Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 Hi. My daughter was just officially diagnosed as Autistic at the age of 11. She has been having a lot of trouble finding words and her vocabulary has dropped dramatically. When she does talk, it makes no sense most of the time, just a bunch of words mixed together. Is this normal? Does this happen to kids that had a fairly good vocabulary? nna gets so frustrated when this happens. She screams, cries and hits herself. It's been happening more and more frequently. Should I start using more pictures with her? Will this make her lose what words she has left? So much is going on with her all at once. She used to love to go to the store with me, now I can't get her to go anywhere. When she does we end up with a major meltdown. She rocks all the time, violently when she's really upset. She can't write or draw anymore, she used to. It's just so sad. I hate to see her so upset and not be able to help her. When I try to talk to her she says she hates me and that she's stupid. I don't know what to do. She's already taking medication for mood control and her seizures. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2009 Report Share Posted December 31, 2009 When did this start before or after meds?Has she recieved any flu shots this year?They lifted the ban on thimarisol for these now!Did not do enough double blind studys.Could she have a virus?Do you have cats?Think outside the box do blood test please!! Get a good doctor.She could have anything?Pre- puberty can cause more seizures. Mom of 10 yr Girl old with PDD-nos non verbal but great with gaggets and computer mouse!! (sorry if I dont have great spelling Just an Artist with tooo many paint fumes!) Ha ha Deb K > > > Hi. My daughter was just officially diagnosed as Autistic at the age of 11. She has been having a lot of trouble finding words and her vocabulary has dropped dramatically. When she does talk, it makes no sense most of the time, just a bunch of words mixed together. Is this normal? Does this happen to kids that had a fairly good vocabulary? nna gets so frustrated when this happens. She screams, cries and hits herself. It's been happening more and more frequently. Should I start using more pictures with her? Will this make her lose what words she has left? So much is going on with her all at once. She used to love to go to the store with me, now I can't get her to go anywhere. When she does we end up with a major meltdown. She rocks all the time, violently when she's really upset. She can't write or draw anymore, she used to. It's just so sad. I hate to see her so upset and not be able to help her. When I try to talk to her she says she hates me and that she's stupid. I don't know what to do. She's already taking medication for mood control and her seizures. > Pam > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 I also would hit the probiotics but with antifungals (the same days a few hours apart.)My favorite probiotic has been VSL#3 caps google the site. This should get coverd by insurance because of the feeding tube.My mainstream Gi doc always gives antifungals with antibiotics and probiotics!!Much luck!! Deb K > > She has gotten the Flu shot as well as the one for Swine Flu. She > > started really having problems after the one for Swine. It's > > coincidental I know but her whole being has changed. > > Definitely not coincidental. Those shots can cause very serious > neurological damage and radical changes in personality and behavior. > > > > She did just have a really nasty cold and finished the Antibiotics > > a few days ago. > > Why would she take antibiotics for a cold? Did she have a secondary > bacterial infection and was a culture done? From what you are > describing, it sounds like she also has severe yeast issues from > antibiotic use. I would implement a multi-faceted yeast protocol and > supplement probiotics indefinitely. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 pjrd, I to be of reading and not as wise as some here to the diet and bio things but their words are of very good and wise. I to be of was unable to take of the vaccine for flu and or the swine flu due to egg suspect allergy and or issues to eggs. but due to fear of the swine flu the medical doctor encouraged and gave of me the shot to prevent of pneumonia.... I to not be of prone to that as only had of it in my current memory once right after a sugery, but within days of to get of that vaccine i to got of sick much sick and for weeks struggled with health issues to it. I to finally ended up getting a pnuemonia even though got of the shot to prevent of me from to get of it... odd that never had of that illness, get a shot and within weeks get of pneumonia... strange reaction that even confused of the doctors because it is of not a live vaccine. but like of you daughter got agitated, insomina was and still is of a major issues, very stimmy, very off inside of self as if the outside of me and the inside of me are of two very different beings because they are of not coopertating, I to also been of to have major large jerky and odd arm and hand flapping and such. Been of chewinf the sleeves of may of my shirts and some now are of frayed and has of holes to them. that makes of me angry to have some of my favored shirts for my home to be comfortable in are of now a mess on the sleeves and colars, but will not rid of self of them because like of them anyways. also my kids noted that my face looks of much pale and the rings under eyes are of noted to be of darker and the one eye of me tends to be of drooping more and like a tired eye lid. I to be of also had of a hystorectomy 5 months ago and feel the health of me has improved in some areas and gotten worse for me in other ways too, I to went to the ER this weekend for female isues of bleeds and not sure of why because should not be of to have of that once of the hystorectomy and went in and the insides of me were of a mess. the hospital doctors was of greatly questioning that they felt someone was of harming me inside of the body and kept asking of much questions because of the large rips and tears and bleeding areas. they called of a speicalist in to see of my body inside and he felt it was of possible polyps that had ruptured or ripped or teared of some how. so now have of to go back to the GYN for more surgery. the reason I to shares of this too is that because of the health things to me they have had to constently put of me to antibiotics over and over and naprosyn, and vicadin and other sorts of medicines... all these things needed for the pain and infections but also due to my autism has caused of me to be of a mess inside and more than likly have a major issues to yeast over growth. so yes wil need of a good probiotic sort of things and to a rigid strict diet to prevent of more yeast issues. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Sondra I feel for you. Stay srong this may have been hard for you to write but I think it helped others.VSL#3 does help (great probiotic) very stong no inulin. My daughers bloated belly has gone down and we also use OLE 3 weeks Oregano oil 2 week I mix them in about 1/4 tsp honey at the end of the day and probiotics in morn. Hope this helps. Deb k > > > > pjrd, I to be of reading and not as wise as some here to the diet and bio things but their words are of very good and wise. > > I to be of was unable to take of the vaccine for flu and or the swine flu due to egg suspect allergy and or issues to eggs. but due to fear of the swine flu the medical doctor encouraged and gave of me the shot to prevent of pneumonia.... I to not be of prone to that as only had of it in my current memory once right after a sugery, but within days of to get of that vaccine i to got of sick much sick and for weeks struggled with health issues to it. I to finally ended up getting a pnuemonia even though got of the shot to prevent of me from to get of it... > > odd that never had of that illness, get a shot and within weeks get of pneumonia... strange reaction that even confused of the doctors because it is of not a live vaccine. > > but like of you daughter got agitated, insomina was and still is of a major issues, very stimmy, very off inside of self as if the outside of me and the inside of me are of two very different beings because they are of not coopertating, I to also been of to have major large jerky and odd arm and hand flapping and such. Been of chewinf the sleeves of may of my shirts and some now are of frayed and has of holes to them. that makes of me angry to have some of my favored shirts for my home to be comfortable in are of now a mess on the sleeves and colars, but will not rid of self of them because like of them anyways. > > also my kids noted that my face looks of much pale and the rings under eyes are of noted to be of darker and the one eye of me tends to be of drooping more and like a tired eye lid. > > I to be of also had of a hystorectomy 5 months ago and feel the health of me has improved in some areas and gotten worse for me in other ways too, I to went to the ER this weekend for female isues of bleeds and not sure of why because should not be of to have of that once of the hystorectomy and went in and the insides of me were of a mess. > > the hospital doctors was of greatly questioning that they felt someone was of harming me inside of the body and kept asking of much questions because of the large rips and tears and bleeding areas. they called of a speicalist in to see of my body inside and he felt it was of possible polyps that had ruptured or ripped or teared of some how. so now have of to go back to the GYN for more surgery. the reason I to shares of this too is that because of the health things to me they have had to constently put of me to antibiotics over and over and naprosyn, and vicadin and other sorts of medicines... all these things needed for the pain and infections but also due to my autism has caused of me to be of a mess inside and more than likly have a major issues to yeast over growth. so yes wil need of a good probiotic sort of things and to a rigid strict diet to prevent of more yeast issues. > > sondra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2010 Report Share Posted January 12, 2010 Deb K can you buy of these things to whole foods or to a trader joes? or where can I to buy of them. sondra > > Sondra I feel for you. Stay srong this may have been hard for you to write but I think it helped others.VSL#3 does help (great probiotic) very stong no inulin. My daughers bloated belly has gone down and we also use OLE 3 weeks Oregano oil 2 week I mix them in about 1/4 tsp honey at the end of the day and probiotics in morn. Hope this helps. Deb k > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 I would also like to recommend the VSL3 if your doctor says it's OK for your daughter. One of my daughter's doctors put her on it this week and it started working immediatly. I had never heard of it before that. It's supposed to be given under the care of a doctor. Each sachet has arount 450 Billion CFU. This is the " big gun " probiotic. > > > She has gotten the Flu shot as well as the one for Swine Flu. She > > > started really having problems after the one for Swine. It's > > > coincidental I know but her whole being has changed. > > > > Definitely not coincidental. Those shots can cause very serious > > neurological damage and radical changes in personality and behavior. > > > > > > > She did just have a really nasty cold and finished the Antibiotics > > > a few days ago. > > > > Why would she take antibiotics for a cold? Did she have a secondary > > bacterial infection and was a culture done? From what you are > > describing, it sounds like she also has severe yeast issues from > > antibiotic use. I would implement a multi-faceted yeast protocol and > > supplement probiotics indefinitely. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 Hi Sondra:) you can get the caps and order them from the pharmacy.I was giving 1 cap a day splitting it up in her cocunut milk yogurt.Now down to 1/2 cap.Will up it if infection or cold appears. Much luck! Deb K > > > > She has gotten the Flu shot as well as the one for Swine Flu. She > > > > started really having problems after the one for Swine. It's > > > > coincidental I know but her whole being has changed. > > > > > > Definitely not coincidental. Those shots can cause very serious > > > neurological damage and radical changes in personality and behavior. > > > > > > > > > > She did just have a really nasty cold and finished the Antibiotics > > > > a few days ago. > > > > > > Why would she take antibiotics for a cold? Did she have a secondary > > > bacterial infection and was a culture done? From what you are > > > describing, it sounds like she also has severe yeast issues from > > > antibiotic use. I would implement a multi-faceted yeast protocol and > > > supplement probiotics indefinitely. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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