Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 In a message dated 5/19/2005 8:59:47 AM Central Daylight Time, debbiewilliams777@... writes: Does anyone know of anyone else who had so much pain with the LDN because of the stiffness and associated discomfort that they had to quit LDN? I have tried Milk thistle, Magnesium, massage, waiting it out. Sometimes I can't even stand, I have that much pain. At first (first 2 weeks) I had improvements in balance, fine motor, bowel function, and movement of my more affected leg. After that the pain started to where now I am on 1000mg Tylenol and 1600mg Motrin a day for the pain and that is not doing the job. I am not doing a good job of living because I am so preoccupied with the pain. And I worry about contractures. Has anyone contracted because of the LDN and permantly lost range of motion from the side effects? I don't want to stop, bvut I need reassurance that these things happen. I guess next I will try the 10 days on and 2 days off. I need relief! Any input would help. Thanks. Deb ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Deb, It is possible that this is your path of progression. Just remember; the new symptoms didn't just appear due to LDN. They just hadn't manifested until that very point in time. (They were below the surface, so to speak.) It took me twenty years to have my first symptom (ON) after a very emotionally traumatic event at age 17. Basically, I had Post Traumatic Stress Disorder and after 18 - 20 years, doctors could call it MS. I, too, am in terrible pain 24/7. (Good thing I have a high tolerance), but I have been for 6 years. I could handle the pain, maybe, if I could stand, balance, and walk. At this point, I would accept walking with assistance (walker or cane, or crutches.) Life in pain AND in the wheelchair is VERY restricting. Hang in there!!! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 In a message dated 5/19/2005 10:29:08 AM Central Daylight Time, marciemjm@... writes: Deb, It is possible that this is your path of progression. Just remember; the new symptoms didn't just appear due to LDN. They just hadn't manifested until that very point in time. (They were below the surface, so to speak.) It took me twenty years to have my first symptom (ON) after a very emotionally traumatic event at age 17. Basically, I had Post Traumatic Stress Disorder and after 18 - 20 years, doctors could call it MS. I, too, am in terrible pain 24/7. (Good thing I have a high tolerance), but I have been for 6 years. I could handle the pain, maybe, if I could stand, balance, and walk. At this point, I would accept walking with assistance (walker or cane, or crutches.) Life in pain AND in the wheelchair is VERY restricting. Hang in there!!! +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ BTW, I will not quit LDN for ANYTHING!!! I enjoy not having to go to the restroom every 15 minutes!!! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 Does anyone know of anyone else who had so much pain with the LDN because of the stiffness and associated discomfort that they had to quit LDN? I have tried Milk thistle, Magnesium, massage, waiting it out. Sometimes I can't even stand, I have that much pain. At first (first 2 weeks) I had improvements in balance, fine motor, bowel function, and movement of my more affected leg. After that the pain started to where now I am on 1000mg Tylenol and 1600mg Motrin a day for the pain and that is not doing the job. I am not doing a good job of living because I am so preoccupied with the pain. And I worry about contractures. Has anyone contracted because of the LDN and permantly lost range of motion from the side effects? I don't want to stop, bvut I need reassurance that these things happen. I guess next I will try the 10 days on and 2 days off. I need relief! Any input would help. Thanks. Deb Mobile Take with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 Tried serrapeptase and/or horse chestnut extract? Bruce From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Debbie Sent: Thursday, May 19, 2005 9:53 AM To: low dose naltrexone Subject: [low dose naltrexone] Stopping LDN? Does anyone know of anyone else who had so much pain with the LDN because of the stiffness and associated discomfort that they had to quit LDN? I have tried Milk thistle, Magnesium, massage, waiting it out. Sometimes I can't even stand, I have that much pain. At first (first 2 weeks) I had improvements in balance, fine motor, bowel function, and movement of my more affected leg. After that the pain started to where