Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 We had the 23 hour EEG done in August at Memorial Hermann. I was really dreading it, but amazingly things went well. They wanted to immediately papoose him which made me a bit upset. I guess they assume all of our kids will fight when putting on the electrodes. We popped in one of his favorite DVDs and I got in bed with him and held his hands. It took about 30 minutes to get him hooked up. They put a cap on with the wires coming out the back. I wasn't sure what to expect, but he did super! Bring all your electronics...DS, Wii, all you CD's to keep him busy. It's a long 24 hours, but worth it to have that valuable information. We also brought a box fan to drown out the noise. Also, if you are on a special diet bring food! Blessings, Subject: 23 hours EEGTo: "Texas-Autism-Advocacy" <Texas-Autism-Advocacy >Date: Tuesday, January 5, 2010, 9:33 PM We saw Dr. Frye and he wants to have one at Memorial Hermann.We will make an effort but I honestly don't think that we will be successful. I don't think will put up with all the wires and the glue and the sitting still...etc.I was wondering if any of the list can share their experience and also whether Texas Children would be a better place for an EEG.Thanks, ------------------------------------Texas Autism Advocacywww.TexasAutismAdvocacy.orgTexas Disability Network Calendar of Eventswww.TexasAutismAdvocacy.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 We had the 23 hour EEG done twice. It is extremely boring but not too bad. Bring as much " entertainment " as possible. Movies games favorite toys, whatever you can think of! Bring snacks and juice or whatever you can to pass the time. Sammy didnt really have a problem with the wires. I thought he would but it did get itchy after a while. We did it at Memorial Hermann as well. > > We saw Dr. Frye and he wants to have one at Memorial Hermann. > > We will make an effort but I honestly don't think that we will be > successful. I don't think will put up with all the wires and the glue and > the sitting still...etc. > > I was wondering if any of the list can share their experience and also > whether Texas Children would be a better place for an EEG. > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 My dd is 5 and we've had it done twice within the last 2 years at TCH. I totally agree with the others. The worst part, in my opinion, is taking the electrodes off and dealing with all the glue in the hair. (especially for a girl) Don't forget to take pictures! lol Good Luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2010 Report Share Posted January 7, 2010 For those that have had the EEG, what symptoms prompted the doctor to order it? My son is a patient of Dr. Frye and we see him later this month. My son has mito dysfunction per testing and muscle biopsy. We are to go over the last of the testing..' > > > > We saw Dr. Frye and he wants to have one at Memorial Hermann. > > > > We will make an effort but I honestly don't think that we will be > > successful. I don't think will put up with all the wires and the glue and > > the sitting still...etc. > > > > I was wondering if any of the list can share their experience and also > > whether Texas Children would be a better place for an EEG. > > > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 My son has had 2 ,24hr (sleep deprived) EEG's over the years ,First one was at age 4. Both times he did fine. They did need to sedate him to get the electrodes on and off since it does take a bit of cooperation on the childs part. also he slept the meds off so it really reduced the amount of time we had to " entertain " him while awake . We had to cut his hair pretty close to his scalp due to the glue used to secure the electrodes. I used conditioner or finger nail polish remover to get the glue out after it was over. If I recall the hair conditioner worked best to work it through and pull or comb the glue particles out. He didnt have a skull cap but the tech wrapped his head ,after securing the electrodes, in gauze. So all the wires came from the top of his head, there was no way he could pull at them and he didn't even bother them at all. I remember the first time we stayed at a nearby hotel(we used to live in CA, so this was done at childrens hosp. San Diego) and he pretty much slept through the day anyway which made the day go faster. Like everyone else , ditto on the dvd's etc. Thankful for them! > > My son had to have a sleep-deprived EEG. He had severe staring spells that, > in my opinion, frighteningly resembled catatonia. He also had tremors with > nystagmus, so they wanted to rule out seizure disorder. > > Haven > Quote Link to comment Share on other sites More sharing options...
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