Re: Teen years

[Guest guest]

Not sure if it will help, there are a few books by posters in this group,

the archives probably have something - this is what I did.

My daughter is now 15, at 4.5 yrs we potty trained her. She was non verbal

then. I wasn't working at the time, this was an all day for at least a week

approach for us.

I had a very small bathroom, just a toilet and sink. There was only room

for someone to sit on the toilet and someone to stand of sit on the floor in

front of the door. We would go in there and she would sit on the toilet and

I on the floor would read to her. She loved books then and still does. It

didn't matter to her what the book was, just any book for her was great.

Some times we would sit for hours, some times minutes. When she would go I

praised her so much. We did this every hour for about a week. It worked

and she was trained. She did wear pull ups at night but she figured out

quickly that she wanted to wear big girl underwear all the time.

Hope this helps.

>

>

> i have an eight year old little girl with autism, she isnt potty trained.

> we have been trying to get her trained for the past 4 years. i am so worried

> about what were going to do when she starts developing anyone have any

> advice?

>

>

>

[Guest guest]

I have a 6-yr-old girl w/ aut. and she has frequent wetting accidents. She has

probs. with yeast overgrowth. With too much sugar, fruit, or rice her accidents

increase. Probiotics help. She is also so stubborn that she will wet before

going to sleep and stay wet all night if we don't intervene. She is back to

diapers at night cuz training pants can't contain her volume. She has learned to

diaper herself standing up. So I know the frustration of this. It bothers us

much more than her, so as hard as it is, try not to let it get to you. There are

many bright, autistic people with incontinence. There are others in the group

that can address the puberty issues.

Hang in there,

Corinne

To: Autism_in_Girls_and_Women

CC:

From: rmh231986@...

Date: Tue, 8 Feb 2011 13:06:43 -0600

Subject: Teen years

i have an eight year old little girl with autism, she isnt potty trained.

we have been trying to get her trained for the past 4 years. i am so worried

about what were going to do when she starts developing anyone have any advice?

[Guest guest]

My 13 year old is still completely incontinent.  She was fully trained.  autism

did not emerge until the age of seven.  since that time she regressed and

continues to regress, lost reading, cello playing, language and most self care

skills.  No amount of toilet training programs have been effective.  She has

begun her menses.  In some ways it is no big deal as diapers protect her and are

familiar.  but your little girl is still very young so be patient and

consistantly hopeful.  Trust yourself and her and respect her pacing.   Do not

jump ahead and worry yourself about puberty my friend.  It is hard not to fear

the unknown but you will find the strength  Once it happens it will seem natural

and you and she will adapt.

  I am having trouble posting directly to this group so please forgive me for

adding my request for support from this group, piggybacking on yours.

 

  My child's father has shared custody.  he has petitioned her pediatrician to

put her on birth control pills to avoid having periods.  I am alarmed by this

decision.  the doctor patronizingly dismisses my concern about putting such a

young girl on the pill.  He said he to trust him and leave the medical decision

to him to worry about.  he insists these low dose pills are completely without

side effects or risk. 

All women in my family have a history of extreme reactivity to synthetic

hormones.  These include extreme symptoms including feeling as tho our breasts

have been plunged into boiling water, bleeding from our nipples, and extreme

round the clock nausea and headache, etc. 

  I do not see that subjecting her to this risk is necessary.  She has been

oblivious to having her period.  However now on the pill she is having frequent

long weeping spells at home and school.  of course she can't speak to give voice

to what is upsetting her but I have never known her to be a sad distressed

child. 

Am i being over reactive and confrontational by stating my disapproval? 

I am really scared at the thought of  birth control for a child who is still

developing breast tissue, bone mass etc.  i worry about the risk of stroke.  For

so many reasons I am concerned.  i know many of you here who have autism do not

respond typically to drugs.  neither does she.  They often have the opposite

effect on her than the intention of the drug.  Even probiotics give her diahrea

and vomitting. 

  Anyway I need your expertise.  If i am not over reacting can you please refer

me to some resources to help advocate for having her taken off the pill. Her

father is threatening me with court if I continue to question this " medical

decision.  Any thoughts and or factual information/ articles, stories, links on

the harm of birth control for young girls especially on those with autism would

be appreciated.  i am trying to protect her and advocate strongly to resist what

I believe is potentially harmful, if not in the short term in her long term

health and development.   I am also open to hearing those who feel there is no

harm.  I would like to have my mind put at ease and to care for her the best i

can.  if I am out of line with my concern then i can be at peace.  i just can't

yet come to terms with this birth control pill being in her best interest.

  thanks,  Jay

________________________________

To: autism_in_girls_and_women

Sent: Tue, February 8, 2011 8:26:00 PM

Subject: RE: Teen years

I have a 6-yr-old girl w/ aut. and she has frequent wetting accidents. She has

probs. with yeast overgrowth. With too much sugar, fruit, or rice her accidents

increase. Probiotics help. She is also so stubborn that she will wet before

going to sleep and stay wet all night if we don't intervene. She is back to

diapers at night cuz training pants can't contain her volume. She has learned to

diaper herself standing up.  So I know the frustration of this. It bothers us

much more than her, so as hard as it is, try not to let it get to you. There are

many bright, autistic people with incontinence. There are others in the group

that can address the puberty issues.

Hang in there,

Corinne

To: Autism_in_Girls_and_Women

CC:

From: rmh231986@...

Date: Tue, 8 Feb 2011 13:06:43 -0600

Subject: Teen years

 

   

     

     

      i have an eight year old little girl with autism, she isnt potty trained.

we have been trying to get her trained for the past 4 years. i am so worried

about what were going to do when she starts developing anyone have any advice?

