Sad News

[Guest guest]

>

> Just read with some sadness that Travolta's son Jett has died

> at age 16. This is his son who is Autistic but refuses to

> believe it. Apparently his lack of belief is due to scientology.

>

> Anyway no matter what its always sad to hear of kids passing away.

> They are blaming a siezure that caused him to hit his head in the

> bath. Poor family.

>

>

Very, very sad. The most ironic thing about this is that due to their

affiliation with the Church of Scientology, they did not acknowledge

any neurological or behavioral issues with Jett. And yet, according

to Scientology teachings, Jett had been given the status of

" degraded " , where the church claimed he could cure himself by

working harder on the church's teachings. Huh? So they don't want to

call him autistic, but " degraded " is ok? He was alleged to have

Kawasaki disease, but that is certainly not mutually exclusive with

autism.

[Guest guest]

Hi

 

I much prefer my 2 kids called Autistic than degraded. I think I would end up on

assault and battery charges if someone dared call my children degraded. Only

degraded ones are those who believe a child with any medical condition can " fix "

themselves. Some try with drug and alcohol abuse but it never really fixes

anything  it just causes many many more issues.

 

Least where Jett is now he is loved and accepted quirks and all.

 

> Just read with some sadness that Travolta's son Jett has died

> at age 16. This is his son who is Autistic but refuses to

> believe it. Apparently his lack of belief is due to scientology.

>

> Anyway no matter what its always sad to hear of kids passing away.

> They are blaming a siezure that caused him to hit his head in the

> bath. Poor family.

>

>

Very, very sad. The most ironic thing about this is that due to their

affiliation with the Church of Scientology, they did not acknowledge

any neurological or behavioral issues with Jett. And yet, according

to Scientology teachings, Jett had been given the status of

" degraded " , where the church claimed he could cure himself by

working harder on the church's teachings. Huh? So they don't want to

call him autistic, but " degraded " is ok? He was alleged to have

Kawasaki disease, but that is certainly not mutually exclusive with

autism.

[Guest guest]

I just found a new news release that says apparently Jett was last seen going

into the bathroom on Thursday and was found by a caretaker on the bathroom floor

Friday afternoon ? Now surely you would notice your child missing for 24hours?

 

http://au.news.yahoo.com/a/-/entertainment/5242461/john-travoltas-teen-son-dies-\

bahamas/

 

Thats just pathetic that such as special needs child can disappear for 24 hours

and not even raise alarm bells for his so called parents.

 

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[Guest guest]

Yeah, some " caretaker " . People give me a hard time about keeping

such close tabs on all the time, but they can seriously stuff it.

> I just found a new news release that says apparently Jett was last

> seen going into the bathroom on Thursday and was found by a

> caretaker on the bathroom floor Friday afternoon ? Now surely you

> would notice your child missing for 24hours?

>

> http://au.news.yahoo.com/a/-/entertainment/5242461/john-travoltas-

> teen-son-dies-bahamas/

>

> Thats just pathetic that such as special needs child can disappear

> for 24 hours and not even raise alarm bells for his so called parents.

>

>

>

[Guest guest]

That's horrible, I just ran into one of 's classmates and parents at

Sam's today and we got to talking about the seizures and were actually

talking about the dangers of her being alone in a bathroom.

I know at 16 that it may be difficult if they are pushing for privacy, but

it's just so dangerous to allow them in the bathroom alone when seizures are

involved.

A teenage girl in my mother's area died recently much the same way! I don't

remember the full details but the parents had always told her to not lock

the door, but like many teenagers - she didn't always listen. She was

supposed to be going to her room to read or something and instead went to

take a bath and didn't tell anyone. The parents we're leaving for work or

something and told the brother that she was in her room so he never thought

to check on her and she had a seizure in the bathtub and drowned

My mom called me just to double check that I never leave alone in

the bathtub. Which I never do. If I must step out while she is in the bath

then I call someone else to come and sit with her till I can get back. She

has had a sizure in the bathtub before, so I know just how quick it can

happen and what can happen if someone is not right there!

It's terrible that their denial of his health problems have led to them

neglecting his well being and now his death. What a terrible way to learn

that lesson. I'm glad he's in a better place now where his differences will

be welcome.

Theresa

>

> Just read with some sadness that Travolta's son Jett has died at

> age 16. This is his son who is Autistic but refuses to believe it.

> Apparently his lack of belief is due to scientology.

>

> Anyway no matter what its always sad to hear of kids passing away. They are

> blaming a siezure that caused him to hit his head in the bath. Poor family.

>

>

>

> Stay connected to the people that matter most with a smarter inbox. Take a

> look http://au.docs.yahoo.com/mail/smarterinbox

>

>

[Guest guest]

Yeah I agree

 

My Tim is almost 12 he doesnt have seizures but he does have fainting spells and

the like. so even when out I always find a disabled toilet or mothers room and

go to the door with him and he is not allowed to lock it.

 

My kids still have me in the bathroom and usually do until about 6 or 7 and even

then I am never far away for more than 2 or 3 minutes at a time. And never ever

leave them if they are not well.

 

I always tell people " you dont like my parenting I dont like your unwanted

comments advice or disapproval if it keeps my kid alive then so be it " . Not to

mention everything thats a danger in public restrooms these days. My kids will

be lucky to ever go potty without me being there ever again.

