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Hi, Patti,

With my dad, the mental part was first. Looking back, the mental slippage

was occuring for many years prior to us noticing anything was particularly

wrong. My father is in the end stages of LBD, but is still mobile. He cannot

perform any tasks for himself, but he can walk.

Thinking of you and hoping the rough spot is getting better,

Much love,

Piper

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Hi Patti...

Dont know how it is for all LBD sufferers since some present with

the " parkinsonian " traits first...but with my Dad, he presented with

the Alzheimer traits first so it was the mental & cognitive things

we noticed first. As a result he was dx with Alzheimers, but it

didnt take long before we noticed the stooped shuffling walk and

hands shaking that led to the LBD dx.

All things considered, even though my Dad is in late stages, he is

still mobile....but that could change at any time.

Hope you get through your rough spot OK.

Hugs, Coyote

> Hello All,

> I am wondering does the physical and the mental slippage seem to

go

> hand in hand in hand or do you slip physically then mentally or

vice

> versa? Just wondering as going through a rough spot

> here....Hugs...Patti

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My dad presented with the " parkinsonian " traits first - walk slow, but

almost normal, then go to little shuffling steps, very unsteady, prone

to lurch at things to save himself from falling (only sometimes

successfully). But he didn't have the tremors, so all the drs said " no,

not Parkinsons " . Then the cognitive problems started - close to a year

later - but still sometimes very " on " and other times very " off " . It

still took a hospitalization from a bad fall to start getting a dx.

coyote_myst wrote:

> Hi Patti...

> Dont know how it is for all LBD sufferers since some present with

> the " parkinsonian " traits first...but with my Dad, he presented with

> the Alzheimer traits first so it was the mental & cognitive things

> we noticed first. As a result he was dx with Alzheimers, but it

> didnt take long before we noticed the stooped shuffling walk and

> hands shaking that led to the LBD dx.

> All things considered, even though my Dad is in late stages, he is

> still mobile....but that could change at any time.

> Hope you get through your rough spot OK.

> Hugs, Coyote

>

>

>

>

>

>>Hello All,

>>I am wondering does the physical and the mental slippage seem to

>

> go

>

>>hand in hand in hand or do you slip physically then mentally or

>

> vice

>

>>versa? Just wondering as going through a rough spot

>>here....Hugs...Patti

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I'm sorry to hear you are going through a rough spot. I pray it

improves for you soon!

In response to your questions, my mom had the mental slippage first,

I would say for about 2 years before any real physical problems

surfaced. She was originally diagnosed with Alzheimer's and did see

a neurologist who said she didn't have PD. The LBD diagnosis was

made by her primary physician when he finally saw the fluctuating

cognition and shaking.

Sending you prayers and strength...

M

> Hello All,

> I am wondering does the physical and the mental slippage seem to go

> hand in hand in hand or do you slip physically then mentally or

vice

> versa? Just wondering as going through a rough spot

> here....Hugs...Patti

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Hi Coyote,

Thank you so much for your response. I do hope I get to feeling

bwtter soon. I hate hurting. The slowness and stiffness is worse. My

brain seems to be slower today as well....Hugs...Patti

> > Hello All,

> > I am wondering does the physical and the mental slippage seem to

> go

> > hand in hand in hand or do you slip physically then mentally or

> vice

> > versa? Just wondering as going through a rough spot

> > here....Hugs...Patti

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Hi ,

Thank you for your response. I have had increased slowness, stiffness

and pain I finally took a pain pill, but I hate to do that as they

seem to slow the thought processes more. They don't seem to help the

pain all that much either. Anyway I hope it clears

soon....Hugs....Patti

> >

> >>Hello All,

> >>I am wondering does the physical and the mental slippage seem to

> >

> > go

> >

> >>hand in hand in hand or do you slip physically then mentally or

> >

> > vice

> >

> >>versa? Just wondering as going through a rough spot

> >>here....Hugs...Patti

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Hi M.,

I hope this improves soon as well. I have to say that today I feel

like everthing is having trouble getting out of compound. My brain

included...Hugs...Patti

> > Hello All,

> > I am wondering does the physical and the mental slippage seem to

go

> > hand in hand in hand or do you slip physically then mentally or

> vice

> > versa? Just wondering as going through a rough spot

> > here....Hugs...Patti

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Hello Piper,

I am having neuralgia pain on the left side of my head nose and ear.