   

   

   

   

 

                       

[Guest guest]

> Am i being over reactive and confrontational by stating my disapproval?

> I am really scared at the thought of birth control for a child who is still

> developing breast tissue, bone mass etc. i worry about the risk of stroke.

For

> so many reasons I am concerned.

Jay,

You are not overreacting and have every right to be concerned, especially in

light of your family history of adverse reactions to synthetic hormones.

Personally I would never put my daughter on hormones for the specific reason of

stopping her cycle for the " convenience " of adult caretakers, in this case your

daughter's father. And their dismissal of your feelings and concerns is utterly

appalling. In fact, I'm pretty pissed off and it's not even my daughter! I don't

have access to my files at the moment, but later I will endeavor to find some

references for you. Your daughter is clearly suffering ill effects and the

callous disregard by her father and the doctor is arrogance and abuse, in my

opinion.

[Guest guest]

, I was thinking the same thoughts - especially with regard to the arrogant

doctor. Jay, I'm certain you could find a physician who would share your

concerns and respect your convictions! YOU'RE YOUR DAUGHTER'S MOTHER! That

doctor sound awful. Personally, I am open to the idea of birth control pulls

for my 11 year old daughter when her periods start. Haven't crossed that bridge

yet, but the day us coming soon. But if we had a family history of such

negative reactions to birth control pills, I'd most definitely be opposed to

such a choice.

Sent from my iPhone

S. Dickson

> Am i being over reactive and confrontational by stating my disapproval?

> I am really scared at the thought of birth control for a child who is still

> developing breast tissue, bone mass etc. i worry about the risk of stroke. For

> so many reasons I am concerned.

Jay,

You are not overreacting and have every right to be concerned, especially in

light of your family history of adverse reactions to synthetic hormones.

Personally I would never put my daughter on hormones for the specific reason of

stopping her cycle for the " convenience " of adult caretakers, in this case your

daughter's father. And their dismissal of your feelings and concerns is utterly

appalling. In fact, I'm pretty pissed off and it's not even my daughter! I don't

have access to my files at the moment, but later I will endeavor to find some

references for you. Your daughter is clearly suffering ill effects and the

callous disregard by her father and the doctor is arrogance and abuse, in my

opinion.

[Guest guest]

From the get go, I have to admit I have no concrete plan for you.  Our

daughter's biggest improvement came with chelation, but autism is so variable I

do not know if this will help you or not.

Birth control has been suggested to us (she is 10), but I do not want to risk

the obvious problems that might arise.

 

Chelation, diet change, therapy, they are all only a roll of the dice. They are

proven for some, but worthless for others.  For us they have proven themselves,

but for others I have known, this is not the result..

 

I wish the best for you.  I regret I have nothing to offer but my hopes.

 

Subject: Teen years

To: Autism_in_Girls_and_Women

Date: Tuesday, February 8, 2011, 1:06 PM

 

i have an eight year old little girl with autism, she isnt potty trained. we

have been trying to get her trained for the past 4 years. i am so worried about

what were going to do when she starts developing anyone have any advice?

________________________________________________________________________________\

____

Don't get soaked. Take a quick peak at the forecast

with the Yahoo! Search weather shortcut.

http://tools.search.yahoo.com/shortcuts/#loc_weather

[Guest guest]

  once again you are here and I am so thankful.  yes there is a callous

disregard.  In fact i believe that Dad is doing this to be spiteful.   this

is

the tip of the iceberg really and as always the consequences are born  by

kezia.  thanks for your words.  your solidarity!  .  I await your info.  I

have

searched and nothing I have brought forward has made the slightest impact.  i

can't fight Dad but may be able to make headway with the doctor if i can present

a strong case with research.  these 2 men are all ego.   your words already

give

me hope and break the isolation. thanks for responding so quickly.

________________________________

To: " Autism_in_Girls_and_Women "

<Autism_in_Girls_and_Women >

Sent: Tue, February 8, 2011 10:45:24 PM

Subject: Re: Teen years

 

> Am i being over reactive and confrontational by stating my disapproval?

> I am really scared at the thought of birth control for a child who is still

> developing breast tissue, bone mass etc. i worry about the risk of stroke. For

> so many reasons I am concerned.

Jay,

You are not overreacting and have every right to be concerned, especially in

light of your family history of adverse reactions to synthetic hormones.

Personally I would never put my daughter on hormones for the specific reason of

stopping her cycle for the " convenience " of adult caretakers, in this case your

daughter's father. And their dismissal of your feelings and concerns is utterly

appalling. In fact, I'm pretty pissed off and it's not even my daughter! I don't

have access to my files at the moment, but later I will endeavor to find some

references for you. Your daughter is clearly suffering ill effects and the

callous disregard by her father and the doctor is arrogance and abuse, in my

opinion.

[Guest guest]

I would not put any young child on the pill unless it was absolutely

necessary

mine is 15 and has to see an endocrinologist soon, if you haven't done so

yet I would advise it

we had NO clue her levels were so off until the asthma dr ordered more

blood work due to her extreme acne that no medication is helping and a choir

teacher saying her voice lowered in the 7th grade

her hemoglobin is higher than normal and her testosterone level is 27.8 the

highest is should ever be is 9.2

its scary not knowing what is going on with our kids

sadly mine is verbal and understands everything

they are thinking its pcos

[Guest guest]

another thought is you could get the dr. on medical neglect since he is not

listening to the side effects

would he sterilize your daughter if your ex wanted it?

