she had observed me walking in and that she suspected MS...that was in 2000. The tingling never left me. It intensified, turned to numbness, is in both hands, and I now have difficulty using either hand (but particularly my right). My point in telling this tale is that in my case , hormones and stress seem to be big factors. I did just call the person who told me about LDN (she's still doing well) and she reminded me that she had "restless legs syndrome" and that her observation has been that LDN seems to work well with people who have had that symptom (I never did). Interestingly, within the last few weeks, Kathy(of this group) mentioned that Dr Nieper had observed that Ca AEP worked particularly well for people who had more of their upper leg muscles involved, as opposed to their lower leg muscles (sorry if I'm describing this incorrectly) ........ Also, I've never taken any of the CRABS drugs, I eat healthy,avoid dairy, wheat, and trans fats , and take Cod Liver oil capsules, and a few other supplements. I've never been a smoker or drinker, I did not have a dog (until I was 12) but I was not breastfed (I don't think many people were during the forties, it was discouraged) That's my story, and I'm sticking to it ! Look forward to the daily digests, and appreciate how helpful people are in this group.If any of you have any thoughts after reading this, I'd love to hear from you. Thanks for listening,

[Guest guest]

Hi

So lets just continue with this thread as except for the obvious fact that you are ten years older than myself

your story and mine are real similar, ie any beginnings of my symptoms were precipitated by a catastrophic event, for you it was mental and for me it was physical as I was always in such a hurry I took chances that were ludicrous and many times ended up in hospitalization.Couple that with four children many foster children and a high stress life style and it's a wonder I never had a heart attack too!

Like you there was fourteen years between the first attack and second so today I would be listed as having benign M.S. but back then it was still just "possible M.S." And yes I never was in favor of using any injectable drugs plus I never could have afforded them anyway! So I have been totally CRAB free and except for skin rashes fixed up by CorticoSteroid cremes I have been steroid free.

I too take large amounts of vitamins and have seen a A.K. (applied Kineisieology) person, with good success, I thought.So good actually that my mother has studied this and now is a licensed A.K. person.

But in Canada she can't prescribe my LDN like a G.P.

So except for age and that's not a biggy like you I got on too LDN as soon as I could and have seen some pretty good results in a few areas yet I continue to progress in many others like my standing time which is now only two minutes with or withjout a wall to lean on. Last year it was five minutes and the year before about ten to fifeteen before my back and knees would hurt so bad they would just give out.

I can still drive as this is done sitting down but my left hand and leg are almost useless and it is getting harder every day to get my left leg into a vehicle, boy am I glad I am right handed and live in the country.(Very little traffic to fight in fact none on some trips I make)

I have in the past had mornings where I just laid there in bed and watched the ceiling roll up in a continuous movment as my eyes were rolling like a poor TV verticle hold gone bad.Also had extreme light sensitivity and crossed eyes sand yet it was "possible MS "

I have both upper and lower leg muscles involved but have never had restless leg syndrome I do have extreme Clonus in my left leg and walk(when I do walk) like a puppet made out of wood.with his left leg wire too long, it just never lifts anymore.

Like you say during my period of remission I would have credited the CRAB drug I was on if I had been on one. But I believe that the drug companys rely on this kind of happening to promote thier product.as I was on nothing at that time except the odd Vitamin.

So now it's up to others to find the common thread here but for now I am going to go onto a herbal Cancer fighting possible Lyme spirochete killing regimen, if this works as I believe it will then maybe for me it was Lyme all along.

Reg.

-- [low dose naltrexone] LDN - For those MS people it hasn't helped much. Can we find a common thread ?