 

> I just found a new news release that says apparently Jett was last

> seen going into the bathroom on Thursday and was found by a

> caretaker on the bathroom floor Friday afternoon ? Now surely you

> would notice your child missing for 24hours?

>

> http://au.news. yahoo.com/ a/-/entertainmen t/5242461/ john-travoltas-

> teen-son-dies- bahamas/

>

> Thats just pathetic that such as special needs child can disappear

> for 24 hours and not even raise alarm bells for his so called parents.

>

>

>

Stay connected to the people that matter most with a smarter inbox. Take a

look http://au.docs.yahoo.com/mail/smarterinbox

[Guest guest]

I'm so very saddened by this fire news as well as Jett. We just got

back from my grandmother's log cabin where Allie evidently accidently

almost set it on fire. This is a cabin that was built in the 1860's,

one of those two room deals with the breezeway & separate kitchen

that's been joined together over the years. She evidently very early

this morning while we were all sleeping got up & decided to burn a box

from a gift in the gas log fireplace & when it didn't burn like a

regular wood place she must have tried to carry it to the bathroom but

dropped it. Thankfully Uncle Jim saw it smoldering before it went into

a full flame, it would have taken it about 5 minutes to poof away with

us all in it.

The worst part, other than the burns in the hardwood flooring, was my

aunt & uncle's reaction. I guess I should be thankful they weren't

mean, but they were all about how dangerous the " situation " is with

Allie's lack of fear. I honestly don't think it was a true lack of

fear but a plan gone awry & her trying to fix it, just like any other

kid, but having autism she was held to a higher standard. If it was

any other small child it would have been a normal childlike behavior,

but since she's older & has autism, it's a lack of perceiving danger.

Seems to me her trying to take it to the bathroom showed her ability

to try & take care of it. Heck, when I was 14 I accidently caught a

skillet on fire, what did I do, try to take it out back until it got

too hot & I dropped i on our kitchen floor. But with me it was a bad

idea or being a teen, with her it's labeled something worse.

Anyway, reading of a house fire concerning another autism family after

just coming home really hits home tonight, thanks for letting me vent.

Also reading Jett's death hits home, too, as I told my aunt & uncle

during their emotion debriefing, " My child may die young from some

sort of accident, it happens far more than outsiders realize, it's the

nature of the beast. " Seizures, lack of communication to teach/ask for

help, etc.

Debi

[Guest guest]

Debi

 

I think ALL kids have done things like that.I remember being a teen in a hurry

to go out and pressing my skirt ,whilst wearing it and getting 2nd degree burns

to my leg. But once I burnt my leg what did I do I dropped the iron onto the

linoluem flooring and burnt that was well.

 

But yes everyone single person here on these boards understand where your coming

from and hearing about Jett just reinforces it. Yesterday whilst out walking

with Amy (low functioning) she seen a beautiful kitten across the road , she

wanted to pat it so what does she do RUN. Thankfully we always walk the same way

and the people generally know us. But Amy ran straight behind a car that was

reversing to get to the kitten. She had no fear of the car hitting her it was

all about playing with the kitten. Same as her need to mouth things in stores or

in the streets to see what they are do etc. We have to be SUPER alert to whats

going in her mouth.

 

But I am surely preaching to the choir here. I just wish our families would hear

the words we say sometimes.

 

Subject: Re: Sad News

To: Autism_in_Girls

Received: Saturday, 3 January, 2009, 3:10 PM

I'm so very saddened by this fire news as well as Jett. We just got

back from my grandmother' s log cabin where Allie evidently accidently

almost set it on fire. This is a cabin that was built in the 1860's,

one of those two room deals with the breezeway & separate kitchen

that's been joined together over the years. She evidently very early

this morning while we were all sleeping got up & decided to burn a box

from a gift in the gas log fireplace & when it didn't burn like a

regular wood place she must have tried to carry it to the bathroom but

dropped it. Thankfully Uncle Jim saw it smoldering before it went into

a full flame, it would have taken it about 5 minutes to poof away with

us all in it.

The worst part, other than the burns in the hardwood flooring, was my

aunt & uncle's reaction. I guess I should be thankful they weren't

mean, but they were all about how dangerous the " situation " is with

Allie's lack of fear. I honestly don't think it was a true lack of

fear but a plan gone awry & her trying to fix it, just like any other

kid, but having autism she was held to a higher standard. If it was

any other small child it would have been a normal childlike behavior,

but since she's older & has autism, it's a lack of perceiving danger.

Seems to me her trying to take it to the bathroom showed her ability

to try & take care of it. Heck, when I was 14 I accidently caught a

skillet on fire, what did I do, try to take it out back until it got

too hot & I dropped i on our kitchen floor. But with me it was a bad

idea or being a teen, with her it's labeled something worse.

Anyway, reading of a house fire concerning another autism family after

just coming home really hits home tonight, thanks for letting me vent.

Also reading Jett's death hits home, too, as I told my aunt & uncle

during their emotion debriefing, " My child may die young from some

sort of accident, it happens far more than outsiders realize, it's the

nature of the beast. " Seizures, lack of communication to teach/ask for

help, etc.

Debi

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look http://au.docs.yahoo.com/mail/smarterinbox

[Guest guest]

In a message dated 1/2/2009 9:03:39 P.M. Eastern Standard Time,

cathybuckley@... writes:

but they can seriously stuff it.

preach on. I don't care if people think Jim weird cause I ask every 5 min

if abbys ok if I cant see her..its called epilepsy. you keep tabs on them.

abbys dad

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