Re: getting better

[Guest guest]

Sounds as if your fine Carole my first flare was pretty fantastic as well close if not up to par with my onset.This time around i beleive the ER helped tremendously at least for me,because i acually did not know i was in a flare it was caught early enough that an increase in prednisone was able to control it.I have had the headaches you speak of they are terrible and acually double in seveity i find when the fever is active(isnt it extreme releif if not for a little while when those fevers break yeah i still remember but im tryin to put that behind me i hope lol).Dont beleive i have had the paronoid thoughts on prednisone though just sometimes can make me feel really blue then next moment im happy frikkin weird man thankful that was only on the high dose though.You take care im glad your feeling better & gl with work EH!!!! d.Canada

getting better

Hi Stilligans,

Hello to the new folks and hang in there to the old.

I'm doing 100% better than the last time I wrote. After going back up to 40mgs pred from 2mgs, I'm back down to 20mgs now and I'll be calling the doctor tomorrow. I also increased my mtx from 2 to 6 tablets/wk. I also added back the arava. Except for the sleep, I'm doing pretty well for the most part and worked the whole week last week for the first time in a month.

I don't know that I was AS bad as when I first got sick but it seemed like such a surprise to me to get sick again. But I had the rash, the fever, the sweats, the swollen glands, swollen joints and a new one for me, unbelievable headaches. It felt like a tightening vice on my skull. The doc increased me zoloft as well because I was feeling suicidal - kind of. Nothing active, just more like, "OK, I'm ready, this is just too damned hard. Are you listening Upstairs????" Plus, does anyone else get incredibly paranoid when on high steroids? Boy I sure did, asking Al a million times a day if he still loved me. Now that I'm down to 20mgs pred, I'm back to 100mgs zoloft and doing just fine again, but boy I hate that. Maybe it didn't feel as bad as the first big flare cuz during the first flair, I had nothing to compare it to. This time around, I immediately increased the meds and felt some difference instantly even though it wasn't be And I cried to Al that I couldn't wait for him to feel fulfilled in a job, we needed to be able to pay rent, insurance, and drugs. He went groveling for his old job back with me and my boss let him come back. Thank G-dness he doesn't seem defeated or angry, it's more like, "you know, maybe I'm tired of running my head into a wall as well" and he seems to have a terrific attitude now.

I was having some chest pains recently that I hadn't told Al about cuz I know he'd want to take me to the ER and I won't go back there again. So when I finally confided to him that I had lied to him about the chest pains, we had a very interesting chat. Turns out that I don't trust him to not put me in the hospital and rather than tell him how badly I feel, I get mad at him. Brilliant. By the time I realized I was doing that, I confessed and felt all better. Although now he is mad that I won't tell him when I don't feel terrific. I just go on and on until I just can't hide it anymore and then he finds out. But my recent experiences at ER's were too horrifying and I don't want to do that again - ever! Now don't worry, if it was anything that really scared me or was that painful, I'd go. But if Al had his way, I would be at the ER with a hangnail! Somewhere is the happy medium I imagine.

Well, it's 1:30 and I need to go to work tomorrow. Feel well everyone and thank you all so much for being there.

Carole AnnVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Sounds as if your fine Carole my first flare was pretty fantastic as well close if not up to par with my onset.This time around i beleive the ER helped tremendously at least for me,because i acually did not know i was in a flare it was caught early enough that an increase in prednisone was able to control it.I have had the headaches you speak of they are terrible and acually double in seveity i find when the fever is active(isnt it extreme releif if not for a little while when those fevers break yeah i still remember but im tryin to put that behind me i hope lol).Dont beleive i have had the paronoid thoughts on prednisone though just sometimes can make me feel really blue then next moment im happy frikkin weird man thankful that was only on the high dose though.You take care im glad your feeling better & gl with work EH!!!! d.Canada

getting better

Hi Stilligans,

Hello to the new folks and hang in there to the old.

I'm doing 100% better than the last time I wrote. After going back up to 40mgs pred from 2mgs, I'm back down to 20mgs now and I'll be calling the doctor tomorrow. I also increased my mtx from 2 to 6 tablets/wk. I also added back the arava. Except for the sleep, I'm doing pretty well for the most part and worked the whole week last week for the first time in a month.