Hi All, For the sake of possibly discovering a common thread, I offer my story: After meeting a person from a local MS support group, who talked about how much LDN was helping her, it didn't take me long to start taking LDN (in February 2004). At the time, I was still driving, walking unaided (short distances), and taking care of everyday business. Today I no longer drive, live within two rooms of our house, and require the assistance of my husband with the simplest of tasks (I'm right-handed and my right hand is seriously affected). I still take LDN (it's my anti-depressant). To go back, my history of MS is: after having my first child (at age 32) , when she was about a year old, I had my four impacted wisdom teeth removed . About a week later, I had a mucocele (plugged salivary gland, probably an injury caused by the wisdom tooth surgery) also surgically taken care of and had a routine biopsy ! (You'll soon see why I mention this). Biopsy showed no problem, but the idea of this scared me beyond belief , and I knew that the Dr was going to call a few days later to tell me the results. The doctor did call, while I was taking a bath, and instead of telling my husband that all was fine, he asked my husband to have me call him back. In the time between flying out of the bathtub and reaching the doctor on the phone (not long) my imagination took hold and my blood pressure checked my system for any weaknesses. The next day, I suddenly felt a tingling sensation in a line up the left side of my face, and something was not right with the sight in my left eye (same side as the mucocele). Off to an opthalmologist. Diagnosis:optic neuritis. (MS mentioned as a possible cause along with many other things) This cleared over a period of several weeks(without the use of any drugs) A few months after this, I experienced a few days of weird sensory symptoms (I would go to put a glass down on a table and I would be off in my sense of how far the table was). Other than these instances, over the next few years I had a period of room spinning dizziness (a month after having my second daughter) which sent me to bed for a few days. Then---I lived pretty much a normal life for the next almost 20 years.(If I had been taking any of the CRABs, I'm sure it would have been easy to assume that they were doing something)Enter menopause... after a year of this, I started bleeding again , so I went to the doctor , who proceeded to again do a routine biopsy. On the day the results of this biopsy were to be in, I stopped by the doctor's office (interestingly, to save myself another bathtub incident). He wasn't there, but the nurse called him and even though again there was no problem, she relayed to me that the doctor wanted to talk with me personally. I waited (not long) and while I did , once again my imagination took hold (and my blood pressure checked my system for any weaknesses) I'm amazed that I didn't drop dead in that office (I'm obviously destined for the slow and painful type demise)! The nurse soon came over to me and said " I don't know what the doctor was thinking, but I got the ok to read the biopsy results, and everything is fine." The next morning I awoke with tingling in my left hand which only increased by the day, until a few days later I went to the emergency room thinking I was having a stroke. The Dr who saw me, assured me I was not having a stroke, but also said that she had observed me walking in and that she suspected MS...that was in 2000. The tingling never left me. It intensified, turned to numbness, is in both hands, and I now have difficulty using either hand (but particularly my right). My point in telling this tale is that in my case , hormones and stress seem to be big factors. I did just call the person who told me about LDN (she's still doing well) and she reminded me that she had "restless legs syndrome" and that her observation has been that LDN seems to work well with people who have had that symptom (I never did). Interestingly, within the last few weeks, Kathy(of this group) mentioned that Dr Nieper had observed that Ca AEP worked particularly well for people who had more of their upper leg muscles involved, as opposed to their lower leg muscles (sorry if I'm describing this incorrectly) ........ Also, I've never taken any of the CRABS drugs, I eat healthy,avoid dairy, wheat, and trans fats , and take Cod Liver oil capsules, and a few other supplements. I've never been a smoker or drinker, I did not have a dog (until I was 12) but I was not breastfed (I don't think many people were during the forties, it was discouraged) That's my story, and I'm sticking to it ! Look forward to the daily digests, and appreciate how helpful people are in this group.If any of you have any thoughts after reading this, I'd love to hear from you. Thanks for listening,

[Guest guest]

Hi ,

I definitely agree that stress was a major factor in my husbands coming down with MS. He has always been a very relaxed person, but he had an unusual amount of stress for an entire month. We had just purchased a home in Florida the day before the first hurricane hit. We could not get any information regarding the house (we are in California), and he watched the news and worried constantly. He also works with weather models at work and it was always on his mind for the entire month. Right after the last hurricane (and our house is just fine), he came down with symptoms for MS. He also was bottle fed. He had Mono when he was a teenager. He also was born in April, which seems to be a higher incidence of MS"rs. Lastly there are a lot of incidence of MS's that have siblings with MS and he has a sister with it, and a high incidence of those from New Jersey (Bergen County). He fits a lot of the profiles.

I hope that Kathy is right and the protocol below is helpful to your situation.

