Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 , The rate of recovery is very individual and unfortunately, generally quite slow, so patience, patience, patience. However, some people are extremely lucky and do have improvement quickly. If you do, bonus! If not, hang in there, ask for help and encouragement when you need it and just keep plugging along. You'll get there eventually. a Peden Coppes wrote: > > From: " Coppes " <karencoppes@...> > > Just had my last IV tonight. I'm taking 100 mg 3 times a week orally. So > far I haven't experienced any dramatic results but then maybe I won't. I've > had RA for only 2 years and am hoping my recovery will be short. Am I > asking too much? > > At the beginning of the IV therapy my sed rate was 135 and now I know why I > hurt so much. Tomorrow I'll know if it's come down any. > > Coppes > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 , Good for you! I wish I had been in on this group when I did my first treatments,( That first week afterwards they would probably kicked me out as a whiner !) I have found it very helpful to follow their suggestions and even if the day has been really rough, I geet to come in here at night and read my messages and it helps. Everyone knows what you're going thru. So good luck and keep us posted. Blessings T. Coppes wrote: > From: " Coppes " <karencoppes@...> > > Just had my last IV tonight. I'm taking 100 mg 3 times a week orally. So > far I haven't experienced any dramatic results but then maybe I won't. I've > had RA for only 2 years and am hoping my recovery will be short. Am I > asking too much? > > At the beginning of the IV therapy my sed rate was 135 and now I know why I > hurt so much. Tomorrow I'll know if it's come down any. > > Coppes > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 Hi , You have just gotten into the hardest part of the therapy ---- the waiting. It seems like it takes a long time to get better but it is well worth the wait. My wife, Skip, has had RA for 12 years and I could only watch as conventional medicine put her through all the tried and fool medications that put her through hell for 11 of them. Prednisone, Plaqenil, Methotrexate, Gold Shots -- She had them all. Thank God she got started on the AP before she got bad enough to have to have any joint replacements. Her life two years ago was a mess of pills and lost days, aches and pains, leaving the house only when she had to. Today she is 70 - 75% better. She still has a bad day once in a while. The " Two Steps Back " will follow the " Three Steps Forward " and some days you will believe the next step forward will never come -- but it does. Skip keeps a journal of her days from the first day of starting AP. It helped a lot because the progress can be so slow at times that there were times I told her to go back and read her journal from when she started the AP and see how she had improved. It is hard to be patient when you hurt so bad. In the last two weeks I have seen her doing things that she has been unable to do for a long, long time. At her last visit to the Dr.( our family Dr. who would not go any farther than prescribing Minocin--- alternative medicine you know) he told her she was definitely better and asked her how she was doing it. She told him that one day she would make an appointment and tell him the whole story. I think that day may not be too far off. Be patient, ask lots of questions of this great group of people and heed the advice you get, and most of all do not give up. It will get better and you will get your life back. Denny and Skip RA-12 yrs AP-14 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 1999 Report Share Posted October 9, 1999 Coppes wrote: > > From: " Coppes " <karencoppes@...> > > Just had my last IV tonight. I'm taking 100 mg 3 times a week orally. So > far I haven't experienced any dramatic results but then maybe I won't. I've > had RA for only 2 years and am hoping my recovery will be short. Am I > asking too much? There is no way to determine if you will be an early responder or not. If you have other problems (sinus, allergies, intestinal, etc. anywhere else in the body, they need to be dealt with too for optimum results. > > At the beginning of the IV therapy my sed rate was 135 and now I know why I > hurt so much. Tomorrow I'll know if it's come down any. Don't be surprised if it goes up rather than down. > Ethel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Hello. There is a possibility that is will have to have surgeryif the helmet doesnt help by the time she's 18 months. Do you thinkthere is some truth that eventually her flat spot will round out? Ireally hate the thought of her having to go through surgery....butthen again, I want her to have a " normal " head shape. Any input onthis would be greatly appreciated. Thanks.Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Hi Kat, I really enjoyed this post because you put into words the feelings of everyone who is waiting for their surgery and hook up. It's one of the toughest parts of the procedure and brings with it many emotions. It sounds as if you are doing the right thing by keeping busy and getting everything ready so that when you come home from the hospital, you won't have to worry about them. I don't have severe allergy/sinus issues but I do experience them and this is the time of the year when they are the worst. Snoopy can really tell you what to expect with regard to them as she has some significant problems with allergies. One thing to note is that once you have the implant, you should not have any difficulties with hearing because of your sinus issues. July 2nd is not far away at all although it probably seems like an eternity right now. You should easily be able to hear fireworks this year and thunderstorms and all the sounds of summer that you have missed. You may not identify them all easily so don't forget to ask when you hear something you are not sure about. I'm anxiously awaiting your big day and looking forward to hearing from you as you take each step forward to the miracle. Alice N24 11/99 N24C 04/03 Bilateral Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2010 Report Share Posted September 26, 2010 Hi Cheri, I assume this means you are going to have the sleeve surgery. You do not want the band, it seems to have too many issues and problems. You will love the sleeve. I went alone and you spend about 1.5 hours riding in the Van from the airport in San Diego with other people who are going for the same weight loss surgery. Ernesto is the drive and he is very nice. For me the time went really fast because we were all so busy talking and sharing information about ourselves. The Van is very nice and comfortable. Ernesto will point out different things along the ride to Mexicali. When you get to the boarder the hospital is only about 5 blocks from the boarder. There is nothing to be scared or worried about. The hospital is beautiful and clean and very modern. You are making the best choice you could to lose this weight and save your life. I only wished I would have done this earlier in my life. You are very smart to do it know. It is going to change your entire life for the rest of your life. You are going to feel so much better and you will be healthy. Congratulations on making this choice. Remember the surgery is ONLY a tool. This is NOT a magical cure and the fat won't just melt off you. You have to work at it and that means making good food choice and start to exercise. We all hate the word exercise and hate doing it, but you NEED to do it. Start out with walking--or what ever you like to do to get yourself up and moving around more. You need to do something, and for me walking was the best way to start. Check out some of the photo albums of the people on here and see the before and after pictures. We are all real and honest people who have had this surgery. Hugs, Suzanne 225 120 125 Start Now Goal weight Selleved 10/21/2008 Quote Link to comment Share on other sites More sharing options...
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