Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Hi. I am new to this site although I regularly read and post on other sites related to Autism. I have a 6 year old girl w/PDD Nos. Cognitively bright and not too behind but has terrible allergies, and behavior problems. How does someone begin. We see a DAN practitioner already. Use the DAN protocol and chelating with B-12 shots, Ala cream and to start Gluthianone supps next week or 2. Any help would be appreciated. Jeneane Houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 What diet are you on? My son age 5 with autism, has such terrible allergies, I had to start feeding him exotic foods, like duck, rabbit, alligator, some fish, basically no carbs. Only endive, jicama, leeks, stuff like that. Some occasional apple, and grapes but not much, and he only drinks water. I kow it sounds very restrictive, but he acts like a wild man if he goes off the diet at all. I am looking for relief, like the naet therapy, and ept therapy to help. Good luck, Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 Basically we are gluten free/casein free and limit phenols and try and be selective about Carbs but she still eats way more than I would like. I never thought about different meats mainly because we struggel with feeding any meet. Recently we have had some success with dinobytes chicken nuggets, ground beef, pork sausage. Maybe rabbit and gator may be a good thing However we have serious problems with aggression so suspect other allergies Thanks Jeneane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 aggression is my sons problem. Everytime he eats, we hold our breath, even though he is so restrictive, he still has problems with what I am giving him at times. It is never ending, and I can't seem to get any relief from anywhere. He has problems with B vitamins, we are working on the gut, I don't know if he is taking the right thing, he is on amphecertin B, seemed better for a while, but now he still is having some good days and some BAD days, and I don't know what to do. Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 Hi aamenten, Welcome to the board.I have SPMS and have had MS for 23 years. LDN stops progression and some people have some symptom improvement. I was one of those people. It took away 98% of my pain so now I can handle to 2% with asprin. It took away my fatigue and I can walk without assistance when I was using a walker to get around the house.Alot of symptoms went away when I stopped taking Betaseron. If you are taking a narcotic pain killer, you have to go off of it at least a week before starting LDN. Hope all is well, Kathy__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Carolyn, Welcome. I know I am late in replying, but wanted to know how the evaluation at CT went. Which location did you go to? My son's website is www.mybandedbaby.typepad.com if you would like to read about our treatment with CT in ndale Va. CAROLG > > Hi, > > > > My four-month-old son was born breech with torticollis and plagiocephaly > (flattening and facial asymmetry - eyes and ears) on 11/03/05. We were > lucky. Our pediatrician diagnosed him when he was a week old with it. > We've been seeing a physical therapist for five weeks now and I've been > regularly doing various arm, neck, head and shoulder exercises for 4-5 times > a day. We're seeing someone at cranial technology tomorrow to determine > whether a band is warranted or not (first assessment). > > > > I've been finding the various exercises, pt and doctors' visits > overwhelming, but have found this site to be a great source of support. > It's a relief to me knowing that other mothers are tearing their hair out > from the exercises, pt, and comments from family, friends, and strangers. > I, too, wanted to scream when people say, " oh, it's not too bad. " Sure, > it's not their baby and they're not dealing with their baby crying when you > lay him down to turn his head or taking them to a physical therapist twice a > week and watching him shriek there. > > > > I'm really thankful for the comments and advice about cranial technology and > plagiocephaly. Whoever made the comparison to dental braces with the band > deserves a big hug from me because it did reduce some of my fears and > anxieties. I'm hoping that cranial technology will say that a band is > warranted to correct my son's head. I know my son has mild plagiocephaly, > but I can't see how his eyes and ears will become symmetrical with physical > therapy alone. > > > > Thanks, > > > > Carolyn Fox in NYC > > Mum to Malcolm Fox 11/3/05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Carolyn, Welcome. I know I am late in replying, but wanted to know how the evaluation at CT went. Which location did you go to? My son's website is www.mybandedbaby.typepad.com if you would like to read about our treatment with CT in ndale Va. CAROLG > > Hi, > > > > My four-month-old son was born breech with torticollis and plagiocephaly > (flattening and facial asymmetry - eyes and ears) on 11/03/05. We were > lucky. Our pediatrician diagnosed him when he was a week old with it. > We've been seeing a physical therapist for five weeks now and I've been > regularly doing various arm, neck, head and shoulder exercises for 4-5 times > a day. We're seeing someone at cranial technology tomorrow to determine > whether a band is warranted or not (first assessment). > > > > I've been finding the various exercises, pt and doctors' visits > overwhelming, but have found this site to be a great source of support. > It's a relief to me knowing that other mothers are tearing their hair out > from the exercises, pt, and comments from family, friends, and strangers. > I, too, wanted to scream when people say, " oh, it's not too bad. " Sure, > it's not their baby and they're not dealing with their baby crying when you > lay him down to turn his head or taking them to a physical therapist twice a > week and watching him shriek there. > > > > I'm really thankful for the comments and advice