now I am on 1000mg Tylenol and 1600mg Motrin a day for the pain and that is not doing the job. I am not doing a good job of living because I am so preoccupied with the pain. And I worry about contractures. Has anyone contracted because of the LDN and permantly lost range of motion from the side effects? I don't want to stop, bvut I need reassurance that these things happen. I guess next I will try the 10 days on and 2 days off. I need relief! Any input would help. Thanks. Deb Mobile Take with you! Check email on your mobile phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 > Does anyone know of anyone else who had so much pain with the LDN because of the stiffness and associated discomfort that they had to quit LDN? I have tried Milk thistle, Magnesium, massage, waiting it out. Sometimes I can't even stand, I have that much pain. At first (first 2 weeks) I had improvements in balance, fine motor, bowel function, and movement of my more affected leg. After that the pain started to where now I am on 1000mg Tylenol and 1600mg Motrin a day for the pain and that is not doing the job. > > I am not doing a good job of living because I am so preoccupied with the pain. And I worry about contractures. Has anyone contracted because of the LDN and permantly lost range of motion from the side effects? > > I don't want to stop, bvut I need reassurance that these things happen. I guess next I will try the 10 days on and 2 days off. I need relief! > > Any input would help. Thanks. > > Deb > > ========= Try dropping your dose down to 1.5mg. If you haven't already get yourself tested for Lyme by Western Blot, not the ELISA test. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 In a message dated 5/19/2005 4:14:12 PM Central Daylight Time, roundjujitsu@... writes: I to have thought about quiting,but would like to try milk thistle first. I have cotractures also. I feel much better ON.I am in a WC to. i have a bunch of thngs happen. +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ I am trying Milk Thistle now. I can't say that I am seeing any difference in stiffness, but it may be too soon. I am hopeful though. Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 DID YOU GIVE MASSAGE THERAPY A FAIR CHANCE- SAY ONCE A WEEK FOR 3 MONTHS? DID YOU ALSO DRINK HALF YOU WEIGHTIN OUNCES OF WATER SO THE TOXINS WOULD FLUSH OUT OF THE SYSTEM? HOW ABOUT ACUPUNCTURE? YOU CAN ONLY HAVE INFLAMMATION WHEN GLYCATION IS OCCURRING WHICH CAUSES OXIDATIVE STRESS. ELIMINATE WHITE SUGAR, TAKE DIGESTIVE ENZYMESAND FISH OIL. YOU HAVE TO GET THE INFLAMATION UNDER CONTROL AND REGULATING ENDORPHIN PRODUCTION IS ONE OFTHE STEPS IN ACHEIVING THIS. SOMETHING YOU CAN DO AT HOME WHIC IS FREE IS TOPRACTICE YOGIC BREATHING. IT BRINGS OXYGEN INTO THE BODY WHICH WILL HELP YOU WITH EVERYTHING. KATHY Re: [low dose naltrexone] Stopping LDN? In a message dated 5/19/2005 8:59:47 AM Central Daylight Time, debbiewilliams777@... writes: Does anyone know of anyone else who had so much pain with the LDN because of the stiffness and associated discomfort that they had to quit LDN? I have tried Milk thistle, Magnesium, massage, waiting it out. Sometimes I can't even stand, I have that much pain. At first (first 2 weeks) I had improvements in balance, fine motor, bowel function, and movement of my more affected leg. After that the pain started to where now I am on 1000mg Tylenol and 1600mg Motrin a day for the pain and that is not doing the job. I am not doing a good job of living because I am so preoccupied with the pain. And I worry about contractures. Has anyone contracted because of the LDN and permantly lost range of motion from the side effects? I don't want to stop, bvut I need reassurance that these things happen. I guess next I will try the 10 days on and 2 days off. I need relief! Any input would help. Thanks. Deb ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Deb, It is possible that this is your path of progression. Just remember; the new symptoms didn't just appear due to LDN. They just hadn't manifested until that very point in time. (They were below the surface, so to speak.) It took me twenty years to have my first symptom (ON) after a very emotionally traumatic event at age 17. Basically, I had Post Traumatic Stress Disorder and after 18 - 20 years, doctors could call it MS. I, too, am in terrible pain 24/7. (Good thing I have a high tolerance), but I have been for 6 years. I could handle the pain, maybe, if I could stand, balance, and walk. At this point, I would accept walking with assistance (walker or cane, or crutches.) Life in pain AND in the wheelchair is VERY restricting. Hang in there!!! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2005 Report Share Posted May 19, 2005 I to have thought about quiting,but would like to try milk thistle first. I have cotractures also. I feel much better ON.I am in a WC to. i have a bunch of thngs happen.marciemjm@... wrote: In a message dated 5/19/2005 10:29:08 AM Central Daylight Time, marciemjm@... writes: Deb, It is possible that this is your path of progression. Just remember; the new symptoms didn't just appear due to LDN. They just hadn't manifested until that very point in time. (They were below the surface, so to speak.) It took me twenty years to have my first symptom (ON) after a very emotionally traumatic event at age 17. Basically, I had Post Traumatic Stress Disorder and after 18 - 20 years, doctors could call it MS. I, too, am in terrible pain 24/7. (Good thing I have a high tolerance), but I have been for 6 years. I could handle the pain, maybe, if I could stand, balance, and walk. At this point, I would accept walking with assistance (walker or cane, or crutches.) Life in pain AND in the wheelchair is VERY restricting. Hang in there!!! +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ BTW, I will not quit LDN for ANYTHING!!! I enjoy not having to go to the restroom every 15 minutes!!! Marcie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 Hi , I am taking it for RRMS I am taking the liquid because I cant swallow the capsules. From: Chasey <lindac@...>Subject: RE: [low dose naltrexone] Stopping LDN?low dose naltrexone Date: Monday, January 19, 2009, 8:18 AM Hi Mende, I was wondering what were you taking the LDN for and how come you went with the liquid? I¢m sorry to hear it¢s not working for you and giving you stomach upset. From: low dose naltrexone [mailto:lowdosenalt rexone@grou ps.com] On Behalf Of mendemachadoSent: Monday, January 19, 2009 11:09 AMlow dose naltrexoneSubject: [low dose naltrexone] Stopping LDN? Hi guys, I am thinking of stopping my LDN, it just is not helping me. I know it is too soon to tell almost after two months but I feel more tired and have been in bed most of the day since taking it. It has also caused major stomach pains for me. Do I have to slowly get off of it or can i just stop? My doctor is not real knowledgeable of this Med. It is also causing me to get a Yeat infection... any help would be great.I take the liquid at 3Ml per night.Best Wishes,Mende Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 You may stop LDN anytime you wish. No need to taper off. Why you may get increased symptoms in first 3 months on LDN http://tinyurl.com/3evp7x Why some May have problems with or fail LDN: http://tinyurl.com/52ol6m Check yourself for Candida(yeast overgrowth)... http://tinyurl.com/48ds6l Lyme mimics so many autoimmune system illnesses: http://tinyurl.com/5z8mur Art --- > > Hi guys, I am thinking of stopping my LDN, it just is not helping me. I > know it is too soon to tell almost after two months but I feel more > tired and have been in bed most of the day since taking it. It has also > caused major stomach pains for me. Do I have to slowly get off of it or > can i just stop? My doctor is not real knowledgeable of this Med. It is > also causing me to get a Yeat infection...any help would be great.I > take the liquid at 3Ml per night. > > Best Wishes, > Mende > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 > > Hi guys, I am thinking of stopping my LDN, it just is not helping me. I > know it is too soon to tell almost after two months but I feel more > tired and have been in bed most of the day since taking it. It has also > caused major stomach pains for me. Do I have to slowly get off of it or > can i just stop? My doctor is not real knowledgeable of this Med. It is > also causing me to get a Yeat infection...any help would be great.I > take the liquid at 3Ml per night. > > Best Wishes =========== Ahhh...the yeast infection tells us why you feel bad on LDN. LDN will bring a candida yeast overgrowth problem to the forefront making you feel worse. If you will clean up the yeast problem the LDN should kick in. Check into Threelac, lots of people have used it when their LDN has stopped working due to candida yeast infection. it works well and LDN has kicked right back in for many who have combatted their yeast problem. LDN is actually showing you a problem that needs treating. Google search threelac Quote Link to comment Share on other sites More sharing options...
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