I don't know that I was AS bad as when I first got sick but it seemed like such a surprise to me to get sick again. But I had the rash, the fever, the sweats, the swollen glands, swollen joints and a new one for me, unbelievable headaches. It felt like a tightening vice on my skull. The doc increased me zoloft as well because I was feeling suicidal - kind of. Nothing active, just more like, "OK, I'm ready, this is just too damned hard. Are you listening Upstairs????" Plus, does anyone else get incredibly paranoid when on high steroids? Boy I sure did, asking Al a million times a day if he still loved me. Now that I'm down to 20mgs pred, I'm back to 100mgs zoloft and doing just fine again, but boy I hate that. Maybe it didn't feel as bad as the first big flare cuz during the first flair, I had nothing to compare it to. This time around, I immediately increased the meds and felt some difference instantly even though it wasn't be And I cried to Al that I couldn't wait for him to feel fulfilled in a job, we needed to be able to pay rent, insurance, and drugs. He went groveling for his old job back with me and my boss let him come back. Thank G-dness he doesn't seem defeated or angry, it's more like, "you know, maybe I'm tired of running my head into a wall as well" and he seems to have a terrific attitude now.

I was having some chest pains recently that I hadn't told Al about cuz I know he'd want to take me to the ER and I won't go back there again. So when I finally confided to him that I had lied to him about the chest pains, we had a very interesting chat. Turns out that I don't trust him to not put me in the hospital and rather than tell him how badly I feel, I get mad at him. Brilliant. By the time I realized I was doing that, I confessed and felt all better. Although now he is mad that I won't tell him when I don't feel terrific. I just go on and on until I just can't hide it anymore and then he finds out. But my recent experiences at ER's were too horrifying and I don't want to do that again - ever! Now don't worry, if it was anything that really scared me or was that painful, I'd go. But if Al had his way, I would be at the ER with a hangnail! Somewhere is the happy medium I imagine.

Well, it's 1:30 and I need to go to work tomorrow. Feel well everyone and thank you all so much for being there.

Carole AnnVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Hi Carole Ann,

Thank you for sharing this wonderful news! You "sound" soooo much

better than the last e-mail. Could that be perhaps because you are?

I'm very relieved to know that Al realizes that to have a job that is so-so,

(and perhaps not his favorite thing to be doing) is much better than not

knowing how the bills will get paid from month to month, and having your

stress level shoot sky high.

Amazing what the right meds, and less stress can do hey?

Keep on feeling better Carole Ann. How is the Fibromyalgia treating Al

Is he in a lot of pain often, or is it pretty much under control at this time?

from Wisconsin,

Tricia

-- getting better

Hi Stilligans,

Hello to the new folks and hang in there to the old.

I'm doing 100% better than the last time I wrote. After going back up to 40mgs pred from 2mgs, I'm back down to 20mgs now and I'll be calling the doctor tomorrow. I also increased my mtx from 2 to 6 tablets/wk. I also added back the arava. Except for the sleep, I'm doing pretty well for the most part and worked the whole week last week for the first time in a month.

I don't know that I was AS bad as when I first got sick but it seemed like such a surprise to me to get sick again. But I had the rash, the fever, the sweats, the swollen glands, swollen joints and a new one for me, unbelievable headaches. It felt like a tightening vice on my skull. The doc increased me zoloft as well because I was feeling suicidal - kind of. Nothing active, just more like, "OK, I'm ready, this is just too damned hard. Are you listening Upstairs????" Plus, does anyone else get incredibly paranoid when on high steroids? Boy I sure did, asking Al a million times a day if he still loved me. Now that I'm down to 20mgs pred, I'm back to 100mgs zoloft and doing just fine again, but boy I hate that. Maybe it didn't feel as bad as the first big flare cuz during the first flair, I had nothing to compare it to. This time around, I immediately increased the meds and felt some difference instantly even though it wasn't better that quickly. It was more like feeling all the symptoms plus feeling incredibly inpatient as well.