[Guest guest]

________________________________

To: Autism_in_Girls_and_Women

Sent: Tue, February 8, 2011 10:16:17 PM

Subject: Re: Teen years

My 13 year old is still completely incontinent. She was fully trained. autism

did not emerge until the age of seven. since that time she regressed and

continues to regress, lost reading, cello playing, language and most self care

skills. No amount of toilet training programs have been effective. She has

begun her menses. In some ways it is no big deal as diapers protect her and are

familiar. but your little girl is still very young so be patient and

consistantly hopeful. Trust yourself and her and respect her pacing. Do not

jump ahead and worry yourself about puberty my friend. It is hard not to fear

the unknown but you will find the strength Once it happens it will seem natural

and you and she will adapt.

I am having trouble posting directly to this group so please forgive me for

adding my request for support from this group, piggybacking on yours.

My child's father has shared custody. he has petitioned her pediatrician to

put her on birth control pills to avoid having periods. I am alarmed by this

decision. the doctor patronizingly dismisses my concern about putting such a

young girl on the pill. He said he to trust him and leave the medical decision

to him to worry about. he insists these low dose pills are completely without

side effects or risk.

All women in my family have a history of extreme reactivity to synthetic

hormones. These include extreme symptoms including feeling as tho our breasts

have been plunged into boiling water, bleeding from our nipples, and extreme

round the clock nausea and headache, etc.

I do not see that subjecting her to this risk is necessary. She has been

oblivious to having her period. However now on the pill she is having frequent

long weeping spells at home and school. of course she can't speak to give voice

to what is upsetting her but I have never known her to be a sad distressed

child.

Am i being over reactive and confrontational by stating my disapproval?

I am really scared at the thought of birth control for a child who is still

developing breast tissue, bone mass etc. i worry about the risk of stroke. For

so many reasons I am concerned. i know many of you here who have autism do not

respond typically to drugs. neither does she. They often have the opposite

effect on her than the intention of the drug. Even probiotics give her diahrea

and vomitting.

Anyway I need your expertise. If i am not over reacting can you please refer

me to some resources to help advocate for having her taken off the pill. Her

father is threatening me with court if I continue to question this " medical

decision. Any thoughts and or factual information/ articles, stories, links on

the harm of birth control for young girls especially on those with autism would

be appreciated. i am trying to protect her and advocate strongly to resist what

I believe is potentially harmful, if not in the short term in her long term

health and development. I am also open to hearing those who feel there is no

harm. I would like to have my mind put at ease and to care for her the best i

can. if I am out of line with my concern then i can be at peace. i just can't

yet come to terms with this birth control pill being in her best interest.

thanks, Jay

________________________________

To: autism_in_girls_and_women

Sent: Tue, February 8, 2011 8:26:00 PM

Subject: RE: Teen years

I have a 6-yr-old girl w/ aut. and she has frequent wetting accidents. She has

probs. with yeast overgrowth. With too much sugar, fruit, or rice her accidents

increase. Probiotics help. She is also so stubborn that she will wet before

going to sleep and stay wet all night if we don't intervene. She is back to

diapers at night cuz training pants can't contain her volume. She has learned to

diaper herself standing up. So I know the frustration of this. It bothers us

much more than her, so as hard as it is, try not to let it get to you. There are

many bright, autistic people with incontinence. There are others in the group

that can address the puberty issues.

Hang in there,

Corinne

To: Autism_in_Girls_and_Women

CC:

From: rmh231986@...

Date: Tue, 8 Feb 2011 13:06:43 -0600

Subject: Teen years

i have an eight year old little girl with autism, she isnt potty trained.

we have been trying to get her trained for the past 4 years. i am so worried

about what were going to do when she starts developing anyone have any advice?

Jay, I am a mom whose 15 year old daughter started her period in June2010. I

have asked her doctor about birth control. I am not satisfied with things

that could go wrong compared to the good that it could do. I am going to go

with my gut feeling because my daughter is mostly non-verbal and could not tell

me if she was becomming very ill from the side affects.

[Guest guest]

my only thoughts of putting my almost 17 year old on the pill would be so i know

when her pmt is about to hit. the week before her periods she is so irratic, i

can usually

pick the week, but it would be helpful to teachers. i doubt i would get her to

swallow the pill, even though its so tiny....

This school year hasn't started well, she is progressively getting slower and

slower in getting to her classes. i really don't know why this is happening. Is

it her way of saying she has

had enough of school? If there was some program out there for this age, i would

consider taking her out of school for this, but from all i have found, they

cannot offer anything

until the age of 18.......the special needs co-ordinator is emailing me telling

me of her lateness and says she is considering putting her on detention...!!!!!

i emailed back and said do you really think this would do anything? she has no

friends, is not social, she would probably think it great to sit in a classroom

alone!..............i feel like screaming this morning, i really do.

Cheryl S [chez]

To: Autism_in_Girls_and_Women

From: toyboxjunkie@...

Date: Wed, 9 Feb 2011 11:20:19 -0500

Subject: Re: Teen years

I would not put any young child on the pill unless it was absolutely

necessary

mine is 15 and has to see an endocrinologist soon, if you haven't done so

yet I would advise it

we had NO clue her levels were so off until the asthma dr ordered more

blood work due to her extreme acne that no medication is helping and a choir

teacher saying her voice lowered in the 7th grade

her hemoglobin is higher than normal and her testosterone level is 27.8 the

highest is should ever be is 9.2

its scary not knowing what is going on with our kids

sadly mine is verbal and understands everything

they are thinking its pcos

[Guest guest]

Jay,

You remember Sondra W often talked about the horrible anomalous reactions

she had when doctors would place her on hormones. It isn't that uncommon

to have atypical side effects, especially for women on the spectrum, and

attention should be paid to that. It sounds as though Sondra really suffered,

and if your daughter isn't able to communicate how her medication makes

her feel, it seems to me that it would be even more important to be careful.

