Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Fantastic Kathy - so very happy to hear you are doing so well. Have lots of fun with your grandson!!! Cinders Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2005 Report Share Posted June 10, 2005 Way cool Kathy. I am so happy to hear how well you are doing. Keep it up Aletha [low dose naltrexone] 18 month story Hi Everyone, I am writing to tell my 18 month story. I was having a major exaserbation that had me going from a cane to a walker to going to get a wheelchair. I came across the www.low dose naltrexone.org site. It sounded very promising so I took the info to my GP. He knows I hate doing pills so he agreed and prescribe the 50mg pill. I tried cutting it into 8 pieces but couldn't. So I took 25mg of Naltrexone in the morning. I was the same that day. But the next morning I got out of bed and walked to the washroom without my cane or walker. I couldn't believe it and figured it was just because I wasn't quite awake yet. It was 6:30 am and I always slept till 12:00. Then I noticed I wasn't tired any more so I had shower and got dressed. I didn't have as much pain anymore. It was 98% gone and the 2% could be taken care of with asprin. It stopped the exaserbation faster than Solumedrol did because I had just done it and it didn't work! I stayed up that day until 11:30 pm with no naps. This is how my days are now. I wake up between 6:30 - 8:00am and can stay awake all day still. During my exaserbation I had to quit cooking because I couldn't remember turning on the stove. Now I can cook again! My grandson wass born 1 week before I started LDN and I was afraid to hold him for fear of dropping him. Now I can hold him and chase him. It has made life worth living again. My head was buzzing too much from neurons refiring that I couldn't take it anymore. I found a compounding pharmacy, which Windsor only has 1, and started taking 4.5mg and that is the dose I stayed at. I can walk unassisted and only use a cane at night becase of Optic Neuritis. Well that is my story. Sorry it was so long but figured I had better share it with every one. Hope all is well, Kathy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2005 Report Share Posted June 10, 2005 Kathy, I found your story to be highly inspiring and so encouraging to others. I saw a man in the gym today with Parkinson's. I've sent him the info on LDN but he says he has to ask his doctor. He has gone downhill rather quickly. I mentioned LDN last year to him as well and it was the same reply. I guess I have to console myself with the fact thatthere are people out there who are willing to try this and not concentrate on the ones who seem so damn stubborn and ignorant. I know we can't save the world but here is a man smart enough to own a real estate company yet he won't get on LDN when he has ABSOLUTELY NOTHING TO LOSE. It makes me sad and I don't get sad very often. I just wish there was a way to get through to the masses. I have no doubt use of LDN will become more widespread but without sounding dismal, I can't foresee the medical community enthusiastically prescribing this for chronic conditions. My glass is always half full but I feel money can corrupt and distort humanity in some very tragic ways. Life is such a sacred gift. Sorry, I went on a rampage but I am sick of the NMSS. It is a farce and a mockery. However, on a really positive note, stories like yoursmake up for everything else that I see in the world. It is so worth the journey we are all on. Best Wishes,Kathy [low dose naltrexone] 18 month story Hi Everyone, I am writing to tell my 18 month story. I was having a major exaserbation that had me going from a cane to a walker to going to get a wheelchair. I came across the www.low dose naltrexone.org site. It sounded very promising so I took the info to my GP. He knows I hate doing pills so he agreed and prescribe the 50mg pill. I tried cutting it into 8 pieces but couldn't. So I took 25mg of Naltrexone in the morning. I was the same that day. But the next morning I got out of bed and walked to the washroom without my cane or walker. I couldn't believe it and figured it was just because I wasn't quite awake yet. It was 6:30 am and I always slept till 12:00. Then I noticed I wasn't tired any more so I had shower and got dressed. I didn't have as much pain anymore. It was 98% gone and the 2% could be taken care of with asprin. It stopped the exaserbation faster than Solumedrol did because I had just done it and it didn't work! I stayed up that day until 11:30 pm with no naps. This is how my days are now. I wake up between 6:30 - 8:00am and can stay awake all day still. During my exaserbation I had to quit cooking because I couldn't remember turning on the stove. Now I can cook again! My grandson wass born 1 week before I started LDN and I was afraid to hold him for fear of dropping him. Now I can hold him and chase him. It has made life worth living again. My head was buzzing too much from neurons refiring that I couldn't take it anymore. I found a compounding pharmacy, which Windsor only has 1, and started taking 4.5mg and that is the dose I stayed at. I can walk unassisted and only use a cane at night becase of Optic Neuritis. Well that is my story. Sorry it was so long but figured I had better share it with every one. Hope all is well, Kathy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2005 Report Share Posted June 10, 2005 Those who visit my board..are aware of my thinking on this. It is very possible that the 25 mg dose is perfect during an exacerbation as it temporarily blocks all receptors so you dont need to doodle around with the dose.. and the 4.5 mg is good for maintaining the remission..as you dont want block everything over long periods..but rather periodically only the opioid receptors. Do I remember a certain german doc who was run off this board for proposing the use of a high dose ?. My comments then, as now are the same.. we dont know enough about LDN to pontificate with any certainty that the conventional protocol is the optimal one. Yet so many continue to regurgitate the 3-4.5 mg story as the gospel truth while closing their minds to other possibilities. A Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.