And I cried to Al that I couldn't wait for him to feel fulfilled in a job, we needed to be able to pay rent, insurance, and drugs. He went groveling for his old job back with me and my boss let him come back. Thank G-dness he doesn't seem defeated or angry, it's more like, "you know, maybe I'm tired of running my head into a wall as well" and he seems to have a terrific attitude now.

I was having some chest pains recently that I hadn't told Al about cuz I know he'd want to take me to the ER and I won't go back there again. So when I finally confided to him that I had lied to him about the chest pains, we had a very interesting chat. Turns out that I don't trust him to not put me in the hospital and rather than tell him how badly I feel, I get mad at him. Brilliant. By the time I realized I was doing that, I confessed and felt all better. Although now he is mad that I won't tell him when I don't feel terrific. I just go on and on until I just can't hide it anymore and then he finds out. But my recent experiences at ER's were too horrifying and I don't want to do that again - ever! Now don't worry, if it was anything that really scared me or was that painful, I'd go. But if Al had his way, I would be at the ER with a hangnail! Somewhere is the happy medium I imagine.

Well, it's 1:30 and I need to go to work tomorrow. Feel well everyone and thank you all so much for being there.

Carole Ann

[Guest guest]

I am glad you are getting better, and I can really relate to what you are saying. I have been getting the nastiest headaches I have ever experienced, to the point where I can not even begin to describe the pain. When they are happening, I am thankful that I don't own a gun, but I have begged God to kill me immediately a few times. Thankfully the pain eventually subsides, and I think of my wife and kids and be happy that I am still there.

I am also paranoid about going back to the ER, except this time I will at least be more prepared. I will take information about Stills with me in the hope that the ER "goons" may take my pain a bit more serious, and not be so damn insensitive to my plight. My last visit had me telling the one nurse,in vivid detail, what I was going to do to her had I been able to get my hands on her. They took my blankets off of me because of my fever, and kept yelling at me to calm down as I was hyper-ventilating due to the uncontrollable shaking (chills) I had. Every word they yelled made my head pound even worse. Talk about a ton of fun. I was at least lucky enough to be treated well once I was admitted, but still dread the thought of the ER.

I hope you continue to get better,good luck. Kirk.

getting better

Hi Stilligans,

Hello to the new folks and hang in there to the old.

I'm doing 100% better than the last time I wrote. After going back up to 40mgs pred from 2mgs, I'm back down to 20mgs now and I'll be calling the doctor tomorrow. I also increased my mtx from 2 to 6 tablets/wk. I also added back the arava. Except for the sleep, I'm doing pretty well for the most part and worked the whole week last week for the first time in a month.

I don't know that I was AS bad as when I first got sick but it seemed like such a surprise to me to get sick again. But I had the rash, the fever, the sweats, the swollen glands, swollen joints and a new one for me, unbelievable headaches. It felt like a tightening vice on my skull. The doc increased me zoloft as well because I was feeling suicidal - kind of. Nothing active, just more like, "OK, I'm ready, this is just too damned hard. Are you listening Upstairs????" Plus, does anyone else get incredibly paranoid when on high steroids? Boy I sure did, asking Al a million times a day if he still loved me. Now that I'm down to 20mgs pred, I'm back to 100mgs zoloft and doing just fine again, but boy I hate that. Maybe it didn't feel as bad as the first big flare cuz during the first flair, I had nothing to compare it to. This time around, I immediately increased the meds and felt some difference instantly even though it wasn't better that quickly. It was more like feeling all the symptoms plus feeling incredibly inpatient as well.

And I cried to Al that I couldn't wait for him to feel fulfilled in a job, we needed to be able to pay rent, insurance, and drugs. He went groveling for his old job back with me and my boss let him come back. Thank G-dness he doesn't seem defeated or angry, it's more like, "you know, maybe I'm tired of running my head into a wall as well" and he seems to have a terrific attitude now.