And, I would suggest to everyone that it's better taking a 13 year old

young woman to a female pediatrician if possible. Not to say a female ped

would automatically be more willing to listen about this, but ...

My daughter asked to go to a female doctor when she was only 9. I'd have

made the change on my own within the next year or so, but she asked me to

switch to a " lady doctor " herself. We already had an appointment with her

old Ped. when she asked, so I told her this would be our last visit. At the

end, she told him nicely why we would not be back, thanked him for being

her doctor, and shook hands goodbye.

As her body has developed, she has been so much more comfortable getting

exams and asking " teen " questions from a female pediatrician than she would

have from one who was male. Her current doctor told us she gets new

patients around that age frequently for the same reason. I was only surprised

by what an early age by daughter wanted to change!

Sandi [in Houston]

In a message dated 2/9/2011 2:03:12 P.M. Central Standard Time,

scarletwind63@... writes:

________________________________

From: Jay Armistead <_jarmistead@..._ (mailto:jarmistead@...)

>

To: _Autism_in_Girls_and_Women _

(mailto:Autism_in_Girls_and_Women )

Sent: Tue, February 8, 2011 10:16:17 PM

Subject: Re: Teen years

I am having trouble posting directly to this group so please forgive me

for

adding my request for support from this group, piggybacking on yours.

My child's father has shared custody. he has petitioned her pediatrician

to

put her on birth control pills to avoid having periods. I am alarmed by

this

decision. the doctor patronizingly dismisses my concern about putting such

a

young girl on the pill. He said he to trust him and leave the medical

decision

to him to worry about. he insists these low dose pills are completely

without

side effects or risk.

All women in my family have a history of extreme reactivity to synthetic

hormones. These include extreme symptoms including feeling as tho our

breasts

have been plunged into boiling water, bleeding from our nipples, and

extreme

round the clock nausea and headache, etc.

I do not see that subjecting her to this risk is necessary. She has been

oblivious to having her period. However now on the pill she is having

frequent

long weeping spells at home and school. of course she can't speak to give

voice

to what is upsetting her but I have never known her to be a sad distressed

child.

Am i being over reactive and confrontational by stating my disapproval?

I am really scared at the thought of birth control for a child who is

still

developing breast tissue, bone mass etc. i worry about the risk of stroke.

For

so many reasons I am concerned. i know many of you here who have autism do

not

respond typically to drugs. neither does she. They often have the opposite

effect on her than the intention of the drug. Even probiotics give her

diahrea

and vomitting.

Anyway I need your expertise. If i am not over reacting can you please

refer

me to some resources to help advocate for having her taken off the pill.

Her

father is threatening me with court if I continue to question this

" medical

decision. Any thoughts and or factual information/ articles, stories,

links on

the harm of birth control for young girls especially on those with autism

would

be appreciated. i am trying to protect her and advocate strongly to resist

what

I believe is potentially harmful, if not in the short term in her long

term

health and development. I am also open to hearing those who feel there is

no

harm. I would like to have my mind put at ease and to care for her the

best i

can. if I am out of line with my concern then i can be at peace. i just

can't

yet come to terms with this birth control pill being in her best interest.

thanks, Jay

________________________________

To: _Autism_in_Girls_and_Women _

(mailto:Autism_in_Girls_and_Women )

CC:

From: _rmh231986@..._ (mailto:rmh231986@...)

Date: Tue, 8 Feb 2011 13:06:43 -0600

Subject: Teen years

Jay, I am a mom whose 15 year old daughter started her period in June2010.

I

have asked her doctor about birth control. I am not satisfied with things

that could go wrong compared to the good that it could do. I am going to

go

with my gut feeling because my daughter is mostly non-verbal and could not

tell

me if she was becomming very ill from the side affects.

[Guest guest]

My 15½ yr old dd is home from school with a bug today, I asked her for

ideas.

She is so sad for your daughter. She said your daughter must not look

forward to her classes at all! She asks if it is possible your daughter is

being picked on in the hall which slows her down, or in the class so she

dreads going there?

Allie wondered if you could tie getting to class on time to something at

school, like deserts at lunch. That might help her want to do better, she

says. :-)

Sandi [in Houston]

In a message dated 2/9/2011 3:10:11 P.M. Central Standard Time,

cmsommerfeld@... writes:

my only thoughts of putting my almost 17 year old on the pill would be so

i know when her pmt is about to hit. the week before her periods she is so

irratic, i can usually

pick the week, but it would be helpful to teachers. i doubt i would get

her to swallow the pill, even though its so tiny....

This school year hasn't started well, she is progressively getting slower

and slower in getting to her classes. i really don't know why this is

happening. Is it her way of saying she has

had enough of school? If there was some program out there for this age, i

would consider taking her out of school for this, but from all i have

found, they cannot offer anything

until the age of 18.......the special needs co-ordinator is emailing me

telling me of her lateness and says she is considering putting her on

detention...!!!!! i emailed back and said do you really think this would do

anything? she has no friends, is not social, she would probably think it great

to

sit in a classroom alone!..............i feel like screaming this morning,

i really do.

Cheryl S [chez]

[Guest guest]

Dear ,

Is she on an IEP? If the school is considering being punitive, it is time to

call for an IEP meeting and maybe an FBA. Have you asked her why she is having

trouble getting to her classes (suggest some ideas and see if you can figure it

out that way) If not, is she seeing a therapist who can discuss this with her? 

Also if she is on meds, you should be aware that the med is less effective

during the week before a cycle (changes its absorption, according to our

psychiatrist. Some people will up their dd's med the week before a cycle).

