Guest guest Posted March 5, 2011 Report Share Posted March 5, 2011 Just wanted to say that we too had glutamine recommended for our ds (with epilepsy) after biomed testing, his seizures appeared to increase on it, so we stopped it. Now under NHS metabolic team his blood glutamine levels have consistently come back very low, just waiting to hear outcome of CSF levels.... > > Hi all, > My Ds Homeopath has recommended we use Glutamine powder(amino acid)by Higher Nature,to aid with gut healing. I havent heard this supplement mentioned on here and I seem to remember reading somewhere that this is not good for our children. Could anyone clarify whether this is beneficial? Has anyone used it? Thanks for any help. Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2011 Report Share Posted March 5, 2011 As I keep saying, whether a particular treatment / supplement is likely to be of benefit will depend what is causing the problem. L-glutamine taken orally can improve brush-border membrane function in the intestinal wall and reduce uptake of larger compounds into the bloodstream where this is an issue. The original recommendations were when Shattock was finding evidence of IAG and BC7 in urine which would have had to come via this route.Many supplements can exascerbate seizures depending on the metabolism of the individual - some B vitamins can also have this effect. Exercise regimes can, in the initial stages lower seizure threshold, but this tends to lessen as the person's fitness levels increase .......Ken Subject: Re: GlutamineTo: Autism-Biomedical-Europe Date: Sunday, 6 March, 2011, 0:53 Just wanted to say that we too had glutamine recommended for our ds (with epilepsy) after biomed testing, his seizures appeared to increase on it, so we stopped it. Now under NHS metabolic team his blood glutamine levels have consistently come back very low, just waiting to hear outcome of CSF levels.... > > Hi all, > My Ds Homeopath has recommended we use Glutamine powder(amino acid)by Higher Nature,to aid with gut healing. I havent heard this supplement mentioned on here and I seem to remember reading somewhere that this is not good for our children. Could anyone clarify whether this is beneficial? Has anyone used it? Thanks for any help. Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 In some kids it seems the glutamine does not follow the usual pathway.....such as my son! In his case, glutamate was causing hallucinations – 3 big episodes when he ate things he should not have- and lowering even the natural glutamates found in food [we cut out peas, for example] really helped. There is a diet called GARD [glutamate and amine reduced diet] which can be used to reduce seizures. When was low in particular amino acids, we gave him an amino blend and he became quite grouchy and was not at all himself. I believe it was because it also contained l-glutamine. Stopping the aminos resolved the issue. HOWEVER, i do know that it can help to heal the gut in kids who process it correctly......it was Donna that had recommended it to me in the early days. However, in it resulted in bad temper and aggression. Depite many things having improved over the years, this amino blend reminded me of that previous time. We avoid glutamate still. in Edinburgh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 This is a reference to the Glutamate-Aspartate Restricted Diet that I discussed in Ch 9 of my ASD diet book. You can access more information from http://dogtorj.tripod.com/id107html It was developed from a diet originally noted to help labradors that were prone to epilepsy, hence the veterinary interest, and was subsequently fornd to be helpful in some human seizure-related conditions as well. Ken Subject: Re: GlutamineTo: Autism-Biomedical-Europe Date: Monday, 7 March, 2011, 10:01 In some kids it seems the glutamine does not follow the usual pathway.....such as my son! In his case, glutamate was causing hallucinations – 3 big episodes when he ate things he should not have- and lowering even the natural glutamates found in food [we cut out peas, for example] really helped. There is a diet called GARD [glutamate and amine reduced diet] which can be used to reduce seizures. When was low in particular amino acids, we gave him an amino blend and he became quite grouchy and was not at all himself. I believe it was because it also contained l-glutamine. Stopping the aminos resolved the issue. HOWEVER, i do know that it can help to heal the gut in kids who process it correctly......it was Donna that had recommended it to me in the early days. However, in it resulted in bad temper and aggression. Depite many things having improved over the years, this amino blend reminded me of that previous time. We avoid glutamate still. in Edinburgh Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.