Re: adult in autism

[Guest guest]

Yes Kathy, it is. My daughter is now 18.

-- adult in autism

i have a 17 year old that is about to turn 18 what happens next when the

child turns to be a adult.. From what i see there is a whole new ballgame.

[Guest guest]

Kathy,

I chose to keep my daughter attached to the school so she can get much needed

transition services. We withheld a credit that she needed so she didn't graduate

but she did walk with her class. She is Autistic but she is higher functioning.

She didn't know how to ride the bus, go on job interviews, participate in the

community, advocate for herself etc. She also needs DVR and they mostly do not

help until the age of 21. Lots of services don't start until then. She turns 21

in March and will stay till June. She has received many job experiences and has

done quite a few interviews so she is starting to feel comfortable in that area

but still has some stress. I do not regret my decision. It beats having her stay

in front of the computer or tv all day. We also exposed her to the college

entrance exam the year she should have graduated. She didn't pass the exam (even

though she would have graduated with a 3.4 gpa). She will need to go to the ABE

(adult basic ed classes), yes even though she will get her diploma, and retake

what she should have learned (the basics) of math and reading before she can

pass the college entrance exam. Ah modifications, If I knew then what I know

now.

I also have guardianship. When she turns 18, no one is required to speak to you.

She understands or she doesn't. I know my daughter says yes many times when she

has no clue what another person is saying. I had to get something legal so I can

stand up for her. Now, if someone gets her to sign something, I can argue

against it. I have heard of one mom that had a problem with her girl signing for

a car and the girl didn't drive. Because the mom didn't have guardianship, it

was a mess. You need to evaluate what is in the best interest of your child, how

able she is to make decisions and go from there.

> -- adult in autism

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> i have a 17 year old that is about to turn 18 what happens next when the

> child turns to be a adult.. From what i see there is a whole new ballgame.

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[Guest guest]

what are some things i could do with this time in her life to make it nicer for

her???

Subject: Re: adult in autism

To: Autism_in_Girls_and_Women

Date: Wednesday, February 10, 2010, 9:13 AM

 

Yes Kathy, it is. My daughter is now 18.

-- [Autism_in_Girls_ and_Women] adult in autism

i have a 17 year old that is about to turn 18 what happens next when the

child turns to be a adult.. From what i see there is a whole new ballgame.

[Guest guest]

it depends on the needs of the individualis there a need for gaurdianship, or a

partial guardian ship if so you should be of in process of this? if not and she

only needs of mild supports you can get of her to sign off on certain things

giving you power of attorney over certain things like medical and such.

most of our kids are of not really ready for moved out situations but it should

be of a process that is of being worked towards because to leave of an adult

person of autism living with you until you die is of cruel because then the

individual is of not only griving the loss of you but the home and all they even

knew and have NO voice activily being involved in this process for them to be of

safe and slowly transition to their adult life.

work towards things that are of daily living skills that will promote a sense of

individualism and independence. even if it is of just dressing self/

if they are of unable to drive teach of them the bus stops and or public

transportation if able to do this . I to do this and have of my daughter text of

me where she is of at every few minutes as I to be of waiting at the destination

of where she is going too. this has promoted self independence and self esteem

in her.

you can by to creat a grocery list and now expect of her to find certain objects

on the list start small and work up to larger. teach of her to pay for it. you

just shadow and not intervene but only there to support if things go really

wrong you can then intervene with support of what to do? but not do it for them

because some day they will be of left to this life without us and so need of

this skills to be of have of best outcomes?

so work at that which you feel is of a greatest need and work towards that goal

and then keep adding as needed/

sondra

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> Subject: Re: adult in autism

> To: Autism_in_Girls_and_Women

> Date: Wednesday, February 10, 2010, 9:13 AM

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> Yes Kathy, it is. My daughter is now 18.

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> -- [Autism_in_Girls_ and_Women] adult in autism

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> i have a 17 year old that is about to turn 18 what happens next when the

> child turns to be a adult.. From what i see there is a whole new ballgame.

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[Guest guest]

Sondra, you give great advice. I will release my guardianship when I knows she

can fend for herself. Because she doesn't look autistic, you know how people can

take advantage of that. She still has trouble advocating for herself and we are

working on that now.

Kathy, you need to get your daughter to be independent as possible. You would be

the best judge of where she needs help. Because Autism covers a wide area of

abilities, we are not sure where your daughter lies. Make sure the school has

done everything they could to get her the transition services she needs. You did

not mention if she was on an IEP or not. If she is, the school should have been

working on transition services starting at least by 16. Make sure she can do

household chores and cooking even if it is microwave cooking. When she is on her

own, you need to know she can go to the store, shop, cook and take care of

herself.

[Guest guest]

Cheryl,

She should be on an IEP not a 504. She sounds similar to my daughter and clearly

she has executive functioning delays and she needs services that come from an

IEP. If they say she is not academically qualified, she should be qualified

under functionality. You need to look into your state laws to find out more. One

year of services does not work, for my daughter at least, she needs lots of

repetition. It took her many trial runs at interviews for her to just to start

to speak with someone. She still can't ride the bus alone because she has

trouble grasping the schedule.

> yes, i have to go through all you are soon. my daughter turns 16 in october,

so i have been told in August to approach services to start the ball rolling

concerning pension etc. she still has another 2 possibly 3 years of school to

go, as i am going to try and keep here there until 18, but i somehow doubt it

will happen, so next year could be her last year...scary thought. i have an

advocate that i can contact and ask questions, she has given me the name of a

lawyer who specialises in disability people, so i shall become guardian etc, as

there is no way she can cope with stuff, if you tried to explain things, she too

would shrug and say yes, and have no clue. i still wouldnt let her cross a road

by herself, as i am not sure if she has the capability of determining how fast a

car is going. i can see a few interesting years before i can get her slotted

into something once she leaves school as i sure dont want her sitting infront of

tv for the rest of her life.

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> Cheryl S [chez]

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