Rose

________________________________

To: Autism_in_Girls_and_Women

Sent: Wed, February 9, 2011 3:28:12 PM

Subject: Re: Teen years

 

My 15½ yr old dd is home from school with a bug today, I asked her for

ideas.

She is so sad for your daughter. She said your daughter must not look

forward to her classes at all! She asks if it is possible your daughter is

being picked on in the hall which slows her down, or in the class so she

dreads going there?

Allie wondered if you could tie getting to class on time to something at

school, like deserts at lunch. That might help her want to do better, she

says. :-)

Sandi [in Houston]

In a message dated 2/9/2011 3:10:11 P.M. Central Standard Time,

cmsommerfeld@... writes:

my only thoughts of putting my almost 17 year old on the pill would be so

i know when her pmt is about to hit. the week before her periods she is so

irratic, i can usually

pick the week, but it would be helpful to teachers. i doubt i would get

her to swallow the pill, even though its so tiny....

This school year hasn't started well, she is progressively getting slower

and slower in getting to her classes. i really don't know why this is

happening. Is it her way of saying she has

had enough of school? If there was some program out there for this age, i

would consider taking her out of school for this, but from all i have

found, they cannot offer anything

until the age of 18.......the special needs co-ordinator is emailing me

telling me of her lateness and says she is considering putting her on

detention...!!!!! i emailed back and said do you really think this would do

anything? she has no friends, is not social, she would probably think it great

to

sit in a classroom alone!..............i feel like screaming this morning,

i really do.

Cheryl S [chez]

[Guest guest]

Oops, I meant this in reply to Cheryl's post!

________________________________

To: Autism_in_Girls_and_Women

Sent: Wed, February 9, 2011 4:54:54 PM

Subject: Re: Teen years

 

Dear ,

Is she on an IEP? If the school is considering being punitive, it is time to

call for an IEP meeting and maybe an FBA. Have you asked her why she is having

trouble getting to her classes (suggest some ideas and see if you can figure it

out that way) If not, is she seeing a therapist who can discuss this with her? 

Also if she is on meds, you should be aware that the med is less effective

during the week before a cycle (changes its absorption, according to our

psychiatrist. Some people will up their dd's med the week before a cycle).

Rose

________________________________

To: Autism_in_Girls_and_Women

Sent: Wed, February 9, 2011 3:28:12 PM

Subject: Re: Teen years

 

My 15½ yr old dd is home from school with a bug today, I asked her for

ideas.

She is so sad for your daughter. She said your daughter must not look

forward to her classes at all! She asks if it is possible your daughter is

being picked on in the hall which slows her down, or in the class so she

dreads going there?

Allie wondered if you could tie getting to class on time to something at

school, like deserts at lunch. That might help her want to do better, she

says. :-)

Sandi [in Houston]

In a message dated 2/9/2011 3:10:11 P.M. Central Standard Time,

cmsommerfeld@... writes:

my only thoughts of putting my almost 17 year old on the pill would be so

i know when her pmt is about to hit. the week before her periods she is so

irratic, i can usually

pick the week, but it would be helpful to teachers. i doubt i would get

her to swallow the pill, even though its so tiny....

This school year hasn't started well, she is progressively getting slower

and slower in getting to her classes. i really don't know why this is

happening. Is it her way of saying she has

had enough of school? If there was some program out there for this age, i

would consider taking her out of school for this, but from all i have

found, they cannot offer anything

until the age of 18.......the special needs co-ordinator is emailing me

telling me of her lateness and says she is considering putting her on

detention...!!!!! i emailed back and said do you really think this would do

anything? she has no friends, is not social, she would probably think it great

to

sit in a classroom alone!..............i feel like screaming this morning,

i really do.

Cheryl S [chez]

[Guest guest]

yes, i have asked her why, she keeps saying she isn't. i have spoken to other

kids, they say, its because she likes to draw and doesn't want to pack up if it

isn't completed. We have told her she isn't to take her drawing things into

class, but she still does it at recess and lunch, as her timeout! she isn't on

any meds.....haven't seen the need. she goes to a small christian school, under

200 children from the first year of school to year 10. Because it doesn't go

till she is 18, we are repeating her, so we do not have to move schools, as we

live next door and this means, no buses or worry of crossing roads to get to

school. They are being very understanding and the other kids are very accepting

of her. They do not get all the funding as a public school would, but we chose

to move here for the sake of our other 2 children. Once she is 18, i shall get

her into some kind of program. i have her on a list, its just a matter of time

and age now. I already have her on the disability pension, as she was eligible

at the age of 16. They warned me it would be hard to get, but once they read a

psych report and a school report, they understood completely.

Cheryl S [chez]

To: Autism_in_Girls_and_Women

From: rbcphd@...

Date: Wed, 9 Feb 2011 16:56:41 -0800

Subject: Re: Teen years

Oops, I meant this in reply to Cheryl's post!

________________________________

To: Autism_in_Girls_and_Women

Sent: Wed, February 9, 2011 4:54:54 PM

Subject: Re: Teen years

Dear ,

Is she on an IEP? If the school is considering being punitive, it is time to

call for an IEP meeting and maybe an FBA. Have you asked her why she is having

trouble getting to her classes (suggest some ideas and see if you can figure it

out that way) If not, is she seeing a therapist who can discuss this with her?

Also if she is on meds, you should be aware that the med is less effective

during the week before a cycle (changes its absorption, according to our

psychiatrist. Some people will up their dd's med the week before a cycle).

Rose

________________________________

To: Autism_in_Girls_and_Women

Sent: Wed, February 9, 2011 3:28:12 PM

Subject: Re: Teen years

My 15½ yr old dd is home from school with a bug today, I asked her for

ideas.

