Re: MY PROFILE

[Guest guest]

Hi !

Just a quick question--hope I'm not being too nosey! lol

Why do you take 6mp? Isn't that a chemotherapeutic drug?

One of my son's diseases causes bone marrow failure, and he is treated

in the cancer center at our children's hospital. A lot of the kids get

6mp, that's why I ask.

Welcome to the list!

Armstrong wrote:

> 1) Name:

>

> 2) Location: Louisiana, USA

>

> 3) Personal Info: I'm an almost 30, happily married Mom of one

> (Alli-4); I

> have Crohn's Disease (diagnosed since '93, but probably had it since

> '89),

> subluxing patellas (my knee caps pop off and then back on....yes, it

> hurts!), I had seizures from the age of 6 weeks to 17 with no known

> cause.

> I've had one surgery due to the Crohn's. I take 6mp, folic acid,

> Prozac,

> Asacol, and vitamins for the Crohn's. I've been off meds

> (phenobarbital) for

> the seizures since '95 and have been seizure-free since '87....now I

> get

> migraines instead! I have two cats, Sadie and Sasha.

>

> 4) Interests: Let's see, I like to surf the net (grin), cross-stitch,

> genealogy, reading, writing (haven't done this in a while!)....I'm

> sure

> there are others, I just can't think of them right now.

>

> 5) Email: yes

>

> 6) ICQ / AOL / MSN: ICQ 70006262

>

> 7) Webpage (if you have a personal webpage and would like it listed

> say yes

> and list the URL)

>

> 8) Birthday: June 27th, cancer (although I'm not into astrology)

>

>

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>

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> “There will always be people who are better off and worse off then

> you. This makes no difference to how you are feeling. You are the only

> one who feels as you do, and you have every right to be negative or

> upset when you are ill, injured, disabled, or caring for someone who

> is. Being sick sucks. No one deserves being sick. It is not fair.” -

> Aisha Elderwyn.

>

> ~~~~~~~~~~~~~~~

>

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[Guest guest]

WELCOME TRACY

from your friend

:-)

>From: " Armstrong " <tracymarmstrong@...>

>Reply-egroups

>egroups

>Subject: My profile

>Date: Mon, 01 May 2000 23:20:58 CDT

>

>1) Name:

>

>2) Location: Louisiana, USA

>

>3) Personal Info: I'm an almost 30, happily married Mom of one (Alli-4); I

>have Crohn's Disease (diagnosed since '93, but probably had it since '89),

>subluxing patellas (my knee caps pop off and then back on....yes, it

>hurts!), I had seizures from the age of 6 weeks to 17 with no known cause.

>I've had one surgery due to the Crohn's. I take 6mp, folic acid, Prozac,

>Asacol, and vitamins for the Crohn's. I've been off meds (phenobarbital)

>for

>the seizures since '95 and have been seizure-free since '87....now I get

>migraines instead! I have two cats, Sadie and Sasha.

>

>4) Interests: Let's see, I like to surf the net (grin), cross-stitch,

>genealogy, reading, writing (haven't done this in a while!)....I'm sure

>there are others, I just can't think of them right now.

>

>5) Email: yes

>

>6) ICQ / AOL / MSN: ICQ 70006262

>

>7) Webpage (if you have a personal webpage and would like it listed say yes

>and list the URL)

>

>8) Birthday: June 27th, cancer (although I'm not into astrology)

>

>________________________________________________________________________

>Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

>

>

>------------------------------------------------------------------------

>Tradiant is creating the premier marketplace for shippers and

>carriers as well as a comprehensive family of e-commerce solutions

>that give transportation companies the competitive edge. Visit

>Tradiant today.

>1/3396/3/_/817445/_/957241259/

>------------------------------------------------------------------------

>

>The Being Sick Members Lounge.....

>* FREE counselling via email

>* Daily Horoscopes

>* FREE psychic/tarot readings via email

>* Daily cartoons

>* Members Profiles, locations and birthdays

>* DAILY LIVE CHAT!!