Kindest of regards

Aletha

[low dose naltrexone] LDN - For those MS people it hasn't helped much. Can we find a common thread ?

Hi All, For the sake of possibly discovering a common thread, I offer my story: After meeting a person from a local MS support group, who talked about how much LDN was helping her, it didn't take me long to start taking LDN (in February 2004). At the time, I was still driving, walking unaided (short distances), and taking care of everyday business. Today I no longer drive, live within two rooms of our house, and require the assistance of my husband with the simplest of tasks (I'm right-handed and my right hand is seriously affected). I still take LDN (it's my anti-depressant). To go back, my history of MS is: after having my first child (at age 32) , when she was about a year old, I had my four impacted wisdom teeth removed . About a week later, I had a mucocele (plugged salivary gland, probably an injury caused by the wisdom tooth surgery) also surgically taken care of and had a routine biopsy ! (You'll soon see why I mention this). Biopsy showed no problem, but the idea of this scared me beyond belief , and I knew that the Dr was going to call a few days later to tell me the results. The doctor did call, while I was taking a bath, and instead of telling my husband that all was fine, he asked my husband to have me call him back. In the time between flying out of the bathtub and reaching the doctor on the phone (not long) my imagination took hold and my blood pressure checked my system for any weaknesses. The next day, I suddenly felt a tingling sensation in a line up the left side of my face, and something was not right with the sight in my left eye (same side as the mucocele). Off to an opthalmologist. Diagnosis:optic neuritis. (MS mentioned as a possible cause along with many other things) This cleared over a period of several weeks(without the use of any drugs) A few months after this, I experienced a few days of weird sensory symptoms (I would go to put a glass down on a table and I would be off in my sense of how far the table was). Other than these instances, over the next few years I had a period of room spinning dizziness (a month after having my second daughter) which sent me to bed for a few days. Then---I lived pretty much a normal life for the next almost 20 years.(If I had been taking any of the CRABs, I'm sure it would have been easy to assume that they were doing something)Enter menopause... after a year of this, I started bleeding again , so I went to the doctor , who proceeded to again do a routine biopsy. On the day the results of this biopsy were to be in, I stopped by the doctor's office (interestingly, to save myself another bathtub incident). He wasn't there, but the nurse called him and even though again there was no problem, she relayed to me that the doctor wanted to talk with me personally. I waited (not long) and while I did , once again my imagination took hold (and my blood pressure checked my system for any weaknesses) I'm amazed that I didn't drop dead in that office (I'm obviously destined for the slow and painful type demise)! The nurse soon came over to me and said " I don't know what the doctor was thinking, but I got the ok to read the biopsy results, and everything is fine." The next morning I awoke with tingling in my left hand which only increased by the day, until a few days later I went to the emergency room thinking I was having a stroke. The Dr who saw me, assured me I was not having a stroke, but also said that she had observed me walking in and that she suspected MS...that was in 2000. The tingling never left me. It intensified, turned to numbness, is in both hands, and I now have difficulty using either hand (but particularly my right). My point in telling this tale is that in my case , hormones and stress seem to be big factors. I did just call the person who told me about LDN (she's still doing well) and she reminded me that she had "restless legs syndrome" and that her observation has been that LDN seems to work well with people who have had that symptom (I never did). Interestingly, within the last few weeks, Kathy(of this group) mentioned that Dr Nieper had observed that Ca AEP worked particularly well for people who had more of their upper leg muscles involved, as opposed to their lower leg muscles (sorry if I'm describing this incorrectly) ........ Also, I've never taken any of the CRABS drugs, I eat healthy,avoid dairy, wheat, and trans fats , and take Cod Liver oil capsules, and a few other supplements. I've never been a smoker or drinker, I did not have a dog (until I was 12) but I was not breastfed (I don't think many people were during the forties, it was discouraged) That's my story, and I'm sticking to it ! Look forward to the daily digests, and appreciate how helpful people are in this group.If any of you have any thoughts after reading this, I'd love to hear from you. Thanks for listening,

[Guest guest]

,

Are you using 3.0mg or 4.5mg of LDN and who is your LDN

supplier/pharmacy and what is the filler being used?