She is so sad for your daughter. She said your daughter must not look

forward to her classes at all! She asks if it is possible your daughter is

being picked on in the hall which slows her down, or in the class so she

dreads going there?

Allie wondered if you could tie getting to class on time to something at

school, like deserts at lunch. That might help her want to do better, she

says. :-)

Sandi [in Houston]

In a message dated 2/9/2011 3:10:11 P.M. Central Standard Time,

cmsommerfeld@... writes:

my only thoughts of putting my almost 17 year old on the pill would be so

i know when her pmt is about to hit. the week before her periods she is so

irratic, i can usually

pick the week, but it would be helpful to teachers. i doubt i would get

her to swallow the pill, even though its so tiny....

This school year hasn't started well, she is progressively getting slower

and slower in getting to her classes. i really don't know why this is

happening. Is it her way of saying she has

had enough of school? If there was some program out there for this age, i

would consider taking her out of school for this, but from all i have

found, they cannot offer anything

until the age of 18.......the special needs co-ordinator is emailing me

telling me of her lateness and says she is considering putting her on

detention...!!!!! i emailed back and said do you really think this would do

anything? she has no friends, is not social, she would probably think it great

to

sit in a classroom alone!..............i feel like screaming this morning,

i really do.

Cheryl S [chez]

[Guest guest]

Hi Jay,

By definition, autism should emerge before age 3. Has your daughter had a

work-up for other issues, such as Rett's Syndrome? I'm asking this, not because

I want to scare you, but because I think that if she has other clear medical

issues, there may be reasons why oral contraceptives are not a good idea.

In my opinion, you should ask your doctor to refer her to a geneticist and an

endocrinologist. I feel very sorry that she is having these change of mood while

on the pill.

>

> My 13 year old is still completely incontinent.  She was fully trained. 

autism

> did not emerge until the age of seven.  since that time she regressed and

> continues to regress, lost reading, cello playing, language and most self care

> skills.  No amount of toilet training programs have been effective.  She has

> begun her menses.  In some ways it is no big deal as diapers protect her and

are

> familiar.  but your little girl is still very young so be patient and

> consistantly hopeful.  Trust yourself and her and respect her pacing.   Do not

> jump ahead and worry yourself about puberty my friend.  It is hard not to fear

> the unknown but you will find the strength  Once it happens it will seem

natural

> and you and she will adapt.

>

>

>   I am having trouble posting directly to this group so please forgive me for

> adding my request for support from this group, piggybacking on yours.

>  

>   My child's father has shared custody.  he has petitioned her pediatrician to

> put her on birth control pills to avoid having periods.  I am alarmed by this

> decision.  the doctor patronizingly dismisses my concern about putting such a

> young girl on the pill.  He said he to trust him and leave the medical

decision

> to him to worry about.  he insists these low dose pills are completely without

> side effects or risk. 

>

> All women in my family have a history of extreme reactivity to synthetic

> hormones.  These include extreme symptoms including feeling as tho our breasts

> have been plunged into boiling water, bleeding from our nipples, and extreme

> round the clock nausea and headache, etc. 

>

>   I do not see that subjecting her to this risk is necessary.  She has been

> oblivious to having her period.  However now on the pill she is having

frequent

> long weeping spells at home and school.  of course she can't speak to give

voice

> to what is upsetting her but I have never known her to be a sad distressed

> child. 

>

> Am i being over reactive and confrontational by stating my disapproval? 

> I am really scared at the thought of  birth control for a child who is still

> developing breast tissue, bone mass etc.  i worry about the risk of stroke. 

For

> so many reasons I am concerned.  i know many of you here who have autism do

not

> respond typically to drugs.  neither does she.  They often have the opposite

> effect on her than the intention of the drug.  Even probiotics give her

diahrea

> and vomitting. 

>

>   Anyway I need your expertise.  If i am not over reacting can you please

refer

> me to some resources to help advocate for having her taken off the pill. Her

> father is threatening me with court if I continue to question this " medical

> decision.  Any thoughts and or factual information/ articles, stories,

links on

> the harm of birth control for young girls especially on those with autism

would

> be appreciated.  i am trying to protect her and advocate strongly to resist

what

> I believe is potentially harmful, if not in the short term in her long term

> health and development.   I am also open to hearing those who feel there is no

> harm.  I would like to have my mind put at ease and to care for her the best i

> can.  if I am out of line with my concern then i can be at peace.  i just

can't

> yet come to terms with this birth control pill being in her best interest.

>

>   thanks,  Jay

>

[Guest guest]

Dear Cheryl,

Our kids have executive function deficits in general, and this might be a case

where she needs some help  to learn how to organize her time. Does she have a

watch? You might teach her to set it up so that her watch alarm goes off 5

minutes prior to the bell, so she has time to wrap up what she is drawing. 

Sometimes my dd has this issue of needing to complete something, and a little

advance warning has smoothed out some these problems. Just a thought,

Rose

Re: Teen years

 

My 15½ yr old dd is home from school with a bug today, I asked her for

ideas.

She is so sad for your daughter. She said your daughter must not look

forward to her classes at all! She asks if it is possible your daughter is

being picked on in the hall which slows her down, or in the class so she

dreads going there?

Allie wondered if you could tie getting to class on time to something at

school, like deserts at lunch. That might help her want to do better, she

says. :-)

Sandi [in Houston]

In a message dated 2/9/2011 3:10:11 P.M. Central Standard Time,

cmsommerfeld@... writes:

my only thoughts of putting my almost 17 year old on the pill would be so

i know when her pmt is about to hit. the week before her periods she is so

irratic, i can usually

pick the week, but it would be helpful to teachers. i doubt i would get

her to swallow the pill, even though its so tiny....