>* Medical Resources, and more.... http://www.elderwyn.com/members

>

>~~~~~~~~~~~~~~~

>

>“There will always be people who are better off and worse off then you.

>This makes no difference to how you are feeling. You are the only one who

>feels as you do, and you have every right to be negative or upset when you

>are ill, injured, disabled, or caring for someone who is. Being sick sucks.

>No one deserves being sick. It is not fair.” - Aisha Elderwyn.

>

>~~~~~~~~~~~~~~~

>

>Your subscription details

>/mygroups

>

>Proudly sponsored by Elderwyn Management

>http://www.elderwyn.com

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Hello Amy!

As Tina 1 would say "Welcome to the family!"

"frequent pyelonephritis and UTI's. Chronic flank pain (from the bad kidney), Cluster Migraines, Hyperemesis (unknown cause) and unexplainable sever weigh loss."

OK... you got me here. What is pyelonephritis? Inflammation of kidneys??? UTI's??? Hypermesis?? Overactive something??

Has anyone done a biochemical blood test to check your minerals etc for the weight loss? I know if you are low in zinc you can lose weight. Hmmmm... will have to think on this one.

"I make dried flower boxes with antique printer's drawers and am working on making it into a small business."

How do the antique printers drawers fit into that? Congrats on making it your business. Its so important to do what brings you your bliss.

"spend a lot of (probably too much) time on the internet "

Hahahahaha... definitely no such thing!

Anyhow Amy, welcome to the list. Please feel free to vent, bitch, curse, share stories, links, pictures, jokes etc. No posting is too short or too long! Just jump on in anywhere!

Look forward to hearing from you!

Love Aisha.

*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*Believe that there's a light at the end of the tunnel.Believe that you may be that light for someone else.- Kobi Yamada*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=*=* Aisha ElderwynICQ 55461955aisha@...http://www.elderwyn.com/aisha

[Guest guest]

Hi Kdawna...welcome...you sound like your place might be as busy as mine!

We have a his , mine and ours family as well....our daughter Tessa will be 3

sept 23rd and my children are 14 Meagan and garry 13 ...chris's older daughters

are sasha15 and britney 12 ...we always have extras .....occasionally we do a

head count ...sometimes not....it

would be a shock to know how many are herer sometimes! But we love it like that!

one stop light wow...your in a city...lol..we have no stoplights! Blink you miss

my town!! join the crowd...!Sick of being sick!!that's how i was as well as many

others here!

Sheena;)

http://www.skyfamily.com/healthyu

[Guest guest]

Dear Kdawna,

Welcome to our family. As you may have guessed we are all quite mad! LOL - in a good way. Please feel free to jump in and vent about anything, bitch sware, whatever - send jokes, inspiration etc. We are here for you if you need us. Sorry to hear about your operations and all that yucko stuff. And I totally relate to being sick and tired of being sick and tired.

*HUGS*Once again, welcome!Love Aisha

[Guest guest]

HI ALL.. I REALLY ENJOY THIS SITE AND ALL THE E-MAILS BACK AND FORTH.I WANT TO SEND OUT MY PROFILE TO SEE IF SOME OF YOU COULD GIVE ME SOME POINTERS TO IMPROVE MY SITUATION..

IM A 47 YR MALE DX 1992.SPMS FROM THE START.

MY MS IS ON MY SPINE ON MY NECK,SMALL AMOUNT ON BRAIN.

I WAS SLOWLY GETTING WORSE MY NURO SUGGESTED AVONEX ..THEN STRAGHT DOWNHILL INTO THE WHEECHAIR.I DON'T WALK AT ALL.

I FEEL MY MS IS CAUSED BY FOOD ALERGIES ALTHOUGH I'VE NEVER BEEN TESTED.I WAS RAISED ON FASTFOOD AS MY PARENTS PURCHASED AN A & W ROOT BEER STAND WHEN I WAS 10(IMAGINE THE GALLONS OF ROOTBEER IVE CONSUMED)..

