Re: What type of doctor, What tests? Husband's not supportive.

March 9, 2011

Tests can undertaken to determine the state of your son's gut. Where are you located as someone on list can suggest a practioner for you to go and see. Marina

My son 3.4 y.o. is undergoing an assessment for ASD, we will find out the result in a couple of days. Having found out about Biomedical approach in treatment of autism I, as a mother, decided to give it a go. We started a CFGF diet 3 weeks ago and have seen some improvement: such as more communication, better eye contact, more speech. However after a week his condition stalled and he became more tired, often having red cheeks, often babbling away.

My husband has been supporting me with CFGF diet at the beginning, but when I started taking some other products out of my son's diet like tomatoes, bananas, soya, etc. he raised a concern and addressed to GP seeking for medical opinion. He is waiting for the referral to a specialist, we don't know what type of doctor (maybe paediatrician or gastroenterologist), what tests my son would need to take and what we need to find out and WHY?

My husband's aim is to treat my son's gut because diarrhea persists for more than a week now after having a good stool for several days at the beginning of the diet. He undermines my attempt to treat my son from Candida, which I diagnosed myself by overall symptoms.

Should I refrain from self-administering treatment of my son and seek for advice of some other specialist? How would I know what I am doing is not doing any harm for my son?Pease help me understand what can I do to help my son correctly and how to direct my husband to the right way in his will to help his son. Does anyone know a good doctor (and what type of doctor) on NHS or private with Doctor diploma that could help us heal my son's gut and take the right tests. Please advice.

Thanks,

March 9, 2011

We are from Bolton area, Lancashire. What tests should be understaken? What are

they looking in the tests? And what type of doctor we need?

Thanks

>

> Tests can undertaken to determine the state of your son's gut. Where are

> you located as someone on list can suggest a practioner for you to go and

> see. Marina

March 9, 2011

I think it's best to ask your husband to read a book written by a DR

such as 'changing the course of autism' by Dr Jepson. Also explain

(as it does in the book) that mainstream medicine is not up to date with

the latest autism treatments and that, if you can afford it, you are

better off seeing a specialist dr like Dr Goyal at the Breakspear in

Hemel Hempstead.

Also attend the Treating Autism conference in London on June 18th and

19th or try to make it to one of the DAN! or Autism one conferences in

the states.

Sara x

March 9, 2011

If you go to the treating autism website you will find a list of practitioners across the UK. Most will carry out a stool and urine test, further you can do a Genova blood test and also a hair element test. Marina

We are from Bolton area, Lancashire. What tests should be understaken? What are they looking in the tests? And what type of doctor we need?Thanks >> Tests can undertaken to determine the state of your son's gut. Where are

> you located as someone on list can suggest a practioner for you to go and> see. Marina

March 9, 2011

I wouold suggest perhaps consider asking for a referral to an NHS dietician for

advice in implementing a gluten- and dairy- free diet. Then everyone is likely

to relax and know that you are being reasonable (in their terms), following

medical advice, etc and it's less likely you will have any opposition to your

trying the diet. In the mean time I would suggest just concentrating on doing

GFCF and not taking anything else out of the diet. It's important with GFCF not

to replace those foods with lots of refined carbs and sugar. I don't know how

hold your child is but you need to look into their required calcium needs and

make sure that they are getting enough. Some people supplement calcium. At least

one study has shown that children on a GFCF diet tend to have weaker bones, so

that is a reason for being careful about giving your child enough dietary

calcium - and to be able to show that your are doing this.

Margaret

>

> My son 3.4 y.o. is undergoing an assessment for ASD, we will find out the

result in a couple of days. Having found out about Biomedical approach in

treatment of autism I, as a mother, decided to give it a go. We started a CFGF

diet 3 weeks ago and have seen some improvement: such as more communication,

better eye contact, more speech. However after a week his condition stalled and

he became more tired, often having red cheeks, often babbling away.

> My husband has been supporting me with CFGF diet at the beginning, but when I

started taking some other products out of my son's diet like tomatoes, bananas,

soya, etc. he raised a concern and addressed to GP seeking for medical opinion.

He is waiting for the referral to a specialist, we don't know what type of

doctor (maybe paediatrician or gastroenterologist), what tests my son would need

to take and what we need to find out and WHY?