This school year hasn't started well, she is progressively getting slower

and slower in getting to her classes. i really don't know why this is

happening. Is it her way of saying she has

had enough of school? If there was some program out there for this age, i

would consider taking her out of school for this, but from all i have

found, they cannot offer anything

until the age of 18.......the special needs co-ordinator is emailing me

telling me of her lateness and says she is considering putting her on

detention...!!!!! i emailed back and said do you really think this would do

anything? she has no friends, is not social, she would probably think it great

to

sit in a classroom alone!..............i feel like screaming this morning,

i really do.

Cheryl S [chez]

[Guest guest]

yes, she has a watch, and when its to her benefit, she uses it quite well, her

aide only commented this to me yesterday. The teachers even tell her in most

classes when she has 5 mins to go, but she refuses to begin to pack up, if she

is in the middle of her drawing or whatever she is doing......i just keep

telling her each morning she has to try and be on time, as it makes me

happy......and not to make me sad, this works sometimes.

Cheryl S [chez]

To: Autism_in_Girls_and_Women

From: rbcphd@...

Date: Thu, 10 Feb 2011 07:37:09 -0800

Subject: Re: Teen years

Dear Cheryl,

Our kids have executive function deficits in general, and this might be a case

where she needs some help to learn how to organize her time. Does she have a

watch? You might teach her to set it up so that her watch alarm goes off 5

minutes prior to the bell, so she has time to wrap up what she is drawing.

Sometimes my dd has this issue of needing to complete something, and a little

advance warning has smoothed out some these problems. Just a thought,

Rose

Re: Teen years

My 15½ yr old dd is home from school with a bug today, I asked her for

ideas.

She is so sad for your daughter. She said your daughter must not look

forward to her classes at all! She asks if it is possible your daughter is

being picked on in the hall which slows her down, or in the class so she

dreads going there?

Allie wondered if you could tie getting to class on time to something at

school, like deserts at lunch. That might help her want to do better, she

says. :-)

Sandi [in Houston]

In a message dated 2/9/2011 3:10:11 P.M. Central Standard Time,

cmsommerfeld@... writes:

my only thoughts of putting my almost 17 year old on the pill would be so

i know when her pmt is about to hit. the week before her periods she is so

irratic, i can usually

pick the week, but it would be helpful to teachers. i doubt i would get

her to swallow the pill, even though its so tiny....

This school year hasn't started well, she is progressively getting slower

and slower in getting to her classes. i really don't know why this is

happening. Is it her way of saying she has

had enough of school? If there was some program out there for this age, i

would consider taking her out of school for this, but from all i have

found, they cannot offer anything

until the age of 18.......the special needs co-ordinator is emailing me

telling me of her lateness and says she is considering putting her on

detention...!!!!! i emailed back and said do you really think this would do

anything? she has no friends, is not social, she would probably think it great

to

sit in a classroom alone!..............i feel like screaming this morning,

i really do.

Cheryl S [chez]

[Guest guest]

Also, they suggested putting her on detention!!!!, i told them, she would

probably enjoy this, as she isn't social, doesn't talk to others hardly,

and being in a room sitting would probably be great.....i think they will decide

against this idea!

Cheryl S [chez]

To: Autism_in_Girls_and_Women

From: rbcphd@...

Date: Thu, 10 Feb 2011 07:37:09 -0800

Subject: Re: Teen years

Dear Cheryl,

Our kids have executive function deficits in general, and this might be a case

where she needs some help to learn how to organize her time. Does she have a

watch? You might teach her to set it up so that her watch alarm goes off 5

minutes prior to the bell, so she has time to wrap up what she is drawing.

Sometimes my dd has this issue of needing to complete something, and a little

advance warning has smoothed out some these problems. Just a thought,

Rose

Re: Teen years

My 15½ yr old dd is home from school with a bug today, I asked her for

ideas.

She is so sad for your daughter. She said your daughter must not look

forward to her classes at all! She asks if it is possible your daughter is

being picked on in the hall which slows her down, or in the class so she

dreads going there?

Allie wondered if you could tie getting to class on time to something at

school, like deserts at lunch. That might help her want to do better, she

says. :-)

Sandi [in Houston]

In a message dated 2/9/2011 3:10:11 P.M. Central Standard Time,

cmsommerfeld@... writes:

my only thoughts of putting my almost 17 year old on the pill would be so

i know when her pmt is about to hit. the week before her periods she is so

irratic, i can usually

pick the week, but it would be helpful to teachers. i doubt i would get

her to swallow the pill, even though its so tiny....

This school year hasn't started well, she is progressively getting slower

and slower in getting to her classes. i really don't know why this is

happening. Is it her way of saying she has

had enough of school? If there was some program out there for this age, i

would consider taking her out of school for this, but from all i have

found, they cannot offer anything

until the age of 18.......the special needs co-ordinator is emailing me

telling me of her lateness and says she is considering putting her on

detention...!!!!! i emailed back and said do you really think this would do

anything? she has no friends, is not social, she would probably think it great

to

sit in a classroom alone!..............i feel like screaming this morning,

i really do.

Cheryl S [chez]

[Guest guest]

Dear Cheryl,

Maybe she needs some motivation. What do they usually do in school to motivate

her to do work that she doesn't wish to do? I would suggest that the school find

a " carrot " , as the " stick " they wish to use doesn't sound like it will work.

Rose

Re: Teen years

 

My 15½ yr old dd is home from school with a bug today, I asked her for

ideas.

She is so sad for your daughter. She said your daughter must not look

forward to her classes at all! She asks if it is possible your daughter is

being picked on in the hall which slows her down, or in the class so she

dreads going there?

