Re: Frustration At Reticence (was 18 month story)

[Guest guest]

In a message dated 6/10/2005 9:54:08 AM Central Daylight Time, covo@... writes:

I know how you feel Kathy. There are people on other lists I am on who are obviously depressed about their neurological conditions but for some reason I can't fathom won't consider using LDN when a few others of us on those lists who do (not all) have had success. These are the very same people who would be at the head of the queue to pay themselves for some expensive drug with marginal benefits and horrendous side effects should one become available (there is really nothing currently for our (non-MS) condition). Either that or they must like people doing things for them and don't really want to get better!

A woman I used to teach with has Crohn's and her husband has MS severely enough that he has been in a wheelchair for a year or two - both mid to late 40's and perfect candidates for LDN you would think. For quite a while a year or so ago I forwarded on relevant posts from here to them (no hard sell, just the posts themselves) and when I see her (very rarely) she intimates that she will follow it up, but I am sure she won't. I recently found out she has just had breast cancer - even more reason to try LDN, but am reluctant to even try writing to her again about it.

Guess some people don't want to be helped or have been brainwashed into thinking help can only come in the form of expensive drugs that have nasty side effects. :-(

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

,

I know what you mean! I have heard people talk about being bed ridden when they can still walk a little. I think the biggest problem is depression. I fight it every day, but I still scratch and claw my way out of bed every day. When I can no longer do that, I don't know what I will do.

Marcie

[Guest guest]

Dear Bruce:

You are truly an inspiration I try to help friends with this disease and they will not listen.

It is a shame thanks for your opinions.

[Guest guest]

One of the great tragedies of life is

those who give up and that may well be the case most of the time. I deal

with cancer not MS but the same mental condition holds true. I have come

to believe that a number of people just choose to die with their cancer as an

acceptable form of suicide rather than fight.

I have had a number of people who refuse

the most simple of solutions because they cannot believe it would benefit

them. When you dig deeper, it appears that nothing would satisfy and

death is preferable to them.

Others believe only what they are told by

their doctors. If their doctor does not endorse it, it could not possibly

work.

Sad reality of life.

Bruce Guilmette, Ph.D.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of marciemjm@...

Sent: Friday, June 10, 2005 11:06

AM

low dose naltrexone

Subject: Re: [low dose naltrexone]

Frustration At Reticence (was 18 month story)

In a message dated 6/10/2005 9:54:08 AM Central Daylight

Time, covo@... writes:

I know how you feel Kathy. There are people on other lists I am on who

are obviously depressed about their neurological conditions but for some

reason I can't fathom won't consider using LDN when a few others of us

on those lists who do (not all) have had success. These are the very

same people who would be at the head of the queue to pay themselves for

some expensive drug with marginal benefits and horrendous side effects

should one become available (there is really nothing currently for our

(non-MS) condition). Either that or they must like people doing things

for them and don't really want to get better!

A woman I used to teach with has Crohn's and her husband has MS severely

enough that he has been in a wheelchair for a year or two - both mid to

late 40's and perfect candidates for LDN you would think. For quite a

while a year or so ago I forwarded on relevant posts from here to them

(no hard sell, just the posts themselves) and when I see her (very

rarely) she intimates that she will follow it up, but I am sure she

won't. I recently found out she has just had breast cancer - even more

reason to try LDN, but am reluctant to even try writing to her again

about it.

Guess some people don't want to be helped or have been brainwashed into

thinking help can only come in the form of expensive drugs that have

nasty side effects. :-(

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

,

I know what you mean! I have heard people talk about being bed ridden

when they can still walk a little. I think the biggest problem is

depression. I fight it every day, but I still scratch and claw my way out

of bed every day. When I can no longer do that, I don't know what I will

do.

Marcie

[Guest guest]

I met someone from BrainTalk last summer while I was up in her area. She not only has MS, but also Crohn's and Celiac's (LDN could possibly help all THREE!). I think she stopped talking to me because, apparently it would seem that way, all I keep telling her, when she posts complaints about this or complaints about that, is that LDN helped ME that that symptom, or helped someone else with it, etc, etc.

Her docs won't let her try it, so rather than finding one who will, she gets this script or that script... was ready to go on Tysabri which was pulled just before her approval for it came in. Breaks my heart. She's 10 years younger than me and I really think LDN could help her.

I wish I heard about LDN 10 years ago!

Well, this is it for me... I'm heading to the city for the conference tomorrow. Going to have a (apparently small) gathering at the hotel a few of us are staying in... but haven't heard from many others. Judging from that, it seems like 90% of the people at the conference aren't going to be us patients here in this group.

Catch ya'll on the other side of the conference

6/11/2005 ... the day LDN ___________ ??? Definitely should be a pivotal point on our timeline.