> My husband's aim is to treat my son's gut because diarrhea persists for more

than a week now after having a good stool for several days at the beginning of

the diet. He undermines my attempt to treat my son from Candida, which I

diagnosed myself by overall symptoms.

> Should I refrain from self-administering treatment of my son and seek for

advice of some other specialist? How would I know what I am doing is not doing

any harm for my son?

> Pease help me understand what can I do to help my son correctly and how to

direct my husband to the right way in his will to help his son. Does anyone know

a good doctor (and what type of doctor) on NHS or private with Doctor diploma

that could help us heal my son's gut and take the right tests. Please advice.

> Thanks,

>

March 9, 2011

Thank you Margaret!

I see you understand our situation quite well. My husband is the worst sceptic

ever and no book (which he refuses to read) or any other opinion will convince

him apart from the word of the specialist.

My husband is arranging an appointment to a private doctor and HALLILUJA, that

is a dietician. We will go privately shortly as soon as he sorts out with

insurance company and GP referral. Will dietician suggest undergoing the test on

gluten and casein tolerance? I heard in this case you have to fill your child

with as much as gluten and casein the day before testing. Brrrr..... that sounds

scary to me as we are not having it for more than 3 weeks now. Yes, we still

have some problems with the diet, and did not rotate anything properly to find

out his allergies yet, but I took out soya just in case and reduced the amount

of fructose and fruits he is taking (1 pear, or 2 plums or 1 kiwi and 1 plum a

day), which made him at some point very tired and weak. So I am not sure if I

should cut out fructose from his diet at all or give him just small amounts, and

how much.

Calcium: that is the reason why my husband urged to investigating my

interference in my son's diet (he is 3 years and 4 month old now). We drinking

GFCF milk with no Calcium in it (I bought Almond Milk from H & B plus we try Kallo

Low fat Rice milk). Do we need to switch to the Milk with Calcium?

I am not sure about what substitute for the milk is the best at the moment,

could you please advise me on that???

Do we also need to take Calcium in the supplement? But if my son cannot digest

anything at the moment (He's got yellow acid-smelly diarhea for 2 weeks now

after the beginning of the diet. I think it could be because of GSE and fish oil

(the latter my husband insisted on giving to my son) he won't be able to digest

calcium as well. And you are right, I don't know what amount of calcium I need

to give to my son. We need to go and see the dietician.

March 9, 2011

I hope you get an NHS dietician who is supportive. I think the way to go is

maybe to say to them you want to try the GFCF diet as there is some evidence it

helps some chidlren with autisn, but you are aware that you need to make sure

your child gets all the nutrients they need, The dietician will be able to

advise you re how much calcium to supplement.

Now, it's not at all straightforward. Some parents on this list report that

their children react badly to calcium supplements, but others don't report this

as a problem. So you may need to try various brands and types - I am sure there

are people on this list who can sy what they are using. Obviously you won't be

wanting to go down the route of replacing milk with soya, even though there are

readily-available soya products with added calcium.

It's important to go slowly and in a systematic manner, as otherwise if things

improve or get worse you won't have any chance of working out the cause.

It can't be guaranteed that the NHS dietician will be helpful, but we haven't

had any problems. Professionals have their pride and some of them really resent

it when you try to take charge - so try asking for their help, while saying what

it is you would like to be considered. It's important to try and keep them on

side as far as possible; that said quite a few of us here have had unpleasnat

disagreements with one of more of them.

Margaret

PS: I can't recommend any particular replacement for milk. We used to used Rice

Dream with calcium, but then it was found not to be 100% gluten-free (some

barley enzymes), then rice milk was found to contain some arsenic, because rice

itself contains arsenic. It's hard to know how signifiacnt this is - it would

depend on how high the level was and also how much you were drinking - but it

has been reported that Basmati rice has the lowest level. There are nut milks

but I've never used them - and some people are allergic to nuts, of course. At

some stage you may want to try sheep's milk and then goat's milk.

>

> Thank you Margaret!

> I see you understand our situation quite well. My husband is the worst sceptic

ever and no book (which he refuses to read) or any other opinion will convince

him apart from the word of the specialist.

> My husband is arranging an appointment to a private doctor and HALLILUJA, that