Re: went for a blood test

[Guest guest]

Hi Bev,

This is such wonderful news for you and Jen. I am so happy for you guys and

proud of you for your patience and her for her constantly continuing to try. Wow

what a team you guys make and your other daughter as well!

I have a question though... you said " she will always be autistic, I am a

shadow, so I expect the same of her " . I am just curious what you meant by this?

I guess I do not understand.

My husband and I pray for you guys and all the families on here and we are so

glad to here that good things are happening for you!!!

Sincerely, Esther

Subject: when for a blood test

To: Autism_in_Girls_and_Women

Date: Friday, August 14, 2009, 5:13 AM

 

Yesterday, went for a blood test and she did the best ever, sure i know

she did not like it but she understood and she did not need to be restrained in

anyway. I was so proud of her. I know the Namenda is working great for her, she

is learning to do things, she removes the paper from straws and put a straw in

everyone drink, it is her job. she carries wash upstairs, she is learning to put

her own deodorant on herself. She is pulling out, she still has the negative

autistic behavior, but she is making positive gains in language, receptive and

expressive.

I am really pleased, she will always be autistic, I am a shadow, so I expect the

same of her. She is pulling out of the retardation aspect, what ever it a matter

with her. Her aggression has reduced tremendously since her language has

improved. I am so very happy!

I very proud of her!

Bev

[Guest guest]

esther

shadow can mean of several things... but in the autism community it is of often

used to describe an aid or assistant and or it is of used to say that the person

carries enough autistic traits themselves but do not have a diagnosis of autism.

it means they shadow the syndrome... my grand baby Delaney shadows some of the

common things of autism but does not have a diagnosis of autism,

and then the one meaning that is of not used often in the autism community but

is of the real term meaning is that shadow is of a dark image/shape of the body

shape, or object reflected by the son to the ground or a hard surface. peter pan

often models what a shadow of this sort means and it was of my first exposure to

that word and or concept of understand to shadows.

when i was of younger was of much fixated to peter pan.

sondra

[Guest guest]

Hi Esther,

Thank you Sondra, you explained very well, of am of the first description, I

carry some the traits of autism, some of them positive, some not so, but I do

not have a diagnosis. I was once called a functioning autistic, by a therapist

who worked with many autistic individuals. She had one of the 13 machines that

made into the country to give the original A.I.T. (Auditory Integrated

Training), and I had A.I.T. twice. It was wonderful and it really helped me, in

many ways, I consider myself very lucky, the hearing part of my nervous system

was off and I would become sick very often from sound, but that characteristic

of me has gone. Believe, I am very glad. When I was younger, I would watch the

poker machines, I would do what is called counting, when the time was right and

I estimated when the machine would pay off. I would always win with in two

quarters of when I started to play, then one day I realized I was not playing

poker. I was really counting and figuring the odds, it was not any fun. It was

not fair, it was useless, so I stopped!

I guess, the best way to describe myself, is I am like you, but then their are

times that I have a deep understanding of autism, because I am of the world. I

find that when I am ill, I have more of the characteristic of autism, so when I

am healthy, I can hide somethings so to completely normal people, I look and

seem the same as them. Sometimes! If the try hard, now almost all the time.

Example of a problem time for me, was I took a graduate class in statistics, I

absolutely loved the class. The professor graded her students on a curve, and

there were only three grades available, A, B, and F. She did not believe that

anyone who was in graduate school should receive a grade lower than a " B " . If

they did, they should not be in graduate school. Again, I loved statistics, so I

was going at the class with one 100% of my effort and was just having a

wonderful time, completely unaware how my work, studying, effort, and grades

were affecting the other students in the class. I did unbelievable test scores

and I was so proud, until it was announced that half the class did not pass the

class at the end of the marking period. Then the professor announced my test

score and she was very proud of me for my wonderful grades, but I was not proud

of me. Because of all my work, effort and test scores, I missed up the grading

curve, which caused half the class not to pass. I tried to talk to the

professor, but at that time, I did not understand that I was a shadow, I knew I

was different, because other things had happened in the past, when I was tested

and I could not explain the test results. The professor would not listen. I

could not explain why or what was different about me. I felt terrible and the

half the class of graduate students did not pass, they were very upset too!

Jen will have her moments too, and she has, I think my daughter, Kim is a shadow

too.

Sometimes the moments do not work out to my advantage, sometimes I go down in

flames, sometimes I am socially uncomfortable. Then there are other times, I am

completely socially comfortable and the world is very normal for me and

wonderful.

is still doing great, and her receptive language is great, she seems to

be getting into everything around the house. There is nothing stopping her! Her

aggression has improved greatly, she still has her moments, it is when she does

not understand, but I can usually talk her down, which is a fantastic

improvement. So does at time get mad at me, today even she has been mad at me.

It happens, but, I am no longer being hurt by her and that is a wonderful

improvement.

She is still potty training, she gets me up many times in the night, and says

" Sit " , off we go to the potty.

Take care,

Bev

>

> esther

>

> shadow can mean of several things... but in the autism community it is of

often used to describe an aid or assistant and or it is of used to say that the

person carries enough autistic traits themselves but do not have a diagnosis of

autism. it means they shadow the syndrome... my grand baby Delaney shadows some

of the common things of autism but does not have a diagnosis of autism,

>

> and then the one meaning that is of not used often in the autism community but

is of the real term meaning is that shadow is of a dark image/shape of the body

shape, or object reflected by the son to the ground or a hard surface. peter pan

often models what a shadow of this sort means and it was of my first exposure to

that word and or concept of understand to shadows.

>

> when i was of younger was of much fixated to peter pan.

>

> sondra

>

[Guest guest]

Bev maybe you are of a static autistic LOL because of the ability to fluctuate

between channels LOL that is of a very good skill and see much of this sort and

wonder how they function so well in so many areas but then they have of those

days where it is of evident of their radio is in between both channels and not

functioning at their best. it isof cluttered because both stations are of coming

in at the same time which eventually one of the cannels will over power the

other. this isof maybe why you can be of to do well and then not do well.

I to use to think that for self i to be of bleneded among people too and felt

was passing as normal.....what ever that means but felt that way and have come

to learn that I to never really reflected normal to others but because have

little true awareness of self and how my being presents or others react to me it

caused me to not see of the real reality of my presentation. so in true not

ever really presented as a normal but felt I was of doing that.

not saying you are of not able to but for self the autism shone out like a beam

even when i to felt it was hidden.

sondra