[low dose naltrexone] Frustration At Reticence (was 18 month story)

I know how you feel Kathy. There are people on other lists I am on who are obviously depressed about their neurological conditions but for some reason I can't fathom won't consider using LDN when a few others of us on those lists who do (not all) have had success. These are the very same people who would be at the head of the queue to pay themselves for some expensive drug with marginal benefits and horrendous side effects should one become available (there is really nothing currently for our (non-MS) condition). Either that or they must like people doing things for them and don't really want to get better!A woman I used to teach with has Crohn's and her husband has MS severely enough that he has been in a wheelchair for a year or two - both mid to late 40's and perfect candidates for LDN you would think. For quite a while a year or so ago I forwarded on relevant posts from here to them (no hard sell, just the posts themselves) and when I see her (very rarely) she intimates that she will follow it up, but I am sure she won't. I recently found out she has just had breast cancer - even more reason to try LDN, but am reluctant to even try writing to her again about it.Guess some people don't want to be helped or have been brainwashed into thinking help can only come in the form of expensive drugs that have nasty side effects. :-(kathy lintzenich wrote:> I guess I have to console myself with the fact thatthere are people > out there who are willing to try this and not concentrate on the ones > who seem so damn stubborn and ignorant. I know we can't save the world > but here is a man smart enough to own a real estate company yet he > won't get on LDN when he has ABSOLUTELY NOTHING TO LOSE.

[Guest guest]

Larry, I am going to NYC tomorrow for the first time in my life. I just realized it is the same time as the convention .I feel a hard to describe emotion about not going. I am meeting my best friend and we have scheduled an itinerary which includes certain restaurants, shopping, all these superficial but extraordinarily fun things for the day. She would be disappointed this is what I'm doing as soon as I arrive. Does that make sense . I always laugh and tell people I've had my guiltsurgicallly removed but the truth is I am having remorse about not attending. However, everything is for a reason and I hope you have a memorable visit and have lots to share with us when you get back. Meanwhile, I'll keep spreading the word about LDN. I want to thank everyone who responded to my frustration. I think hit it on the head when he said people want to be told what to do by the "experts". Then if it doesn't work, they don't have to assume responsibility for their well-being. Anyway, I'm off and packing!! If the conference is near Magnolia Cupcake I think you should forget whatever diet you are on and go have one!!!! Best Wishes, Kathy

[low dose naltrexone] Frustration At Reticence (was 18 month story)

I know how you feel Kathy. There are people on other lists I am on who are obviously depressed about their neurological conditions but for some reason I can't fathom won't consider using LDN when a few others of us on those lists who do (not all) have had success. These are the very same people who would be at the head of the queue to pay themselves for some expensive drug with marginal benefits and horrendous side effects should one become available (there is really nothing currently for our (non-MS) condition). Either that or they must like people doing things for them and don't really want to get better!A woman I used to teach with has Crohn's and her husband has MS severely enough that he has been in a wheelchair for a year or two - both mid to late 40's and perfect candidates for LDN you would think. For quite a while a year or so ago I forwarded on relevant posts from here to them (no hard sell, just the posts themselves) and when I see her (very rarely) she intimates that she will follow it up, but I am sure she won't. I recently found out she has just had breast cancer - even more reason to try LDN, but am reluctant to even try writing to her again about it.Guess some people don't want to be helped or have been brainwashed into thinking help can only come in the form of expensive drugs that have nasty side effects. :-(kathy lintzenich wrote:> I guess I have to console myself with the fact thatthere are people > out there who are willing to try this and not concentrate on the ones > who seem so damn stubborn and ignorant. I know we can't save the world > but here is a man smart enough to own a real estate company yet he > won't get on LDN when he has ABSOLUTELY NOTHING TO LOSE.

[Guest guest]

you are so right Bruce and seem very perceptive. I know your mind has what it takes to overcome this challenge you have been given .Kathy

RE: [low dose naltrexone] Frustration At Reticence (was 18 month story)

One of the great tragedies of life is those who give up and that may well be the case most of the time. I deal with cancer not MS but the same mental condition holds true. I have come to believe that a number of people just choose to die with their cancer as an acceptable form of suicide rather than fight.

I have had a number of people who refuse the most simple of solutions because they cannot believe it would benefit them. When you dig deeper, it appears that nothing would satisfy and death is preferable to them.

Others believe only what they are told by their doctors. If their doctor does not endorse it, it could not possibly work.

Sad reality of life.

Bruce Guilmette, Ph.D.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of marciemjm@...Sent: Friday, June 10, 2005 11:06 AMlow dose naltrexone Subject: Re: [low dose naltrexone] Frustration At Reticence (was 18 month story)

In a message dated 6/10/2005 9:54:08 AM Central Daylight Time, covo@... writes:

I know how you feel Kathy. There are people on other lists I am on who are obviously depressed about their neurological conditions but for some reason I can't fathom won't consider using LDN when a few others of us on those lists who do (not all) have had success. These are the very same people who would be at the head of the queue to pay themselves for some expensive drug with marginal benefits and horrendous side effects should one become available (there is really nothing currently for our (non-MS) condition). Either that or they must like people doing things for them and don't really want to get better! A woman I used to teach with has Crohn's and her husband has MS severely enough that he has been in a wheelchair for a year or two - both mid to late 40's and perfect candidates for LDN you would think. For quite a while a year or so ago I forwarded on relevant posts from here to them (no hard sell, just the posts themselves) and when I see her (very rarely) she intimates that she will follow it up, but I am sure she won't. I recently found out she has just had breast cancer - even more reason to try LDN, but am reluctant to even try writing to her again about it. Guess some people don't want to be helped or have been brainwashed into thinking help can only come in the form of expensive drugs that have nasty side effects. :-(

+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ , I know what you mean! I have heard people talk about being bed ridden when they can still walk a little. I think the biggest problem is depression. I fight it every day, but I still scratch and claw my way out of bed every day. When I can no longer do that, I don't know what I will do. Marcie

[Guest guest]

, Kath, I agree with both of you on the subject. My brain Doc Says that LDN just doesn't work and will not even allow me to ty it out, so I've set myself up with an appointment with my famiy doc who will let me take what ever I think will work, I see him on the 21th. I like you would never like to be a person that ustsat by and let people do things for me. My wife does not understand why I want to do things for myself when she can do them for me and faster. like dressing myself sure it takes me longer but when I'm finished getting dressed I feel like I just accomplished something. She says I'm just being stupid or funny,not ha ha funny either. I feel like I've done smething for myself when I'm finished, and thats more then I can say for most of my healthy friends who sit around and just let others do for them. I just hope that none of myoter med's will not counter act with the LDN when I start taking it, well at least any of my prescription med's.

I'll try and keep everybody update when ever I start on the LDN.

RK

Re: [low dose naltrexone] Frustration At Reticence (was 18 month story)

In a message dated 6/10/2005 9:54:08 AM Central Daylight Time, covo@... writes:

I know how you feel Kathy. There are people on other lists I am on who are obviously depressed about their neurological conditions but for some reason I can't fathom won't consider using LDN when a few others of us on those lists who do (not all) have had success. These are the very same people who would be at the head of the queue to pay themselves for some expensive drug with marginal benefits and horrendous side effects should one become available (there is really nothing currently for our (non-MS) condition). Either that or they must like people doing things for them and don't really want to get better! A woman I used to teach with has Crohn's and her husband has MS severely enough that he has been in a wheelchair for a year or two - both mid to late 40's and perfect candidates for LDN you would think. For quite a while a year or so ago I forwarded on relevant posts from here to them (no hard sell, just the posts themselves) and when I see her (very rarely) she intimates that she will follow it up, but I am sure she won't. I recently found out she has just had breast cancer - even more reason to try LDN, but am reluctant to even try writing to her again about it. Guess some people don't want to be helped or have been brainwashed into thinking help can only come in the form of expensive drugs that have nasty side effects. :-( +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ , I know what you mean! I have heard people talk about being bed ridden when they can still walk a little. I think the biggest problem is depression. I fight it every day, but I still scratch and claw my way out of bed every day. When I can no longer do that, I don't know what I will do. Marcie

[Guest guest]

, you will be fine unless you take narcotics or betaseron. I don't know what your wifes reasons are- I'm sure she loves you with all her heart and is fearful. However, it is so important for a man to feel accomplished and no matter how great or small the task is, it can bring you a sense of inner peace and confidence. You don't have to get worse. You can get better and I am so excited for you to start LDN and let us all know what is happening. When you want something , don't take no for an answer. you did the right thing by being persistent . You might feel like your old self by the end of this month!!!!!!!!!! God Bless, Kathy

Re: [low dose naltrexone] Frustration At Reticence (was 18 month story)

In a message dated 6/10/2005 9:54:08 AM Central Daylight Time, covo@... writes:

I know how you feel Kathy. There are people on other lists I am on who are obviously depressed about their neurological conditions but for some reason I can't fathom won't consider using LDN when a few others of us on those lists who do (not all) have had success. These are the very same people who would be at the head of the queue to pay themselves for some expensive drug with marginal benefits and horrendous side effects should one become available (there is really nothing currently for our (non-MS) condition). Either that or they must like people doing things for them and don't really want to get better! A woman I used to teach with has Crohn's and her husband has MS severely enough that he has been in a wheelchair for a year or two - both mid to late 40's and perfect candidates for LDN you would think. For quite a while a year or so ago I forwarded on relevant posts from here to them (no hard sell, just the posts themselves) and when I see her (very rarely) she intimates that she will follow it up, but I am sure she won't. I recently found out she has just had breast cancer - even more reason to try LDN, but am reluctant to even try writing to her again about it. Guess some people don't want to be helped or have been brainwashed into thinking help can only come in the form of expensive drugs that have nasty side effects. :-( +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ , I know what you mean! I have heard people talk about being bed ridden when they can still walk a little. I think the biggest problem is depression. I fight it every day, but I still scratch and claw my way out of bed every day. When I can no longer do that, I don't know what I will do. Marcie