AFTER 11 YEARS OF THAT I DELIVERED BREAD FOR 19 YEARS..RUN,RUN,RUN,EAT JUNK AND RUN MORE.

I NOW TAKE 3 MG LDN,(WEEK #3)MULTIVITAMINS,TRY TO DRINK GALLONS OF WATER AND EAT RIGHT.

I DO PT TWICE A WEEK AND RIDE MY STATIONARY BIKE. ANY SUGGESTIONS WOULD BE GREAT THNX KENT

RE: [low dose naltrexone] liver repair

So what (and why) do you consider the essential things a gal might need when she's fighting PPMS?Rae

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of kathy lintzenichSent: Thursday, April 28, 2005 7:20 PMlow dose naltrexone Subject: [low dose naltrexone] liver repair

These are the Essential things for liver repair: free form amino acids, l-glutathione, milk thistle,desiccated liver, and alpha lipoic acid. Other things that can help are: artichokes, raw food, green drinks, pure water, no alcohol, avoid junk food, use a chlorophyll enema 3 times a week using a pint for 15 minutes, use warm castor oil packs over the abdomen, and acupuncture. Also squeeze lime in your water or lemon is second best.

[Guest guest]

--- In low dose naltrexone , " KENT WAKEFIELD " <KWAKEFIELD775@C...>

wrote:

> HI ALL.. I REALLY ENJOY THIS SITE AND ALL THE E-MAILS BACK AND FORTH.I WANT TO

SEND OUT MY PROFILE TO SEE IF SOME OF YOU COULD GIVE ME SOME POINTERS TO IMPROVE

MY SITUATION..

> IM A 47 YR MALE DX 1992.SPMS FROM THE START.

> MY MS IS ON MY SPINE ON MY NECK,SMALL AMOUNT ON BRAIN.

> I WAS SLOWLY GETTING WORSE MY NURO SUGGESTED AVONEX ..THEN STRAGHT DOWNHILL

INTO THE WHEECHAIR.I DON'T WALK AT ALL.

> I FEEL MY MS IS CAUSED BY FOOD ALERGIES ALTHOUGH I'VE NEVER BEEN

TESTED.I WAS RAISED ON FASTFOOD AS MY PARENTS PURCHASED AN A & W ROOT BEER STAND

WHEN I WAS 10(IMAGINE THE GALLONS OF ROOTBEER IVE CONSUMED)..

> AFTER 11 YEARS OF THAT I DELIVERED BREAD FOR 19 YEARS..RUN,RUN,RUN,EAT JUNK

AND RUN MORE.

> I NOW TAKE 3 MG LDN,(WEEK #3)MULTIVITAMINS,TRY TO DRINK GALLONS OF

WATER AND EAT RIGHT.

> I DO PT TWICE A WEEK AND RIDE MY STATIONARY BIKE. ANY SUGGESTIONS WOULD BE

GREAT THNX KENT

>

=========

I do Atkins Low Carb and have since I was a teen. I buy grassfed beef from a

butcher shop. Try to avoid meats that have the growth/steroid hormones and

antibiotics...they're in all the regular grocery stores. There are healthy meats

available at healthfood stores, special organic stores and grassfed beef

available over the internet. The meats I buy you do not get leathery meat when

it is cooked, I get steaks that you hardly have to cut the meat is so tender. I

have to wrestle to cut regular store bought meat. Find a chicken farmer who

does not load his chickens with the steroids(which they call growth hormones).

Go as organic as possible. Expensive but worth it. Use Stevia as an artificial

sweetener(get at healthfood stores)...avoid Aspartame(Nutra Sweet) and

Splenda(Sucralose).

I find that low carb keeps acid reflux under control and gives me great protein

for energy.

Others can offer you more options if you are not fond of meats.