I was having some chest pains recently that I hadn't told Al about cuz I know he'd want to take me to the ER and I won't go back there again. So when I finally confided to him that I had lied to him about the chest pains, we had a very interesting chat. Turns out that I don't trust him to not put me in the hospital and rather than tell him how badly I feel, I get mad at him. Brilliant. By the time I realized I was doing that, I confessed and felt all better. Although now he is mad that I won't tell him when I don't feel terrific. I just go on and on until I just can't hide it anymore and then he finds out. But my recent experiences at ER's were too horrifying and I don't want to do that again - ever! Now don't worry, if it was anything that really scared me or was that painful, I'd go. But if Al had his way, I would be at the ER with a hangnail! Somewhere is the happy medium I imagine.

Well, it's 1:30 and I need to go to work tomorrow. Feel well everyone and thank you all so much for being there.

Carole AnnVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

I am glad you are getting better, and I can really relate to what you are saying. I have been getting the nastiest headaches I have ever experienced, to the point where I can not even begin to describe the pain. When they are happening, I am thankful that I don't own a gun, but I have begged God to kill me immediately a few times. Thankfully the pain eventually subsides, and I think of my wife and kids and be happy that I am still there.

I am also paranoid about going back to the ER, except this time I will at least be more prepared. I will take information about Stills with me in the hope that the ER "goons" may take my pain a bit more serious, and not be so damn insensitive to my plight. My last visit had me telling the one nurse,in vivid detail, what I was going to do to her had I been able to get my hands on her. They took my blankets off of me because of my fever, and kept yelling at me to calm down as I was hyper-ventilating due to the uncontrollable shaking (chills) I had. Every word they yelled made my head pound even worse. Talk about a ton of fun. I was at least lucky enough to be treated well once I was admitted, but still dread the thought of the ER.

I hope you continue to get better,good luck. Kirk.

getting better

Hi Stilligans,

Hello to the new folks and hang in there to the old.

I'm doing 100% better than the last time I wrote. After going back up to 40mgs pred from 2mgs, I'm back down to 20mgs now and I'll be calling the doctor tomorrow. I also increased my mtx from 2 to 6 tablets/wk. I also added back the arava. Except for the sleep, I'm doing pretty well for the most part and worked the whole week last week for the first time in a month.

I don't know that I was AS bad as when I first got sick but it seemed like such a surprise to me to get sick again. But I had the rash, the fever, the sweats, the swollen glands, swollen joints and a new one for me, unbelievable headaches. It felt like a tightening vice on my skull. The doc increased me zoloft as well because I was feeling suicidal - kind of. Nothing active, just more like, "OK, I'm ready, this is just too damned hard. Are you listening Upstairs????" Plus, does anyone else get incredibly paranoid when on high steroids? Boy I sure did, asking Al a million times a day if he still loved me. Now that I'm down to 20mgs pred, I'm back to 100mgs zoloft and doing just fine again, but boy I hate that. Maybe it didn't feel as bad as the first big flare cuz during the first flair, I had nothing to compare it to. This time around, I immediately increased the meds and felt some difference instantly even though it wasn't better that quickly. It was more like feeling all the symptoms plus feeling incredibly inpatient as well.

And I cried to Al that I couldn't wait for him to feel fulfilled in a job, we needed to be able to pay rent, insurance, and drugs. He went groveling for his old job back with me and my boss let him come back. Thank G-dness he doesn't seem defeated or angry, it's more like, "you know, maybe I'm tired of running my head into a wall as well" and he seems to have a terrific attitude now.

I was having some chest pains recently that I hadn't told Al about cuz I know he'd want to take me to the ER and I won't go back there again. So when I finally confided to him that I had lied to him about the chest pains, we had a very interesting chat. Turns out that I don't trust him to not put me in the hospital and rather than tell him how badly I feel, I get mad at him. Brilliant. By the time I realized I was doing that, I confessed and felt all better. Although now he is mad that I won't tell him when I don't feel terrific. I just go on and on until I just can't hide it anymore and then he finds out. But my recent experiences at ER's were too horrifying and I don't want to do that again - ever! Now don't worry, if it was anything that really scared me or was that painful, I'd go. But if Al had his way, I would be at the ER with a hangnail! Somewhere is the happy medium I imagine.

Well, it's 1:30 and I need to go to work tomorrow. Feel well everyone and thank you all so much for being there.

Carole AnnVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.