Allie wondered if you could tie getting to class on time to something at

school, like deserts at lunch. That might help her want to do better, she

says. :-)

Sandi [in Houston]

In a message dated 2/9/2011 3:10:11 P.M. Central Standard Time,

cmsommerfeld@... writes:

my only thoughts of putting my almost 17 year old on the pill would be so

i know when her pmt is about to hit. the week before her periods she is so

irratic, i can usually

pick the week, but it would be helpful to teachers. i doubt i would get

her to swallow the pill, even though its so tiny....

This school year hasn't started well, she is progressively getting slower

and slower in getting to her classes. i really don't know why this is

happening. Is it her way of saying she has

had enough of school? If there was some program out there for this age, i

would consider taking her out of school for this, but from all i have

found, they cannot offer anything

until the age of 18.......the special needs co-ordinator is emailing me

telling me of her lateness and says she is considering putting her on

detention...!!!!! i emailed back and said do you really think this would do

anything? she has no friends, is not social, she would probably think it great

to

sit in a classroom alone!..............i feel like screaming this morning,

i really do.

Cheryl S [chez]

[Guest guest]

Sometimes having a hard time transitioning is due to our kids' OCD &

perfectionism. It sounds like she really wants to finish what she's doing

first. Sometimes it helps having a place kids can put their unfinished work

and the assurance that they'll get an opportunity to finish it later (like

at lunch or at home.) Think of it like the way we use a book mark -- it's a

place holder so we know we can pick right back up where we left off.

I had one student who always wanted to tell people immediately about the

important things he was thinking up. He interrupted his teachers & bugged

his mom a lot. He said if he waited to tell people then he would forget it.

So we had him start carrying around a notebook where he could write his

ideas down when he had them, then he could save them up to share them later.

You might try giving her a special folder she can put her unfinished work in

and pick a time when she can finish it. That way she won't feel like she's

abandoning it. You can use it in combination with charts & rewards, too.

If you try this, let me know if it works. Good luck!

-- Cassie

Re: Teen years

I would not put any young child on the pill unless it was absolutely

necessary

mine is 15 and has to see an endocrinologist soon, if you haven't done so

yet I would advise it

we had NO clue her levels were so off until the asthma dr ordered more

blood work due to her extreme acne that no medication is helping and a choir

teacher saying her voice lowered in the 7th grade

her hemoglobin is higher than normal and her testosterone level is 27.8 the

highest is should ever be is 9.2

its scary not knowing what is going on with our kids

sadly mine is verbal and understands everything

they are thinking its pcos

[Guest guest]

Yes, thanks cassie. For years now she has been taking a folder to do her

drawings, supposedly after she has finished an attempt at her work. this working

for the last 2 years well, but some of last year, and now the beginning of this

year, she is getting very upset, if she cannot finish her drawing. We have

suggested, finishing it later, her aide the other day told her that all the

teachers have trouble finishing their things too, and her eyes lit up at

this....maybe in her mind she thinks we all get everything done, only she

wasn't......not sure. Anyway, i just got an email saying she wasn't too bad

today, as they put her by herself for a bit and she seemed to stay on task with

some of her work, instead of watching the other kids..... i guess we will see

what happens next week......

Cheryl S [chez]

To: Autism_in_Girls_and_Women

From: czupke@...

Date: Thu, 10 Feb 2011 14:00:37 -0800

Subject: RE: Teen years

Sometimes having a hard time transitioning is due to our kids' OCD &

perfectionism. It sounds like she really wants to finish what she's doing

first. Sometimes it helps having a place kids can put their unfinished work

and the assurance that they'll get an opportunity to finish it later (like

at lunch or at home.) Think of it like the way we use a book mark -- it's a

place holder so we know we can pick right back up where we left off.

I had one student who always wanted to tell people immediately about the

important things he was thinking up. He interrupted his teachers & bugged

his mom a lot. He said if he waited to tell people then he would forget it.

So we had him start carrying around a notebook where he could write his

ideas down when he had them, then he could save them up to share them later.

You might try giving her a special folder she can put her unfinished work in

and pick a time when she can finish it. That way she won't feel like she's

abandoning it. You can use it in combination with charts & rewards, too.

If you try this, let me know if it works. Good luck!

-- Cassie

Re: Teen years

I would not put any young child on the pill unless it was absolutely

necessary

mine is 15 and has to see an endocrinologist soon, if you haven't done so

yet I would advise it

we had NO clue her levels were so off until the asthma dr ordered more

blood work due to her extreme acne that no medication is helping and a choir

teacher saying her voice lowered in the 7th grade

her hemoglobin is higher than normal and her testosterone level is 27.8 the

highest is should ever be is 9.2

its scary not knowing what is going on with our kids

sadly mine is verbal and understands everything

they are thinking its pcos

[Guest guest]

I'm older than your daughter and still not toilet trained myself.It

might be frustrating but that's something that can't be rushed

Teen years

Date: Tue, 08 Feb 2011 13:06:43 CST

 

i have an eight year old little girl with autism, she isnt potty

trained. we have been trying to get her trained for the past 4 years.

i am so worried about what were going to do when she starts

developing anyone have any advice?

--

You Rock! Your E-Mail Should Too! Signup Now at Rock.com and get 2GB of Storage!

http://connections.rock.com/user/displayUserRegisterPage.kickAction?as=116748 & ST\

ATUS=MAIN

[Guest guest]

I would find a developmental ped to work with you

every child should be able to be taught to use the restroom it is a

lifeskill

mine was fully trained by 4 with NO issues

I put her in undies starting at 2 1/2 and we never went back to diapers,

yes there were accidents but it was an expectation that she use the restroom