about cranial technology and > plagiocephaly. Whoever made the comparison to dental braces with the band > deserves a big hug from me because it did reduce some of my fears and > anxieties. I'm hoping that cranial technology will say that a band is > warranted to correct my son's head. I know my son has mild plagiocephaly, > but I can't see how his eyes and ears will become symmetrical with physical > therapy alone. > > > > Thanks, > > > > Carolyn Fox in NYC > > Mum to Malcolm Fox 11/3/05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Hey there Carol. I just read that you all received your treatment in ndale, VA. The N. VA area is my old stomping grounds, as I grew up in Falls Church, VA. My Mom's still there and we get back regularly. I sure wish we had a CT here in rural TN or in Nashville at least! I'm going to the craniofacial specialist tomorrow for Syd's evaluation. Based on your experience, are there a few "must ask" questions that I should be sure to inquire about, but might have missed based on my being new to this whole deal? I really appreciate your and the input of any other parents. People keep referring to forehead bossing. What is this exactly? Sydney has two very prominent bones on either side of her head. One is more pronounced than the other. Is this bossing? Thanks! Best, "Carol G." <GATTVA@...> wrote: Carolyn,Welcome. I know I am late in replying, but wanted to know how the evaluation at CT went. Which location did you go to? My son's website is www.mybandedbaby.typepad.com if you would like to read about our treatment with CT in ndale Va. CAROLG>> Hi,> > > > My four-month-old son was born breech with torticollis and plagiocephaly> (flattening and facial asymmetry - eyes and ears) on 11/03/05. We were> lucky. Our pediatrician diagnosed him when he was a week old with it.> We've been seeing a physical therapist for five weeks now and I've been> regularly doing various arm, neck, head and shoulder exercises for 4-5 times> a day. We're seeing someone at cranial technology tomorrow to determine> whether a band is warranted or not (first assessment).> > > > I've been finding the various exercises, pt and doctors' visits> overwhelming, but have found this site to be a great source of support.> It's a relief to me knowing that other mothers are tearing their hair out> from the exercises, pt, and comments from family, friends, and strangers.> I, too, wanted to scream when people say, "oh, it's not too bad." Sure,> it's not their baby and they're not dealing with their baby crying when you> lay him down to turn his head or taking them to a physical therapist twice a> week and watching him shriek there.> > > > I'm really thankful for the comments and advice about cranial technology and> plagiocephaly. Whoever made the comparison to dental braces with the band> deserves a big hug from me because it did reduce some of my fears and> anxieties. I'm hoping that cranial technology will say that a band is> warranted to correct my son's head. I know my son has mild plagiocephaly,> but I can't see how his eyes and ears will become symmetrical with physical> therapy alone. > > > > Thanks,> > > > Carolyn Fox in NYC> > Mum to Malcolm Fox 11/3/05> Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Hey there Carol. I just read that you all received your treatment in ndale, VA. The N. VA area is my old stomping grounds, as I grew up in Falls Church, VA. My Mom's still there and we get back regularly. I sure wish we had a CT here in rural TN or in Nashville at least! I'm going to the craniofacial specialist tomorrow for Syd's evaluation. Based on your experience, are there a few "must ask" questions that I should be sure to inquire about, but might have missed based on my being new to this whole deal? I really appreciate your and the input of any other parents. People keep referring to forehead bossing. What is this exactly? Sydney has two very prominent bones on either side of her head. One is more pronounced than the other. Is this bossing? Thanks! Best, "Carol G." <GATTVA@...> wrote: Carolyn,Welcome. I know I am late in replying, but wanted to know how the evaluation at CT went. Which location did you go to? My son's website is www.mybandedbaby.typepad.com if you would like to read about our treatment with CT in ndale Va. CAROLG>> Hi,> > > > My four-month-old son was born breech with torticollis and plagiocephaly> (flattening and facial asymmetry - eyes and ears) on 11/03/05. We were> lucky. Our pediatrician diagnosed him when he was a week old with it.> We've been seeing a physical therapist for five weeks now and I've been> regularly doing various arm, neck, head and shoulder exercises for 4-5 times> a day. We're seeing someone at cranial technology tomorrow to determine> whether a band is warranted or not (first assessment).> > > > I've been finding the various exercises, pt and doctors' visits> overwhelming, but have found this site to be a great source of support.> It's a relief to me knowing that other mothers are tearing their hair out> from the exercises, pt, and comments from family, friends, and strangers.> I, too, wanted to scream when people say, "oh, it's not too bad." Sure,> it's not their baby and they're not dealing with their baby crying when you> lay him down to turn his head or taking them to a physical therapist twice a> week and watching him shriek there.> > > > I'm really thankful for the comments and advice about cranial technology and> plagiocephaly. Whoever made the comparison to dental braces with the band> deserves a big hug from me because it did reduce some of my fears and> anxieties. I'm hoping that cranial technology will say that a band is> warranted to correct my son's head. I know my son has mild plagiocephaly,> but I can't see how his eyes and ears will become symmetrical with physical> therapy alone. > > > > Thanks,> > > > Carolyn Fox in NYC> > Mum to Malcolm Fox 11/3/05> Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
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