I am very sluggish, slow and stiff including my brain. Therefore my

pain is worse today. Maybe tomorrow I will be better, but that is

what I thought yesterday so we will just have to wait and

see....Hugs...Patti

> Hi, Patti,

>

> With my dad, the mental part was first. Looking back, the mental

slippage

> was occuring for many years prior to us noticing anything was

particularly

> wrong. My father is in the end stages of LBD, but is still

mobile. He cannot

> perform any tasks for himself, but he can walk.

>

> Thinking of you and hoping the rough spot is getting better,

>

> Much love,

>

> Piper

>

>

>

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My dad showed the mental aspects of the disease first as many of you

have also said. The depression, hallucinations and paranoia came to

light during one horrible month during the summer of 2003. Although

we had noticed changes in him, we just attributed it to age. Little

did we know where we would be just one year later. The physical

symptoms have now taken over, stooped labored walking with the

shuffle. I continue to think and pray for all of you who are in this

with me!

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  • 5 years later...

I'll introduce myself with a few questions. Hi. My name is Jackie.

Could someone please tell me what some of the symptoms of

autism/Aspergers are? Such as

Stimming...flapping hands, tapping with bits of paper or fabric,

twiddling a pen in front of the face, etc. (I read a bit about that.)

Screaming anger over small items

Need to follow a set routine, and if it's broken, become very upset

and angry.

Total immersion in a project to the point of anger if interrupted

In adults, inability to keep a job or close friends, but very high

functioning

Inability to keep eye contact

There are more, but those are all I can think of right now.

Jackie

http://fiberyco-op.com

" Where fibers are our common thread. "

http://fibers.downinthecountry.com

The home of the Rakestraw Spinner

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Yes to most all of the below are potential symptoms of autism/asperger's. These

all together may not necessitate the diagnosis but they are all symptoms.

Bill

>

> I'll introduce myself with a few questions. Hi. My name is Jackie.

>

>

> Could someone please tell me what some of the symptoms of

> autism/Aspergers are? Such as

>

> Stimming...flapping hands, tapping with bits of paper or fabric,

> twiddling a pen in front of the face, etc. (I read a bit about that.)

>

> Screaming anger over small items

>

> Need to follow a set routine, and if it's broken, become very upset

> and angry.

>

> Total immersion in a project to the point of anger if interrupted

>

> In adults, inability to keep a job or close friends, but very high

> functioning

>

> Inability to keep eye contact

>

> There are more, but those are all I can think of right now.

>

> Jackie

>

>

> http://fiberyco-op.com

> " Where fibers are our common thread. "

> http://fibers.downinthecountry.com

> The home of the Rakestraw Spinner

>

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Thank you, Bill. I'm learning a lot on this list, and will continue to

read. The symptoms I described are mine and have been as far as I can

remember. I have been able to hide them for most of my life, since I

discovered young that I would be punished if my mother thought I was

" less " than perfect, especially if it were a problem she thought was

shameful. Due to my problems, I have never been able to hold a job for

any length of time, am unable to keep friends, and have been divorced

twice.

Jackie

http://fiberyco-op.com

" Where fibers are our common thread. "

http://fibers.downinthecountry.com

The home of the Rakestraw Spinner

Monday, November 30, 2009, 7:35:13 PM, you wrote:

B> Yes to most all of the below are potential symptoms of

B> autism/asperger's. These all together may not necessitate the

B> diagnosis but they are all symptoms.

B> Bill

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